scholarly journals Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis

2021 ◽  
pp. bmjspcare-2021-003019
Author(s):  
Victoria Fisher ◽  
Lorna Fraser ◽  
Johanna Taylor
Keyword(s):  
Systematic Review ◽  
Citation Index ◽  
Social Science Citation Index ◽  
Well Being ◽  
Qualitative Synthesis ◽  
Role Conflicts ◽  
Everyday Activities ◽  
Neurological Conditions ◽  
Limiting Condition

BackgroundChildren with a life-limiting condition often require extensive and complex care, much of which is provided by their parents at home. There is a growing body of research that aims to understand the experiences of these parents, but the majority of this research is from mothers’ perspectives, meaning that fathers’ experiences are not well understood.ObjectivesTo identify and synthesise findings from existing qualitative studies that have explored the experiences of fathers of children with a life-limiting condition.MethodsA systematic review of qualitative research was conducted using thematic synthesis. Searches were conducted in MEDLINE, CINAHL, EMBASE, PsycINFO and Social Science Citation Index.ResultsFindings from 30 studies were included, representing the experiences of 576 fathers of children with a range of diagnoses including cancer, cystic fibrosis, genetic and neurological conditions. Themes detailed fathers’ experiences of uncertainty and shock around the time of their child’s diagnosis, their accounts of a ‘new normal’, difficulties in discussing their emotions, forming relationships with and seeking support from professionals and working fathers’ role conflicts. They discussed the life-changing nature of their child’s diagnosis, an event that affected all aspects of their lives from everyday activities, to their relationships, spirituality, values and ambitions.ConclusionsFathers experience many difficulties in response to their child’s diagnosis and ongoing treatment. Findings highlight the need for healthcare professionals to recognise individual family dynamics and the evolving role of the father. Fathers’ responses are not widely understood, and research that directly addresses their own well-being is warranted.

scholarly journals Well-Being and Social Media: A Systematic Review of Bergen Addiction Scales

2020 ◽  
Vol 12 (2) ◽  
pp. 24 ◽  
Author(s):  
Mirko Duradoni ◽  
Federico Innocenti ◽  
Andrea Guazzini
Keyword(s):  
Systematic Review ◽  
Social Media ◽  
Information And Communication Technologies ◽  
Communication Technologies ◽  
Well Being ◽  
Qualitative Synthesis ◽  
Social Media Addiction ◽  
Information And Communication ◽  
The Relationship ◽  
Academic Search

Does social media addiction impair the well-being of non-clinical individuals? Despite the Internet being able to be considered as a promoting factor for individual empowerment, previous literature suggests that the current massive availability of Information and Communication Technologies (ICT) may be dangerous for users’ well-being. This article discusses the relationship between the most used social media addiction measures (i.e., the Bergen Facebook Addiction Scale—BFAS, the Bergen Social Media Addiction Scale—BSMAS) and well-being. A systematic review considering all the publications indexed by PsycInfo, PsycArticles, PubMed, Science Direct, Sociological Abstracts, Academic Search Complete, and Google Scholar databases was performed to collect the data. Ten of 635 studies were included in the qualitative synthesis. Overall, most of the included works captured a negative but small relationship between BFAS/BSMAS and well-being, across multiple definitions and measurement.

scholarly journals A systematic review evaluating the impact of paid home carer training, supervision, and other interventions on the health and well-being of older home care clients

2017 ◽  
Vol 29 (4) ◽  
pp. 595-604 ◽  
Author(s):  
Claudia Cooper ◽  
Blerta Cenko ◽  
Briony Dow ◽  
Penny Rapaport
Keyword(s):  
Systematic Review ◽  
Home Care ◽  
Controlled Trial ◽  
Meta Analysis ◽  
Life Quality ◽  
Well Being ◽  
Qualitative Synthesis ◽  
Model Learning ◽  
The Impact ◽  
Health And Well Being

