scholarly journals A scoping review of palliative care outcome measures in interstitial lung disease

2021 ◽  
Vol 30 (161) ◽  
pp. 210080
Author(s):  
Rebecca A. Gersten ◽  
Amanda C. Moale ◽  
Bhavna Seth ◽  
Judith B. Vick ◽  
Hannah Brown ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Palliative Care ◽  
Physical Health ◽  
Outcome Measures ◽  
Secondary Analysis ◽  
Social Health ◽  
Cross Sectional ◽  
Care Outcome

Interstitial lung disease (ILD) confers a high mortality and symptom burden, substantially impacting quality of life. Studies evaluating palliative care in ILD are rapidly expanding. Uniform outcome measures are crucial to assessing the impact of palliative care in ILD. This scoping review evaluates existing outcome measures in general health-related quality of life (HRQoL), physical health, mental health, social health and advance care planning (ACP) domains in patients with ILD. Articles in English with quantitative assessment of at least one measure of general HRQoL, physical health, mental health, social health or ACP in patients with ILD were included. Searches across three databases yielded 3488 non-duplicate articles. 23 met eligibility criteria and included three randomised controlled trials (RCTs) or secondary analysis of an RCT (13%), three cross-sectional studies or secondary analysis of cross-sectional study (13%), one prospective study (4%) and 16 retrospective studies (70%). Among eligible articles, 25 distinct instruments were identified. Six studies assessed general HRQoL (26%), 16 assessed physical health (70%), 11 assessed mental health (48%), six assessed social health (26%) and 16 assessed ACP (70%). The ability to compare results across studies remains challenging given the heterogeneity in outcome measures. Future work is needed to develop core palliative care outcome measures in ILD.

scholarly journals Reduced Quality of Life, Fatigue, and Societal Participation After Polytrauma

2018 ◽  
Vol 103 (3-4) ◽  
pp. 158-166
Author(s):  
Henry A. Leijdesdorff ◽  
Pieta Krijnen ◽  
Lisette van Rooyen ◽  
Perla Marang–van de Mheen ◽  
Steven Rhemrev ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Physical Health ◽  
Injury Severity ◽  
Early Recognition ◽  
Severe Injuries ◽  
Cross Sectional ◽  
Societal Participation ◽  
Polytrauma Patients

Objective: This cross-sectional study analyzed associations between and determinants for health-related quality of life (HRQoL), fatigue, and societal participation in polytrauma patients. Summary of background data: More polytrauma patients survive their injuries, often resulting in long-term disabilities. HRQoL is therefore an important outcome of trauma care. Fatigue and societal participation may be related to HRQoL. Also, their relation to severe injuries has not been studied to date. Methods: A total of 283 polytrauma patients (injury severity score ≥ 16) admitted to the Dutch level 1 Trauma Centre West were analyzed. HRQoL was measured by the physical component summary (PCS) and mental component summary (MCS) scores of the SF-36, fatigue by the multidimensional fatigue inventory, and societal participation by the Utrecht scale for evaluation of rehabilitation-participation. Age, sex, comorbidity, injury pattern, injury severity, and time since trauma were analyzed as potential determinants. Results: A total of 122 patients (43%) responded after a median follow-up of 15 (range, 10–23) months after polytrauma; 44% reported reduced physical health (PCS < 45) and 47% reported reduced mental health (MCS < 45). HRQoL was highly correlated with all fatigue and participation subscales. Severe head injury was associated with worse mental health. Female patients reported more general and mental fatigue and were less satisfied with their ability to perform daily activities. Patients with pre-existing comorbidity experienced worse physical health, more fatigue, and reduced societal participation. Conclusions: One to 2 years after trauma, polytrauma patients report reduced HRQoL, which is associated with more fatigue and reduced societal participation. Trauma rehabilitation strategies should focus on early recognition of reduced HRQoL, fatigue, and societal participation and facilitate early intervention to improve these outcomes.

scholarly journals Quality of life of patients with knee osteoarthritis

2018 ◽  
Vol 5 (2) ◽  
pp. 81-84
Author(s):  
Rajani Shrestha
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Knee Osteoarthritis ◽  
Physical Health ◽  
Negative Impact ◽  
Significant Proportion ◽  
Structured Interview ◽  
Physical And Mental Health ◽  
Cross Sectional

