scholarly journals ‘It is that bad but it isn’t that bad’: Exploring children’s experiences of their mother’s non-terminal cancer with a focus on attachment, resilience and trauma

2018 ◽  
Vol 24 (1) ◽  
pp. 53-68 ◽  
Author(s):  
Laura Tozer ◽  
Jacqui Stedmon ◽  
Rudi Dallos
Keyword(s):  
Narrative Analysis ◽  
Patient Perspective ◽  
Cancer Survival ◽  
Terminal Cancer ◽  
Parental Cancer ◽  
Emotional Wellbeing ◽  
Narrative Perspective ◽  
Narrative Interview ◽  
The Impact ◽  
The Way

Recent years have shown a welcome trend in the number of people surviving cancer. The impact of cancer survival has focused primarily on the patient perspective, and limited research has explored the effect of parental cancer on children. No research to date can be found which explores children’s experiences of parental cancer from a narrative perspective yet the way in which people tell their story is associated with emotional wellbeing. Measures of attachment, resilience and trauma were completed by 10 children (six girls, four boys aged 10–18 years) all of whom have a mother with non-terminal cancer. Each child also completed a narrative interview where they spontaneously described their experiences. Interviews were analysed drawing on narrative and thematic approaches to ensure the structural and performative as well as content of the stories could be understood. Experiences were interpreted within the context of attachment, resilience and trauma. Clinically high levels of trauma were found within this group even for securely attached and resilient children. The narrative analysis corroborated this finding. Implications for services supporting families are discussed.

Overview of the Patient Perspective at OMERACT 10 — Conceptualizing Methods for Developing Patient-Reported Outcomes

2011 ◽  
Vol 38 (8) ◽  
pp. 1699-1701 ◽  
Author(s):  
JOHN R. KIRWAN ◽  
PETER S. TUGWELL
Keyword(s):  
Clinical Trials ◽  
Experimental Work ◽  
Patient Reported Outcomes ◽  
Patient Perspective ◽  
Methodological Issues ◽  
Instrument Selection ◽  
Patient Reported ◽  
The Impact ◽  
Choice Of Instruments ◽  
The Way

This overview draws out the main conclusions from the 4 workshops focused on incorporating the patient perspective into outcome assessment at the 10th Outcome Measures in Rheumatology (OMERACT 10) conference. They raised methodological issues about the choice of outcome domains to include in clinical trials, the development or choice of instruments to measure these domains, and the way these instruments might capture the impact of a disease and its treatment. The need to develop a more rigorous conceptual model of quantifying the way conditions affect health, and the need to ensure patients are directly involved in the decisions about domains and instruments, emerged clearly. The OMERACT participants voted to develop guidelines for domain and instrument selection, and conceptual and experimental work will be brought forward to revise and upgrade the OMERACT Filter.

scholarly journals A multi-method study of youth development and wellbeing: a meta-narrative analysis and program evaluation study

2021 ◽  
Author(s):  
Sofia A. Puente-Duran
Keyword(s):  
Data Collection ◽  
Youth Development ◽  
Narrative Analysis ◽  
Multilevel Models ◽  
Positive Impact ◽  
Local Level ◽  
Grey Literature ◽  
Emotional Wellbeing ◽  
Time Points ◽  
The Impact

Youth are embedded within multiple environmental systems, developing within families, neighbourhoods, and multicultural communities. Such systems influence the formation of identity and wellbeing. It is important to monitor the wellbeing of youth across their environments, given the complexities of diverse youth experiences. Accordingly, the present dissertation comprises two studies to address the topic of youth development and wellbeing using multiple data collection techniques. In Study 1, a meta-narrative analysis was undertaken examining concepts of youth wellbeing across multidimensional indices. A search was performed across the grey literature base and seven indices fit the search criteria. Data were extracted using a codebook to guide a thematic analysis and critical appraisal to compare, contrast, and critique indices. Results showed three key findings. (1) Indices had some overlap to conceptualize wellbeing, using an average of six dimensions. (2) Data collection used similar levels of population-level statistics and self-reported data. (3) A large proportion of measures focused on youth deficits, with less focus placed on positive attributes. In Study 2, an evaluation was conducted assessing the impact of a school-based art program on the socio-emotional wellbeing of adolescents from three grade 8 classrooms, within one inner-city, multicultural neighbourhood. A mixed-method, multi-informant evaluation design was employed, and implementation processes of the program were assessed. Survey data and open-ended responses were collected from 74 students at three time-points (pre, post, follow-up), using multilevel modeling to examine time-points nested within students. Responses were also collected post-program from six artist facilitators and three teachers. Program implementation results showed high levels of fidelity, and high quality ratings. Results from multilevel models showed significant variation at the between-student level. Across students, significant improvements were found over time for art skill, self-expression, and confidence presenting. Qualitative data revealed themes across informants regarding the positive impact of the program on student growth. Findings also indicated the importance of a safe space for adolescents to learn about themselves, and be vulnerable. These two studies shed light on the multiple ways in which youth development and wellbeing are assessed, and the ways in which a local-level community program can support their wellness.

