Bereavement - whose responsibility?

1993 ◽  
Vol 7 (4_suppl) ◽  
pp. 73-76 ◽  
Author(s):  
David Oliver ◽  
Nan McMurray
Keyword(s):  
Health Care ◽  
Support Groups ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Terminal Phase ◽  
Bereavement Support ◽  
Health Care Professions ◽  
The Family ◽  
Bereavement Care

Bereavement care begins during the terminal phase of motor neurone disease as the family prepare for the death. Due to the long-term nature of the illness there is a need to allow the expression of painful feelings and to ensure that the family is adequately supported. The responsibility for care in bereavement lies not only with the family but with the health care professions, bereavement support groups and the whole community.

scholarly journals Mapping the Journey: Family Carers’ Perceptions of Issues Related to End-Stage Care of Individuals with Muscular Dystrophy or Motor Neurone Disease

2003 ◽  
Vol 19 (1) ◽  
pp. 36-42 ◽  
Author(s):  
Sky Dawson ◽  
Linda J. Kristjanson
Keyword(s):  
Muscular Dystrophy ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Perceived Needs ◽  
The Family ◽  
The Individual ◽  
End Stage ◽  
Depth Interviews ◽  
Neuromuscular Conditions

Progress in medical technology and treatment has resulted in more people with neurodegenerative conditions surviving for longer periods of time. This increased lifespan means that these individuals have a longer period of dependency on others, with a heightened need to maintain quality of life for both the individual and the family. Our paper reports on the findings of a study involving in-depth interviews with 16 carers to determine their perceived needs during the final stage of caring for someone with muscular dystrophy (MD) or motor neurone disease. Results suggest that the palliative care model has much to offer individuals with degenerative neuromuscular conditions and their families, but it is not yet recognized as an important part of care for young people with MD. Three major themes emerged in the analysis: reactions and responses, health system crossing points, reaching forward.

scholarly journals Bereavement support and prolonged grief disorder among carers of people with motor neurone disease

2016 ◽  
Vol 12 (6) ◽  
pp. 268-276
Author(s):  
Mary R O'Brien ◽  
Andrew J Kirkcaldy ◽  
Katherine Knighting ◽  
Brenda Roe ◽  
Barbara A Jack
Keyword(s):  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Bereavement Support ◽  
Prolonged Grief Disorder ◽  
Prolonged Grief

Ethics and the clinician: the daily experience with motor neurone disease

1993 ◽  
Vol 7 (4_suppl) ◽  
pp. 11-13
Author(s):  
Susan Carroll-Thomas
Keyword(s):  
Health Care ◽  
Ethical Issues ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Daily Experience ◽  
Patient Interaction ◽  
Value Judgements

Ethical issues in health care are typically perceived as arising from extreme situations which do not usually confront the average clinician. However, knowingly or otherwise, clinicians working with motor neurone disease deal daily with ethical issues in the form of value judgements, the application of choice limiting principles and the language of clinician-patient interaction.

Themes of a Long-Term AIDS Support Group for Gay Men

1996 ◽  
Vol 24 (2) ◽  
pp. 285-303 ◽  
Author(s):  
Greig M. Stewart ◽  
Barry C. Gregory
Keyword(s):  
Health Care ◽  
Support Groups ◽  
Support Group ◽  
Death And Dying ◽  
Psychosocial Treatment ◽  
Persons Living With Hiv ◽  
Community Health Clinics ◽  
Life Issues ◽  
Immunodeficiency Syndrome

Support groups are established psychosocial treatment modalties in which clients address issues resulting from particular problems or diagnoses. In the past decade, the support group format has been widely adopted by community health clinics for persons diagnosed with the acquired immunodeficiency syndrome (AIDS). As mainstream health systems assist more people with AlDS, initial expertise developed from the gay and lesbian health care response to the human immunodeficiency virus (HIR believed to be the cause of AlDS) provides valuable information for all health care practitioners. This discussion of a long-term (5-year) AIDS support group examines 6 content themes: marginity,making choices, coping with the emotional roller coaster, premature confrontation of life issues, living with a chronic illness versus dying with a terminal disease, and death and dying. The authors inform their observations through examining the support group literature for persons living with HIV and other chronic or terminal illnesses.

Family Rejection of the Aged and Nursing Home Utilization

1974 ◽  
Vol 5 (3) ◽  
pp. 231-244 ◽  
Author(s):  
Charles J. Karcher ◽  
Leonard L. Linden
Keyword(s):  
Health Care ◽  
Nursing Home ◽  
Nuclear Family ◽  
The Elderly ◽  
The Family ◽  
Alternative Means ◽  
Using Data ◽  
Family Setting ◽  
And Function

Changes in the structure and function of the modern American family have created a need for alternative means of caring for the elderly who cannot be accommodated in the nuclear family. The “sick role” and the nursing home provide a socially acceptable means of caring for the elderly while removing them from the family setting. Using data from national morbidity surveys, it is demonstrated that a large proportion of the elderly already in nursing homes do not need this type of long-term health care. This is placing strains upon the total health care system.

Coping with motor neurone disease — an analysis using self-regulation theory

1993 ◽  
Vol 7 (4_suppl) ◽  
pp. 21-30 ◽  
Author(s):  
Louise Earll ◽  
Marie Johnston ◽  
Elspeth Mitchell
Keyword(s):  
Chronic Disease ◽  
Environmental Changes ◽  
Self Regulation ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Theoretical Approaches ◽  
High Prevalence ◽  
And Control ◽  
To Receive

Medicine and environmental changes have had tremendous success in controlling the infectious diseases that were the major causes of death in the last century. However, the consequential extension of life has been accompanied by an increase in the number of persons living with and dying of chronic illness.1 Despite these changes and their implications, the means by which people cope with such illnesses has only recently begun to receive the attention the subject warrants. 2,3 Such diseases have a high prevalence in the population and self-detection and self-management are critical to the treatment and control of chronic disease and disability.4 This paper examines how people cope with motor neurone disease and sets this in the context of earlier research on psychological aspects of chronic disease and current theoretical approaches to coping with long-term ill health.

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