Introductions: Osteoarthritis (OA) is a non-inflammatory degenerative disorder of the joint. It has negative impact on health related quality of life (QOL), both in physical and mental health. This study aimed to assess QOL of patient with knee osteoarthritis. Methods: A descriptive cross-sectional study was conducted in outpatient department of orthopedic in Patan hospital, Patan Academy of Health Sciences. Non-probability purposive sampling technique was used. Data was collected from 21st July to 18th August 2017 among 125 knee osteoarthritis patients by face-to-face interview using structured interview. Results: Overall QOL of patients with knee osteoarthritis was good in mental health component mean score (62.09) and poor in physical health with a mean score of (38.18). The physical component of QOL was significantly associated with age (p<0.04) and occupation (p<0.001). There was no association between independent variable and mental component of QOL. Conclusions: The significant proportion of the patients have poor quality of life in physical health component, but majority of patients have good mental health.

scholarly journals Penggunaan Kontrasepsi Hormonal Berhubungan dengan Penurunan Kualitas Fisik dan Mental Sosial Akseptor

2017 ◽  
Vol 10 (2) ◽  
pp. 90
Author(s):  
Martini Martini ◽  
Martini Fairus
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Physical Health ◽  
Significant Relationship ◽  
Hormonal Contraception ◽  
Hormonal Contraceptive ◽  
Bivariate Analysis ◽  
Physical And Mental Health ◽  
Cross Sectional

<p><strong><em>Background: </em></strong><em>The use of contraceptives that contain synthetic hormones for pregnancy prevention is not without risk. Continuous use for more than 5 years increases the risk of 40%, 10 years 80% and 20 years 160% to get cancer.</em><strong><em> Purpose: </em></strong><em>This study aims to determine the relationship of hormonal contraceptive use with physical and mental quality of life. <strong>M</strong><strong>ethods: </strong>The study design was cross sectional conducted in September 2017. The study population was hormonal contraceptive users in Metro Selatan Subdistrict, Metro City in 2017 with a total sample of 138 people. Data collected using a questionnaire to obtain hormonal contraceptive acceptor data and quality of life physically and mentally social and bivariate analysis using chi square test. <strong>Results: </strong>The results showed a significant relationship between hormonal contraception and physical health (p 0.010) and a significant relationship between hormonal contraception and social mental health (p 0.014). <strong>Conclusion: </strong>The use of hormonal contraception is related to decreased physical health and social mental health. Acceptors using hormonal contraception have lower physical and mental health scores than non-hormonal contraceptive users.</em></p>

scholarly journals Different Multimorbidity Measures Result in Varying Estimated Levels of Physical Quality of Life in Individuals with Multimorbidity: A Cross-Sectional Study in the General Population

2016 ◽  
Vol 2016 ◽  
pp. 1-9 ◽  
Author(s):  
Aline Ramond-Roquin ◽  
Jeannie Haggerty ◽  
Mireille Lambert ◽  
Jose Almirall ◽  
Martin Fortin
Keyword(s):  
Quality Of Life ◽  
Physical Health ◽  
Adult Population ◽  
Secondary Analysis ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

Introduction. Multimorbidity adversely affects health-related quality of life. Methodological factors may impact the magnitude of this relationship.Objective. To evaluate how physical health-related quality of life varies in individuals with multimorbidity depending on the length of the list of candidate conditions considered.Methods. Secondary analysis from PRECISE, a cohort study of the general adult population of Quebec, Canada. Multimorbidity was measured using the 21-chronic condition list from the Disease Burden Morbidity Assessment, and physical health-related quality of life was measured using the physical component summary (PCS) of SF-12v2. The PCS was calculated, (a) using 2 or more conditions from the 21-condition list (MM2+, 21) and then from a reduced 6-condition list (MM2+, 6) and (b) using three or more conditions from each list (MM3+, 21, and MM3+, 6).Results. The analysis included 1,710 individuals (mean age 51.3, 40.5% men). Multimorbidity prevalence ranged from 63.8% (MM2+, 21 conditions) to 3.8% (MM3+, 6 conditions). The mean [95% CI] PCS dropped from 45.7 [CI: 45.0–46.3] (MM2+, 21) to 40.2 [CI: 38.7–41.8] (MM2+, 6) and from 44.2 [CI: 43.4–44.9] (MM3+, 21) to 34.8 [CI: 31.9–37.6] (MM3+, 6).Conclusion. The length of the list of candidate conditions considered has a great impact on the estimations of physical health-related quality of life.

