scholarly journals More Than Words: The Use of Video in Ethnographic Research With People With Intellectual Disabilities

2018 ◽  
Vol 29 (7) ◽  
pp. 931-943 ◽  
Author(s):  
Alexandra Kaley ◽  
Chris Hatton ◽  
Christine Milligan

There is a tendency to exclude people with intellectual disabilities from participating in research about their own lives. While the use of participatory research approaches is increasing, the methods used for engaging people with intellectual disabilities in research are generally limited to interviews and focus groups. Yet a focus on the spoken or written word can present a challenge for those who may prefer to use alternative forms of communication. The purpose of this article is to share the methodological insights gained from a visual ethnographic study that sought to explore the experiences of people with intellectual disabilities engaged in nature based (or “green care”) therapeutic interventions for health and well-being. If used within carefully negotiated relationships, we suggest that video can be an empowering visual medium for doing research that can help to elicit the experiences of people with intellectual disabilities firsthand, without having to rely on the views and perspectives of other people.

Author(s):  
Owen Barr ◽  
Bob Gates

This chapter outlines a variety of therapeutic interventions that are more commonly used with people with intellectual disabilities to help them address challenges to their health and well-being. Typically, some of these interventions are used by specialist therapists, but increasingly nurses for people with intellectual disabilities are developing specialist and advanced areas of practice. Each section, where appropriate, not only describes the intervention in detail, but also identifies the evidence base supporting it. Nurses for people with intellectual disabilities and students of nursing will find this chapter a useful resource in their everyday practice.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Gemma Rogers

Purpose This paper aims to consider the experiences of people with intellectual disabilities in relation to the COVID-19 pandemic and subsequent lockdown restrictions. Design/methodology/approach This commentary reflects on the issues raised by Morris et al., and in the wider literature. Findings Although there have been some benefits to lockdown for people with intellectual disabilities, mainly they have experienced isolation, increased mental health and well-being challenges, difficulty in accessing services, support and adequate adapted information. Originality/value This commentary argues that it is important to continue to capture the experiences of people with intellectual disabilities now and over time to assess the long-term consequences of the pandemic and to design services which are respondent to their needs.


Author(s):  
Owen Barr ◽  
Bob Gates

This chapter explores in detail aspects of health in children, adults, and older people with severe intellectual disabilities. It reviews why they have higher health needs when compared with the general population. It also identifies the different pattern of physical health needs and the high comorbidity in this group of people, as well as explores how many health needs can remain untreated. It demonstrates that the health profile of people with mild intellectual disabilities is similar to the wider population, once socio-economic factors are taken into account, although importantly they may experience more difficulty in accessing health promotion and primary and secondary care services. As a result of these factors, which include unmet health needs, many people die unnecessarily and at a premature age. This chapter uniquely provides comprehensive coverage of the very many factors compromising health and well-being, along with providing a range of strategies that registered nurses for people with intellectual disabilities can adopt in order to support health and well-being.


2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512520378p1-7512520378p1
Author(s):  
Yasmeena Ougayour ◽  
Kathryn Bach ◽  
Megan Gray ◽  
Karla Ausderau ◽  
Brittany St John

Abstract Date Presented 04/13/21 Individuals with intellectual disabilities have a high risk for obesity. The effectiveness of community-based interventions at improving obesity-related outcomes was assessed. Results showed low to moderate evidence for nutritional, physical activity, and health knowledge and self-efficacy outcomes and low evidence for physical fitness. OTs are well suited to align community-based interventions with meaningful outcomes to improve the health and well-being of people with intellectual disabilities. Primary Author and Speaker: Yasmeena Ougayour Additional Authors and Speakers: Stacey Reynolds


2020 ◽  
Vol 73 (7-8) ◽  
pp. 221-228
Author(s):  
Daniela Tamas ◽  
Nina Brkic-Jovanovic ◽  
Danica Vasiljevic

Introduction. Type of housing is of great importance for the overall quality of life and general psychosocial well-being of persons with intellectual disabilities, as evidenced by the results of numerous studies showing that people with intellectual disabilities living in institutions have a lower level of life satisfaction compared to those living in the open community. Material and Methods. In order to determine the levels of experienced stress related to the type of housing in people with intellectual disabilities, we carried out a study including 122 persons with intellectual disabilities living in different types of housing; in institutions (n = 51), with families (n = 38), and in the supported housing program (n = 33). The Life Stress Inventory was used for the purpose of this research. Results. The results showed that people who were included in the supported housing program experienced the least stress, compared to the subjects who lived with their families or in institutions (p < 0.001). Stress was the least prevalent in the supported housing program, but the other two groups had similar results. The presence of stress did not differ significantly between subjects living with their families and those living in institutions. Conclusion. We can conclude that subjects living in supported housing experienced significantly less stress compared to the other two groups. Different types of housing were associated with different levels of stress. Overall, negative interpersonal relationship was identified as the stress factor that correlated most significantly with other stress factors.


2017 ◽  
Vol 8 (4) ◽  
pp. 201-211 ◽  
Author(s):  
Rose White ◽  
Katherine Lister ◽  
Kristian Northend ◽  
Stephen Moore ◽  
Kelly Rayner

Purpose People with intellectual disabilities (ID) can be vulnerable to developing mental health problems. It has been found that participating in regular exercise can help to improve emotional well-being, both in typically developing people and those with ID. The purpose of this paper is to investigate the experiences of community clients with ID who have engaged in a football training programme, and the perceived impacts on attitudes, mood and behaviour. Design/methodology/approach Interviews with seven patients from generic or forensic community ID services were conducted. The transcripts were analysed using interpretative phenomenological analysis. Findings Two master themes were identified from the interviews, “Striving” and “Togetherness”. Originality/value The most important factors related to taking part in the football programme were the social, emotional and personal growth associated with being part of a team and general enjoyment of being part of something. Although aspects of football knowledge and physical fitness were still evident, their impact seemed to be less significant. The experience of football was overwhelmingly positive.


2004 ◽  
Vol 95 (2) ◽  
pp. 386-390 ◽  
Author(s):  
Auxiliadora Durán ◽  
Natalio Extremera ◽  
Lourdes Rey

This study examined the relationship among dimensions of self-reported Emotional Intelligence, Engagement and Burnout, using the Trait Meta-Mood Scale, Maslach Burnout Inventory and Utrecht Work Engagement Scale in a sample of Spanish professionals who work at institutions for people with intellectual disabilities. The results showed that Emotional Clarity was significantly associated with Personal Accomplishment ( r = .25) and Dedication ( r = .25). Further, Repair to moods was significantly correlated with all Engagement dimensions (.20 Vigor, .30 Dedication, .36 Absorption) and with Personal Accomplishment (.31). These findings extend previous research with college students in which Clarity and Repair to moods subscales were relevant predictors of well-being indexes and interpersonal functioning and suggest that the Trait Meta-Mood Scale subscales also show significant relationships with emotional functioning and work-related variables in a professional sample.


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