Abstract WP338: Development of a Veteran Specific Stroke Educational Guide

Stroke ◽  
2013 ◽  
Vol 44 (suppl_1) ◽  
Author(s):  
Karen Stonecypher ◽  
Pamela Willson
Keyword(s):  
Multidisciplinary Team ◽  
Inpatient Care ◽  
Role Model ◽  
Action Planning ◽  
Ease Of Use ◽  
Self Management ◽  
Health Administration ◽  
Management Skills ◽  
Dietary Compliance ◽  
Specific Patient

Background and Purpose: Nearly 6,000 veterans are hospitalized annually for an ischemic stroke. The Veteran’s Health Administration (VHA) estimates care cost at $111 million for acute inpatient care, $75 million post-acute inpatient care, and $88 million for the first six months post stroke follow-up care. Presently, few national publications are uniquely designed for the veteran population. The primary focus of this initiative was to lead a multidisciplinary team of experts in the development of a veteran specific stroke risk prevention and reduction educational guide. Methods: A nurse lead multidisciplinary team of experts were assembled to develop a disease and population specific patient educational guide. The VHA educational guidelines, chronic disease self-management, and the Joint Commission Stroke educational core measures were used as the developmental framework. Mort Walker, creator of Beetle Bailey, provided illustrations throughout the guide for key concepts that were veteran specific and culturally-appropriate. The Sergeant Snorkel character emulates an ideal role model for veterans on how to prevent and reduce stroke risks. Results: A 28 page guide was developed for electronic distribution to healthcare providers across the VHA system. The printed version was designed to be the pivotal organizing resource for veteran and caregiver education during the hospital stay. The incorporation of self-management skills makes this guide uniquely different from other educational manuals. Documentation of self management implementation includes goal setting, action planning, and problem solving. The didactic components addressed are medication management, dietary compliance, smoking cessation, weight loss, increasing physical activity, improving functional status, and self-management skills. Development facilitators will be discussed. Conclusions: A nurse led multidisciplinary team of experts was assembled to develop a disease and population specific patient education guide for military veterans who have experienced a stroke. Veteran specific artwork seems to lend credibility to the health information for this population. The guide’s unique self-management documentation aides ease of use.

scholarly journals Design and Development of a Telerehabilitation Self-Management Program for Persons with Chronic Lower Limb Swelling and Mobility Limitations: Preliminary Evidence

2012 ◽  
Vol 2012 ◽  
pp. 1-10 ◽  
Author(s):  
Becky L. Faett ◽  
Mary Jo Geyer ◽  
Leslie A. Hoffman ◽  
David M. Brienza
Keyword(s):  
Lower Limb ◽  
Educational Program ◽  
Management Program ◽  
Integrated System ◽  
Ease Of Use ◽  
Self Management ◽  
Management Skills ◽  
Design And Development ◽  
Limited Mobility ◽  
Increased Risk

This paper describes design and development of a self-management program, delivered by telerehabilitation (TR), to address the problem of chronic lower limb swelling in persons with limited mobility. The 18.6 million persons with limited mobility in the USA are at increased risk for chronic lower limb swelling and related secondary complications, including cellulitis and skin ulcers. Over time, chronic swelling often progresses to lymphedema, an incurable condition requiring lifelong care. Without successful self-management, lymphedema and its related complications inevitably worsen. Access and adherence to appropriate treatment are challenging for persons with limited mobility. Program development involved a structured process to establish content validity (videos and manuals), readability, suitability, and selection of a TR platform to deliver the educational program. Our goal was to develop a program that would engage patients in self-management skills. The TR software platform chosen, Versatile and Integrated System for Telerehabilitation (VISYTER) was designed to facilitate face-to-face delivery of an interactive home-based self-management program via the internet in real time. Results demonstrated validity of the educational program and ease of use with TR. Future plans are to evaluate ability of this approach to promote self-management skills, home monitoring, and improved management of persons with lymphedema and limited mobility.

scholarly journals Mobile Application for Promoting Gluten-Free Diet Self-Management in Adolescents with Celiac Disease: Proof-of-Concept Study

Nutrients ◽  
2021 ◽  
Vol 13 (5) ◽  
pp. 1401
Author(s):  
Sonya Meyer ◽  
Gali Naveh
Keyword(s):  
Celiac Disease ◽  
Mobile Application ◽  
Ease Of Use ◽  
Gluten Free Diet ◽  
Self Management ◽  
Gluten Free ◽  
User Perception ◽  
Management Skills ◽  
Eating Out ◽  
Further Development

