scholarly journals Mapping the Journey: Family Carers’ Perceptions of Issues Related to End-Stage Care of Individuals with Muscular Dystrophy or Motor Neurone Disease

2003 ◽  
Vol 19 (1) ◽  
pp. 36-42 ◽  
Author(s):  
Sky Dawson ◽  
Linda J. Kristjanson
Keyword(s):  
Muscular Dystrophy ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Perceived Needs ◽  
The Family ◽  
The Individual ◽  
End Stage ◽  
Depth Interviews ◽  
Neuromuscular Conditions

Progress in medical technology and treatment has resulted in more people with neurodegenerative conditions surviving for longer periods of time. This increased lifespan means that these individuals have a longer period of dependency on others, with a heightened need to maintain quality of life for both the individual and the family. Our paper reports on the findings of a study involving in-depth interviews with 16 carers to determine their perceived needs during the final stage of caring for someone with muscular dystrophy (MD) or motor neurone disease. Results suggest that the palliative care model has much to offer individuals with degenerative neuromuscular conditions and their families, but it is not yet recognized as an important part of care for young people with MD. Three major themes emerged in the analysis: reactions and responses, health system crossing points, reaching forward.

THE VALUE OF LOVE IN THE SYSTEM OF FORMATION OF THE PROFESSIONAL MATURITY OF THE EDUCATOR

2020 ◽  
Vol 1 (10(79)) ◽  
pp. 12-18
Author(s):  
G. Bubyreva
Keyword(s):  
Russian Federation ◽  
The State ◽  
Educational Process ◽  
Wide Range ◽  
The Family ◽  
The Russian Federation ◽  
The Government ◽  
The Individual ◽  
The Right

The existing legislation determines the education as "an integral and focused process of teaching and upbringing, which represents a socially important value and shall be implemented so as to meet the interests of the individual, the family, the society and the state". However, even in this part, the meaning of the notion ‘socially significant benefit is not specified and allows for a wide range of interpretation [2]. Yet the more inconcrete is the answer to the question – "who and how should determine the interests of the individual, the family and even the state?" The national doctrine of education in the Russian Federation, which determined the goals of teaching and upbringing, the ways to attain them by means of the state policy regulating the field of education, the target achievements of the development of the educational system for the period up to 2025, approved by the Decree of the Government of the Russian Federation of October 4, 2000 #751, was abrogated by the Decree of the Government of the Russian Federation of March 29, 2014 #245 [7]. The new doctrine has not been developed so far. The RAE Academician A.B. Khutorsky believes that the absence of the national doctrine of education presents a threat to national security and a violation of the right of citizens to quality education. Accordingly, the teacher has to solve the problem of achieving the harmony of interests of the individual, the family, the society and the government on their own, which, however, judging by the officially published results, is the task that exceeds the abilities of the participants of the educational process.  The particular concern about the results of the patriotic upbringing served as a basis for the legislative initiative of the RF President V. V. Putin, who introduced the project of an amendment to the Law of RF "About Education of the Russian Federation" to the State Duma in 2020, regarding the quality of patriotic upbringing [3]. Patriotism, considered by the President of RF V. V. Putin as the only possible idea to unite the nation is "THE FEELING OF LOVE OF THE MOTHERLAND" and the readiness for every sacrifice and heroic deed for the sake of the interests of your Motherland. However, the practicing educators experience shortfalls in efficient methodologies of patriotic upbringing, which should let them bring up citizens, loving their Motherland more than themselves. The article is dedicated to solution to this problem based on the Value-sense paradigm of upbringing educational dynasty of the Kurbatovs [15].

scholarly journals Educational reform in Morocco in the light of TIMSS evaluation

2013 ◽  
Vol 4 (5) ◽  
Author(s):  
Ahmed AGHBAL
Keyword(s):  
Academic Performance ◽  
Educational Reform ◽  
Educational Resources ◽  
Family Context ◽  
Main Question ◽  
Contextual Variables ◽  
Cultural Variables ◽  
The Family ◽  
The Individual

