Evaluating Psychosocial Support Provided by an Augmented Reality Device for Children With Type 1 Diabetes

2021 ◽  
Vol 10 (1) ◽  
pp. 126-130
Author(s):  
Daniel Ullman ◽  
Elizabeth Phillips ◽  
Salomi Aladia ◽  
Peter Haas ◽  
Halle S. Fowler ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Augmented Reality ◽  
Diabetes Management ◽  
Psychosocial Support ◽  
Positive Impact ◽  
Juvenile Diabetes ◽  
Patient Centered ◽  
Audio Feedback ◽  
The Impact

Type 1 diabetes (T1D), previously known as juvenile diabetes, has a large impact on everyday life and can pose a number of challenges for both children and their parents. A patient-centered design company, Sproutel, has designed and developed Jerry the Bear®—an interactive augmented reality (AR) stuffed animal toy bear designed to provide children with T1D with comfort and education about their diabetes management through play. We evaluated the AR device in a research study that involved participation over the course of approximately two weeks; the overall research project spanned three years and involved a variety of partners. We investigated whether Jerry the Bear offered psychosocial support to children with T1D and their parents and whether a new prototype version (equipped with audio feedback) offered any additional benefits. We conducted two versions of the study—a lab study ( n = 11) and a remote study without any in-person component ( n = 14). We found two major takeaways: (1) The results from the remote study closely paralleled the more time- and effort-intensive lab study, pointing to a promising avenue of research for hard-to-reach populations. (2) Jerry the Bear had a positive impact on children with T1D and their parents in almost all cases—in some the impact was more neutral, but never markedly negative. We did not find evidence for a consistent preference between the current Jerry the Bear and the new prototype. We also discuss the challenges of conducting rigorous research in highly specific target populations.

scholarly journals Covid Lockdown Impact on Type 1 Diabetes Health and Well-Being

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. A338-A338
Author(s):  
Jamie Calma ◽  
Sabrina Sangha ◽  
Marina Basina
Keyword(s):  
Type 1 Diabetes ◽  
Glycemic Control ◽  
Diabetes Management ◽  
Healthcare Delivery ◽  
Severe Depression ◽  
Well Being ◽  
Depression Symptoms ◽  
Published Data ◽  
The Impact

Abstract Introduction: Data on the impact of the COVID-19 lockdown on glycemic control and psychological well-being in individuals with Type 1 Diabetes Mellitus (T1DM) showed mixed results. Some studies showed improvement in glycemic control attributed to more time for self-care and a more regular lifestyle schedule during the lockdown. However, most published data reflects a short duration of 3–5 months. The impact of long-term social isolation and transition to telemedicine on the health of T1DM patients remains unknown. Our study analyzes patient perception surrounding the impact of an 11-month lockdown on glycemic control, well-being, and self-reported depression symptoms. Methods: PHQ-9 was integrated into a 55-question survey created using RedCap, a secure portal for managing surveys. The survey was sent to 160 T1DM patients over the age of 18 to gauge their current diabetes management and overall well-being prior to, and during the pandemic. The survey also inquired about patients’ perceived effectiveness of telemedicine visits. PHQ9 scores were collected and analyzed along with survey responses. Results: Data collection is still ongoing. From the 47 responders, the PHQ9 screening showed 51% were in the minimal depression score, 34% in the range of mild depression, 11% in moderate depression, and 4% scored in moderate to severe depression. No patients scored within severe depression. In a regular week during the pandemic, 40% of patients experienced difficulty with their motivation and diabetes management and 60% reported no concern, as compared to 36% and 64% respectively before the pandemic. Among the 47 of patient respondents, 30 reported both A1c levels prior and during the pandemic of which 46% showed an improved A1c amid the pandemic, 10% had no change, and 44% reported a worsened A1c level. For the telehealth part of the survey, 90% of patients reported feeling “comfortable with the level of care” they receive via telemedicine, whereas the other 10% were not. Whilst 54% of patients preferred in-person visits and 46% indicated a preference for telehealth visits. Conclusion: T1DM management is challenging. The pandemic adds to the complexity and burden to both self-management and healthcare delivery. Staying locked down for a prolonged period of time imposes economical, psychological, and medical constraints to diabetes care, as nearly half of the patients reported worsening of glycemic control. Our comprehensive survey reports the longest duration reported up to date of how the COVID-19 lockdown impacts patient’s perceived changes in their mental health and diabetes management. It helps clinicians understand the connection between mental and physical health during the pandemic and improve time-restricted telehealth visits by understanding patient concerns. Additional larger scale studies are imperative to expand the knowledge in this field.

