Quality of life, sleep and rheumatoid arthritis (QUASAR): a protocol for a prospective UK mHealth study to investigate the relationship between sleep and quality of life in adults with rheumatoid arthritis

IntroductionPeople with rheumatoid arthritis (RA) frequently report reduced health-related quality of life (HRQoL), the impact one’s health has on physical, emotional and social well-being. There are likely numerous causes for poor HRQoL, but people with RA have identified sleep disturbances as a key contributor to their well-being. This study will identify sleep/wake rhythm-associated parameters that predict HRQoL in patients with RA.Methods and analysisThis prospective cohort study will recruit 350 people with RA, aged 18 years or older. Following completion of a paper-based baseline questionnaire, participants will record data on 10 symptoms including pain, fatigue and mood two times a day for 30 days using a study-specific mobile application (app). A triaxial accelerometer will continuously record daytime activity and estimate evening sleep parameters over the 30 days. Every 10 days following study initiation, participants will complete a questionnaire that measures disease specific (Arthritis Impact Measurement Scale 2-Short Form (AIMS2-SF)) and generic (WHOQOL-BREF) quality of life. A final questionnaire will be completed at 60 days after entering the study. The primary outcomes are the AIMS2-SF and WHOQOL-BREF. Structural equation modelling and latent trajectory models will be used to examine the relationship between sleep/wake rhythm-associated parameters and HRQoL, over time.Ethics and disseminationResults from this study will be disseminated at regional and international conferences, in peer-reviewed journals and Patient and Public Engagement events, as appropriate.

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The relationship between coping, emotion regulation, and quality of life of patients on dialysis

The International Journal of Psychiatry in Medicine ◽

10.1177/0091217417720893 ◽

2017 ◽

Vol 52 (2) ◽

pp. 111-123 ◽

Cited By ~ 8

Author(s):

Nadia Barberis ◽

Valeria Cernaro ◽

Sebastiano Costa ◽

Gaetano Montalto ◽

Silvia Lucisano ◽

...

Keyword(s):

Quality Of Life ◽

Emotion Regulation ◽

Emotional Regulation ◽

Short Form ◽

Well Being ◽

Cognitive Emotion Regulation ◽

Avoidance Strategies ◽

The Impact ◽

The Relationship

Previous studies have investigated constructs that facilitate adaptation to chronic disease and improve quality of life and constructs that lead to psychopathological complications. The purpose of this research is to investigate the impact of coping and emotional regulation on the quality of life of patients on dialysis. Three questionnaires were administered to 78 patients on dialysis: Coping Orientations to Problems Experienced, Short Form (36), and Cognitive Emotion Regulation Questionnaire. Regressions analyses indicated that age, Rumination, Positive Refocusing, Avoidance Strategies, Approach to the Problem, and Transcendent Orientation predicted Physical Health. With regard to Mental Health, the predictors were gender, Self-Blame, Acceptance, Rumination, Positive Reappraisal, Catastrophizing, Avoidance Strategies, and Transcendent Orientation. This study confirms the relationship between emotional regulation, coping, and quality of life. The results highlight the need for total care of the patients, including an assessment of both physical state and psychological functioning in order to promote total well-being.

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COVID-19 Pandemic and Quality of Life among Romanian Athletes

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18084065 ◽

2021 ◽

Vol 18 (8) ◽

pp. 4065

Author(s):

Germina-Alina Cosma ◽

Alina Chiracu ◽

Amalia Raluca Stepan ◽

Marian Alexandru Cosma ◽

Marian Costin Nanu ◽

...

Keyword(s):

