scholarly journals Found in translation: Decoding local understandings of genetics and heredity in a Yup’ik Eskimo community

2011 ◽  
Vol 22 (1) ◽  
pp. 80-90 ◽  
Author(s):  
Kathleen M. West ◽  
Scarlett E. Hopkins ◽  
Kim J. Hopper ◽  
Gerald V. Mohatt ◽  
Bert B. Boyer
Keyword(s):  
Participatory Research ◽  
Alaska Native ◽  
First Language ◽  
Genetic Research ◽  
Community Based Participatory Research ◽  
Community Members ◽  
Community Based ◽  
Relevant Term ◽  
Health Concepts ◽  
Scientific Terms

The Center for Alaska Native Health Research is a community-based participatory research center that conducts studies involving genetic research with Yup’ik Eskimo community members in Southwest Alaska, where Yup’ik remains the first language for most residents. Cultural equivalents are needed to communicate results of these studies among all partners and members of the participating communities, since many scientific terms have no direct translation in Yup’ik. To inform that effort, we examined local understandings of genetics and heredity in one community. Here, we report results from back-translated Yup’ik interviews, and identify working genetic concepts shared by participants from interviews and focus groups. We suggest issues involved in, and some potential steps toward, developing a concise, scientifically accurate and culturally relevant term for “genetics” and other health concepts.

Community-Based Participatory Research

2013 ◽  
Author(s):  
Tracey Marie Barnett
Keyword(s):  
Action Research ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Collaborative Action Research ◽  
Participatory Action ◽  
Community Members ◽  
Community Based ◽  
Community Based Research ◽  
Partnership Approach

Community-based participatory research (CBPR) embraces a partnership approach to research that equitably involves community members, organizational representatives, social workers, and researchers in all aspects of the research process. CBPR begins with a research topic of importance to the community and has the aim of combining knowledge with action and achieving social change. It is community based in the sense that community members become part of the research team and researchers become engaged in the activities of the community. Community–researcher partnerships allow for a blending of values and expertise, promoting co-learning and capacity building among all partners, and integrating and achieving a balance between research and action for the mutual benefit of all partners. Various terms have been used to describe this research, including participatory action research (PAR), action research (AR), community based research (CBR), collaborative action research (CAR), anti-oppressive research, and feminist research.

When the R and the CBP Clash: Research in Schools

2007 ◽  
Vol 29 (3) ◽  
pp. 22-26
Author(s):  
Sara Curtin-Mosher ◽  
Elizabeth Leo
Keyword(s):  
High Schools ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Community Members ◽  
Community Based ◽  
University Of Arizona ◽  
Ambos Nogales ◽  
The University ◽  
The Relationship

This paper speaks to a potential dilemma between the R and the CBP of Community Based Participatory Research (CBPR) within the context of a partnership called the Asociación de Reforestación de Ambos Nogales (ARAN). We focus on the relationship between students and educators from the University of Arizona (UA) and two high schools from Nogales, Sonora, Mexico that constitute part of this organization. ARAN has been influenced by but not restricted to a framework of CBPR where community members and academics engage in all aspects of research.

scholarly journals Towards a Better Future for Canadians with Bipolar Disorder: Principles and Implementation of a Community-Based Participatory Research Model

2015 ◽  
Vol 1 (1) ◽  
Author(s):  
Erin E. Michalak ◽  
Kathleen Lane ◽  
Rachelle Hole ◽  
Steven J. Barnes ◽  
Nasreen Khatri ◽  
...  
Keyword(s):  
Bipolar Disorder ◽  
Participatory Research ◽  
Knowledge Exchange ◽  
Community Based Participatory Research ◽  
Psychosocial Interventions ◽  
Community Members ◽  
Community Based ◽  
Services And Supports ◽  
Health Field

The Collaborative RESearch Team to study psychosocial factors in bipolar disorder (CREST.BD) is a multidisciplinary network dedicated to advancing science and practice around psychosocial issues associated with bipolar disorder (BD), improving the care and wellness of people living with bipolar disorder, and strengthening services and supports for these individuals. CREST.BD specializes in community-based participatory research, in which research is conducted as a partnership between researchers and community members. This article describes the evolution of the CREST.BD network and CREST.BD’s commitment to community-based participatory research in bipolar disorder research. Examples of CREST.BD projects using community-based participatory research to study stigma, quality of life, psychosocial interventions, and creativity in bipolar disorder are highlighted, and opportunities and challenges of engaging in community-based participatory research in bipolar disorder specifically and the mental health field more broadly are discussed. This article demonstrates how CBPR can be used to enhance the relevance of research practices and products through community engagement, and how community-based participatory research can enrich knowledge exchange and mobilization. 