scholarly journals The association between social capital and quality of life among a sample of Iranian pregnant women

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Masoumeh RezaeiNiaraki ◽  
Sadaf Roosta ◽  
Zainab Alimoradi ◽  
Kelly-Ann Allen ◽  
Amir H. Pakpour
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Social Capital ◽  
Physical Health ◽  
Pregnant Women ◽  
Cross Sectional Study ◽  
Physical And Mental Health ◽  
Cross Sectional ◽  
Unit Increase

Abstract Background Quality of life (QoL) is a multidimensional concept that is affected by various factors. According to the literature, social capital is one of the key determinants of QoL that improves the living conditions of the entire community. This study aimed to investigate the association between social capital and QoL in pregnant women. Methods This cross-sectional study included 240 pregnant women with a mean age of 27.98 years who were referred to healthcare centers in Qazvin, Iran. A two-stage random sampling method was used to select the health centers and participants. Social capital, QoL, demographic and obstetric characteristics were assessed. Results The mean scores of social capital, physical and mental dimensions of quality of life were 67.43, 70.2 and 71.88 respectively. All dimensions of social capital except for family and friends’ connection and tolerance of diversity had positive significant correlations with the physical and mental health dimensions of quality of life (r = 0.17 to 0.28 p < 0.05). A univariate regression model revealed that social capital had a significant association with both the physical health (B = 0.40, 95% CI: 0.19–0.61, p < 0.001) and mental health (B = 0 .44, 95% CI: 0.18–0.58, p < 0.001) dimensions of pregnant women’s quality of life. In the adjusted model, each unit increase of social capital increased pregnant women’s QoL in both the physical health and mental health dimensions. Conclusion Social capital has a significant association with women’s QoL during pregnancy. Therefore, QoL during pregnancy could be improved by considering physical, psychological and social components of their healthcare.

Quality of life in Hungarian polio survivors

2021 ◽  
Author(s):  
Erika Viktória Miszory ◽  
Melinda Járomi ◽  
Annamária Pakai
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Sample Selection ◽  
Cross Sectional Study ◽  
Two Dimensions ◽  
Cross Sectional ◽  
Emotional Role ◽  
The Difference ◽  
Polio Survivors

Abstract Aim The number of Hungarian polio patients can be estimated at approximately 3000. Polio infection is currently affecting people 56–65 years of age. The aim of the study was to reveal the quality of life of patients living with polio virus in Hungary. Subject and methods The quantitative cross-sectional study was conducted in January–April 2017 among polyomyelitis patients living in Hungary. In the non-random, targeted, expert sample selection, the target group was composed of patients infected with poliovirus (N = 268). We have excluded those who refused to sign the consent statement. Our data collection method was an SF-36 questionnaire. Using the IBM SPSS Statistics Version 22 program, descriptive and mathematical statistics (χ2-test) were calculated (p < 0.05). Results The mean age of the members of the examined population is 63.5 years; 68.1% were women and 31.90% were men. The majority of the respondents were infected by the polyovirus in 1956 (11.9%), 1957 (24.3%), and 1959 (19.5%). Polio patients, with the exception of two dimensions (mental health, social operation), on the scale of 100 do not reach the “average” quality of life (physical functioning 23 points, functional role 36 points, emotional role 47 points, body pain 48 points, general health 42 points, vitality 50 points, health change 31 points). Conclusion The quality of life of polio patients is far below the dimensions of physical function, while the difference in mental health compared to healthy people is minimal. It would be important to educate health professionals about the existing disease, to develop an effective rehabilitation method.

scholarly journals Comparative analysis of postoperative sexual dysfunction and quality of life in type a aortic dissection patients of different ages

2021 ◽  
Vol 16 (1) ◽  
Author(s):  
Zeng-Rong Luo ◽  
Dong-Shan Liao ◽  
Liang-Wan Chen
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Depressive Symptoms ◽  
Sexual Dysfunction ◽  
Aortic Dissection ◽  
Physical Health ◽  
The Elderly ◽  
Type A Aortic Dissection ◽  
Postoperative Sexual Dysfunction