Quality Of Life ◽

Trait Anxiety ◽

Negative Impact ◽

Well Being ◽

Quality Of Life Scale ◽

Life Scale ◽

Personality Item ◽

The Impact ◽

The Relationship

The aim of this study was to analyze athletes’ quality of life during the COVID-19 pandemic. The study involved 249 athletes between 15 and 35 of age, M = 21.22, SD = 5.12. The sample was composed of eight Olympic Games medalists, three European medalists, 67 international medalists, and 63 national medalists. The instruments used were: (1) COVID-19 Anxiety Scale, (2) Athlete Quality of Life Scale, (3) Impact of Pandemic on Athletes Questionnaire, and (4) International Personality Item Pool (IPIP Anxiety, Depression, and Vulnerability Scales). The results indicate significant differences in COVID-19 anxiety depending on the sport practiced, F (9239) = 3.81, p < 0.01, showing that there were significant differences between sports. The negative impact of the COVID-19 pandemic mediates the relationship between trait anxiety and the athletes’ quality of life. The percentage of mediation was 33.9%, and the indirect effect was −0.11, CI 95% (−0.18, −0.03), Z = −2.82, p < 0.01. Trait anxiety has an increasing effect on the intensity of the negative impact of the COVID-19 pandemic, 0.23, CI 95% (.10, 0.35), Z = 3.56, p < 0.01, and the negative impact of the COVID-19 pandemic has a decreasing effect on quality of life, −0.47, CI 95% (−0.67, −0.27), Z = −4.62, p < 0.01. Gender and age did not moderate the relationship between the negative impact of COVID-19 and athletes’ quality of life. The results of the study highlighted the impact that social isolation and quarantine have on athletes’ affective well-being.

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Impact of Design on Emotional, Psychological, or Social Well-Being for People With Cognitive Impairment

HERD Health Environments Research & Design Journal ◽

10.1177/1937586718813194 ◽

2018 ◽

Vol 12 (3) ◽

pp. 220-232 ◽

Cited By ~ 4

Author(s):

Elizabeth Karol ◽

Dianne Smith

Keyword(s):

Quality Of Life ◽

Cognitive Impairment ◽

Literature Review ◽

Thermal Comfort ◽

Well Being ◽

Design Expertise ◽

Relationship Of ◽

The Impact ◽

The Relationship

Aim:The objective of this article is to identify and analyze what is known about characteristics in and around the home that support well-being for those with cognitive impairment. This could provide direction for designers of homes in general, but specifically for designers trying to meet the needs of people with cognitive impairment.Background:It has been established that there is a relationship between psychological well-being and a person’s environment. Research also shows that particular design aspects can reduce the impact of cognitive impairment. However, there is limited design expertise in the Australian housing market to create supportive spaces which will help to reduce the impact of the disability for those with cognitive impairment.Method:A literature review was carried out to determine the extent and details of what is known about the relationship of home design and its impact on emotional, psychological, or social well-being for people with cognitive impairment.Conclusions:The study indicates that researchers in various disciplines understand that pragmatic design inputs such as thermal comfort and adequate lighting are important for people with cognitive impairment. In addition, some researchers have shown or surmise that there are other “intangible” designer-controlled elements that have beneficial impacts on people with cognitive impairment. Details of these intangible elements are sparse, and how much they might improve the quality of life for a person with cognitive impairment is not well understood. Further research is required to meet a growing need.

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The Influence of Attending Festivals with Children on Family Quality of Life, Subjective Well-Being, and Event Experience

Event Management ◽

10.3727/152599521x16192004803593 ◽

2021 ◽

Author(s):

Yi Liu ◽

Jason Draper

Keyword(s):

Quality Of Life ◽

Family Relationships ◽

Structural Equation ◽

Well Being ◽

Equation Modeling ◽

Family Quality Of Life ◽

Subjective Well Being ◽

Family Activity ◽

The Relationship

Participants attending a festival(s) with children is a family activity that influences family relationships. This study examines the relationship between attending status (e.g., with or without children), event experience, subjective well-being, and family quality of life (FQOL). A total of 585 festival participants’ data analyzed by structural equation modeling (SEM) revealed that participants attending with children have a higher level of subjective well-being and FQOL compared to those without children. Participants attending with children have a higher level of cognitive engagement and experience novelty in festivals compared to those without children. Event experience results in a significant positive relationship with subjective well-being. This study expands current event literature in terms of FQOL and provides a practical guideline to event organizers to better understand the significance of festivals.