scholarly journals Catalyzing Action on First Nations Respiratory Health Using Community-based Participatory Research: Integrated Knowledge Translation through Strategic Symposia

2017 ◽  
Vol 2 (1) ◽  
pp. 57-70
Author(s):  
Tarun Reddy Katapally ◽  
Sylvia Abonyi ◽  
Jo-Ann Episkenew ◽  
Vivian Ramsden ◽  
Chandima Karunanayake ◽  
...  
Keyword(s):  
Knowledge Translation ◽  
First Nations ◽  
Participatory Research ◽  
Respiratory Health ◽  
Community Based Participatory Research ◽  
Integrated Knowledge Translation ◽  
Community Members ◽  
Community Based ◽  
Nations Community ◽  
Integrated Knowledge

 Assess, Redress, Re-assess: Addressing Disparities in Respiratory Health Among First Nations is an ongoing community-based participatory research initiative involving two First Nations communities in Saskatchewan. The initiative’s rationale is grounded in the ethos of transformative community-based participatory research and facilitated through integrated knowledge translation with the aim of building community capacity. The initiative’s goal was to engage community members to actively participate in all research phases, from the development of the research questions to dissemination of results and evaluation of community-chosen interventions that evolved from the results. After baseline assessment of predictors and indicators of respiratory health, a program of integrated knowledge translation was adopted. As part of this program, a community-researcher collaboration was put in place that produced two knowledge translation symposia. The two symposia have brought together First Nations community members, interdisciplinary researchers, federal and provincial policy makers, and multiple Aboriginal organizational stakeholders. The symposia provided a pathway for knowledge synthesis and sharing to ultimately integrate knowledge into practice and enable First Nations’ community capacity building in addressing and redressing critical respiratory health issues. This article delineates the processes involved in developing this model of integrated knowledge translation and highlights the continuing engagement with the participating communities supported by Knowledge Translation (KT) Symposia.

Overcoming Barriers: Practical Strategies to Assess Latinos Living in Low-Income Communities

2019 ◽  
Vol 21 (3) ◽  
pp. 355-362 ◽  
Author(s):  
Alejandra Calva ◽  
Rebecca A. Matthew ◽  
Pamela Orpinas
Keyword(s):  
Data Collection ◽  
Participatory Research ◽  
Low Income ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Community Members ◽  
Community Based ◽  
Leverage Points ◽  
Communities Of Interest ◽  
Health And Well Being

The value of community assessments depends on the researchers’ ability to reach a diverse and representative sample of participants. This process is particularly challenging when assessing the health and well-being of vulnerable populations that are reticent to participate in research because of demographic and sociopolitical factors. One such group is Latinxs (the gender-neutral version of Latinos or Latinas) of mixed immigration status who live in low-income, socially and geographically isolated enclaves in the Southeast. Framed by community-based participatory research and social marketing theories, this study describes practical strategies for health researchers, practitioners, and advocates seeking to engage and build trusting relationship within U.S. Latinx communities. First, identify and leverage points of entry to different segments of the communities of interest by engaging meaningful gatekeepers from different sections of the population and searching for places where potential participants gather. Second, reduce the burden of assessments by using incentives and creating intentional reciprocity. Third, establish critical, long-lasting trust with community members, leaders, and allies by adapting data collection procedures, ensuring confidentiality, engaging bilingual facilitators, and most important, being present with and for the community. Finally, presenting the findings back to the community can increase the ownership of the process.

Lessons from a community-based participatory research study with transgender and gender nonconforming youth and their families

2018 ◽  
Vol 17 (2) ◽  
pp. 186-207 ◽  
Author(s):  
Sabra L Katz-Wise ◽  
Annie Pullen Sansfaçon ◽  
Laura M Bogart ◽  
Milagros C Rosal ◽  
Diane Ehrensaft ◽  
...  
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Research Process ◽  
Lessons Learned ◽  
Community Partner ◽  
Community Members ◽  
Community Based ◽  
Gender Nonconforming ◽  
And Gender

Community-based participatory research (CBPR) involves community members collaborating with academic investigators in each step of the research process. CBPR may be especially useful for research involving marginalized populations with unique perspectives and needs. In this paper, we discuss successes and challenges of using a CBPR approach for the Trans Teen and Family Narratives Project, a longitudinal mixed-methods study to examine how the family environment affects the health and well-being of transgender and gender nonconforming youth. We describe considerations for using a CBPR approach with this population, including defining the community of transgender and gender nonconforming youth and families, engaging the community in the research process, managing conflicting agendas for community partner meetings, addressing insider/outsider status of the researchers, resolving researcher/community tensions regarding data collection tools, integrating academic and community members into a cohesive research team, developing safety plans to address participant suicidality disclosures, and differentiating the role of academics as researchers vs. advocates. We conclude by sharing lessons learned, which can inform future research to address the needs of transgender and gender nonconforming youth and families.