scholarly journals A multi-method study of youth development and wellbeing: a meta-narrative analysis and program evaluation study

2021 ◽  
Author(s):  
Sofia A. Puente-Duran
Keyword(s):  
Data Collection ◽  
Youth Development ◽  
Narrative Analysis ◽  
Multilevel Models ◽  
Positive Impact ◽  
Local Level ◽  
Grey Literature ◽  
Emotional Wellbeing ◽  
Time Points ◽  
The Impact

Youth are embedded within multiple environmental systems, developing within families, neighbourhoods, and multicultural communities. Such systems influence the formation of identity and wellbeing. It is important to monitor the wellbeing of youth across their environments, given the complexities of diverse youth experiences. Accordingly, the present dissertation comprises two studies to address the topic of youth development and wellbeing using multiple data collection techniques. In Study 1, a meta-narrative analysis was undertaken examining concepts of youth wellbeing across multidimensional indices. A search was performed across the grey literature base and seven indices fit the search criteria. Data were extracted using a codebook to guide a thematic analysis and critical appraisal to compare, contrast, and critique indices. Results showed three key findings. (1) Indices had some overlap to conceptualize wellbeing, using an average of six dimensions. (2) Data collection used similar levels of population-level statistics and self-reported data. (3) A large proportion of measures focused on youth deficits, with less focus placed on positive attributes. In Study 2, an evaluation was conducted assessing the impact of a school-based art program on the socio-emotional wellbeing of adolescents from three grade 8 classrooms, within one inner-city, multicultural neighbourhood. A mixed-method, multi-informant evaluation design was employed, and implementation processes of the program were assessed. Survey data and open-ended responses were collected from 74 students at three time-points (pre, post, follow-up), using multilevel modeling to examine time-points nested within students. Responses were also collected post-program from six artist facilitators and three teachers. Program implementation results showed high levels of fidelity, and high quality ratings. Results from multilevel models showed significant variation at the between-student level. Across students, significant improvements were found over time for art skill, self-expression, and confidence presenting. Qualitative data revealed themes across informants regarding the positive impact of the program on student growth. Findings also indicated the importance of a safe space for adolescents to learn about themselves, and be vulnerable. These two studies shed light on the multiple ways in which youth development and wellbeing are assessed, and the ways in which a local-level community program can support their wellness.

Running the Bases Backward: Journalists Mark the Death of Jimmy Piersall

2019 ◽  
pp. 216747951986708
Author(s):  
Maggie Fedorocsko ◽  
Ronald Bishop
Keyword(s):  
Mental Illness ◽  
Narrative Analysis ◽  
Professional Athletes ◽  
Major League ◽  
To Come ◽  
The Impact ◽  
The Way

A narrative analysis was performed on obituaries and tributes written to commemorate the career of longtime Major League player and broadcaster Jimmy Piersall, who died in June 2017. Six primary narrative themes were identified: the impact on Piersall of pressure from his father to excel, his role as mentor to other players, celebration of his decision to come forward about his experience with mental illness, the “antics” for which he was so well known, his tendency to speak his mind while on the air, and his embrace of the notoriety that attached to sharing his experiences and to the colorful behavior he exhibited throughout his various careers. The narratives affirm a limited depiction of what the experience of mental illness is actually like. Piersall did not push back against that depiction, even as he paved the way for the more robust conversation about mental illness engaged in by professional athletes and encouraged by journalists. Piersall’s impact is diminished by the fact he was so willing to poke fun at himself, to use language that would, in today’s national dialogue about mental illness, be dismissed as inappropriate. Journalism has moved on to a more serious, more scripted treatment of an athlete coming forward to discuss the experience with mental illness.

Narrative, Intertext and Allusion in the Qur'anic Presentation of Job

1999 ◽  
Vol 1 (1) ◽  
pp. 1-25 ◽  
Author(s):  
A. H. Johns
Keyword(s):  
Key Words ◽  
Complex Network ◽  
Key Words And Phrases ◽  
Divine Revelation ◽  
Western Tradition ◽  
Islamic Tradition ◽  
The Impact ◽  
The Way

Job (Ayyūb) is a byword for patience in the Islamic tradition, notwithstanding only six Qur'anic verses are devoted to him, four in Ṣād (vv.41-4), and two in al-Anbiyā' (vv.83-4), and he is mentioned on only two other occasions, in al-Ancām (v.84) and al-Nisā' (v.163). In relation to the space devoted to him, he could be accounted a ‘lesser’ prophet, nevertheless his significance in the Qur'an is unambiguous. The impact he makes is achieved in a number of ways. One is through the elaborate intertext transmitted from the Companions and Followers, and recorded in the exegetic tradition. Another is the way in which his role and charisma are highlighted by the prophets in whose company he is presented, and the shifting emphases of each of the sūras in which he appears. Yet another is the wider context created by these sūras in which key words and phrases actualize a complex network of echoes and resonances that elicit internal and transsūra associations focusing attention on him from various perspectives. The effectiveness of this presentation of him derives from the linguistic genius of the Qur'an which by this means triggers a vivid encounter with aspects of the rhythm of divine revelation no less direct than that of visual iconography in the Western Tradition.