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RELATIONSHIP BETWEEN QUALITY OF LIFE AND MENTAL HEALTH OF PEOPLE WITH TYPE II DIABETES IN RURALAREAS

10.36106/ijsr/2029557 ◽

2021 ◽

pp. 35-37

Author(s):

Selvakumar Jagannathan ◽

Kannan Ramiah ◽

Valarmathy Selvakumar

Keyword(s):

Quality Of Life ◽

Mental Health ◽

Type Ii Diabetes ◽

Well Being ◽

World Health ◽

Mental Condition ◽

Type Ii ◽

The Impact ◽

The Relationship

Background:For populations with chronic disease, measurement of QOLprovides a meaningful way to determine the impact of health care when cure is not possible. Revicki and colleagues (2000) dene QOL as "a broad range of human experiences related to one's overall well-being. It implies value based on subjective functioning in comparison with personal expectations and is dened by subjective experiences, states and perceptions. The World Health Organization (2010) denes mental health as a state of positive mental condition in which one realizes his/her capabilities, manages the life stresses, put effort effectively and efciently, and is competent enough to put some contribution to his/her society. According to mental health model (Veit & Ware, 1983), there are two components of mental health, rst is psychological well-being and the other is psychological distress. Therefore, studying the relationship between quality of life and mental health of People with type II diabetes will reveal that to what extend a good quality of life have a relationship in maintaining better mental health in order to cope up with diabetes complications. Objective:The present study was undertaken to know the relationship between quality of life and mental health of people with Type II diabetes. Sample: 30 Type II diabetes were selected from the Diabetes Management Clinic in Rural areas for the assessment of quality of life and mental health. Methodology:The quality of life was assessed using “The Quality of Life Scale (QOLS)” by John Flanagan (1970) and Mental health was assessed using “Mental health inventory (MHI)-18 items by Veit and ware (1983). Finding and Conclusion: The study revealed that there is a signicant relationship between quality of life and mental health of people with Type II diabetes

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A pilot study to examine the relationship between boredom and spirituality in cancer patients

Palliative & Supportive Care ◽

10.1017/s1478951503030165 ◽

2003 ◽

Vol 1 (2) ◽

pp. 143-151 ◽

Cited By ~ 5

Author(s):

ALICE INMAN ◽

KENNETH L. KIRSH ◽

STEVEN D. PASSIK

Keyword(s):

Quality Of Life ◽

Cancer Patients ◽

Group Performance ◽

Eastern Cooperative Oncology Group ◽

Depression Scale ◽

Well Being ◽

Mediating Effect ◽

The Impact ◽

The Relationship

Objective: Spirituality has been neglected when assessing the well-being of cancer patients. Traditionally, researchers have focused on areas such as physical, social, and emotional functioning. However, there is a potential for spirituality to have a large impact on quality of life in patients with cancer. The current study was conducted to investigate the relationship between spirituality and boredom, constraint, social contact, and depression.Methods: A total of 100 oncology patients completed several assessment instruments, including the Purposelessness, Under-stimulation, and Boredom (PUB) Scale, Functional Assessment of Cancer Therapy Scale–Anemia, Brief Zung Self-Rating Depression Scale (BZSDS), Cancer Behavior Inventory, Systems of Belief Inventory, and Eastern Cooperative Oncology Group Performance Status Scale.Results: The average age of the sample was 62.37 years (SD = 13.43) and was comprised of 60 women (60%) and 40 men (40%). A regression analysis conducted to explore the impact of the variables on quality of life found only the BZSDS (R2Δ = .650, F = 180.392, p < .001) and the PUB Scale (R2Δ = .077, F = 26.885, p < .001) were significant predictors of quality of life. Another set of regression analyses were conducted to explore whether spirituality had a mediating effect on this relationship, but the mediated model was not supported.Significance of results: We conclude that spirituality and boredom are difficult concepts to define, operationalize, and measure, but crucial to our understanding of quality of life in advanced cancer. More research is needed to clarify the nature of the interrelationships between these important concepts.

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AB0064 EVALUATION OF QUALITY OF LIFE IN RHEUMATOID ARTHRITIS USING SF-36 AND HAQ SCALES

Annals of the Rheumatic Diseases ◽

10.1136/annrheumdis-2021-eular.3309 ◽

2021 ◽

Vol 80 (Suppl 1) ◽

pp. 1063.1-1063

Author(s):

M. Brahem ◽

M. Hassayoun ◽

H. Hachfi ◽

R. Sarraj ◽

M. Ardhaoui ◽

...

