scholarly journals Exploring the meaning, role and experiences of a patient-led social innovation for people affected by cancer: a new collaborative care model complementing traditional cancer rehabilitation in Sweden

2021 ◽  
Vol 10 (4) ◽  
pp. e001400
Author(s):  
Frida Smith ◽  
Andreas Hellström ◽  
Katrín Ásta Gunnarsdóttir ◽  
Anna Genell ◽  
Erik Eriksson ◽  
...  
Keyword(s):  
Local Community ◽  
Social Innovation ◽  
Psychosocial Support ◽  
Qualitative Interviews ◽  
Well Being ◽  
Multiple Stakeholders ◽  
Staff Members ◽  
Previous Design ◽  
Health And Well Being

ObjectiveKraftens Hus is the first support centre in Sweden designed by and for people affected by cancer, including patients, family, friends, staff members and local community representatives (collectively ‘stakeholders’). The purpose of this study was to explore the meaning, role and experiences of Kraftens Hus stakeholders using a patient and public involved methodology.MethodsTo understand and map the experiences of visitors to Kraftens Hus, we applied concept mapping (CM), a mixed methods approach where data are collected and analysed in four structured steps designed to capture the diverse perspectives of multiple stakeholders. Qualitative interviews with relevant stakeholders supplemented the CM findings.ResultsThe final concept map contained six clusters of ideas. Within the clusters, there was a recurring theme that cancer-affected people value accessible and long-term psychosocial support (PSS). The intended emotional, social and practical needs identified in a previous design process seem to have been addressed and appreciated by Kraftens Hus visitors.ConclusionKraftens Hus is an example of a new patient-led social innovation based on a life-event perspective and integration of resources from different sectors in society. By focusing on life, not the disease, the care continuum expands, and long-term PSS is provided alongside cancer treatment. The evaluation confirms that PSS should focus on health and well-being in the broadest sense.

scholarly journals Psychological Consequences of the Delay in the Silent Mentor Programme During the COVID-19 Pandemic: Perspectives From Family Members of Silent Mentors

2021 ◽  
pp. 003022282110009
Author(s):  
Li Ping Wong ◽  
Sik Loo Tan ◽  
Haridah Alias ◽  
Thiam Eng Sia ◽  
Aik Saw
Keyword(s):  
Mental Health ◽  
Qualitative Interviews ◽  
Psychological Impact ◽  
Family Members ◽  
Well Being ◽  
The Body ◽  
Functional Health ◽  
Psychological Consequences ◽  
Negative Effect ◽  
Health And Well Being

The COVID-19 pandemic has put a hold on the Silent Mentor Programme (SMP); this pause has not only caused unprecedented challenges for the delivery of medical education but has forced changes in the programme ceremony sessions. We aimed to describe the psychological impact and experiences of family members of silent mentors during the COVID-19 pandemic using qualitative interviews. Many expressed feelings of remorse and unrest about the unprecedented delay of the SMP. The delay increased negative emotions particularly among some elderly family members; however, there was no prominent negative effect on their functional health and well-being. Several participants relayed the belief that the soul cannot rest until the body receives a proper burial while some worried about the deterioration of the physical condition of the mentors. In conclusion, findings provide insights into the importance of not overlooking the mental health implications of delaying the SMP in future outbreaks or crises.

scholarly journals A Coproduction Community Based Approach to Reducing Smoking Prevalence in a Local Community Setting

2016 ◽  
Vol 2016 ◽  
pp. 1-8 ◽  
Author(s):  
G. J. McGeechan ◽  
D. Woodall ◽  
L. Anderson ◽  
L. Wilson ◽  
G. O’Neill ◽  
...  
Keyword(s):  
Smoking Prevalence ◽  
Local Community ◽  
Community Setting ◽  
Well Being ◽  
Service Development ◽  
Local Health ◽  
Small Community ◽  
Prevalence Survey ◽  
Local Residents ◽  
Health And Well Being

Research highlights that asset-based community development where local residents become equal partners in service development may help promote health and well-being. This paper outlines baseline results of a coproduction evaluation of an asset-based approach to improving health and well-being within a small community through promoting tobacco control. Local residents were recruited and trained as community researchers to deliver a smoking prevalence survey within their local community and became local health champions, promoting health and well-being. The results of the survey will be used to inform health promotion activities within the community. The local smoking prevalence was higher than the regional and national averages. Half of the households surveyed had at least one smoker, and 63.1% of children lived in a smoking household. Nonsmokers reported higher well-being than smokers; however, the differences were not significant. Whilst the community has a high smoking prevalence, more than half of the smokers surveyed would consider quitting. Providing smoking cessation advice in GP surgeries may help reduce smoking prevalence in this community. Work in the area could be done to reduce children’s exposure to smoking in the home.

scholarly journals Authors’ Response to Peer Reviews of “A Local Community-Based Social Network for Mental Health and Well-being (Quokka): Exploratory Feasibility Study” (Preprint)

2021 ◽  
Author(s):  
Cynthia Shih ◽  
Ruhi Pudipeddi ◽  
Arany Uthayakumar ◽  
Peter Washington
Keyword(s):  
Mental Health ◽  
Social Network ◽  
Peer Review ◽  
Feasibility Study ◽  
Local Community ◽  
Well Being ◽  
Community Based ◽  
Peer Reviews ◽  
Health And Well Being

UNSTRUCTURED These are authors' responses to peer review of ms#24972.