scholarly journals Support Group for Parents Coping with Children with Type 1 Diabetes / Skupina Za Starše Kot Podpora Družinam Pri Soočanju Z Otrokovo Sladkorno Boleznijo Tipa 1

2015 ◽  
Vol 54 (2) ◽  
pp. 79-85 ◽  
Author(s):  
Tanja Pate ◽  
Miha Rutar ◽  
Tadej Battelino ◽  
Maja Drobnič Radobuljac ◽  
Nataša Bratina
Keyword(s):  
Type 1 Diabetes ◽  
Support Group ◽  
Parental Support ◽  
Diabetes Management ◽  
Good Practice ◽  
Evaluation Questionnaire ◽  
The Family ◽  
Almost All ◽  
The Impact

Abstract Objectives. Type 1 diabetes is one of the most common chronic diseases in childhood. Active parental involvement, parental support in the diabetes management and family functioning are associated with optimal diabetes management and glycemic control. The purpose of this study was to assess parental satisfaction with participation in the group and their perceptions of the impact of the intervention on living and coping with childrens T1D. Methods. A sample of 34 parents of children with T1D participated in this trend study. The participants’ experience and satisfaction with support group was measured by a self- evaluation questionnaire, designed for the purpose of the present study. Results. Quantitative data show that parents were overall satisfied with almost all measured items of the evaluation questionnaire (wellbeing in the group, feeling secure, experiencing new things, being able to talk and feeling being heard) during the 4-year period. However, parents from the second and third season, on average, found that the support group has better fulfilled their expectations than the parents from the first season (p = 0,010). The qualitative analysis of the participants’ responses to the open-ended questions was underpinned by four themes: support when confronting the diagnosis, transformation of the family dynamics, me as a parent, exchange of experience and good practice and facing the world outside the family. Discussion. The presented parent support group showed to be a promising supportive, therapeutic and psychoeducative space where parents could strengthen their role in the upbringing of their child with T1D.

Interventions for Children with Diabetes and Their Families

2000 ◽  
Vol 18 (1) ◽  
pp. 149-170 ◽  
Author(s):  
MARGARET GREY
Keyword(s):  
Type 1 Diabetes ◽  
Metabolic Control ◽  
Diabetes Management ◽  
Psychosocial Interventions ◽  
Skills Training ◽  
Educational Interventions ◽  
Research Literature ◽  
Family Interventions ◽  
The Impact

The purpose of this review is to examine the research literature on interventions for children with type 1 diabetes and their families, with a specific focus on three types of intervention (educational and psychosocial/behavioral interventions that focus on individuals with diabetes and family interventions for families, usually parents, of individuals with diabetes). The aim of the review is to determine what interventions produce what outcomes in what populations of children and families. The review includes articles that met the following criteria: (a) empirical study reporting the impact of an intervention on such outcomes as knowledge, behavior, self-care, and metabolic control; (b) children with type 1 diabetes and/or their families as primary subjects; (c) publication between 1980 and January 1, 1999; and (d) publication in English. A total of 41 published papers were included. On the basis of this review, conclusions are as follows: (a) Educational interventions are useful in improving diabetes knowledge but not consistently helpful in improving metabolic control; (b) psychosocial interventions, especially coping skills training and peer support, assist primarily adolescents to improve adjustment and sometimes metabolic control; and (c) family interventions may be helpful in reducing parent-child conflict about diabetes management and care.

scholarly journals The Impact of Frequency and Tone of Parent–Youth Communication on Type 1 Diabetes Management

2017 ◽  
Vol 8 (3) ◽  
pp. 625-636 ◽  
Author(s):  
Mark D. DeBoer ◽  
Rupa Valdez ◽  
Daniel R. Chernavvsky ◽  
Monica Grover ◽  
Christine Burt Solorzano ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Diabetes Management ◽  
The Impact

scholarly journals Yours, Mine, and Ours: A Qualitative Analysis of the Impact of Type 1 Diabetes Management in Older Adult Married Couples

2019 ◽  
Vol 32 (3) ◽  
pp. 239-248 ◽  
Author(s):  
Michelle L. Litchman ◽  
Sarah E. Wawrzynski ◽  
Nancy A. Allen ◽  
Eunjin L. Tracy ◽  
Caitlin S. Kelly ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Qualitative Analysis ◽  
Older Adult ◽  
Diabetes Management ◽  
Married Couples ◽  
The Impact