Keyword(s):

Quality Of Life ◽

Rheumatoid Arthritis ◽

Disease Activity ◽

Short Form ◽

Bodily Pain ◽

Global Score ◽

Sf 36 ◽

The Mean ◽

The Impact

Background:The assessment of health-related quality-of-life (HRQoL) in rheumatoid arthritis (RA) is becoming a common tool in clinical practice. The medical outcomes survey short form 36 (SF- 36) is one of the most widely used tools for measuring HRQoL in RA as well as the HAQ scale.Objectives:The aim of our study is to evaluate the impact of the RA in the quality of life (QoL) of our patients using the SF-36 and the HAQ questionnaires.Methods:This is a cross-sectional study during a period of the year 2020, including 70 patients followed in the department of Rheumatology in Mahdia, Tunisia. All patients were diagnosed with RA based in ACR 1987/EULAR 2010. We evaluated for each patient, the mean global scale and the eight domains of SF-36 (physical functioning (PF), role physical (RP), bodily pain (BP), general health (GH), vitality (VT), a social functioning (SF), role emotional (RE) and mental health (MH)), scored from 0 (worst) to 100 (best).Results:Our study included 70 patients (59 females/11males) with an age ranged from 21 to 76 years. The mean age was 54 ± 12 years. The mean duration of the disease was 11 ± 10 years [1-40]. The mean number of tender joints was 9.7 ±9.4 and swollen joints were 4.2 ±6.1. The mean disease activity score (DAS28) was 4.6 ±1.9 [1.2-8.4]. The mean HAQ score was 1.5±1.3, 47.1% of patients had specific joint deformations, 82.9% had radiologic involvement and 31.4% had osteoporosis. The biologic analysis showed that the mean ESR was 46.7 ± 30.5 and the CRP was 15.8 ±23.3. Rheumatoid factors were positive in 42.9% of cases, the ACPA were positive in 50% of cases. 84.3% of RA patients were treated by methotrexate, 4.3% were treated by salazopyrin and 11.4% were treated by biologic treatments.The SF-36 global score was 50.4 ± 26.3 [15.3-92.8]. 46 patients (65.7% of cases) had impaired QoL (SF-36<66.7). The means of different domains (PF, RP, BP, GH, VT, SF, RE, MH) were respectively 51; 41.4; 51.4; 50; 51.2; 57.7; 41.9; 59.2. The most severely impacted domains were the RP and RE.Our study showed a significant correlation between the SF-36 global score and the number of tender joints (p=0.002), the DAS28 (p=0.017) and the HAQ(p=0.000).Conclusion:Our study showed that 65.7% of RA patients presented impaired QoL (SF-36<66.7), which is associated with high disease activity. So it’s important to jugulate the disease, in order to ameliorate the quality of life of our patients.References:[1]Matcham, F., Scott, IC, Rayner, L., Hotopf, M., Kingsley, GH, Norton, S.,… Steer, S. (2014). L’impact de la polyarthrite rhumatoïde sur la qualité de vie évalué à l’aide du SF-36: une revue systématique et une méta-analyse. Séminaires sur l’arthrite et les rhumatismes, 44 (2), 123-130. doi: 10.1016 / j.semarthrit.2014.05.001.Disclosure of Interests:None declared

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EXAMINATION OF IMPACT OF RESPONSIBLE TOURISM PRACTICES ON QUALITY OF LIFE OF DESTINATION COMMUNITIES

GeoJournal of Tourism and Geosites ◽

10.30892/gtg.362spl17-699 ◽

2021 ◽

Vol 36 (2spl) ◽

pp. 688-697

Author(s):

Parikshat Singh MANHAS ◽

◽

Ramjit SINGH ◽

Gyula FODOR ◽

Sándor BERGHAUER ◽

...

Keyword(s):

Quality Of Life ◽

Factor Analysis ◽

Community Involvement ◽

Structural Equation ◽

Mediating Role ◽

The Impact ◽

The Relationship ◽

Responsible Tourism

The study endeavors to find out the perceived impact of Responsible Tourism Practices (RTPs) on destination communities’ Quality of Life (QOL). Besides, the investigation tests the mediating role of community involvement in the relationship between RTPs and QOL. A well-designed questionnaire developed from the existing literature was distributed among the tourist destination residents of Pahalgam, Kashmir Valley, India. In addition, exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) was performed to validate the EFA findings through AMOSS 22. Structural Equation Modelling (SEM) technique was also applied to ascertain the impact of RTPs on QOL. Finally, the mediating role of community involvement was examined and, subsequently, the results were reported. The study’s findings resulted in a significant relationship between RTPs and QOL; thereby, RTPs have a pivotal role in enhancing the QOL of the communities. Furthermore, the investigation revealed that community involvement mediates the relationship between RTPs and QOL. Thus, the study’s achievements suggest that the locals should be involved in tourism activities to enhance the communities’ QOL.