ABSTRACTBackground:Interventions to support and skill paid home carers and managers could potentially improve health and well-being of older home care clients. This is the first systematic review of interventions to improve how home carers and home care agencies deliver care to older people, with regard to clients’ health and well-being and paid carers’ well-being, job satisfaction, and retention.Methods:We reviewed 10/731 papers found in the electronic search (to January 2016) fitting predetermined criteria, assessed quality using a checklist, and synthesized data using quantitative and qualitative techniques.Results:Ten papers described eight interventions. The six quantitative evaluations used diverse outcomes that precluded meta-analysis. In the only quantitative study (a cluster Randomized Controlled Trial), rated higher quality, setting meaningful goals, carer training, and supervision improved client health-related quality of life. The interventions that improved client outcomes comprised training with additional implementation, such as regular supervision and promoted care focused around clients’ needs and goals. In our qualitative synthesis of four studies, intervention elements carers valued were greater flexibility to work to a needs-based rather than a task-based model, learning more about clients, and improved communication with management and other workers.Conclusions:There is a dearth of evidence regarding effective strategies to improve how home care is delivered to older clients, particularly those with dementia. More research in this sector including feasibility testing of the first home care intervention trials to include health and life quality outcomes for clients with more severe dementia is now needed.

The role of parental self‐efficacy in parent and child well‐being: A systematic review of associated outcomes

2019 ◽  
Vol 45 (3) ◽  
pp. 333-363 ◽  
Author(s):  
Ariana M. Albanese ◽  
Gabrielle R. Russo ◽  
Pamela A. Geller
Keyword(s):  
Systematic Review ◽  
Self Efficacy ◽  
Well Being

scholarly journals Sport and dance interventions for healthy young people (15–24 years) to promote subjective well-being: a systematic review

BMJ Open ◽  
2018 ◽  
Vol 8 (7) ◽  
pp. e020959 ◽  
Author(s):  
Louise Mansfield ◽  
Tess Kay ◽  
Catherine Meads ◽  
Lily Grigsby-Duffy ◽  
Jack Lane ◽  
...  
Keyword(s):  
Systematic Review ◽  
Young People ◽  
Citation Index ◽  
Grey Literature ◽  
Well Being ◽  
British Library ◽  
Subjective Well Being ◽  
Healthy Young People ◽  
Google Search

ObjectiveTo review and assess effectiveness of sport and dance participation on subjective well-being outcomes among healthy young people aged 15–24 years.DesignSystematic review.MethodsWe searched for studies published in any language between January 2006 and September 2016 on PsychINFO, Ovid MEDLINE, Eric, Web of Science (Arts and Humanities Citation Index, Social Science and Science Citation Index), Scopus, PILOTS, CINAHL, SPORTDiscus and International Index to Performing Arts. Additionally, we searched for unpublished (grey) literature via an online call for evidence, expert contribution, searches of key organisation websites and the British Library EThOS database, and a keyword Google search. Published studies of sport or dance interventions for healthy young people aged 15–24 years where subjective well-being was measured were included. Studies were excluded if participants were paid professionals or elite athletes, or if the intervention was clinical sport/dance therapy. Two researchers extracted data and assessed strength and quality of evidence using criteria in the What Works Centre for Wellbeing methods guide and GRADE, and using standardised reporting forms. Due to clinical heterogeneity between studies, meta-analysis was not appropriate. Grey literature in the form of final evaluation reports on empirical data relating to sport or dance interventions were included.ResultsEleven out of 6587 articles were included (7 randomised controlled trials and 1 cohort study, and 3 unpublished grey evaluation reports). Published literature suggests meditative physical activity (yoga and Baduanjin Qigong) and group-based or peer-supported sport and dance has some potential to improve subjective well-being. Grey literature suggests sport and dance improve subjective well-being but identify negative feelings of competency and capability. The amount and quality of published evidence on sport and dance interventions to enhance subjective well-being is low.ConclusionsMeditative activities, group and peer-supported sport and dance may promote subjective well-being enhancement in youth. Evidence is limited. Better designed studies are needed.Trial registration numberCRD42016048745; Results.

scholarly journals Is water carriage associated with the water carrier’s health? A systematic review of quantitative and qualitative evidence

2018 ◽  
Vol 3 (3) ◽  
pp. e000764 ◽  
Author(s):  
Jo-Anne Lee Geere ◽  
Moa Cortobius ◽  
Jonathan Harold Geere ◽  
Charlotte Christiane Hammer ◽  
Paul R Hunter
Keyword(s):  
Systematic Review ◽  
Rural Areas ◽  
Web Of Science ◽  
Citation Index ◽  
Well Being ◽  
Sub Saharan Africa ◽  
Gender Based Violence ◽  
Arts And Humanities ◽  
Qualitative Evidence ◽  
Sub Saharan

