scholarly journals ‘You come because it is an interesting place’: The impact of attending a heritage programme on the well-being of people living with dementia and their care partners

Dementia ◽  
2021 ◽  
pp. 147130122098538
Author(s):  
Anthea Innes ◽  
Helen F Scholar ◽  
Jana Haragalova ◽  
Monika Sharma

Promoting access to heritage settings has been acknowledged as a way to promote well-being in the United Kingdom for people living with dementia and their care partners. Yet there is a lack of information available internationally on the contribution of heritage sites to promote well-being and social inclusion for those living with dementia. This study addresses this gap by reporting on the impact for 48 people of participating in the ‘Sensory Palaces’ (SP) programme run by Historic Royal Palaces at Hampton Court and Kew Palaces in the United Kingdom. Two primary data sources were used; post-session interviews involving 30 participants (the person living with dementia and/or their care partners), and 131 sets of self-complete pre- and post-session mood questionnaires administered directly before and after SP session attendance. Analysis of the data sets is presented under three themes: enjoyment and engagement; connecting and learning and place, space and time. The findings demonstrate that participants highly valued the heritage sessions and reported positively on the impact this had for their individual well-being and their relationships with one another. This study highlights the opportunity for heritage sites to contribute to promoting well-being for people living with dementia.

2020 ◽  
Vol 45 (6) ◽  
pp. 1087-1118
Author(s):  
J. Benjamin Hurlbut ◽  
Ingrid Metzler ◽  
Luca Marelli ◽  
Sheila Jasanoff

Genetic testing has become a vehicle through which basic constitutional relationships between citizens and the state are revisited, reaffirmed, or rearticulated. The interplay between the is of genetic knowledge and the ought of government unfolds in the context of diverse imaginaries of the forms of human well-being, freedom, and flourishing that states have a duty to support. This article examines how the United Kingdom, Germany, and the United States governed testing for Alzheimer’s disease, and how they diverged in defining potential harms, benefits, and objects of regulation. Comparison before and after the arrival of direct-to-consumer genetic tests reveals differences in national understandings of what it means to protect life and citizenship: in the United Kingdom, ensuring physical wellness through clinical utility; in the United States, protecting both citizens’ physical well-being and freedom to choose through a framework of consumer protection; and in Germany, emphasizing individual flourishing and an unburdened sense of human development that is expressed in genetic testing law and policy as a commitment to the stewardship of personhood. Operating with their own visions of what it means to protect life and citizenship, these three states arrived at settlements that coproduced substantially different bioconstitutional regimes around Alzheimer’s testing.


Author(s):  
Samantha Besson

This chapter examines the reception of the ECHR in the UK and Ireland both before and after incorporation. Both countries incorporated the ECHR using roughly the same model. One might have assumed that the mode of incorporation into a dualist legal order would largely determine outcomes. In Ireland and the UK, however, the impact of acts of incorporation was heavily mediated by pre-existing constitutional structure and practice.


2016 ◽  
Vol 26 (4) ◽  
pp. 330-345 ◽  
Author(s):  
Jacqueline H. Watts ◽  
Joyce Cavaye

In the United Kingdom, policy has formalized the role of carers through the introduction of new rights and entitlements to support. However, this support is directed only at current carers with the needs of former carers being unacknowledged. Yet, when caregiving comes to an end, the transition to a life as a “former” carer can be challenging. This article reports findings from a small-scale qualitative study about the experiences of former carers conducted in the United Kingdom. Findings highlight the impact of caregiving on the health and well-being of former carers with feelings of loss and distress associated with the end of caregiving. The need for support in the post-caregiving phase emerges as a significant issue with former carers feeling abandoned, lacking purpose and motivation to move forward in their lives. Findings suggest that the needs of former carers are not being met.


2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Rupa Chilvers ◽  
Suzanne H. Richards ◽  
Emily Fletcher ◽  
Alex Aylward ◽  
Sarah Dean ◽  
...  

Abstract Background The United Kingdom (UK) is experiencing a general practitioner (GP) workforce retention crisis. Research has focused on investigating why GPs intend to quit, but less is known about the acceptability and effectiveness of policies and strategies to improve GP retention. Using evidence from research and key stakeholder organisations, we generated a set of potential policies and strategies aimed at maximising GP retention and tested their appropriateness for implementation by systematically consulting with GPs. Methods 28 GP Partners and GPs working in national stakeholder organisations from South West England and London were purposively sampled, and asked to take part in a RAND/UCLA Appropriateness Method panel. Panellists were asked to read an evidence briefing summary, and then complete an online survey on two occasions. During each round, participants rated the appropriateness of policies and strategies aimed at improving GP retention using a nine point scale (1 ‘extremely inappropriate’ to 9 ‘extremely appropriate’). Fifty-four potential policies and strategies (equating to 100 statements) were tested, focusing on factors influencing job satisfaction (e.g. well-being, workload, incentives and remuneration, flexible working, human resources systems). Ratings were analysed for panel consensus and categorised based on appropriateness (‘appropriate’, ‘uncertain’, ‘inappropriate’). Results 12/28 GPs approached agreed to take part, 9/28 completed two rounds of the online survey between February and June 2018. Panellists identified 24/54 policy and strategy areas (41/100 statements) as ‘appropriate’. Examples included providing GP practices ‘at risk’ of experiencing GP shortages with a toolkit for managing recruitment and retention, and interventions to facilitate peer support to enhance health and wellbeing, or support portfolio careers. Strategies to limit GP workload, and manage patient demand were also endorsed. Conclusions The panel of experienced GPs identified a number of practical ways to improve GP retention through interventions that might enhance job satisfaction and work-life balance. Future research should evaluate the impact of implementing these recommendations.