The purpose of this study is to analyze Moroccan TIMSS 2011 data using the multi-level approach in order to detect the entanglement of factors that influence the academic performance of students in the second year of college secondary education (grade eight ). The main question is, what is the influence of factors related to the individual characteristics and characteristics of the school attended on the performance of students in mathematics? This question can be answered in many ways: 1. Does student achievement in mathematics vary by school? 2. Is there a significant relationship between the socioeconomic and cultural characteristics of the students and their performance in mathematics? the main question is whether the effect of socio-cultural variables linked to the family context (in particular family educational resources) tends to worsen when they interact with the contextual variables of the school. This raises the question of both the efficiency of schools and the equitable distribution of performance in mathematics. The question can be formulated in the following way: Does the effect of socio-cultural variables at the individual level increase with contact with socioeconomic variables at school level? 3. To what extent do the contextual variables of the school (school climate, educational resources available to schools, etc.) have a moderating or amplifying effect on the relationship between the socio-cultural variables linked to the family context of students and academic performance in math? 4. And what are the determinants of the quality of academic performance defined according to TIMSS standards? Added to this is the question of what has been the impact of the educational reform on the dynamics of school organizations and on the quality of academic performance.

Idris Sardi’s Influence on Musical Development and Education in Indonesia

2022 ◽  
Vol 21 (2) ◽  
pp. 290-302
Author(s):  
Fu'adi Fu'adi ◽  
Putu Sudira ◽  
Kun Setyaning Astuti
Keyword(s):  
Music Education ◽  
Popular Music ◽  
Qualitative Method ◽  
Music Appreciation ◽  
Orchestral Music ◽  
The Family ◽  
New Strategy ◽  
Violin Playing ◽  
Depth Interviews

Idris Sardi is known as a music maestro in Indonesia. This study aims to reveal the influence of Idris Sardi on the development of music and its implications in music education. This study uses a qualitative method with a narrative approach. The data were collected through observation, in-depth interviews, and documentation. The research informants were carefully selected from the family, violin students, and colleagues of Idris Sardi in Jakarta and Bogor, West Java. The data were analyzed by organizing data and creating codes, describing codes in chronological categories and themes, developing interpretations, and visualizing data. The results showed that Idris Sardi was influential in developing (1) keroncong music by varying the tempo and expanding the repertoire; (2) the violin playing techniques included unique characters such as vibrato, glissando, and octave variations; (3) ethnic and popular music were made through orchestrations and collaboration with orchestral music. The implications in music vocational education were (1) problem-based learning by creating a new keroncong style to be accepted by society; (2) the improvement capability by exploring skills to play the violin; (3) life-based-learning by raising local and popular music to be qualified while enhancing the level of society’s music appreciation. In conclusion, Idris Sardi provided a strong influence on the music development in Indonesia, and the implication could be a new strategy to improve the quality of music education.

On Letting go: The Patient, Haemodialysis and Opting Out

1990 ◽  
Vol 24 (2) ◽  
pp. 268-275 ◽  
Author(s):  
William Cramond ◽  
Margaret Fraenkel ◽  
Lindsay Barratt
Keyword(s):  
Renal Failure ◽  
Renal Unit ◽  
End Stage Renal Failure ◽  
Opting Out ◽  
The Family ◽  
Letting Go ◽  
End Stage

The title of this article refers not only to the patient who decides to let go of life, the quality of which on dialysis is such that death is preferable, but also to the family and the renal unit staff who have to let go of the patient who makes this decision. One such case is described in detail since the problem is not one restricted to the treatment of end-stage renal failure alone, but occurs more and more frequently in other branches of medicine and surgery.

Filial Piety and Intergenerational Co-residence: The Case of Chinese Singaporeans

2008 ◽  
Vol 36 (3-4) ◽  
pp. 659-679 ◽  
Author(s):  
Voon Chin Phua ◽  
Jason Loh
Keyword(s):  
Quality Of Life ◽  
Filial Piety ◽  
Intergenerational Relationships ◽  
The Family ◽  
Depth Interviews ◽  
Over Time ◽  
Local Cultures

AbstractThe concept of filial piety is not static and is subject to interpretations. The concept of filial piety also has evolved over time and adapted to local cultures. In this paper, we examine the practices of filial piety among Chinese Singaporeans. Using in-depth interviews collected in 2006 and 2007, we find that the idea of filial piety still resonates among Chinese Singaporeans, though in some cases it may merely be symbolic. While intergenerational co-residence is not the only way for children to demonstrate their filial piety, most participants view it as the epitome. However, filial piety, as demonstrated through intergenerational co-residence, may be hiding other issues that are detrimental to the quality of life for all parties. Nonetheless, positive intergenerational relationships bind the family together.

