scholarly journals A Resilient Care of the Patient With COVID-19: A Phenomenological Study

Author(s):  
Parvaneh Asgari ◽  
Alun C. Jackson ◽  
Ali Khanipour-Kencha ◽  
Fatemeh Bahramnezhad

This study a utilized phenomenological hermeneutic design. Fourteen Iranian family caregivers of patients with COVID-19 who were isolated at home were included in the study using purposive sampling. In-depth unstructured interviews were conducted via WhatsApp. Sampling continued until data saturation. Interviews were transcribed and analyzed using Van Manen’s approach. Three primary themes and eight subthemes emerged. The primary themes included: “captured in a whirlpool of time”, “resilient care’ and “feeling helpless”. It seems that the families of patients with COVID-19 attempt to resist the pressures of this disease with religious practices and problem solving. However, due to the nature of the disease and its severity, they sometimes feel ashamed or lonely and are afraid of losing their loved ones. It is recommended that psychiatric nurses should develop programs in the form of comprehensive spiritual care packages or psychological support and utilize multiple media channels to deliver these.

2020 ◽  
Author(s):  
Parvaneh Asgari ◽  
Alun C Jackson ◽  
Fatemeh Bahramnezhad

Abstract Background Family caregivers understand several challenges in caring for patients with COVID-19.This study aimed to understand the experiences of Iranian family caregivers of persons with COVID-19. Method: This study utilized phenomenological hermeneutic design. Fourteen Iranian family caregivers of patients with COVID-19 who were quarantined at home were included in the study using purposive sampling. In-depth semi-structured interviews were conducted via WhatsApp. Sampling continued until data saturation. Interviews were transcribed and analyzed using Van Manen’s approach. Result Three primary themes and eight subthemes emerged. The primary themes included: ”captured in a whirlpool of time”, “resilient care’ and “feeling helpless”. Conclusion It seems that the families of patients with COVID-19 attempt to resist the pressures of this disease with religious practices and problem solving. However, due to the nature of the disease and its severity, they sometimes feel ashamed or lonely and are afraid of losing their loved ones. It is recommended that psychiatric nurses should develop programs in the form of comprehensive spiritual care packages or psychological support and utilize multiple media channels to deliver these.


2019 ◽  
Vol 33 (5) ◽  
pp. 500-509 ◽  
Author(s):  
Carmen Quiñoa-Salanova ◽  
Josep Porta-Sales ◽  
Cristina Monforte-Royo ◽  
Montserrat Edo-Gual

Background: Family caregivers play a key role in the lives of patients with multiple myeloma. However, very little is known about the impact that the disease (its diagnosis, course and prognosis) has on the main family caregiver. Aim: To achieve a deeper understanding of the lived experience of individuals who are the primary caregiver of a relative with multiple myeloma and to shed light on their needs. Design: Interpretative phenomenological study. Setting and participants: A total of 12 individuals who were the main family caregivers of a relative with multiple myeloma who was under outpatient follow-up at a cancer unit in Barcelona were recruited via purposive sampling until data saturation was reached. In semi-structured in-depth interviews, participants described their experiences of caring for their relative with multiple myeloma. Interviews were recorded, transcribed and analysed using ATLAS.ti v7.2. The seven steps proposed by Colaizzi were used for data analysis, and the relationships among emerging themes were examined. Findings: Four main themes emerged: (a) a new life, adapting to the disease, (b) commitment to the patient, (c) the emotional sphere and (d) experiences in relation to the care and support received. The analysis also revealed a core overarching theme: uncertainty. Conclusion: Primary family caregivers experienced intense uncertainty, and they described a strong need to air their feelings. Specific practical initiatives, targeting both health-related and logistical aspects of care, need to be developed in order to support family caregivers of myeloma patients.


2006 ◽  
Author(s):  
Timothy R. Elliott ◽  
Patricia Rivera ◽  
Jack W. Berry ◽  
Kim Oswald ◽  
Joan Grant ◽  
...  

Author(s):  
Klaus Pfeiffer ◽  
Denis Beische ◽  
R. Hoffrichter ◽  
J. Wengert ◽  
C. Becker ◽  
...  

2019 ◽  
pp. bmjspcare-2018-001561 ◽  
Author(s):  
Susan DeSanto-Madeya ◽  
Dan Willis ◽  
Julie McLaughlin ◽  
Aristotle Boslet

ObjectivesFamily caregivers suffer a high burden of emotional and psychological distress following the death of a loved one in the intensive care unit and often struggle to heal in the weeks following their loss. The purpose of this hermeneutic phenomenological study was to describe and interpret the experience of healing for family caregivers six weeks following the death of a loved one in the ICU.MethodsSemi-structured telephone interviews were conducted with a purposive sample of twenty-four family caregivers six weeks following the death of their loved ones in the ICU. Qualitative analysis techniques were used to identify common themes central to the experience of healing across all interviews.ResultsSeven themes were interpreted from the data: searching for clarity from a time of uncertainty; riding an emotional rollercoaster; seeking peace in one’s decisions; moving forward with each new day; taking comfort in the memories; valuing layers of support; and discovering life on one’s own.ConclusionBy identifying and gaining an understanding of healing following the death of a loved one in the ICU, nursing and other healthcare providers have an opportunity to promote healing and positively impact family caregiver’s bereavement.


2018 ◽  
Vol 39 (5) ◽  
pp. 509-518 ◽  
Author(s):  
Fayron Epps ◽  
Ishan C. Williams

This study was a post hoc analysis of a larger qualitative descriptive study exploring family involvement in health promotion activities for African Americans living with dementia where participants identified religious practices as meaningful health promotion activities. The purpose of this study was to explore ways in which religiosity may influence the well-being of older adults living with dementia. Semi-structured interviews were conducted among a sample of 22 family caregivers and 15 older adults living with dementia ( N = 37). Three themes emerged: Engagement, Promotion of Faith and Spiritual Connectedness, and Maintenance of Religious Practices. It is imperative for family caregivers to understand the important contributions of religious activities and beliefs to the well-being of their family member. This information might be of use for faith communities, policy makers, and health care providers in the provision of optimal person-centered care and the promotion of quality of life for persons living with dementia.


2018 ◽  
Vol 67 (3) ◽  
pp. 635-653
Author(s):  
Breda Gray

This article analyses David Monahan’s photographic portrait series of over 120 people before emigrating from post-Celtic Tiger Ireland, entitled ‘Leaving Dublin’. As a digital series that circulates across multiple media channels, it moves beyond the tradition of documentary photography into a more hybrid aesthetic, political and media environment. As well as inserting these images in multiple circulatory platforms and replicable formats, the series disrupts the dominant visual culture of emigration by expressively recasting how it is seen and thought. This article argues that the highly stylised and unsentimental aesthetic adopted by Monahan pushes the images beyond the established visual culture of sentimental departure, visualising instead transnational and multicultural histories and politics through complex circuits of migration. As such, it highlights what Mieke Bal sees as the instability of migratory culture in the city landscape. At the same time, however, it re-enacts particular social distinctions and divisions. Just as new trajectories, relationalites and stories ‘appear’ as constitutive of Dublin and contemporary mobility, so also other trajectories, relationalities and mobilities are disappeared in ways that keep an exclusionary topography and politics of mobility in place. This is evident in the insistent and persistent separation between Irish asylum-seeking/immigration and emigration-focused digital photographic projects. So, although digitisation facilitates reflexive ways of communicating contemporary migration, and Monahan’s project succeeds in forging subtle connections, it also re-enacts structured disconnection and forgetting.


Sign in / Sign up

Export Citation Format

Share Document