Gaining super control: Psychoeducational group intervention for adolescents with mild intellectual disability and their parents

Adolescents with intellectual disability experience psychological and social challenges in their transition to adulthood. Knowledge about the diagnosis and insight into own strengths and difficulties can help them manage the limitations and barriers they face, but suitable interventions with this purpose are scarce. The present paper presents a psychoeducational group intervention, The Super Control Project, for adolescents (15–17 years old) with mild intellectual disability (n = 23) and their parents. In a pre-post design, adolescent outcome data was obtained through teacher and parent questionnaires, and interviews with the adolescents. Parents and adolescents also evaluated the interventions’ usefulness. Results indicated positive impact on participants’ understanding of the diagnosis, managing of everyday challenges, and social networking. The intervention seemed to fit the participants’ needs and abilities. The study encourages further implementation and rigorous evaluation.

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Social-emotional problems of children with mild intellectual disabilities having parents with mental health concerns: A quantitative comparison study

Journal of Intellectual Disabilities ◽

10.1177/17446295211030092 ◽

2021 ◽

pp. 174462952110300

Author(s):

I Riemersma ◽

F Van Santvoort ◽

KTM Van Doesum ◽

CMH Hosman ◽

JMAM Janssens ◽

...

Keyword(s):

Mental Health ◽

At Risk ◽

Intellectual Disability ◽

Emotional Problems ◽

Mild Intellectual Disability ◽

Social Emotional ◽

Health Concerns ◽

Comparison Groups ◽

Strengths And Difficulties ◽

Mental Health Concerns

Introduction: Children of parents with mental health concerns are at-risk for social-emotional problems. In this study, we assessed whether children with a mild intellectual disability and parents with mental health concerns are particularly at-risk. Method: Strengths and Difficulties Questionnaire (SDQ) reports of children with a mild intellectual disability (N = 55) and their parents with mental health concerns (N = 45) were compared to two comparison groups. The first group included children with average intelligence (N = 13) and their parents with mental health concerns (N = 56), the second group included children with mild intellectual disability (N = 44) and their parents (N = 36). Results: Children with a mild intellectual disability and a parent with mental health concerns show higher total SDQ problem scores and more internalizing and externalizing problems as compared to children in the two other groups. Discussion: Children having mild intellectual disability and parents with mental health concerns are particularly at risk for developing social-emotional problems.

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Reflections on introducing a Leavers’ Preparation Group in an intellectual disability secure service

Journal of Intellectual Disabilities and Offending Behaviour ◽

10.1108/jidob-12-2017-0026 ◽

2018 ◽

Vol 9 (2) ◽

pp. 81-90 ◽

Cited By ~ 1

Author(s):

Gareth Hickman ◽

Nicola Booth ◽

Thuy Hoang

Keyword(s):

Intellectual Disability ◽

Service Provision ◽

Group Intervention ◽

Outcome Data ◽

Service Users ◽

Current Group ◽

Content Type ◽

User Attitudes ◽

Personal Reflections ◽

Learning Points

Purpose The purpose of this paper is to report on the introduction of a Leavers’ Preparation Group in an Intellectual Disability (ID) Secure Service. In the context of reductions in ID inpatient beds and reductions in restrictive practices, discharge and transfers out of hospital settings are increasing. The current group was established to provide support and preparation for service users as they approach discharge/transfer from hospital. The current paper provides example outcome data and reflects on the experience and learning points in delivering such interventions in secure contexts. Design/methodology/approach The Leavers’ Preparation Group is an eight-session preparatory, recovery focussed group intervention focussing on supporting service users as they approach discharge/transfer to lower levels of security. The intervention has a multi-disciplinary approach, focussing on psychosocial aspects of current and future risk reduction. Findings Overwhelmingly service users reported that they experienced the group as positive and beneficial. Personal reflections of the authors are offered on service user attitudes to discharge/transfer, the contextual impact of restrictive systems and the benefits of this type of group intervention. Originality/value This paper reports on clinical practice, which involves multi-disciplinary intervention, co-production with service users and relevant stakeholders, and provides a description of the group intervention. It also offers critical reflection on tensions in this area of service provision, such as control and choice, freedom and responsibility, limitations and restrictions and power imbalances.

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Comprehensive study of 28 individuals with SIN3A-related disorder underscoring the associated mild cognitive and distinctive facial phenotype

European Journal of Human Genetics ◽

10.1038/s41431-020-00769-7 ◽

2021 ◽

Author(s):

Meena Balasubramanian ◽

Alexander J. M. Dingemans ◽

Shadi Albaba ◽

Ruth Richardson ◽

Thabo M. Yates ◽

...

