scholarly journals Quality of life as measured by the short-form 36 (SF-36) questionnaire in patients with early systemic sclerosis and undifferentiated connective tissue disease

2013 ◽  
Vol 11 (1) ◽  
pp. 23 ◽  
Author(s):  
Michele Iudici ◽  
Giovanna Cuomo ◽  
Serena Vettori ◽  
Manuela Avellino ◽  
Gabriele Valentini
Keyword(s):  
Quality Of Life ◽  
Systemic Sclerosis ◽  
Connective Tissue ◽  
Connective Tissue Disease ◽  
Short Form ◽  
Undifferentiated Connective Tissue Disease ◽  
Short Form 36 ◽  
Sf 36 ◽  
Early Systemic Sclerosis

scholarly journals Avaliação da qualidade de vida e da perda urinária de mulheres com bexiga hiperativa tratadas com eletroestimulação transvaginal ou do nervo tibial

2011 ◽  
Vol 18 (2) ◽  
pp. 145-150 ◽  
Author(s):  
Maíra de Menezes Franco ◽  
Flaviane de Oliveira Souza ◽  
Elaine Cristine Lemes Mateus de Vasconcelos ◽  
Maurício Mesquita Sabino de Freitas ◽  
Cristine Homsi Jorge Ferreira
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Medical Outcomes ◽  
Short Form 36 ◽  
Life Instrument ◽  
Sf 36 ◽  
Outcomes Study

Trata-se de um ensaio clínico prospectivo comparativo que objetivou comparar os efeitos do tratamento com eletroestimulação transvaginal (ET) e do nervo tibial (ENT) sobre a qualidade de vida (QV) e queixas de perda urinária em mulheres com bexiga hiperativa. Participaram 42 pacientes com bexiga hiperativa ou incontinência urinária (IU) mista e foram divididas para tratamento com ET ou ENT. A QV foi avaliada pelo questionário de QV genérico, o Medical Outcomes Study Short Form 36 (SF-36) e um questionário específico para IU, o Incontinence Quality of Life Instrument (I-QOL). Os relatos de perdas urinárias e incômodos ocasionados foram avaliados, respectivamente, por meio do diário miccional de 24 horas e Escala Visual Analógica (EVA). O tratamento foi realizado uma vez por semana, totalizando doze semanas. O grupo da ENT teve melhora significativa em três domínios do I-QOL, na EVA, que avaliou o grau de incômodo causado pela IU e em quatro aspectos do diário miccional. No grupo de ET houve melhora significativa de dois domínios do SF-36, três domínios do I-QOL, na EVA e em quatro aspectos do diário. Houve melhora da QV em ambos os grupos, assim como uma diminuição das queixas de perda urinária, entretanto, o grupo que recebeu ET obteve melhora nos escores em dois domínios do questionário de QV genérico após o tratamento, que teve limitação por aspectos físicos e limitação por aspectos emocionais. O que não ocorreu com o grupo de ENT.

Quality of Life in Patients with Systemic Sclerosis Compared to the General Population and Patients with Other Chronic Conditions

2009 ◽  
Vol 36 (4) ◽  
pp. 768-772 ◽  
Author(s):  
MARIE HUDSON ◽  
BRETT D. THOMBS ◽  
RUSSELL STEELE ◽  
PANTELIS PANOPALIS ◽  
EVAN NEWTON ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systemic Sclerosis ◽  
General Population ◽  
Chronic Diseases ◽  
Chronic Conditions ◽  
Short Form ◽  
Mental Component Summary Score ◽  
Population Norms ◽  
Sf 36

