scholarly journals Informal caregiver burden and influencing factors in gynaecological oncology patients hospitalized for chemotherapy: a cross-sectional study

2020 ◽  
Vol 48 (11) ◽  
pp. 030006052097492
Author(s):  
Yan Zuo ◽  
Bi-Ru Luo ◽  
Wen-Tao Peng ◽  
Xin-Ru Liu ◽  
Ya-Lin He ◽  
...  
Keyword(s):  
Regression Analysis ◽  
Influencing Factors ◽  
Caregiver Burden ◽  
Informal Caregiver ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Oncology Patients ◽  
Cross Sectional ◽  
Gynaecological Oncology

Objective To determine the level and influencing factors of informal caregiver burden in gynaecological oncology inpatients receiving chemotherapy. Methods This cross-sectional study enrolled gynaecological oncology patients and their informal caregivers between May 2018 and November 2018 and measured the caregivers’ burden using the Caregiver Burden Inventory. The influencing factors were evaluated with univariate regression analysis and multivariate linear stepwise regression analysis. Results A total of 138 patients and their informal caregivers completed the questionnaire. The mean ± SD total informal caregiver burden score was 53.18 ± 10.97. The highest mean ± SD score was recorded in the dimension of time-dependent burden (14.28 ± 2.74), followed by developmental burden (13.65 ± 2.15), physical burden (10.52 ± 2.07), social burden (7.61 ± 2.58) and emotional burden (7.12 ± 1.43). Multivariate analysis showed that the informal caregiver’s sex, relationship to the patient, daily duration of care, presence of chronic health problems and the duration of the patient’s disease were factors influencing the level of caregiver burden. Conclusions The informal caregivers of gynaecological cancer patients hospitalized for chemotherapy experience a moderate level of burden. Nursing measures should be considered to reduce informal caregiver burden and improve the quality of lives of both patients and their caregivers.

scholarly journals Exploration of COVID-19-Based Changes to Caregiver Burden and Caregiving Intensity among Informal Caregivers

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 945-945
Author(s):  
Steven Cohen ◽  
Zachary Kunicki ◽  
Megan Drohan ◽  
Mary Greaney
Keyword(s):  
Caregiver Burden ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Multinomial Regression ◽  
Chi Square ◽  
Cross Sectional ◽  
Unpaid Care ◽  
Factors Associated ◽  
Amazon's Mechanical Turk

Abstract Individuals providing unpaid care of assistance to family members and friends (e.g. informal caregivers), may have been uniquely impacted by the COVID-19 pandemic. Research is needed to examine the pandemic’s effect on informal caregivers’ caregiving intensity and burden. Therefore, this cross-sectional study was conducted to explore self-reported changes in caregiver intensity (CI) and caregiver burden (CB) due to the pandemic to identify factors associated with changes in responsibilities and burdens. In June 2020, informal caregivers providing care to someone aged 50+ (n=835) reported their current and pre-pandemic caregiving intensity and burden. Data were collected via Amazon’s Mechanical Turk. Chi-square tests were used to examine bivariate associations between pandemic time (pre vs. post) differences in CI and CB. Multinomial regression was used to assess multivariate predictors of changes to CI and CB due to COVID-19. Results showed a significant U-shaped association between initial CB and CB change due to COVID-19. Higher levels of initial CB were associated with both a significant decrease in CB during COVID-19 (OR 1.33, 95%CI 1.06-1.67), and a significant increase in CB during COVID-19 (OR 1.22, 95%CI 1.05-1.43). There were no significant associations between initial CB and changes in CI due to COVID-19, although older caregivers were more likely to experience a decrease in CB due to caregiving (OR 1.02, 95%CI 1.00-1.05). These mixed results suggest that caregivers with high initial CB experienced the most extreme changes to CB due to COVID-19. Future planned analyses will focus on understanding the potential drivers behind these unexpected results.

scholarly journals Needs and skills of informal caregivers to care for a dependent person: a cross-sectional study

2019 ◽  
Author(s):  
Maria Dixe ◽  
Liliana Teixeira ◽  
Timoteo Areosa ◽  
Roberta Frontini ◽  
Teresa Peralta ◽  
...  
Keyword(s):  
Informal Caregiver ◽  
Medication Management ◽  
Hospital Readmissions ◽  
Informal Caregivers ◽  
Self Care ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Average Life Expectancy ◽  
Cross Sectional ◽  
Face To Face

