scholarly journals Resilient care of the patient with COVID-19 in Iran: A phenomenological Study

2020 ◽  
Author(s):  
Parvaneh Asgari ◽  
Alun C Jackson ◽  
Fatemeh Bahramnezhad
Keyword(s):  
Problem Solving ◽  
Family Caregivers ◽  
Spiritual Care ◽  
Phenomenological Study ◽  
Psychiatric Nurses ◽  
Structured Interviews ◽  
Iranian Family ◽  
Data Saturation ◽  
Multiple Media ◽  
Media Channels

Abstract Background Family caregivers understand several challenges in caring for patients with COVID-19.This study aimed to understand the experiences of Iranian family caregivers of persons with COVID-19. Method: This study utilized phenomenological hermeneutic design. Fourteen Iranian family caregivers of patients with COVID-19 who were quarantined at home were included in the study using purposive sampling. In-depth semi-structured interviews were conducted via WhatsApp. Sampling continued until data saturation. Interviews were transcribed and analyzed using Van Manen’s approach. Result Three primary themes and eight subthemes emerged. The primary themes included: ”captured in a whirlpool of time”, “resilient care’ and “feeling helpless”. Conclusion It seems that the families of patients with COVID-19 attempt to resist the pressures of this disease with religious practices and problem solving. However, due to the nature of the disease and its severity, they sometimes feel ashamed or lonely and are afraid of losing their loved ones. It is recommended that psychiatric nurses should develop programs in the form of comprehensive spiritual care packages or psychological support and utilize multiple media channels to deliver these.

scholarly journals A Resilient Care of the Patient With COVID-19: A Phenomenological Study

2021 ◽  
pp. 0272684X2110334
Author(s):  
Parvaneh Asgari ◽  
Alun C. Jackson ◽  
Ali Khanipour-Kencha ◽  
Fatemeh Bahramnezhad
Keyword(s):  
Problem Solving ◽  
Family Caregivers ◽  
Spiritual Care ◽  
Phenomenological Study ◽  
Psychiatric Nurses ◽  
Religious Practices ◽  
Iranian Family ◽  
Data Saturation ◽  
Multiple Media ◽  
Media Channels

This study a utilized phenomenological hermeneutic design. Fourteen Iranian family caregivers of patients with COVID-19 who were isolated at home were included in the study using purposive sampling. In-depth unstructured interviews were conducted via WhatsApp. Sampling continued until data saturation. Interviews were transcribed and analyzed using Van Manen’s approach. Three primary themes and eight subthemes emerged. The primary themes included: “captured in a whirlpool of time”, “resilient care’ and “feeling helpless”. It seems that the families of patients with COVID-19 attempt to resist the pressures of this disease with religious practices and problem solving. However, due to the nature of the disease and its severity, they sometimes feel ashamed or lonely and are afraid of losing their loved ones. It is recommended that psychiatric nurses should develop programs in the form of comprehensive spiritual care packages or psychological support and utilize multiple media channels to deliver these.

scholarly journals The Lived Experiences of Parents of Iranian Young Women with Multiple Sclerosis

2019 ◽  
Author(s):  
Marzieh Panahi ◽  
Zahra Tazakori ◽  
Mansoureh Karimollahi
Keyword(s):  
Multiple Sclerosis ◽  
Young Women ◽  
Lived Experiences ◽  
Phenomenological Study ◽  
Positive Impact ◽  
Structured Interviews ◽  
The Family ◽  
Data Saturation ◽  
Open Coding ◽  
Colaizzi's Method

Abstract Background: Chronic illness in children causes more mental health risks for parents than other members of the family. Therefore, exploring the experiences of parents living with young women who have multiple sclerosis and presenting them to healthcare planners and managers can have a positive impact on community health. This study aimed to explore the experiences of parents of young women with multiple sclerosis in Iran. Methods: This research was a phenomenological study, and sampling was continued until data saturation, and 12 participants were chosen. The data were gathered using semi-structured interviews and analyzed using Colaizzi's method. Results: Open coding resulted in 450 codes, and after several stages of analysis and integration of similar codes, five main concepts, and 21 sub-concepts was produced. The main concepts included distress, trapping, adaptation barriers, response to illness, and reconciliation with the disease. Conclusion: This study showed the disease affects all dimensions of the parents' life and can lead to the experiences that are new to them and may lead to confusion. These findings can lead to more effective parental care for their daughters. It can also reduce the burden of disease on the family, the health system, and the community.

scholarly journals Family Caregivers' Experiences of Caring for Patients with COVID-19: A Phenomenological Study

