scholarly journals Caregiver burden among informal caregivers in the largest specialized palliative care unit in Malaysia: a cross sectional study

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Zati Sabrina Ahmad Zubaidi ◽  
Farnaza Ariffin ◽  
Cindy Teoh Cy Oun ◽  
Diana Katiman
Keyword(s):  
Palliative Care ◽  
Caregiver Burden ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Palliative Care Unit ◽  
Depression And Anxiety ◽  
Sectional Study ◽  
Cross Sectional ◽  
Symptoms Of Depression ◽  
Specialized Palliative Care

Abstract Background Informal caregivers (IC) are often overshadowed by the attention required by the terminally ill. This study aims to reveal the estimated proportion of caregiver burden, psychological manifestations and factors associated with caregiver burden among IC in the largest specialized Palliative Care Unit (PCU) in Malaysia. Methods This was a cross-sectional study involving IC attending a PCU. Caregiver burden and psychological manifestations were measured using previously translated and validated Zarit Burden Interview and DASS-21 questionnaires respectively. Two hundred forty-nine samples were selected for analysis. Result The mean ZBI score was 23.33 ± 13.7. About half of the population 118(47.4%) was found to experienced caregiver burden whereby majority have mild to moderate burden 90(36.1%). The most common psychological manifestation among IC is anxiety 74(29.7%) followed by depression 51(20.4%) and stress 46(18.5%). Multiple logistic regression demonstrated that women who are IC to patients with non-malignancy were less likely to experience caregiver burden. IC who were highly educated and spent more than 14 h per day caregiving were at least twice likely to experience caregiver burden. Finally, those with symptoms of depression and anxiety were three times more likely to suffer from caregiver burden. Conclusion Caregiver burden among IC to palliative patients is prevalent in this population. IC who are men, educated, caregiving for patients with malignancy, long hours of caregiving and have symptoms of depression and anxiety are at risk of developing caregiver burden. Targeted screening should be implemented and IC well-being should be given more emphasis in local policies.

scholarly journals Exploration of COVID-19-Based Changes to Caregiver Burden and Caregiving Intensity among Informal Caregivers

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 945-945
Author(s):  
Steven Cohen ◽  
Zachary Kunicki ◽  
Megan Drohan ◽  
Mary Greaney
Keyword(s):  
Caregiver Burden ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Multinomial Regression ◽  
Chi Square ◽  
Cross Sectional ◽  
Unpaid Care ◽  
Factors Associated ◽  
Amazon's Mechanical Turk

Abstract Individuals providing unpaid care of assistance to family members and friends (e.g. informal caregivers), may have been uniquely impacted by the COVID-19 pandemic. Research is needed to examine the pandemic’s effect on informal caregivers’ caregiving intensity and burden. Therefore, this cross-sectional study was conducted to explore self-reported changes in caregiver intensity (CI) and caregiver burden (CB) due to the pandemic to identify factors associated with changes in responsibilities and burdens. In June 2020, informal caregivers providing care to someone aged 50+ (n=835) reported their current and pre-pandemic caregiving intensity and burden. Data were collected via Amazon’s Mechanical Turk. Chi-square tests were used to examine bivariate associations between pandemic time (pre vs. post) differences in CI and CB. Multinomial regression was used to assess multivariate predictors of changes to CI and CB due to COVID-19. Results showed a significant U-shaped association between initial CB and CB change due to COVID-19. Higher levels of initial CB were associated with both a significant decrease in CB during COVID-19 (OR 1.33, 95%CI 1.06-1.67), and a significant increase in CB during COVID-19 (OR 1.22, 95%CI 1.05-1.43). There were no significant associations between initial CB and changes in CI due to COVID-19, although older caregivers were more likely to experience a decrease in CB due to caregiving (OR 1.02, 95%CI 1.00-1.05). These mixed results suggest that caregivers with high initial CB experienced the most extreme changes to CB due to COVID-19. Future planned analyses will focus on understanding the potential drivers behind these unexpected results.