scholarly journals Satisfaction of parents (legal representatives) with the quality of medical care provided to their disabled children

2021 ◽  
Vol 24 (2) ◽  
pp. 106-111
Author(s):  
Andrey P. Fisenko ◽  
Rimma N. Terletskaya ◽  
Irina V. Vinyarskaya ◽  
Elena V. Antonova ◽  
Vladislav V. Chernikov ◽  
...  
Keyword(s):  
Medical Care ◽  
Main Task ◽  
Disabled Children ◽  
Persons With Disabilities ◽  
Rehabilitation Programs ◽  
The Family ◽  
The Status ◽  
Quality Of Medical Care ◽  
The Individual

The aim is to identify parents’ (legal representatives’) satisfaction with the quality of medical care provided to their disabled children to improve this type of service further. Materials and methods. A sociological survey was conducted of 506 legal representatives of minors (aged from birth to 17 years) with the status of a disabled child. The study design is single-center, non-randomized, uncontrolled. Results. An analysis of the living conditions of a disabled child in the family, the parents’ assessment of his health status, the problems arising in the registration of disability, in the provision of medical and rehabilitation assistance, and issues of medical and social support made it possible to determine the position of this part of the child population in current legal and medical and social conditions. The main problems were the collection of a large number of documents when registering a disability, a long wait for the day of examination, the remoteness of the medical and social examination bureau, the lack of specialist doctors, problems with obtaining subsidized drugs, the lack of consideration of the individual needs of the child when conducting unique rehabilitation programs, the need to apply at the same time to various organizations and departments, violation of rights in the provision of medical services to a disabled child. Conclusion. The obtained information is very significant for further improving the provision of medical and social assistance to disabled children and children with disabilities. The main task today is to develop mechanisms for implementing the declared rights and freedoms of persons with disabilities, the obligations assumed by the State concerning them.

scholarly journals Nacrt ekološke duhovnosti prema enciklici Laudato sì pape Franje

2019 ◽  
Vol 54 (3) ◽  
pp. 397-412
Author(s):  
Mladen Parlov
Keyword(s):  
Quality Of Life ◽  
Ecological Awareness ◽  
The Earth ◽  
Visible Matter ◽  
The Family ◽  
The World ◽  
Ecological Spirituality ◽  
The Individual ◽  
Internal Balance

In the wake of the Pope Francis' encyclical Laudato sì which talks about the Earth as a common home of all people, the author offers a draft of ecological spirituality. The beginning of true eco-spirituality is ecological conversion, which is nothing else but a renewed consciousness that from our faith and encounter with Jesus Christ we also ought to change our relationship with the world around us. Ecological conversion should help the faithful to repeatedly and correctly develop their awareness of having been created, of their own immersion into the world of creatures with which they are interconnected. Correct ecological attitude leads to internal balance of the man himself, to solidarity with others, to natural balance of all living beings and to spiritual balance with God. Ecological awareness can help not only to preserve the environment, which is one of the basic goals, but also to change the way of behaviour, which can raise the quality of life of both the individual and the family. Ecological spirituality understands and lives the sacraments in a new way, as a means of salvation and sanctification, because in the sacraments God uses the visible matter in order to communicate his (invisible) grace. Eco-spirituality calls for upbringing and adopting new attitudes in the lives of contemporary Christians which need to help them to properly treat the created world.

scholarly journals The Canadian Migraine Forum

2007 ◽  
Vol 34 (4) ◽  
pp. s1-s26
Keyword(s):  
Correct Diagnosis ◽  
Health Related Quality ◽  
The Public ◽  
The Family ◽  
Related Quality ◽  
Health Related ◽  
Degree Of Disability ◽  
The Individual ◽  
The Impact

ABSTRACT:The goal of the Canadian Migraine Forum was to work towards improving the lives of Canadians with migraine by reducing their migraine-related disability. This paper reviews the epidemiology and diagnosis of migraine, and the effects of migraine on health related quality of life. Many patients with migraine do not consult a physician for their headaches, and when they do they often do not receive a correct diagnosis. The discussion at the Forum concluded that better education, both for physicians and the public, on issues relating to migraine was a necessary step in improving migraine diagnosis. The degree of disability caused by migraine is often not recognized by society, and can be substantial for individuals with migraine. Once again, education of the public and of the health professionals who see these patients is key, so that the best migraine management can be instituted to minimize the impact of migraine on the individual, the family, and society at large.

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