2020 ◽  
pp. 108705472092589 ◽  
Author(s):  
Tessa Peasgood ◽  
Anupam Bhardwaj ◽  
John E. Brazier ◽  
Katie Biggs ◽  
David Coghill ◽  
...  

Objective: To explore the burden associated with childhood ADHD in a large observational study. Methods: We recruited familes with at least one child (6-18 years) with ADHD via 15 NHS trusts in the UK, and collected data from all family members. We made careful adjustments to ensure a like-for-like comparison with two different control groups, and explored the impact of controlling for a positive parental/carer ADHD screen, employment, and relationship status. Results: We found significant negative impacts of childhood ADHD on parents’/carers’ hours and quality of sleep, satisfaction with leisure time, and health-related quality of life (measured by the EuroQol-5D [EQ-5D]). We found a decrement in life satisfaction, mental well-being (as measured by the Short–Warwick Edinburgh Mental Well-Being Scale [S-WEMWBS]), and satisfaction with intimate relationships, but this was not always robust across the different control groups. We did not find any decrement in satisfaction with health, self-reported health status, or satisfaction with income. Conclusion: The study quantifies the impact on the health and well-being of parents living with a child with ADHD using a survey of families attending ADHD clinics in the United Kingdom.


BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e043983
Author(s):  
Guibo Sun ◽  
Yao Du ◽  
Michael Y Ni ◽  
Jianting Zhao ◽  
Chris Webster

IntroductionPublic transport accessible to older people may offer a transformative solution to achieving healthy ageing. However, the evidence to support such transport infrastructure modifications is unclear. Previous studies on public transport use and elderly health were mostly observational studies using cross-sectional data. Few studies have examined the before-and-after effects of a new metro, for example, to see if it leads to improved elderly health.Methods and analysisWe use a new metro line in Hong Kong as a natural experiment to examine the impact of the metro-led public transport intervention on elderly health. In Hong Kong, more than 90% of daily travels are made by public transport. The public transport modifications consist of the new metro line with eight stations and changes in the walking environment and bus services around the stations. We will look at the before-and-after differences in public transport use and health outcomes between elderly participants living in treatment neighbourhoods (400 m walking buffered areas of the new metro stations) and in control groups (living in comparable areas but unaffected by the new metro). Questionnaire-based baseline data were collected in 2019 before the COVID-19 pandemic, while some qualitative interviews are ongoing. Amid the pandemic, we conducted a quick telephone-based survey of COVID-19’s potential impact on public transport use behaviours of our elderly cohort in September 2020. Note there is no lockdown in Hong Kong until the writing of the paper (January 2021). After the new metro opens, we will conduct a follow-up survey, tentatively in late 2022. We aim to investigate if the new metro and the associated changes in the built environment have any effects on public transport use behaviours, physical activity and wider health outcomes among the elderly (eg, social inclusion, quality of life, subjective well-being).Ethics and disseminationThe Human Research Ethics Committee of the University of Hong Kong reviewed and approved the study procedures and materials (reference number: EA1710040). Results will be communicated through scientific papers and research reports.


2020 ◽  
Vol 21 (2) ◽  
pp. 155-163
Author(s):  
Damanhur Damanhur ◽  
Wahyudiah Utami

The purpose of this study was to analyze the Impact of Qardun Hasan Financing on the Well-Being of Traders in the Lambaro Banda Aceh market. The data used in this study are primary data using sequential time data. The number of samples in this study were 34 members of the Banda Aceh Baitul Misyakat Sharia Cooperative whose receipts were traders in the Lambaro Banda Aceh market using accidental sampling techniques. Data obtained through interviews and questionnaires. The method of data analysis in this study used a paired t test method. The results of this study found that there was an impact on the welfare of traders as measured by religious activity, income, savings and alms. The four indicators showed an impact on the welfare of traders, this was concluded after looking at the conditions and data of traders before and after receiving Qardun Hasan's financing.


Author(s):  
Nkechi Adeeko ◽  
Lorna Treanor

This article critically analyses the complexities of identity work among refugee women entrepreneurs in the United Kingdom. Once labelled as refugees, individuals are homogenised and disadvantaged by association with this stigmatised identity. We explore how women refugees undertake dynamic identity work to recreate themselves as entrepreneurs attempting to ameliorate such stigma. Using case study evidence, we find that claiming an entrepreneurial identity enables the refutation of the stigmatised refugee label and as such, it can be personally enhancing by improving well-being and socio-economic standing. The vestigial negative effects upon access to entrepreneurial resources arising from gendered constraints and a refugee background however, persist. Thus, these refugee entrepreneurs face a double-edged sword; while challenging stigmas through entrepreneurship is potentially liberating, having a refugee background acerbates the impact of enduring structural challenges upon women’s entrepreneurial activity. This has implications for venture potential and relatedly, to the sustainability of fragile entrepreneurial identities among a cohort of vulnerable women.


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