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The Effects of COVID-19 On The Quality of Life Among a Sample of The General Lebanese Population

10.21203/rs.3.rs-1070681/v1 ◽

2021 ◽

Author(s):

Chadia HADDAD ◽

Sandrella Bou Malhab ◽

Hala SACRE ◽

Rasha THEBIAN ◽

Hassan SALAME ◽

...

Keyword(s):

Quality Of Life ◽

Chronic Disease ◽

Linear Regression ◽

Short Form ◽

Female Gender ◽

Well Being ◽

Cross Sectional ◽

Lebanese Population ◽

The Impact

Abstract Background: Infectious illness outbreaks, such as COVID-19, have a devastating impact on physical health and social and psychological well-being. Therefore, the objective of this study was to assess the quality of life (QOL) after the COVID-19 outbreak in a sample of the Lebanese population and compare sociodemographic factors associated with QOL among COVID-19 patients and healthy controls. Methods: A cross-sectional study conducted between January and March 2021 during the lockdown imposed by the Lebanese Government enrolled 2349 Lebanese adults. The major dependent variable was the 12-item Short Form Survey (SF-12), often used as a QOL measure for assessing the impact of health on an individual's everyday life.Results: In participants with non-positive PCR, linear regression showed that higher income (Beta=2.224) is associated with a higher QOL score. Whereas higher household crowding index (Beta=-0.537), older age (Beta=-0.109), being married (Beta=-1.308), having hypertension (Beta=-2.479), and other chronic diseases (Beta=-3.704) were associated with a lower QOL score.In participants with positive PCR, linear regression showed that the female gender (Beta=2.416) and a higher income (Beta=4.856) were associated with a higher QOL score. Whereas shortness of breath (beta=-2.607), sore throat (Beta=-5.654), sneezing (Beta=-3.761), and having a chronic disease other than hypertension (Beta=-3.181) were associated with a lower QOL score.Conclusion: Overall, factors such as age, male gender, married status, crowded household, low monthly income, high BMI, the presence of chronic disease, and severe COVID-19 symptoms were related to lower QOL after the covid-19 pandemic.

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The Impact of the COVID-19 Pandemic on Quality of Life and Well-Being in Morocco

10.20944/preprints202006.0287.v1 ◽

2020 ◽

Author(s):

Zouhour Samlani ◽

Yassine Lemfadli ◽

Adil Ait Errami ◽

Sofia Oubaha ◽

Khadija Krati

Keyword(s):

Quality Of Life ◽

Mental Health ◽

Physical Health ◽

Short Form ◽

Demographic Data ◽

Well Being ◽

Chronic Health ◽

Health Score ◽

The Impact

Introduction:The majority of epidemiological reports focus on confirmed cases of COVID-19. In this study, we aim to assess the health and well-being of adults not infected with Covid-19 after two months of quarantine in Morocco.Materials and methods:Two months after the declaration of quarantine in Morocco following the Covid-19 epidemic, we carried out a descriptive cross-sectional study of 279 Moroccan citizens. We used the Short Form Health Survey (SF-12) as a determinant of quality of life, which is based on eight dimensions of health. The data were collected using an electronic questionnaire distributed online. The participants also indicated their socio-demographic data, their knowledge and practices regarding the Covid-19 pandemic and whether they had chronic health problems.Results:The quality of life of all participants was moderately disrupted during the Covid-19 pandemic with a mental health score (MCS) of 34.49 (± 6.44) and a physical health score (PCS) of 36.10 (± 5.82). Participants with chronic diseases scored lower with 29.28 (± 1.23) in mental health (MCS) and 32.51 (± 7.14) in physical health (PCS). The seriousness of COVID-19 has an impact on the quality of life and health well-being of people and this impact is more marked in patients with chronic health problems.Conclusion: Our results confirm the need to pay attention to the health of people who have not been infected with the virus. Our results also point out that uninfected people with chronic illnesses may be more likely to have well-being problems due to quarantine restrictions.

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