Symptoms of Depression and Anxiety, and Screening for Mental Disorders in Migrainous Patients

Cephalalgia ◽  
2003 ◽  
Vol 23 (2) ◽  
pp. 79-89 ◽  
Author(s):  
F Kowacs ◽  
MP Socal ◽  
SC Ziomkowski ◽  
VF Borges-Neto ◽  
DP Toniolo ◽  
...  
Keyword(s):  
Logistic Regression ◽  
Mental Disorders ◽  
Healthy Subjects ◽  
Univariate Analysis ◽  
Cross Sectional Study ◽  
Depression And Anxiety ◽  
Sectional Study ◽  
Cross Sectional ◽  
Symptoms Of Depression ◽  
Gender Education

The purpose of this clinic-based study was the assessment of symptoms of depression, anxiety, and non-specific psychiatric disorders amongst patients with migraine, compared with healthy subjects and with individuals with a non-neurological chronic disease. A cross-sectional study was carried out in which 178 individuals (migraine 51; psoriasis 35; healthy 92) were submitted to three scales: MADRS (depression), STAI-T (anxiety) and SRQ (screening for mental disorders). The subjects with migraine and psoriasis were from the Out-patient Clinics of Headache and of Dermatology, and the healthy volunteers were persons who were accompanying out-patients in the same hospital. Scores were analysed by MANOVA and by association analysis and logistic regression. Scores of all instruments were higher in the migrainous group, but the univariate analysis of association (using cut-offs) showed significance only for suspicion of mental disorders (SRQ). By logistic regression, variables with strongest association to migraine were gender, education, and SRQ in decreasing order.

scholarly journals Informal caregiver burden and influencing factors in gynaecological oncology patients hospitalized for chemotherapy: a cross-sectional study

2020 ◽  
Vol 48 (11) ◽  
pp. 030006052097492
Author(s):  
Yan Zuo ◽  
Bi-Ru Luo ◽  
Wen-Tao Peng ◽  
Xin-Ru Liu ◽  
Ya-Lin He ◽  
...  
Keyword(s):  
Regression Analysis ◽  
Influencing Factors ◽  
Caregiver Burden ◽  
Informal Caregiver ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Oncology Patients ◽  
Cross Sectional ◽  
Gynaecological Oncology

Objective To determine the level and influencing factors of informal caregiver burden in gynaecological oncology inpatients receiving chemotherapy. Methods This cross-sectional study enrolled gynaecological oncology patients and their informal caregivers between May 2018 and November 2018 and measured the caregivers’ burden using the Caregiver Burden Inventory. The influencing factors were evaluated with univariate regression analysis and multivariate linear stepwise regression analysis. Results A total of 138 patients and their informal caregivers completed the questionnaire. The mean ± SD total informal caregiver burden score was 53.18 ± 10.97. The highest mean ± SD score was recorded in the dimension of time-dependent burden (14.28 ± 2.74), followed by developmental burden (13.65 ± 2.15), physical burden (10.52 ± 2.07), social burden (7.61 ± 2.58) and emotional burden (7.12 ± 1.43). Multivariate analysis showed that the informal caregiver’s sex, relationship to the patient, daily duration of care, presence of chronic health problems and the duration of the patient’s disease were factors influencing the level of caregiver burden. Conclusions The informal caregivers of gynaecological cancer patients hospitalized for chemotherapy experience a moderate level of burden. Nursing measures should be considered to reduce informal caregiver burden and improve the quality of lives of both patients and their caregivers.

scholarly journals Subjective burdens among informal caregivers of critically ill patients: a cross-sectional study in rural Shandong, China

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Wenhao Fu ◽  
Jiajia Li ◽  
Feng Fang ◽  
Dan Zhao ◽  
Wenting Hao ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Critically Ill ◽  
Caregiver Burden ◽  
Critically Ill Patients ◽  
Process Model ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Stress Factors ◽  
Sectional Study ◽  
Cross Sectional

Abstract Background Informal caregivers are the main source of care for the critically ill, especially after discharge or during the terminal stages at home. However, the concern for informal caregivers is often overshadowed by critically ill patients. The purpose of this study is to determine the influencing factors of the subjective burden of informal caregivers and to seek solutions accordingly. Methods Between July and August 2019, a cross-sectional study was conducted in Shandong, China, focusing on family caregivers and critically ill patients. Subjective caregiver burden was measured by the Chinese version of Zarit Burden Interview (ZBI). The stress process model was used to identify conditions relevant to the caregiving burden and to assess their impact on family caregivers. Results 554 samples were selected for analysis. The average scores of Zarit Caregiver Burden Interview (ZBI) scores in this study was 30.37±19.04 (n=554). ZBI scores of older, less educated, and spouse caregivers were significantly lower (4.12; 95%CI, 0.42 to 7.81; P =0.029). Objective and subjective burdens increased proportionally. Secondary role stress factors included the higher out-of-pocket (OOP) costs of critical diseases and lower household income, both of which increased caregivers’ subjective burdens (1.28; 95%CI, -0.06 to 2.63; p=0.062). Formal medical aid systems played a positive role in reducing subjective caregiving burdens (-7.31; 95%CI, -13.23 to -1.40; p=0.016). Conclusions Health policies should address both the direct medical burdens and the intangible psychological burdens of critical diseases.