Impact of childhood type 1 diabetes on maternal work-family relations

2018 ◽  
Vol 31 (5) ◽  
pp. 569-576 ◽  
Author(s):  
Shlomit Shalitin ◽  
Efrat Hershtik ◽  
Moshe Phillip ◽  
Michal-Yackobovitz Gavan ◽  
Rachel Gali Cinamon
Keyword(s):  
Type 1 Diabetes ◽  
Working Mothers ◽  
Diabetes Management ◽  
Working Hours ◽  
Healthy Children ◽  
Organizational Resources ◽  
Work Family ◽  
The Impact

Abstract Background: The aim of the study was to evaluate work-family conflict (WFC) and work-family facilitation (WFF) of working mothers of children with type 1 diabetes (T1D) compared with those of working mothers of children under follow-up not requiring treatment and of healthy children, and to explore the impact of organizational resources and the characteristics of the child and his disease on this interface. Methods: The study included 157 working mothers: 50 mothers of children with T1D, 50 mothers of children on medical follow-up without chronic illness and 57 mothers of healthy children. The participants completed validated questionnaires including the WFC scale, WFF scale, organizational resources support scale, life and work satisfaction questionnaire, a background demographic questionnaire and a child health questionnaire. Mothers of children with T1D also completed a questionnaire relating to diabetes management. Results: Almost half of the mothers of children with T1D found it necessary to reduce their working hours or to change their workplace. This group also reported a significantly higher level of colleague support. There were no significant differences in WFC and WFF between mothers of children with T1D and controls. Conclusions: This study demonstrates the effect of raising a T1D child on the mother’s vocational behavior. Despite the additional burden, work is a source of enrichment for these mothers.

scholarly journals A systematic review of parent/peer-based group interventions for adolescents with type 1 diabetes: interventions based on theoretical/therapeutic frameworks

2018 ◽  
Vol 18 (2) ◽  
pp. 51-65
Author(s):  
Kalsoom Akhter ◽  
Triece Turnbull ◽  
David Simmons
Keyword(s):  
Systematic Review ◽  
Type 1 Diabetes ◽  
Glycaemic Control ◽  
Systematic Reviews ◽  
Diabetes Management ◽  
Self Care ◽  
Effect Sizes ◽  
Cochrane Library ◽  
The Impact

Objective: Although interventions which provide psychosocial support can have a positive impact on diabetes self-care, the impact of family/peer- and theory-based interventions has not yet been clearly identified. This systematic review investigates the randomised controlled trials (RCTs) employing family/peer-based interventions (based on theoretical/ therapeutic frameworks) which aim to improve adolescents’ glycaemic control, psychosocial and/or behavioural functioning.Methods: The Cochrane Library, database of systematic reviews, database of abstracts of reviews of effectiveness and Health Technology Assessment database were searched (from start date until February 2016) for any previously conducted systematic reviews. Seventeen RCTs/interventions were included. The literature was also identified by contacting the leading researchers. Glycaemic control was measured by HbA1c and psychosocial functioning by measures of self-care, knowledge and communication, collaboration/teamwork, quality of life, problem solving, social functioning and family functioning. Only those interventions which reported the use of theories/therapies to manage type 1 diabetes and other psychosocial issues among adolescents (aged 12–17) were included in the present review. Data summarising the key features of the interventions was extracted from each article. Where possible, the effect sizes were calculated.Results: The effect sizes could be computed for HbA1c in six of the 17 interventions. The overall outcomes indicated that interventions including parents have a small to large effect size on a variety of diabetes management and psychosocial outcomes. This review identified interventions, mostly including parents and rarely including peers.Conclusion: The results of this systematic review demonstrate that multicomponent interventions may be more successful for adolescents than ones that just focus on one aspect. Effectiveness is also greater if they demonstrate inter-relatedness with the various aspects of diabetes management. Short-term behavioural approach-based interventions promote improvements in parent/adolescent relationships. Outreach home-based interventions could be a more accessible alternative for intervening with families than office/hospital-based interventions. This approach may also be more acceptable to adolescents and their families. There is a need to develop evaluated interventions for adolescents involving parents. Development should involve stakeholders (ie, adolescents, their families and healthcare professionals) to co-design potentially cost-effective and feasible interventions in the context of NHS diabetes services.