Celiac disease (CD) is a chronic disease treated by maintaining and managing a lifelong restrictive gluten-free diet. The purpose of this study was to develop a mobile application, Plan My C-Day, to promote self-management skills among youth with CD during adolescence—a time when decreased adherence often occurs—and examine its usability among adolescents with CD. Plan My C-Day contains three simulations of activities involving eating out and actions to take when preparing for these events. It was developed and pilot tested by 13 adolescents with CD. Application use and user perception data were collected and analyzed. Participants chose 160 actions within the simulations. For over 75% of participants, the time to complete the simulation decreased from the first to the third (last) simulation by an average of 50%. The average reported usability perception was 3.71 on a scale of 1 to 5, with system ease of use and ease of learning obtaining the highest scores. This study demonstrated that the Plan My C-Day mobile application’s self-management content, features, and functions operated well and that the simulations were easy to understand and complete. Further development will include the option to add self-created activities and adaptation to different languages and cultures.

scholarly journals AB0894-HPR THE JOURNEY OF PATIENTS WITH RHEUMATOID ARTHRITIS

2021 ◽  
Vol 80 (Suppl 1) ◽  
pp. 1470.2-1471
Author(s):  
M. Fusama ◽  
S. Oliver ◽  
H. Nakahara ◽  
Y. Van Eijk-Hustings ◽  
Y. Kuroe
Keyword(s):  
Rheumatoid Arthritis ◽  
Side Effects ◽  
Social Life ◽  
Life Story ◽  
Daily Life ◽  
Financial Burden ◽  
Psychological State ◽  
Self Management ◽  
Stable Phase ◽  
Management Skills

Background:The course of rheumatoid arthritis (RA) differs from patient to patient, and each patient has a unique story. The disease condition affects psychological and social aspects, greatly affecting the quality of life. The disease course is unpredictable, and each patient’s story can be seen as a lifelong journey, full of ups and downs. Therefore, it is crucial to know what kind of support is required during the course of their life.Objectives:The aim of this study is to examine the life story of patients with RA and clarify a common situation in their stories in order to consider what kind of support is needed.Methods:This is a qualitative study using life story interview for patients with RA in Japan. Interview included disease history, patients’ behaviors, effects on daily life, the patients’ perspectives regarding psychological considerations and useful support. Data were analyzed using content analysis. This study was approved by the ethics committee and informed consent was obtained.Results:Eight patients participated in this study. They were all females and the average age was 57 years old. As a result of the categorization, we extracted the following eight situations: (1) Emergence of symptom; patients thought joint pain would go away, however, the symptom did not improve and began to affect their daily life and work, (2) Choose a hospital to visit; pain and anxiety have continued and decided to visit a hospital, (3) Encounter with their doctors; patients expected their doctor to relieve their pain, while they were afraid of being told that they were suffering from a serious disease. (4) Diagnosis of RA; patients were shocked when diagnosed and anxious about what would happen and wondered why they had such a disease, (5) Choice of treatment; patients were afraid of the side effects. They wanted to make a decision discussing with their doctor, but they could not understand the explanation about drugs well and, therefore, followed the doctor’s opinion. (6) Change of treatment; a biological agent was often recommended. Patients were also worried about side effects and the financial burden. (7) Remission or stable phase; they felt better mentally too, however, they often felt anxiety about disease flare, side effect of drugs and financial burden, and (8) Flare and remission; patients felt shocked and disappointed when RA flared, and then, they noticed that patients with RA had alternating periods of relapse and remission and they had to live with RA.These interviews revealed repeated worsening and improvement of symptoms and many similar repeated psychological reactions such as anxiety, shock, denial, conflict, acceptance, giving up and relief. To cope with these fluctuating disease and mental conditions, patients were supported by educational and psychological assistance, timely consultations, social life help from nurses and support from their family. The patients considered a trusting relationship with their doctors is necessary. The patients had also realized through their experience the importance of enhancing their own abilities, such as decision-making, prevention of infections and self-management skills. Moreover, they noticed that it is important to have their own goals including hobbies and work.Conclusion:This study elucidated the common behaviors of patients with RA, the impact of RA on their psychological state and daily and social life, and the required support. The psychological condition and daily and social life also had a great influence on medical behavior. Therefore, psychosocial support and establishment of trust between healthcare professionals and patients are crucial. In addition, improving patients’ self-management skills including self-efficacy and empowerment is also necessary. As patients with RA often feel anxious in various situations and expect nurses’ support, nurses should listen to patients, pay attention to their concerns and anxieties, and show a solution-oriented attitude. In order for patients to feel at ease in their Patient Journey, nurses should sail with them while maintaining a patient-centered perspective.Disclosure of Interests:None declared