Abstract Background: The world is facing many socio-demographic changes, such as an increased average life expectancy and the presence of chronic and non-communicable diseases, which in turn, leads to an enhanced dependency on others. Consequently, the demand for informal caregivers has significantly increased during the past few years. Caring for a dependent person is linked to a series of burdens that often leads to physical, psychological and emotional difficulties. Taking into consideration the difficulties faced by informal caregivers, knowing in which areas of functioning they need more guidance may help to relieve their burden. Therefore, the main goal of this study is to better understand the needs and competencies of the informal caregiver when caring for a dependent person in the different self-care domains. Methods: cross-sectional study using face-to-face interviews. Descriptive and inferential statistics alongside non-parametric statistical techniques such as the Mann-Whitney test and Spearman’s correlation were used. Results: The average age of the informal caregivers is 58 years old, with the youngest in our sample being 21 years of age. Most of them are female, and 50% of them are children taking care of one of their parents. Most of the dependent people are completely dependent in the areas of comfort and hygiene (53.8%) and medication management (55.9%). The female informal caregivers see themselves as having more competencies in sanitary hygiene than the male ones, with no significant differences in their competencies’ perception in the other areas of self-care. Older caregivers see themselves as less competent in certain areas of self-care such as feeding, mobility, transfers, medication and symptoms management and communication. Most part of the information given to the informal caregiver is about the disease (82.3%) and about the medication management (80.4%). There are still a lot of areas of self-care, where no information, or almost none, is given to the informal caregivers. Conclusions: Prior to home discharge of a dependent person, it is important to acknowledge the needs and competencies of the informal caregiver, to capacitate them in looking after their relatives, in order to help decrease their burden and consequently, decrease the number of hospital readmissions.

scholarly journals Caregiver burden among informal caregivers in the largest specialized palliative care unit in Malaysia: a cross sectional study

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Zati Sabrina Ahmad Zubaidi ◽  
Farnaza Ariffin ◽  
Cindy Teoh Cy Oun ◽  
Diana Katiman
Keyword(s):  
Palliative Care ◽  
Caregiver Burden ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Palliative Care Unit ◽  
Depression And Anxiety ◽  
Sectional Study ◽  
Cross Sectional ◽  
Symptoms Of Depression ◽  
Specialized Palliative Care

Abstract Background Informal caregivers (IC) are often overshadowed by the attention required by the terminally ill. This study aims to reveal the estimated proportion of caregiver burden, psychological manifestations and factors associated with caregiver burden among IC in the largest specialized Palliative Care Unit (PCU) in Malaysia. Methods This was a cross-sectional study involving IC attending a PCU. Caregiver burden and psychological manifestations were measured using previously translated and validated Zarit Burden Interview and DASS-21 questionnaires respectively. Two hundred forty-nine samples were selected for analysis. Result The mean ZBI score was 23.33 ± 13.7. About half of the population 118(47.4%) was found to experienced caregiver burden whereby majority have mild to moderate burden 90(36.1%). The most common psychological manifestation among IC is anxiety 74(29.7%) followed by depression 51(20.4%) and stress 46(18.5%). Multiple logistic regression demonstrated that women who are IC to patients with non-malignancy were less likely to experience caregiver burden. IC who were highly educated and spent more than 14 h per day caregiving were at least twice likely to experience caregiver burden. Finally, those with symptoms of depression and anxiety were three times more likely to suffer from caregiver burden. Conclusion Caregiver burden among IC to palliative patients is prevalent in this population. IC who are men, educated, caregiving for patients with malignancy, long hours of caregiving and have symptoms of depression and anxiety are at risk of developing caregiver burden. Targeted screening should be implemented and IC well-being should be given more emphasis in local policies.

scholarly journals Fear of future workplace violence and its influencing factors among nurses in Shandong, China: a cross-sectional study

BMC Nursing ◽  
2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Chang Fu ◽  
Yaru Ren ◽  
Guowen Wang ◽  
Xiuxin Shi ◽  
Fenglin Cao
Keyword(s):  
Social Support ◽  
Regression Analysis ◽  
Influencing Factors ◽  
Workplace Violence ◽  
Linear Regression Analysis ◽  
Multiple Linear Regression Analysis ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
High Level