IntroductionThe work of carrying water falls mainly on women and children, particularly in sub-Saharan Africa and rural areas. While concerns have been raised, how water carriage is associated with health of the water carrier is not clear. The aim of this review is to summarise evidence on whether, and how, water carriage is associated with the water carrier’s health.MethodsA systematic review of literature was conducted, searching Embase; Medline; Web of Science Social Sciences Citation Index; Web of Science Arts and Humanities Citation Index; International Initiative for Impact Evaluation website; WHO Virtual Health Sciences Library and WHO African index medicus, from inception to 8 November 2017.ResultsForty-two studies were included. Their ability to demonstrate cause and effect relationships was limited by study design and fair or poor methodological quality. Overall, the studies suggest that water carriage is associated with negative aspects of the water carriers’ health. There is moderate quantitative and strong qualitative evidence that water carriage is associated with pain, fatigue, perinatal health problems and violence against vulnerable people, and inconclusive evidence of an association with stress or self-reported mental health and general health status.ConclusionIn many circumstances, water carriage is a potential barrier to Sustainable Development Goal (SDG) 6 target ‘universal and equitable access to safe and affordable drinking water for all’ and SDG 3 ‘ensure healthy lives and promote well-being for all at all ages’. Efforts should focus on providing water on premises, and where this is not possible, providing water close to home and reducing risk of gender-based violence.

scholarly journals The Role of White Matter in the Neural Control of Swallowing: A Systematic Review

2021 ◽  
Vol 15 ◽  
Author(s):  
Ann Alvar ◽  
Rachel Hahn Arkenberg ◽  
Bethany McGowan ◽  
Hu Cheng ◽  
Georgia A. Malandraki
Keyword(s):  
Systematic Review ◽  
White Matter ◽  
Neural Control ◽  
White Matter Lesions ◽  
Internal Capsule ◽  
Senior Author ◽  
Sufficient Evidence ◽  
Qualitative Synthesis ◽  
White Matter Damage

Background: Swallowing disorders (dysphagia) can negatively impact quality of life and health. For clinicians and researchers seeking to improve outcomes for patients with dysphagia, understanding the neural control of swallowing is critical. The role of gray matter in swallowing control has been extensively documented, but knowledge is limited regarding the contributions of white matter. Our aim was to identify, evaluate, and summarize the populations, methods, and results of published articles describing the role of white matter in neural control of swallowing.Methods: We completed a systematic review with a multi-engine search following PRISMA-P 2015 standards. Two authors screened articles and completed blind full-text review and quality assessments using an adapted U.S. National Institute of Health's Quality Assessment. The senior author resolved any disagreements. Qualitative synthesis of evidence was completed.Results: The search yielded 105 non-duplicate articles, twenty-two of which met inclusion criteria. Twenty were rated as Good (5/22; 23%) or Fair (15/22; 68%) quality. Stroke was the most represented diagnosis (n = 20; 91%). All studies were observational, and half were retrospective cohort design. The majority of studies (13/22; 59%) quantified white matter damage with lesion-based methods, whereas 7/22 (32%) described intrinsic characteristics of white matter using methods like fractional anisotropy. Fifteen studies (68%) used instrumental methods for swallowing evaluations. White matter areas commonly implicated in swallowing control included the pyramidal tract, internal capsule, corona radiata, superior longitudinal fasciculus, external capsule, and corpus callosum. Additional noteworthy themes included: severity of white matter damage is related to dysphagia severity; bilateral white matter lesions appear particularly disruptive to swallowing; and white matter adaptation can facilitate dysphagia recovery. Gaps in the literature included limited sample size and populations, lack of in-depth evaluations, and issues with research design.Conclusion: Although traditionally understudied, there is sufficient evidence to conclude that white matter is critical in the neural control of swallowing. The reviewed studies indicated that white matter damage can be directly tied to swallowing deficits, and several white matter structures were implicated across studies. Further well-designed interdisciplinary research is needed to understand white matter's role in neural control of normal swallowing and in dysphagia recovery and rehabilitation.