Women Veterans’ Experiences with Integrated, Biopsychosocial Pain Care: A Qualitative Study

Pain Medicine ◽  
2021 ◽  
Author(s):  
Francesca M Nicosia ◽  
Carolyn J Gibson ◽  
Natalie Purcell ◽  
Kara Zamora ◽  
Jennifer Tighe ◽  
...  
Keyword(s):  
Chronic Pain ◽  
San Francisco ◽  
Women Veterans ◽  
Self Management ◽  
Veterans Health ◽  
Health Administration ◽  
Care Models ◽  
Va Health Care System ◽  
Pain Care ◽  
Gender Specific

Abstract Objectives Biopsychosocial, integrated pain care models are increasingly implemented in the Veterans Health Administration to improve chronic pain care and reduce opioid-related risks, but little is known about how well these models address women veterans’ needs. Design Qualitative, interview-based study. Setting San Francisco VA Health Care System Integrated Pain Team (IPT), an interdisciplinary team that provides short-term, personalized chronic pain care emphasizing functional goals and active self-management. Subjects Women with chronic pain who completed ≥3 IPT sessions. Methods Semistructured phone interviews focused on overall experience with IPT, perceived effectiveness of IPT care, pain care preferences, and suggested changes for improving gender-sensitive pain care. We used a rapid approach to qualitative thematic analysis to analyze interviews. Results Fourteen women veterans (mean age 51 years; range 33–67 years) completed interviews. Interviews revealed several factors impacting women veterans’ experiences: 1) an overall preference for receiving both primary and IPT care in gender-specific settings, 2) varying levels of confidence that IPT could adequately address gender-specific pain issues, 3) barriers to participating in pain groups, and 4) barriers to IPT self-management recommendations due to caregiving responsibilities. Conclusions Women veterans reported varied experiences with IPT. Recommendations to improve gender-sensitive pain care include increased provider training; increased knowledge of and sensitivity to women’s health concerns; and improved accommodations for prior trauma, family and work obligations, and geographic barriers. To better meet the needs of women veterans with chronic pain, integrated pain care models must be informed by an understanding of gender-specific needs, challenges, and preferences.

scholarly journals Teaching Self-Management Skills in Persons with Chronic Lower Limb Swelling and Limited Mobility: Evidence for Usability of Telerehabilitation

2013 ◽  
Vol 5 (1) ◽  
Author(s):  
Becky L. Faett ◽  
David M. Brienza ◽  
Mary Jo Geyer ◽  
Leslie A Hoffman
Keyword(s):  
Integrated System ◽  
Lower Limbs ◽  
Health Conditions ◽  
Self Management ◽  
Management Skills ◽  
Limited Mobility ◽  
Home Based ◽  
Perceived Usability ◽  
Predominately Female ◽  
Viable Method

The purpose of this study was to evaluate the usability of telerehabilitation as a method of teaching self-management for chronic swelling of the lower limbs in persons with limited mobility. An in-home telerehabilitation self-management education protocol for chronic swelling of the lower limbs, termed Telerehabilitation to Empower You to Manage and Prevent Swelling (TR-PUMPS), was implemented using the Versatile and Integrated System for Telerehabilitation (VISYTER) software platform. Participants (n=11) were 36-79 years old, predominately female (72.7%) and diagnosed with a variety of health conditions. Participants’ perceived usability scores of the remote delivery of TR-PUMPS was high with a median score of 6.67 (range 4.90 - 7.00) on a Likert scale: 1= disagree to 7= agree. There was no correlation between participants’ familiarity with information technology and their perception of telerehabilitation usability. These results support telerehabilitation as a viable method for teaching a home-based, self-management

Sign in / Sign up

Export Citation Format

Share Document