Objective.Systemic sclerosis (SSc) affects multiple physical, psychological, and social domains and is associated with impaired health-related quality of life (HRQOL).We compared the HRQOL of SSc patients with individuals in the general population and patients with other common chronic diseases.Methods.HRQOL of SSc patients in the Canadian Scleroderma Research Group registry was measured using version 2 of the Medical Outcomes Trust Short Form-36 (SF-36). Results were compared to US general population norms and scores reported for patients with other common chronic diseases, namely heart disease, lung disease, hypertension, diabetes, and depression.Results.SF-36 scores were available for 504 SSc patients (86% women, mean age 56 yrs, mean disease duration since onset of first non-Raynaud’s manifestation of SSc 11 yrs). The greatest impairment in SF-36 subscale scores appeared to be in the physical functioning, general health, and role physical domains. SF-36 subscale and summary scores in SSc were significantly worse compared to US general population norms for women of similar ages, except for mental health and mental component summary score, which were not significantly different, and were generally comparable to or worse than the scores of patients with other common chronic conditions.Conclusion.HRQOL of patients with SSc is significantly impaired compared to that of the general population and is comparable to or worse than that of patients with other common chronic conditions.

Validity of the PROMIS-29 in a large Australian cohort of patients with systemic sclerosis

2017 ◽  
Vol 2 (3) ◽  
pp. 188-195 ◽  
Author(s):  
Kathleen Morrisroe ◽  
Wendy Stevens ◽  
Molla Huq ◽  
Joanne Sahhar ◽  
Gene-Siew Ngian ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systemic Sclerosis ◽  
Construct Validity ◽  
Short Form ◽  
Good Alternative ◽  
Measurement Information ◽  
Internal Reliability ◽  
Sf 36 ◽  
Patient Reported

Background We aimed to evaluate the construct validity of the Patient-Reported Outcomes Measurement Information System 29 (PROMIS-29) in Australian systemic sclerosis (SSc) patients. Methods SSc patients, identified through the Australian Scleroderma Cohort Study database, completed two quality-of-life instruments concurrently, the PROMIS-29 and the Medical Outcomes Study 36-Item Short Form Health Survey (SF-36). The construct validity of the PROMIS-29 was assessed by the correlations between the PROMIS-29 and the SF-36 and Health Assessment Questionnaire Disability Index (HAQ-DI). Cronbach's alpha was used to test the internal reliability of all instruments in Australian SSc patients and non-parametric correlation, including Spearman's correlation, was used to test the construct validity of PROMIS-29 against the SF-36 and HAQ-DI. Results A total of 477 completed questionnaires were returned, equating to a response rate of 59.6%. The mean (±SD) age of respondents at the time of the survey was 64.1 (±11.1) years. They were predominantly female (87.4%), with limited disease subtype (lcSSc) (77.8%) and long disease duration from onset of first non-Raynaud's phenomenon symptom at the time of survey (10.9 ± 11.1 years). For the correlation analysis between the PROMIS-29 and the legacy instruments, all Spearman correlation coefficients were in the logical direction and highly significant suggesting that the PROMIS-29 is a good alternative to other validated measures of disease burden. Conclusions Our study indicates that the PROMIS-29 questionnaire is a valid instrument for measuring health-related quality of life in Australian females with lcSSc of long duration.

scholarly journals Pengaruh Formula Jamu Hiperglikemia Pada Quality Of Life Pasien di Klinik Saintifikasi Jamu Tawangmangu

2018 ◽  
Vol 1 (3) ◽  
pp. 177-181
Author(s):  
Agus Triyono ◽  
Widhi Astana ◽  
Fajar Novianto
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Herbal Medicine ◽  
Short Form ◽  
Measurement Tool ◽  
Research Subjects ◽  
Short Form 36 ◽  
Control Blood Glucose ◽  
Sf 36