scholarly journals Identifying and overcoming barriers to healthier lives

2020 ◽  
Author(s):  
Riz Firestone ◽  
Tevita Funaki ◽  
Sally Dalhousie ◽  
Akarere Henry ◽  
Mereaumate Vano ◽  
...  
Keyword(s):  
Well Being ◽  
Health Issues ◽  
Family Responsibilities ◽  
Health And Wellbeing ◽  
Healthier Living ◽  
Sociocultural Experiences ◽  
Diet And Lifestyle ◽  
Health And Well Being ◽  
Improve Health

Understanding the key determinants of health from a community perspective is essential to address and improve the health and wellbeing of its members.  This qualitative study aimed to explore and better understand New Zealand-based Pasifika communities’ sociocultural experiences and knowledge of health and wellbeing. Fifty-seven participants were involved in six separate focus groups. Community coordinators co-facilitated and transcribed the discussions and conducted thematic analysis. The findings suggested two overarching themes: (1) ‘Pasifika experiences on poor health and well-being’: were based on sub-themes: (i) ‘recognisable issues’ (e.g., poor diet and lifestyle behaviours); (ii) ‘systemic issues’ that support the perpetual health issues (e.g., lack of knowledge and education) and; (iii) ‘profound issues’ that are often unspoken of and create long-term barriers (e.g., cultural lifestyle and responsibilities).  (2) ‘Hopes and dreams’ to improve health and well-being requires: (i) a family-centric approach to health; (ii) tackling systemic barriers; and (iii) addressing community social justice issues.  This study provides deepened insights on Pasifika communities’ understanding healthier living in the context of their cultural environment and family responsibilities. If we are to develop effective, sustainable programmes that prioritises health and well-being based on the needs of Pasifika communities, the findings from this study highlight their needs as step forward in overcoming barriers to healthier lives.

scholarly journals Social media and mental health: Reviewing effects on eudaimonic well-being

2021 ◽  
Author(s):  
Adrian Meier ◽  
Leonard Reinecke
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Media Use ◽  
Well Being ◽  
Social Media Use ◽  
Self Actualization ◽  
Resilience Factors ◽  
Omission Bias ◽  
Health And Well Being

Do social media affect users’ mental health and well-being? By now, considerable research has addressed this highly contested question. Prior studies have investigated the effects of social media use on hedonic well-being (e.g., affect and life satisfaction), psychopathology (e.g., depressive or anxiety symptoms), or psychosocial risk/resilience factors (e.g., loneliness, stress, self-esteem). Yet, public concern over social media effects often centers on more long-term negative outcomes, which may be better captured by indicators of eudaimonic well-being. Indeed, neglecting the eudaimonic side of well-being may have introduced outcome omission bias, since eudaimonia is both conceptually and empirically distinct from other dimensions of mental health and may be uniquely affected by social media use. Specifically, psychology currently theorizes eudaimonic well-being to be best represented by the experiences of (a) meaningfulness, (b) authenticity, and (c) self-actualization. A research synthesis of how social media use relates to these core indicators of eudaimonia is currently missing, however. We thus present a first narrative review that synthesizes both theoretical and empirical links between three key social media uses (i.e., active, passive, and “screen time”) and eudaimonic well-being. The synthesis shows that while there are indeed several plausible theoretical links, the evidence is too scarce and inconsistent to allow definitive conclusions at this time. We instead give recommendations for how the field can close important gaps by investigating whether social media afford or constrain opportunities to find meaning, live authentically, and grow as a person.

scholarly journals Colonial Values and Asylum Care in Brazil: Reclaiming the Streets Through Carnival in Rio de Janeiro

2020 ◽  
pp. 155-161
Author(s):  
Julia Evangelista ◽  
William A. Fulford
Keyword(s):  
Local Community ◽  
Well Being ◽  
Colonial History ◽  
Self Confidence ◽  
History Of ◽  
The Impact ◽  
Mental Well Being ◽  
The City

AbstractThis chapter shows how carnival has been used to counter the impact of Brazil’s colonial history on its asylums and perceptions of madness. Colonisation of Brazil by Portugal in the nineteenth century led to a process of Europeanisation that was associated with dismissal of non-European customs and values as “mad” and sequestration of the poor from the streets into asylums. Bringing together the work of the two authors, the chapter describes through a case study how a carnival project, Loucura Suburbana (Suburban Madness), in which patients in both long- and short-term asylum care play leading roles, has enabled them to “reclaim the streets,” and re-establish their right to the city as valid producers of culture on their own terms. In the process, entrenched stigmas associated with having a history of mental illness in a local community are challenged, and sense of identity and self-confidence can be rebuilt, thus contributing to long-term improvements in mental well-being. Further illustrative materials are available including photographs and video clips.

The Long-Term Effects of Solitary Confinement From the Perspective of Inmates

2021 ◽  
Vol 101 (6) ◽  
pp. 652-674
Author(s):  
Liat Tayer ◽  
Tomer Einat ◽  
Anat Yaron Antar
Keyword(s):  
Qualitative Study ◽  
Physical Exercise ◽  
Behavioral Disorders ◽  
Physical Aggression ◽  
Well Being ◽  
Solitary Confinement ◽  
Long Term Effects ◽  
Health And Well Being ◽  
Mental And Behavioral Disorders

This qualitative study analyzes the effects of solitary confinement on prisoners and the strategies used by them to cope with its difficulties. The findings indicate that solitary confinement is perceived as unfair and as intensifying hostile emotions and physical aggression, and that it is related to a range of long-term physiological, mental, and behavioral disorders. Three strategies are used to cope with the difficulties of solitary confinement: keeping to a ritualistic routine, a religious lifestyle, and physical exercise. We conclude that solitary confinement exacerbates the difficulties of detention and affects prisoners’ health and well-being for short and long terms.

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