Abstract Background Fear of workplace violence has become a critical issue worldwide, which can lead to burnout, low levels of job satisfaction, and turnover. However, to date, little attention has been directed toward fear of workplace violence among nurses. Accordingly, this study investigated the level of fear of future workplace violence and its influencing factors among nurses in Shandong, China. Methods A cross-sectional study was conducted from July 30 through September 30, 2020 in Shandong Province, China. A total of 1898 nurses were enrolled from 12 tertiary hospitals. Fear of future workplace violence was measured using the Fear of Future Violence at Work scale. Demographic information, employment characteristics, social support, and experience of workplace violence were assessed. Multiple linear regression analysis was used to explore the influencing factors of fear of future workplace violence. Results The average score of fear of future violence at work was 67.43 ± 17.20 among nurses. Multiple linear regression analysis showed that higher fear of future violence at work scores were reported among nurses who were female (B = 7.10, p < 0.001), married (B = 3.50, p = 0.028), with a monthly income ≥5000 Chinese yuan (CNY) (B = 3.14, p = 0.007), working in the department of internal medicine (B = 2.90, p = 0.032), surgery (B = 5.03, p < 0.001), pediatrics (B = 5.38, p = 0.003), or emergency department (B = 4.50, p = 0.010), working as a contract employee (B = 2.41, p = 0.042), or who had experienced workplace violence (B = 7.02, p < 0.001). Lower fear of future violence at work scores were found among nurses who took vacations (1–14 days: B = − 2.52, p = 0.047; ≥15 days: B = − 3.69, p = 0.007) and had a high-level of social support (B = − 2.03, p = 0.020). Conclusions There was a high level of fear of future workplace violence among nurses in Shandong, China. This should be considered an important issue by hospital administrators and government officials. Effective interventions need to be enacted to address the influencing factors of fear of future workplace violence.

scholarly journals Needs and skills of informal caregivers to care for a dependent person: a cross-sectional study

2019 ◽  
Author(s):  
Maria Dixe ◽  
Liliana Teixeira ◽  
Timoteo Areosa ◽  
Roberta Frontini ◽  
Teresa Peralta ◽  
...  
Keyword(s):  
Informal Caregiver ◽  
Medication Management ◽  
Hospital Readmissions ◽  
Informal Caregivers ◽  
Self Care ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Average Life Expectancy ◽  
Cross Sectional ◽  
Face To Face

Abstract Background: The world is facing many socio-demographic changes, such as an increased average life expectancy and the presence of chronic and non-communicable diseases, which in turn, leads to an enhanced dependency on others. Consequently, the demand for informal caregivers has significantly increased during the past few years. Caring for a dependent person is linked to a series of burdens that often leads to physical, psychological and emotional difficulties. Taking into consideration the difficulties faced by informal caregivers, knowing in which areas of functioning they need more guidance may help to relieve their burden. Therefore, the main goal of this study is to better understand the needs and competencies of the informal caregiver when caring for a dependent person in the different self-care domains. Methods: cross-sectional study using face-to-face interviews. Descriptive and inferential statistics alongside non-parametric statistical techniques such as the Mann-Whitney test and Spearman’s correlation were used. Results: The average age of the informal caregivers is 58 years old, with the youngest in our sample being 21 years of age. Most of them are female, and 50% of them are children taking care of one of their parents. Most of the dependent people are completely dependent in the areas of comfort and hygiene (53.8%) and medication management (55.9%). The female informal caregivers see themselves as having more competencies in sanitary hygiene than the male ones, with no significant differences in their competencies’ perception in the other areas of self-care. Older caregivers see themselves as less competent in certain areas of self-care such as feeding, mobility, transfers, medication and symptoms management and communication. Most part of the information given to the informal caregiver is about the disease (82.3%) and about the medication management (80.4%). There are still a lot of areas of self-care, where no information, or almost none, is given to the informal caregivers. Conclusions: Prior to home discharge of a dependent person, it is important to acknowledge the needs and competencies of the informal caregiver, to capacitate them in looking after their relatives, in order to help decrease their burden and consequently, decrease the number of hospital readmissions.

scholarly journals Subjective burdens among informal caregivers of critically ill patients: a cross-sectional study in rural Shandong, China