Accuracy and Applications of Lung Ultrasound to Diagnose Ventilator-Associated Pneumonia: A Systematic Review

2017 ◽  
Vol 33 (8) ◽  
pp. 447-455 ◽  
Author(s):  
Leonardo Jönck Staub ◽  
Roberta Rodolfo Mazzali Biscaro ◽  
Rosemeri Maurici
Keyword(s):  
Systematic Review ◽  
Lung Ultrasound ◽  
Clinical Score ◽  
Community Acquired Pneumonia ◽  
Ventilator Associated Pneumonia ◽  
Qualitative Synthesis ◽  
Diagnosis Accuracy ◽  
Ultrasound Score

Background: Lung ultrasound (LUS) is an accurate tool to diagnose community-acquired pneumonia. However, it is not yet an established tool to diagnose ventilator-associated pneumonia (VAP). Purpose: To assess the evidence about LUS in the diagnosis of VAP, we conducted a systematic review of the literature. Methods: We searched PubMed, Embase, Scopus, Web of Science, and LILACS. Two researchers independently selected the studies that met the inclusion criteria. Quality Assessment of Diagnostic Accuracy Studies (QUADAS-2) tool was used to assess the quality of the studies. In a qualitative synthesis, 3 questions guided the review: Q1. What are the sonographic signs of VAP? Q2. How can LUS be combined with others tests or signs of VAP? Q3. What is the role of LUS in VAP screening? Main Results: Three studies (n = 377 patients) with different designs were included. In terms of Q1, the 3 studies assessed the accuracy of sonographic consolidations. In patients suspected for VAP, lobar or hemilobar consolidation alone was not sufficient to diagnose VAP but seems useful to exclude it. The most useful signs were small subpleural consolidations (sensitivity: 81%; specificity: 41%) and dynamic air bronchograms (sensitivity: 44%; specificity: 81%). Two studies were assessed for Q2, when the 2 signs above were included in a clinical score (Ventilator-associated Pneumonia Lung Ultrasound Score associated with quantitative culture of endotracheal aspirate—VPLUS-EAquant), the accuracy was amplified (sensitivity: 48% and specificity: 97% for score ≥4; sensitivity: 78% and specificity: 77% for score ≥3 points). Finally, regarding Q3, no studies have assessed the use of LUS in screening of VAP. Conclusion: Small subpleural consolidations and dynamic air bronchograms were the most useful sonographic signs to diagnose VAP in suspected patients. Clinical scores including LUS had better diagnosis accuracy than LUS alone. There are no data on LUS for VAP screening.

scholarly journals A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being

2016 ◽  
Vol 28 (11) ◽  
pp. 1761-1774 ◽  
Author(s):  
Alexandra Feast ◽  
Esme Moniz-Cook ◽  
Charlotte Stoner ◽  
Georgina Charlesworth ◽  
Martin Orrell
Keyword(s):  
Systematic Review ◽  
Motor Behavior ◽  
Psychological Symptoms ◽  
Meta Analysis ◽  
Well Being ◽  
Future Research ◽  
The Individual ◽  
The Impact ◽  
Behavioral And Psychological Symptoms

ABSTRACTBackground:Behavioral and psychological symptoms in dementia (BPSD) are important predictors of institutionalization as well as caregiver burden and depression. Previous reviews have tended to group BPSD as one category with little focus on the role of the individual symptoms. This review investigates the role of the individual symptoms of BPSD in relation to the impact on different measures of family caregiver well-being.Methods:Systematic review and meta-analysis of papers published in English between 1980 and December 2015 reporting which BPSD affect caregiver well-being. Paper quality was appraised using the Downs and Black Checklist (1998).Results:Forty medium and high quality quantitative papers met the inclusion criteria, 16 were suitable to be included in a meta-analysis of mean distress scores. Depressive behaviors were the most distressing for caregivers followed by agitation/aggression and apathy. Euphoria was the least distressing. Correlation coefficients between mean total behavior scores and mean distress scores were pooled for four studies. Irritability, aberrant motor behavior and delusions were the most strongly correlated to distress, disinhibition was the least correlated.Conclusions:The evidence is not conclusive as to whether some BPSD impact caregiver well-being more than others. Studies which validly examined BPSD individually were limited, and the included studies used numerous measures of BPSD and numerous measures of caregiver well-being. Future research may benefit from a consistent measure of BPSD, examining BPSD individually, and by examining the causal mechanisms by which BPSD impact well-being by including caregiver variables so that interventions can be designed to target BPSD more effectively.

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