Partner development praxis: The use of transformative communication spaces in a community-academic participatory action research effort in a Mexican ethnic enclave in Chicago

2017 ◽  
Vol 16 (4) ◽  
pp. 414-436 ◽  
Author(s):  
Jennifer Hebert-Beirne ◽  
Jennifer K Felner ◽  
Joan Kennelly ◽  
Kamal Eldeirawi ◽  
Anna Mayer ◽  
...  
Keyword(s):  
Leadership Development ◽  
Participatory Research ◽  
Research Effort ◽  
Health Assessment ◽  
Community Based Participatory Research ◽  
Research Literature ◽  
Participatory Action ◽  
Community Members ◽  
Community Based ◽  
Transformative Communication

Trusting, productive relationships between traditionally discordant stakeholders—community members and researchers—are critical for successful Community-Based Participatory Research. Practical guidance on processes allowing for partner trust-building and collaborative leadership development in Community-Based Participatory Research literature lacks specificity. In this paper, we introduce our praxis of Transformative Communication Spaces to facilitate purposeful, iterative discourse that occurs in, and fuels each research phase. We elaborate on the use of Transformative Communication Spaces through Pláticas de Salud, Oral History Listening Events, and Data Analysis Think Tanks within the framework of our Little Village Participatory Community Health Assessment. We believe the integrity and potential of Community-Based Participatory Research is contingent on the use of Transformative Communication Spaces strategies to foster trusting partnerships necessary for shared learning and co-leadership.

Alaska Native Grandparents Rearing Grandchildren

2016 ◽  
Vol 38 (4) ◽  
pp. 547-572 ◽  
Author(s):  
Tammy L. Henderson ◽  
Minh Dinh ◽  
Kerry Morgan ◽  
Jordan Lewis
Keyword(s):  
Grounded Theory ◽  
Participatory Research ◽  
Rural Community ◽  
Alaska Native ◽  
Community Based Participatory Research ◽  
Native People ◽  
Arctic Climate ◽  
Future Research ◽  
Community Based

We used community-based participatory research with four tiers of governance and grounded theory methods to examine the lives of Alaska Native grandparents rearing grandchildren in a rural community. We explored the reasons Native grandparents reared or are rearing their grandchildren, challenges rearing grandchildren, and the joys of grandparenthood. We used their words to broaden the grandparenting research by focusing solely on Native People living in a rural, arctic climate. Culture, values, and traditions explain the unique reasons grandparents cared for their grandchildren; values and common concerns of all grandparents describe the challenges of grandparenthood; pride and joy, the value of love, and traditional ways of living made clear the joys of Alaska Native grandparents rearing their grandchildren. After the discussion, we offer considerations for future research.

scholarly journals Tailoring Content for Authenticity and Adoption: Community-Based Participatory Research and the Co-creation of Story-Based Health Communication for Underserved Communities

2021 ◽  
Vol 6 ◽  
Author(s):  
Maria Elena Villar ◽  
Paige W. Johnson
Keyword(s):  
Health Communication ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Community Members ◽  
Community Based ◽  
Underserved Communities ◽  
Marginalized Communities ◽  
Community Values ◽  
Communication Content ◽  
Community Theater

This perspective presents concrete examples of how community-based participatory research can be used effectively to decolonize health communication through the co-creation of health communication content specifically tailored to minoritized and underserved communities. The authors describe how community members and researchers partnered to conduct community listening, observation and co-create stories to be used in fotonovelas (graphic stories), radio stories, serious games and community theater. Community members are experts on their experiences and can best translate those experiences into stories that ring true for target audiences from similar backgrounds. Truly participatory research grounded in community values can be slow and take unexpected turns, but it is critical to create health communication content that resonates with audiences and contributes to influencing attitudes and behaviors. When Community-Based Participatory Research (CBPR) is used in true collaboration with the community, marginalized communities, which were historically exploited by community researchers, can become the architects of their own health outcomes.

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