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Wenhao Fu ◽  
Jiajia Li ◽  
Feng Fang ◽  
Dan Zhao ◽  
Wenting Hao ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Critically Ill ◽  
Caregiver Burden ◽  
Critically Ill Patients ◽  
Process Model ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Stress Factors ◽  
Sectional Study ◽  
Cross Sectional

Abstract Background Informal caregivers are the main source of care for the critically ill, especially after discharge or during the terminal stages at home. However, the concern for informal caregivers is often overshadowed by critically ill patients. The purpose of this study is to determine the influencing factors of the subjective burden of informal caregivers and to seek solutions accordingly. Methods Between July and August 2019, a cross-sectional study was conducted in Shandong, China, focusing on family caregivers and critically ill patients. Subjective caregiver burden was measured by the Chinese version of Zarit Burden Interview (ZBI). The stress process model was used to identify conditions relevant to the caregiving burden and to assess their impact on family caregivers. Results 554 samples were selected for analysis. The average scores of Zarit Caregiver Burden Interview (ZBI) scores in this study was 30.37±19.04 (n=554). ZBI scores of older, less educated, and spouse caregivers were significantly lower (4.12; 95%CI, 0.42 to 7.81; P =0.029). Objective and subjective burdens increased proportionally. Secondary role stress factors included the higher out-of-pocket (OOP) costs of critical diseases and lower household income, both of which increased caregivers’ subjective burdens (1.28; 95%CI, -0.06 to 2.63; p=0.062). Formal medical aid systems played a positive role in reducing subjective caregiving burdens (-7.31; 95%CI, -13.23 to -1.40; p=0.016). Conclusions Health policies should address both the direct medical burdens and the intangible psychological burdens of critical diseases.

scholarly journals Needs and skills of informal caregivers to care for a dependent person: a cross-sectional study

2019 ◽  
Author(s):  
Maria Dixe ◽  
Liliana Teixeira ◽  
Timoteo Areosa ◽  
Roberta Frontini ◽  
Teresa Peralta ◽  
...  
Keyword(s):  
Informal Caregiver ◽  
Medication Management ◽  
Hospital Readmissions ◽  
Informal Caregivers ◽  
Self Care ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Average Life Expectancy ◽  
Cross Sectional ◽  
Face To Face

Abstract Background: The world is facing many socio-demographic changes, such as an increased average life expectancy and the presence of chronic and non-communicable diseases, which in turn, leads to an enhanced dependency on others. Consequently, the demand for informal caregivers has significantly increased during the past few years. Caring for a dependent person is linked to a series of burdens that often leads to physical, psychological and emotional difficulties. Taking into consideration the difficulties faced by informal caregivers, knowing in which areas of functioning they need more guidance may help to relieve their burden. Therefore, the main goal of this study is to better understand the needs and competencies of the informal caregiver when caring for a dependent person in the different self-care domains. Methods: cross-sectional study using face-to-face interviews. Descriptive and inferential statistics alongside non-parametric statistical techniques such as the Mann-Whitney test and Spearman’s correlation were used. Results: The average age of the informal caregivers is 58 years old, with the youngest in our sample being 21 years of age. Most of them are female, and 50% of them are children taking care of one of their parents. Most of the dependent people are completely dependent in the areas of comfort and hygiene (53.8%) and medication management (55.9%). The female informal caregivers see themselves as having more competencies in sanitary hygiene than the male ones, with no significant differences in their competencies’ perception in the other areas of self-care. Older caregivers see themselves as less competent in certain areas of self-care such as feeding, mobility, transfers, medication and symptoms management and communication. Most part of the information given to the informal caregiver is about the disease (82.3%) and about the medication management (80.4%). There are still a lot of areas of self-care, where no information, or almost none, is given to the informal caregivers. Conclusions: Prior to home discharge of a dependent person, it is important to acknowledge the needs and competencies of the informal caregiver, to capacitate them in looking after their relatives, in order to help decrease their burden and consequently, decrease the number of hospital readmissions.

scholarly journals Impact of severe polyhandicap cared for at home on French informal caregivers’ burden: a cross-sectional study

BMJ Open ◽  
2020 ◽  
Vol 10 (1) ◽  
pp. e032257
Author(s):  
Marie-Christine Rousseau ◽  
Karine Baumstarck ◽  
Maria Valkov ◽  
Agnés Felce ◽  
Catherine Brisse ◽  
...  
Keyword(s):  
Health Status ◽  
Caregiver Burden ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Motor Deficits ◽  
Sectional Study ◽  
Cross Sectional ◽  
Perceived Burden ◽  
And Coping ◽  
At Home