2020 ◽  
Author(s):  
Tahereh Rahimi ◽  
Neda Dastyar ◽  
Foozieh Rafati
Keyword(s):  
Family Caregivers ◽  
Phenomenological Study ◽  
Social Experiences ◽  
Physical And Mental Health ◽  
Structured Interviews ◽  
Community Members ◽  
Step Method ◽  
Positive Experiences ◽  
Qualitative Phenomenological ◽  
Qualitative Phenomenological Study

Abstract Background: Family caregivers of patients with COVID-19 face many challenges that affect their physical and mental health. Aim: The aim of the present study was to explore the family caregivers' experiences of caring for patients with COVID-19. Methods: This qualitative phenomenological study was performed based on 13 family caregivers who had experience in home caring for patients with COVID-19. Data were collected through purposive sampling with in-depth semi-structured interviews. The Colaizzi's 7-step method was used to determine themes. The MAXQDA10 software was used to manage qualitative data analysis.Results: Five themes of (a) “nature of the disease” with 2 subcategories, including “fluctuating symptoms” and “emergent and unpredictable disease;” (b) “unmet needs” with 3 subcategories, including “lack of knowledge,” “lack of health facilities,” and” financial problems;” (c) “unpleasant physical, psychological, and social experiences” with 3 subcategories, including “unpleasant physical experiences,” “unpleasant psychological experiences,” and “unpleasant social experiences;” (d) “care facilitators” with 3 subcategories, including “social support,” “adaptive mechanisms,” and “intrinsic motivations;” and (e) “positive experiences” with 3 subcategories, including “promoting spirituality,” “improving relationships,” and “growth” were extracted.Conclusion: Information and financial support for COVID-19 should be provided to family caregivers. Also, community members should embrace patients and family caregivers and reinforce the positive experiences of caregivers.

Barriers to Addressing the Spiritual and Religious Needs of Patients and Families in the Intensive Care Unit: A Qualitative Study of Critical Care Physicians

2020 ◽  
pp. 104990912097090
Author(s):  
Christian K. Alch ◽  
Christina L. Wright ◽  
Kristin M. Collier ◽  
Philip J. Choi
Keyword(s):  
Intensive Care Unit ◽  
Critical Care ◽  
Intensive Care ◽  
Spiritual Care ◽  
Spiritual Needs ◽  
Care Providers ◽  
Structured Interviews ◽  
Care Services ◽  
Qualitative Research Design ◽  
Data Saturation

Objectives: Though critical care physicians feel responsible to address spiritual and religious needs with patients and families, and feel comfortable in doing so, they rarely address these needs in practice. We seek to explore this discrepancy through a qualitative interview process among physicians in the intensive care unit (ICU). Methods: A qualitative research design was constructed using semi-structured interviews among 11 volunteer critical care physicians at a single institution in the Midwest. The physicians discussed barriers to addressing spiritual and religious needs in the ICU. A code book of themes was created and developed through a regular and iterative process involving 4 investigators. Data saturation was reached as no new themes emerged. Results: Physicians reported feeling uncomfortable in addressing the spiritual needs of patients with different religious views. Physicians reported time limitations, and prioritized biomedical needs over spiritual needs. Many physicians delegate these conversations to more experienced spiritual care providers. Physicians cited uncertainty into how to access spiritual care services when they were desired. Additionally, physicians reported a lack of reminders to meet these needs, mentioning frequently the ICU bundle as one example. Conclusions: Barriers were identified among critical care physicians as to why spiritual and religious needs are rarely addressed. This may help inform institutions on how to better meet these needs in practice.

scholarly journals Reflections on volunteer nurses' work and caring experiences during COVID-19: a phenomenological study

2021 ◽  
pp. 174498712110075
Author(s):  
Loretta Yuet Foon Chung ◽  
Lin Han ◽  
Yifei Du ◽  
Libo Liu
Keyword(s):  
Lived Experiences ◽  
Phenomenological Study ◽  
Management Strategies ◽  
Sampling Strategy ◽  
External Support ◽  
Resource Utilisation ◽  
Structured Interviews ◽  
Familial Bonds ◽  
Data Saturation ◽  
Colaizzi's Method