The Relationship Between Symptom Severity and Caregiver Burden in Cancer Patients Under Palliative Care: A Cross-Sectional Study

2021 ◽  
pp. 082585972110457
Author(s):  
Emir Celik ◽  
Muhammed Samil Aslan ◽  
Nilay Sengul Samanci ◽  
Mehmet Karadag ◽  
Tarik Saglam ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Caregiver Burden ◽  
Symptom Severity ◽  
Well Being ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Incurable Cancer ◽  
Cross Sectional ◽  
Mean Values

Introduction Hospitalization is a stressful experience both for primary caregivers (PCs) and cancer patients alike. Although there is significant evidence that PCs of cancer patients can experience significant caregiver burden (CB), less is known about the relationships between PCs and patient symptom severity that influence CB. Methods: In this cross-sectional study, measures of the symptom severity were obtained from cancer patients. The PCs were assessed for CB. Associations between patients' symptoms and demographic characteristics and CB were investigated using multivariate analyses. Results: A total of 98 participants (patient-caregiver dyads) filled the questionnaires. According to the Zarit Burden Interview results, 65.3% of PCs had a high CB. Pain, tiredness, nausea, depression, drowsiness, well-being, and dyspnea had significantly higher mean values in those with high CB (p < .05). Financial difficulties, first-degree relationships with the patient, higher anxiety levels, and more pronounced tiredness appear to be the variables most predictive with high CB. Conclusion: In conclusion, the present study showed CB of PCs among a group of hospitalized incurable cancer patients. PCs of more symptomatic cancer patients had a higher CB, according to our findings. This emphasized the significance of palliative care. Appropriate guidance should be provided for the psychostress caused by the CB.

scholarly journals Factors associated with symptoms of depression among informal caregivers of people with systemic sclerosis: a cross-sectional study

2018 ◽  
Vol 42 (3) ◽  
pp. 394-399 ◽  
Author(s):  
Mara Cañedo-Ayala ◽  
Danielle B. Rice ◽  
Brooke Levis ◽  
Marie-Eve Carrier ◽  
Julie Cumin ◽  
...  
Keyword(s):  
Systemic Sclerosis ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Factors Associated ◽  
Symptoms Of Depression

scholarly journals Healthcare professionals’ perceptions of palliative care quality in a combined acute oncology-palliative care unit: A cross-sectional study

2021 ◽  
pp. 205715852199738
Author(s):  
Cecilia Olsson ◽  
Tuva Sandsdalen ◽  
Bodil Wilde-Larsson ◽  
Eva Eriksson ◽  
Mikaela Rognsvåg ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health Care Professionals ◽  
Symptom Relief ◽  
Cross Sectional Study ◽  
Care Quality ◽  
Palliative Care Unit ◽  
Sectional Study ◽  
High Quality ◽  
Cross Sectional ◽  
Subjective Importance

It is a challenge to ensure high-quality palliative care. The aim was to investigate the perceptions of health care professionals (HCPs) working in a combined acute oncology-palliative care unit regarding the quality of the palliative care received by the patients and how important the care was to the patients. A Swedish total-survey cross-sectional study including 41 HCPs (54% response rate) was conducted with the 52 items Quality from the Patient’s Perspective – Palliative Care instrument, answered in two different ways: as actual care received and subjective importance. The STROBE-checklist was used. The areas for improvements were related to symptom relief, spiritual and existential needs, information, patient participation, continuity of care, care planning, cooperation and coordination of care, as subjective importance scores were higher than corresponding scores for care received ( p ≤ .025). Providing high-quality palliative care alongside curative treatments for cancer patients is known to be challenging and could explain the results in this study. Implementation of a person-centred palliative care model based on the hospice philosophy could be a solution.

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