Keyword(s):

Intellectual Disability ◽

Protein Function ◽

Autism Spectrum ◽

Loss Of Function ◽

Mild Intellectual Disability ◽

Related Disorder ◽

Feeding Difficulties ◽

Facial Phenotype ◽

Novel Variants ◽

Common Behaviour

AbstractWitteveen-Kolk syndrome (OMIM 613406) is a recently defined neurodevelopmental syndrome caused by heterozygous loss-of-function variants in SIN3A. We define the clinical and neurodevelopmental phenotypes related to SIN3A-haploinsufficiency in 28 unreported patients. Patients with SIN3A variants adversely affecting protein function have mild intellectual disability, growth and feeding difficulties. Involvement of a multidisciplinary team including a geneticist, paediatrician and neurologist should be considered in managing these patients. Patients described here were identified through a combination of clinical evaluation and gene matching strategies (GeneMatcher and Decipher). All patients consented to participate in this study. Mean age of this cohort was 8.2 years (17 males, 11 females). Out of 16 patients ≥ 8 years old assessed, eight (50%) had mild intellectual disability (ID), four had moderate ID (22%), and one had severe ID (6%). Four (25%) did not have any cognitive impairment. Other neurological symptoms such as seizures (4/28) and hypotonia (12/28) were common. Behaviour problems were reported in a minority. In patients ≥2 years, three were diagnosed with Autism Spectrum Disorder (ASD) and four with Attention Deficit Hyperactivity Disorder (ADHD). We report 27 novel variants and one previously reported variant. 24 were truncating variants; three were missense variants and one large in-frame gain including exons 10–12.

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Effectiveness of a Psychoeducational Group Intervention Carried Out by Nurses for Patients with Depression and Physical Comorbidity in Primary Care: Randomized Clinical Trial

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18062948 ◽

2021 ◽

Vol 18 (6) ◽

pp. 2948

Author(s):

Antonia Raya-Tena ◽

María Isabel Fernández-San-Martin ◽

Jaume Martin-Royo ◽

Rocío Casañas ◽

Glòria Sauch-Valmaña ◽

...

Keyword(s):

Primary Care ◽

Clinical Trial ◽

Depressive Symptoms ◽

Group Intervention ◽

Therapeutic Response ◽

Chronic Obstructive ◽

Obstructive Pulmonary Disease ◽

Psychoeducational Group ◽

One Year ◽

And Control

The association between physical illness and depression implies a poorer management of chronic disease and a lower response to antidepressant treatments. Our study evaluates the effectiveness of a psychoeducational group intervention led by Primary Care (PC) nurses, aimed at patients of this kind. It is a randomized, multicenter clinical trial with intervention (IG) and control groups (CG), blind response variables, and a one year follow-up. The study included 380 patients ≥50 years of age from 18 PC teams. The participants presented depression (BDI-II > 12) and a physical comorbidity: diabetes mellitus type 2, ischemic heart disease, chronic obstructive pulmonary disease, and/or asthma. The IG (n = 204) received the psychoeducational intervention (12 weekly sessions of 90 min), and the CG (n = 176) had standard care. The patients were evaluated at baseline, and at 4 and 12 months. The main outcome measures were clinical remission of depressive symptoms (BDI-II ≤ 13) and therapeutic response (reduction of depressive symptoms by 50%). Remission was not significant at four months. At 12 months it was 53.9% in the IG and 41.5% in the CG. (OR = 0.61, 95% CI, 0.49–0.76). At 4 months the response in the IG (OR = 0.59, 95% CI, 0.44–0.78) was significant, but not at 12 months. The psychoeducational group intervention led by PC nurses for individuals with depression and physical comorbidity has been shown to be effective for remission at long-term and for therapeutic response at short-term.

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Searching for a dynamic equilibrium in decision making: the voices of adults with mild intellectual disability and their significant others in Hong Kong

Disability and Rehabilitation ◽

10.1080/09638288.2021.1925978 ◽

2021 ◽

pp. 1-11

Author(s):

Phyllis King Shui Wong

Keyword(s):

Decision Making ◽

Hong Kong ◽

Intellectual Disability ◽

Dynamic Equilibrium ◽

Significant Others ◽

Mild Intellectual Disability

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Believers, Attractiveness and Values

Religions ◽

10.3390/rel12030213 ◽

2021 ◽

Vol 12 (3) ◽

pp. 213

Author(s):

Andrea Khalfaoui ◽

Ana Burgués ◽

Elena Duque ◽

Ariadna Munté

Keyword(s):

Social Change ◽

Positive Impact ◽

Daily Life ◽

Social Challenges ◽

Life Challenges ◽

Personal Experiences ◽

Rapid Changes ◽

Fundamental Values

Societies are undergoing an intensive process of transformation, and the role that religion plays in guiding such rapid changes remains underexplored. In recent decades, postmodern discourse has hindered the attractiveness of involvement in religious affairs and reading sacred books, highlighting how “uncool” and useless these practices are in responding to current daily life challenges. Decades of research have evidenced the positive impact of reading the most precious universal literary creations. Since sacred books are considered universal texts, this study explores the potential of dialogic interreligious gatherings (DIGs) focused on sacred books to enhance the attractiveness of key values such as love, kindness, humility, and generosity. These spaces are grounded in strong principles that guarantee the freedom of participants. This context opens up a possibility of discussing sacred books in a dialogic and egalitarian space where everyone’s voice is heard. In this context, especially in times where freedom is jeopardized in many spheres, believers from different faiths and nonbelievers engage in dialogues and relate sacred book content to their personal experiences and current social challenges. The communicative analysis conducted shows that DIGs drive the attractiveness of fundamental values present in sacred books, creating possibilities to enhance their effects in spurring personal and social change.

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