Background With epidemics emerging at a hastened pace, a phenomenological study allows researchers to cast aside their perceptions to understand nurses’ lived experiences, and from there to discover previously unavailable insights at the epicentre of a pandemic. Aims To understand volunteer nurses’ lived experiences in Wuhan. Methods A descriptive phenomenological study with a purposive sampling strategy was used to describe volunteer nurses’ experiences in Wuhan. Interviews continued until data saturation. Ten semi-structured interviews of 30 to 60 minutes duration were conducted from 27 to 30 March 2020. The narrative data were audiotaped, transcribed and analysed using Colaizzi’s method. Results Four themes emerged: mission and challenges denoted the participants’ realisation of the grim challenges ahead; challenges called for actions that described the concerted actions through partnerships and familial bonds; caring acts from all around revealed an external support system; and actions that made a difference portrayed the interplay of actions with feelings, thoughts and further actions to accomplish the mission. Conclusions This phenomenological study showed the interplay of nurses’ intentions and actions, and ‘actions speak louder than words’ when nurses were motivated by workmates’ actions to change their feelings, thoughts and actions. The concerted efforts can be used to develop educational programmes, management strategies and institutional policy on structure, system and resource utilisation, as well as dissemination of scientific knowledge to global healthcare workers and the public.

The experiences and needs of primary family caregivers of patients with multiple myeloma: A qualitative analysis

2019 ◽  
Vol 33 (5) ◽  
pp. 500-509 ◽  
Author(s):  
Carmen Quiñoa-Salanova ◽  
Josep Porta-Sales ◽  
Cristina Monforte-Royo ◽  
Montserrat Edo-Gual
Keyword(s):  
Multiple Myeloma ◽  
Lived Experience ◽  
Family Caregivers ◽  
Phenomenological Study ◽  
Care And Support ◽  
Data Saturation ◽  
Health Related ◽  
The Impact ◽  
Primary Family ◽  
Main Family

Background: Family caregivers play a key role in the lives of patients with multiple myeloma. However, very little is known about the impact that the disease (its diagnosis, course and prognosis) has on the main family caregiver. Aim: To achieve a deeper understanding of the lived experience of individuals who are the primary caregiver of a relative with multiple myeloma and to shed light on their needs. Design: Interpretative phenomenological study. Setting and participants: A total of 12 individuals who were the main family caregivers of a relative with multiple myeloma who was under outpatient follow-up at a cancer unit in Barcelona were recruited via purposive sampling until data saturation was reached. In semi-structured in-depth interviews, participants described their experiences of caring for their relative with multiple myeloma. Interviews were recorded, transcribed and analysed using ATLAS.ti v7.2. The seven steps proposed by Colaizzi were used for data analysis, and the relationships among emerging themes were examined. Findings: Four main themes emerged: (a) a new life, adapting to the disease, (b) commitment to the patient, (c) the emotional sphere and (d) experiences in relation to the care and support received. The analysis also revealed a core overarching theme: uncertainty. Conclusion: Primary family caregivers experienced intense uncertainty, and they described a strong need to air their feelings. Specific practical initiatives, targeting both health-related and logistical aspects of care, need to be developed in order to support family caregivers of myeloma patients.

scholarly journals Forming new habits in the face of chronic cancer-related fatigue: An interpretative phenomenological study

2021 ◽  
Author(s):  
Tom I. Bootsma ◽  
Melanie P. J. Schellekens ◽  
Rosalie A. M. van Woezik ◽  
Jenny Slatman ◽  
Marije L. van der Lee
Keyword(s):  
Health Professionals ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Study ◽  
Essential Elements ◽  
Structured Interviews ◽  
Cancer Related Fatigue ◽  
Letting Go ◽  
Data Saturation ◽  
The Face ◽  
After Cancer

Abstract Purpose The growing group of patients who suffer from chronic cancer-related fatigue (CCRF) after cancer have helpful and less helpful ways of responding to this long-lasting and disruptive problem. This qualitative study aimed to gain insight in essential elements of how patients respond to CCRF, with a focus on helpful responses to facilitate adaptation. Methods We conducted semi-structured interviews with a purposive sample of 25 participants who experienced severe CCRF for at least 3 months. Participants were recruited via media, patient associations, meetings, and health professionals until data saturation was attained. We used a topic guide with open-ended questions about lived experiences. Interpretative phenomenological analysis (IPA) was used for analysis of the transcripts. Results We identified five interrelated themes of how patients respond to CCRF: (1) discovering physical and emotional boundaries; (2) communicating support needs; (3) reorganizing and planning activities and rest; (4) letting go of one’s habitual identity; and (5) recognizing and accepting CCRF. Conclusion This study highlights the development of new habits and positive beliefs in the face of CCRF and the importance of (social) support in this process. This experiential knowledge on helpful responses can be used to inform patients and their significant others and improve self-efficacy. Health professionals could use these insights to improve recognition of CCRF and personalize treatment.

scholarly journals Understanding the Meaning of Lived Experience "Maternal Near Miss": A Qualitative Study Protocol