ObjectivesPolyhandicap (PLH), defined by a combination of profound intellectual impairment and serious motor deficits, is a severe condition with complex disabilities. In France, care of the large majority of PLH individuals is managed in specialised rehabilitation centres or residential facilities, but some of PLH individuals are cared for at home. The aims of this study were to assess the self-perceived burden among informal caregivers of PLH individuals and to identify potential determinants of this burden.DesignCross-sectional study (Neuropaediatric Department, Trousseau Hospital, Paris, France).SettingsPLH children were recruited from a specialised paediatric/neurological department.ParticipantsThe selection criteria of caregivers were age above 18 years and being the PLH individual’s next of kin.Outcomes measuresFrom March 2015 to December 2016, data were collected from the caregivers, including sociodemographical data, health status, psycho-behavioural data (quality of life, mood disorders and coping) and self-perceived burden. In addition, the health status of the PLH individual was collected. Relationships between the burden scores and potential determinants were tested (correlations coefficients, Mann-Whitney tests, generalised estimating equations models).ResultsEighty-four children were eligible; 77 families returned their questionnaire. The informal caregivers of PLH children experienced a high level of perceived burden (scores ranged from 55±20 to 81±12). Eighty per cent of them had more than 5 hours of daily caregiving and 51% of them had to get up more than twice during the night. The main factors associated with caregiver burden were age, financial issues, health status, daily care and coping strategies. The patients’ health status was not associated with caregiver burden.ConclusionsSome of the caregiver burden determinants might be modifiable. These findings should help healthcare workers and health-decision makers implement specific and appropriate interventions.Trial registration numberNCT02400528.

scholarly journals Needs and skills of informal caregivers to care for a dependent person: a cross-sectional study

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Maria dos Anjos Coelho Rodrigues Dixe ◽  
Liliana Fernanda da Conceição Teixeira ◽  
Timóteo João Teixeira Camacho Coelh Areosa ◽  
Roberta Caçador Frontini ◽  
Teresa de Jesus Almeida Peralta ◽  
...  
Keyword(s):  
Informal Caregiver ◽  
Medication Management ◽  
Hospital Readmissions ◽  
Informal Caregivers ◽  
Self Care ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Average Life Expectancy ◽  
Cross Sectional ◽  
Face To Face

Abstract Background The world is facing many socio-demographic changes, such as an increased average life expectancy and the presence of chronic and non-communicable diseases, which in turn, leads to an enhanced dependency on others. Consequently, the demand for informal caregivers has significantly increased during the past few years. Caring for a dependent person is linked to a series of burdens that often leads to physical, psychological and emotional difficulties. Taking into consideration the difficulties faced by informal caregivers, knowing in which areas of functioning they need more guidance may help to relieve their burden. Therefore, the main goal of this study is to better understand the needs and competencies of the informal caregiver when caring for a dependent person in the different self-care domains. Methods This cross-sectional study used a questionnaire administered on a single occasion by face-to-face interview. Descriptive and inferential statistics alongside non-parametric statistical techniques such as the Mann-Whitney test and Spearman’s correlation were used. Results The average age of the 143 informal caregivers is 58 years old, with the youngest in our sample being 21 years of age. Most of them are female, and 50% of them are children taking care of one of their parents. Most of the dependent people are completely dependent in the areas of comfort and hygiene (53.8%) and medication management (55.9%). The female informal caregivers see themselves as having more competencies in sanitary hygiene than the male ones, with no significant differences in their competencies’ perception in the other areas of self-care. Older caregivers see themselves as less competent in certain areas of self-care such as feeding, mobility, transfers, medication and symptoms management and communication. Most of the information given to the informal caregiver is about the disease (82.3%) and the medication management (80.4%). There are still a lot of areas of self-care, where no information, or almost none, is given to the informal caregivers. Conclusions Before home discharge of a dependent person, it is important to acknowledge the needs and competencies of the informal caregiver, to capacitate them in looking after their relatives, to help decrease their burden and consequently, decrease the number of hospital readmissions.

Sign in / Sign up

Export Citation Format

Share Document