Invention of Judaism

2017 ◽  
Author(s):  
John J. Collins
Keyword(s):  
Way Of Life ◽  
The Impact ◽  
The Way

Judaism is often understood as the way of life defined by the Torah of Moses, but it was not always so. This book identifies key moments in the rise of the Torah, beginning with the formation of Deuteronomy, advancing through the reform of Ezra, the impact of the suppression of the Torah by Antiochus Epiphanes and the consequent Maccabean revolt, and the rise of Jewish sectarianism. It also discusses variant forms of Judaism, some of which are not Torah-centered and others which construe the Torah through the lenses of Hellenistic culture or through higher, apocalyptic, revelation. It concludes with the critique of the Torah in the writings of Paul.

Conceptualizing the impact of machines, science and technologies on the sociocultural environment that shapes the teacher's paradigm of values and views of life

2020 ◽  
Vol 16 (11) ◽  
pp. 2161-2179
Author(s):  
A.B. Lanchakov ◽  
S.A. Filin ◽  
A.Zh. Yakushev ◽  
E.E. Zhusipova
Keyword(s):  
Social Relationships ◽  
Cognitive Activity ◽  
Environmentally Friendly ◽  
Professional Activity ◽  
Sociocultural Environment ◽  
Sociocultural Development ◽  
Prediction And Forecasting ◽  
The Impact ◽  
Positive Motivation ◽  
The Way

Subject. In this article we analyze how machinery, science and technologies influence the sociocultural environment that engenders the teacher's paradigm of values and views of life. Objectives. We herein outline guidance to predict the way teachers' views of life might evolve in corresponding sociocultural periods more precisely. The article analyzes making more precise forecasts of oncoming economic crises, which will cause some changes in teachers' mindset. Methods. The study involves learning methodologies, methods of prediction and forecasting, including foresight. Results. We propose and analyze the theory holding that the human civilization passes cycles during its sociocultural development in terms of a new set of values in contemporary teachers' views of life. The article sets forth our recommendations on innovation-driven views of life, mindset and thinking and, consequently, the development of intellectual qualities, knowledge, skills, cognitive activity, positive motivation to the professional activity of a teacher and alumni during more elevated periods, which requires to more precisely predict the way teachers’ mindset may change in certain sociocultural periods. Conclusions and Relevance. As the human civilization enters the innovation-driven sociocultural period, teachers and social relationships should demonstrate more innovative and environmentally-friendly attitudes and views of life.

The Good, the Bad and the Ugly
. A Broad look at the Adaptation of Technology in Education

2020 ◽  
Vol 2 (1) ◽  
pp. 31-44
Author(s):  
Vladislav Ilin
Keyword(s):  
Technology In Education ◽  
Advantages And Disadvantages ◽  
Standardized Method ◽  
Impact Of Technology ◽  
The Impact ◽  
The Way

Technology in education is a global phenomenon affecting learners of all ages. The breadth and variety of available tools make it difficult to implement a standardized method for assessing the impact of technology on learning. The lack of a consensus on good and bad practices results in inconsistent application and mixed learning results.   This article takes a look at the adaptation of technology to education and examines the various tools used to enhance learning. We discuss the advantages and disadvantages of using technology, as well as review methodologies for evaluating the impact.   The essay concludes by identifying several problems with the way technology is evaluated and offers suggestions for further research to address those problems.

Diasporic and Gendered Identities in Moroccan Transnational Cinema: Mohammed Ismail’s Ici et là (Here and There)

2018 ◽  
Vol 2 (1) ◽  
pp. 29-33
Author(s):  
Mouhcine El-Hajjami ◽  
Souad Slaoui
Keyword(s):  
National Identity ◽  
Female Subject ◽  
Transnational Cinema ◽  
Visual Discourse ◽  
Gendered Identities ◽  
Feminist Discourse ◽  
The Impact ◽  
The Way

The present paper aims at examining the extent to which Moroccan cinema could establish a diasporic visual discourse that cements national identity and contests the impact of westernization on migrants. Moreover, through the analysis the way in which independent identities are constructed in the host land, the article tries to incorporate a feminist discourse to highlight the role of the female subject in retrieving its own agency by challenging patriarchal oppression. Therefore, we argue that Mohammed Ismail’s feature-length film Ici et là (Here and There) has partially succeeded in creating a space for its diasporic subjects to build up their own independent identities beyond the scope of westernization and patriarchy.

Sign in / Sign up

Export Citation Format

Share Document