2021 ◽  
Vol 10 (1) ◽  
pp. 43-48
Author(s):  
Sedigheh Abdollahpour ◽  
Abbas Heydari ◽  
Hosein Ebrahimipour ◽  
Farhad Faridhosseini ◽  
Talat Khadivzadeh
Keyword(s):  
Lived Experience ◽  
Phenomenological Study ◽  
Tertiary Care ◽  
Near Miss ◽  
World Health ◽  
Structured Interviews ◽  
Psychological Burden ◽  
Data Saturation ◽  
Health Organization ◽  
Supportive Program

Abstract Introduction:Maternal near-miss (MNM) is defined as "a woman who almost died but survived a serious maternal complication during pregnancy, childbirth, or within 42 days of completion of pregnancy". Despite the long-term physical and psychological burden of this event on the mother’s life, the meaning of MNM is not clear. In addition, the mother’s role complicates the understanding of this phenomenon. Therefore, this study aimed to understand lived experience of Iranian "near-miss" mothers in the postpartum period. Methods:In this Heideggerian phenomenological study, we used Souza and colleagues’ theoretical framework to understand the meaning of the lived experience of near-miss mothers in-depth. The participants had experienced MNM at least one year ago by World Health Organization (WHO)approach in multicenter, academic, tertiary care hospitals in Mashhad, Iran. Taking into account reflexivity and after obtaining ethical approval, participants were purposively sampled using semi-structured interviews, and data analysis was conducted by Diekelmann and colleagues up to data saturation. Data collection and analysis has been argued by Lincoln and Guba. Discussion:Our findings resulted in updating the existing knowledge about the meaning of MNM and its implication. Given the different needs and challenges of near-miss mothers, it is necessary to design a supportive program of primary care for them. Policymakers and managers should consider the lived experience of these mothers when planning and taking decisions.

scholarly journals Explain the Experience of Family Caregivers Regarding Care of Alzheimer's Patients: A Qualitative Study

2021 ◽  
Vol 12 ◽  
Author(s):  
Hadis Ashrafizadeh ◽  
Mahin Gheibizadeh ◽  
Maryam Rassouli ◽  
Fatemeh Hajibabaee ◽  
Shahnaz Rostami
Keyword(s):  
Content Analysis ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Personal Growth ◽  
Structured Interviews ◽  
Term Care ◽  
Care Experience ◽  
Four Dimensions ◽  
Data Saturation

Introduction: Due to the long-term and progressive nature of Alzheimer's disease, these patients need caregivers who will be responsible for their long-term care and who may then experience an increasing burden related to the progressive disease course, so it is important to understand the experiences of caregivers. The aim of this study was to explain the experience of family caregivers regarding care of Alzheimer's patients.Methods: The present qualitative study employed a conventional content analysis approach and was conducted in Iran in 2020. This research was done through in-depth and semi-structured interviews with 11 qualified caregivers enrolled in a purposive sampling method. Interviews continued until data saturation. Data analysis was performed simultaneously with data collection. Interviews were recorded, transcribed and analyzed through Graneheim and Lundman style content analysis and data management was done with MAXQDA software. In order to achieve the accuracy and validity of the study, the Four-Dimensions Criteria (FDC) by Lincoln and Guba, credibility, dependability, confirmability, and transformability were considered and used.Results: A total of 11 caregivers with mean age and standard deviation 48, ±26.12 participated in the study. The acquired data were put in two main categories of “burnout and exhaustion” with six subcategories and “excellence and personal growth” with three subcategories.Conclusion: In this study, we found that perceptions of caregivers' role were not the same among study participants, who experienced both positive and negative dimensions of care provision to AD patients. The care experience has a spectrum that, in some people, leads to positive outcomes such as growth. A major part of caregiver challenges is related to the burden of caregiving strain and the erosive nature of the disease. Therefore, health planners should identify the challenges, pain and suffering of caregivers and seek to address them through appropriate strategies.

scholarly journals Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases

2021 ◽  
Vol 39 (2) ◽  
Author(s):  
Joice Soares Campos ◽  
Anna Cláudia Yokoyama Dos Anjos ◽  
Sebastião Benício da Costa Neto ◽  
Rodrigo Sanches Peres
Keyword(s):  
Elderly Patients ◽  
Family Caregivers ◽  
Cross Sectional Study ◽  
Care Process ◽  
Degenerative Diseases ◽  
Structured Interviews ◽  
Cross Sectional ◽  
Data Saturation ◽  
Healthy Family ◽  
Healthy Family Member

Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases.  Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context.   Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles.  Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs.  

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