scholarly journals The Impact of COVID-19 Pandemic Lockdown on the Incidence of New-Onset Type 1 Diabetes and Ketoacidosis Among Saudi Children

2021 ◽  
Vol 12 ◽  
Author(s):  
Aqeel Alaqeel ◽  
Fahad Aljuraibah ◽  
Mohammed Alsuhaibani ◽  
Mohammed Huneif ◽  
Abdulhameed Alsaheel ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Saudi Arabia ◽  
Diabetes Management ◽  
Length Of Hospital Stay ◽  
Delayed Presentation ◽  
Anthropometric Measures ◽  
The Impact ◽  
Hba1c Levels ◽  
New Onset

BackgroundOverburdened healthcare systems during the coronavirus disease (COVID-19) pandemic led to suboptimal chronic disease management, including that of pediatric type 1 diabetes mellitus (T1DM). The pandemic also caused delayed detection of new-onset diabetes in children; this increased the risk and severity of diabetic ketoacidosis (DKA). We therefore investigated the frequency of new-onset pediatric T1DM and DKA in Saudi Arabia during the COVID-19 pandemic and compared it to the same period in 2019.MethodsWe conducted a multicenter retrospective cohort study, including patients aged 1–14 years admitted with new-onset T1DM or DKA during the COVID-19 pandemic (March–June 2020) and the same period in 2019. We assessed factors including age, sex, anthropometric measures, nationality, duration of diabetes, diabetes management, HbA1c levels, glycemic control, cause of admission, blood gas levels, etiology of DKA, DKA complications, length of hospital stay, and COVID-19 test status.ResultDuring the lockdown, 106 children, compared with 154 in 2019, were admitted to 6 pediatric diabetes centers. Among the admissions, DKA was higher in 2020 than in 2019 (83% vs. 73%; P=0.05; risk ratio=1.15; 95% confidence interval, 1.04–1.26), after adjusting for age and sex. DKA frequency among new-onset T1DM and HbA1c levels at diagnosis were higher in 2020 than in 2019 (26% vs. 13.4% [P=<0.001] and 12.1 ± 0.2 vs. 10.8 ± 0.25 [P<0.001], respectively). Females and older patients had a higher risk of DKA.ConclusionThe lockdown implemented in Saudi Arabia has significantly impacted children with T1DM and led to an increased DKA frequency, including children with new-onset T1DM, potentially owing to delayed presentation.

scholarly journals Piloting a Culturally Adapted Arabic Structured Small-Group Education Program for Adolescents with Type 1 Diabetes

2019 ◽  
Vol 29 (2) ◽  
pp. 142-149
Author(s):  
Nehad Taha ◽  
Naglaa Mesbah ◽  
Zahra Rahme ◽  
Dina Omar ◽  
Faten Sukkar
Keyword(s):  
Type 1 Diabetes ◽  
Social Impact ◽  
Diabetes Management ◽  
Positive Impact ◽  
Pharmacological Management ◽  
Self Confidence ◽  
Related Family ◽  
Adequate Knowledge ◽  
Culturally Adapted

Background:Kuwait has a high prevalence and incidence of type 1 diabetes (T1D). At present there is a need for structured educational programs (SEP) specifically tailored for Arabian youth with T1D. This SEP was locally and culturally adapted from the Kids In Control of Food (KICk-OFF) course delivered at the Dasman Diabetes Institute, Kuwait. Aims:To explore the psychological and social impact of a pilot SEP for Arabian youth with T1D and their mothers through exploring their respective perspectives. Methods:All 20 participants were interviewed using semistructured interviews individually, with a duration of approximately 30-45 min. The interviews were recorded and then transcribed verbatim. Data were analyzed using an inductive thematic approach. Results:The adolescents gained more self-confidence in managing their diabetes and their mothers were more confident in allowing their children take the lead in their diabetes self-management. Participants were empowered with adequate knowledge about the underlying pathophysiology of glucose metabolism and the nutritional and pharmacological management which made them feel in control and helped them to better cope with diabetes. It reduced diabetes-related family stress and gave them more social freedom, supporting behavioral change for a better lifestyle. Conclusions:Attending the adapted SEP had a positive impact on adolescents with T1D and their mothers through enhancement of their knowledge and confidence, thus giving them a sense of disease control. This pilot study has proven effective in terms of enhancement of confidence in diabetes management and psychosocial factors. Therefore, there is a need for a wider implementation.

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