Abstract Background To compare postoperative sexual dysfunction (SD) and quality of life (QOL) in Type A Aortic Dissection (AAD) Patients of Different Ages. Methods From January 2018 to December 2019, 204 AAD postoperative survivors in Union Hospital of Fujian Medical University were selected and were divided into young group (less than 50 years old) and elderly group (more than 50 years old). We evaluated SD according to the male International Erectile Dysfunction Index (IIEF-5) and female sexual function index (FSFI). The Short Form 12 Health Survey Questionnaire (SF-12) and Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q) were used to investigate the QOL, Quick Inventory Depressive Symptomatology-Self Report (QIDS-SR) and the Beck Depression Inventory-II (BDI-II) to investigate depressive symptoms. Results One hundred seventy-five patients completed all the questionnaire (85.8%). The total SD prevalence rate was 38.9% (68 cases), with 27.4% of the young (20 cases) and 47.1% of the elderly (48 cases). The age of non-SD and SD patients was 49.0 ± 11.5 and 56.9 ± 10.8 years, respectively (P = 0.03). Compared with non-SD patients, the total physical health of SD patients was significantly worse (P = 0.04), however, the mental health was not significantly worse (P = 0.77); the depressive symptoms did not expressed a significant difference between the SD and non-SD groups (QIDS-SR P = 0.15, BDI-II P = 0.06). Total physical health scores in the young SD group did not show significant better than elderly SD group (P = 0.24), however, total mental health scores showed significantly worse (P = 0.04), depressive symptoms scores were significantly higher (QIDS-SR P = 0.03, BDI-II P = 0.04). Conclusion The postoperative AAD SD prevalence of elderly is higher than that of young, and the total physical health of SD patients is poorer than those without SD patients. The young SD patients did not show a significant higher physical health scores than the elderly SD patients, instead, the young SD patients were more psychologically affected than the elderly SD patients, whose mental health was worse, and depression symptoms were more obvious, suggesting that the factors affecting the QOL of postoperative SD patients are related to physical factors, but the young postoperative SD patients mainly affected by psychological factors.

Assisting People With Their Living, Not Their Dying: Health Professionals’ Perspectives of Palliative Care and Opioids in ILD

2021 ◽  
pp. 104990912110186
Author(s):  
Lauren Russo ◽  
Karen Willis ◽  
Natasha Smallwood
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Palliative Care ◽  
Health Care System ◽  
Therapeutic Relationships ◽  
Specialist Palliative Care ◽  
Cross Sectional ◽  
Symptom Palliation ◽  
Care System

Objectives: Interstitial lung disease (ILD) is a debilitating and life-limiting condition, requiring multi-disciplinary care. While guidelines recommend early specialist palliative care referral to improve symptoms and quality of life, few patients access such care towards the end-of-life. This study aimed to explore clinicians’ perspectives regarding specialist palliative care and opioids to understand barriers to optimal care and guide clinical practice improvement initiatives. Methods: A cross-sectional, exploratory, qualitative study was undertaken with Australian respiratory clinicians caring for people with ILD (n = 17). In-depth, semi-structured interviews were audio-recorded, transcribed verbatim and coded. Thematic analysis was undertaken to extrapolate recurring ideas from the data. Results: Four themes were identified: 1) understanding how to improve patient care and support, 2) the need to dispel stigmatized beliefs and misconceptions, 3) the importance of trusted relationships and good communication and 4) the challenges of navigating the health-care system. Participants discussed the need to implement early specialist palliative care and symptom palliation to alleviate symptoms, provide emotional support and augment quality of life. Participants described challenges accessing palliative care and opioids due to stigmatized beliefs amongst patients and clinicians and difficulties navigating the health-care system. Trusted therapeutic relationships with patients and strong inter-disciplinary partnerships with collaborative education and communication were perceived to improve patients’ access to symptom palliation. Conclusion: Specialist palliative care and opioids were believed to improve patients’ quality of life, however, many barriers can make accessing such care challenging. To address these issues, multi-disciplinary collaboration, high-quality communication and trusted therapeutic relationships are crucial throughout the ILD illness journey.

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