Diabetes mellitus (DM) merupakan penyakit degenerative dengan murbiditas dan mortalitas yang terus meningkat. Herbal medicine telah banyak digunakan untuk mengontrol kadar glukosa darah (KGD) pasien DM. Penelitian ini bertujuan untuk menganalisis efek penggunaan ramuan jamu hiperglikemia terhadap kualitas hidup atau quality of life (QoL) pasien DM. Penelitian ini merupakan studi kohort dengan menggunakan kuesioner Short Form-36 (SF-36) sebagai alat pengukuran kualitas hidup 40 subjek penelitian dengan KGD sewaktu 200 – 300 mg/dl. Pasien diberi ramuan jamu temulawak ,kunyit, dan meniran tiga kali sehari selama 56 hari. Kualitas hidup subjek diukur pada hari ke 0, 28, dan 56. Pengaruh penggunaan jamu terhadap QoL dianalisis menggunakan uji t berpasangan.Sebanyak 58% dari subjek penelitian adalah perempuan. Hasil penelitian membuktikan terdapat perbedaan yang signifikan antara QoL sebelum dan setelah pemberian jamu selama 56 hari, (p=<0,05). Ramuan jamu batang brotowali, herba sambiloto, rimpang temulawak, rimpang kunyit, dan herba meniran dapat meningkatkan QoL pasien DM.   Diabetes mellitus (DM) is a degenerative disease with increased morbidity and mortality. Herbal medicine has been widely used to control blood glucose levels in DM patients. This study aimed to analyze the effect of consumehyperglycemic jamu formula on quality of life (QoL) in DM patients. This study was a cohort study using a Short Form-36 (SF-36) questionnaire as a quality of life measurement tool of 40 subjects with blood gluces levels at 200 - 300 mg / dl. The patient received a jamu fomula of ginger, turmeric, and meniran three times a day for 56 days. The quality of life of the subjects was measured on days 0, 28 and 56. The effect of the admintration of jamu on QoL was analyzed using paired t test. A total of 58% of the research subjects were women.  The results showed that there were significant differences of QoL before and after administration of jamu for 56 days (p = <0.05). Jamu formlua of brotowali stems, bitter herbs, curcuma rhizomes, turmeric rhizomes, and meniran herbs can increase the QoL of DM patients

scholarly journals Assessment of quality of life in patients with diabetes mellitus

2013 ◽  
Author(s):  
Αθανασία Παπαθανασίου
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Short Form ◽  
Medical Outcomes ◽  
Short Form 36 ◽  
Sf 36 ◽  
Patients With Diabetes

Σκοπός της έρευναςΗ εκτίμηση της ποιότητας ζωής των ασθενών με ΣΔ στην ΠρωτοβάθμιαΦροντίδα Υγείας στην Ελλάδα και η συγκριτική της μελέτη με την ποιότητα ζωήςτων ασθενών ενός εξειδικευμένου διαβητολογικού κέντρου.Πληθυσμός μελέτηςΗ μελέτη εφαρμόσθηκε στους ασθενείς του Κέντρο Υγείας Στυλίδας στονομό Φθιώτιδας και στους ασθενείς του διαβητολογικού κέντρου στο ΤζάνειοΝοσοκομείο του Πειραιά.Στη μελέτη περιλαμβάνονται ασθενείς με σακχαρώδη διαβήτη τύπου 2που παρακολοθούνται τακτικά στα παραπάνω κέντρα. Οι 818 πρώτοι ασθενείςπου πληρούσαν τα παραπάνω κριτήρια και προσήλθαν στα παραπάνω κέντρα από τον Δεκέμβριο του 2006 αποτελούν τον πληθυσμό της μελέτης.ΜέθοδοιΜετά από μία συστηματική αναζήτηση στη διεθνή και ελληνικήβιβλιογραφία για τον εντοπισμό εργαλείων που εκτιμούν τη σχετιζόμενη με τοσακχαρώδη διαβήτη ποιότητα ζωής στην Ελλάδα και τη διαπίστωση της έλλειψηςμιας ειδικής κλίμακας στη χώρα μας, η κλίμακα PAID μεταφράστηκε καισταθμίστηκε σύμφωνα με τις αρχές του Medical Outcomes Trust Bulletin 1997.Στη μελέτη χρησιμοποιήθηκαν οι εξής κλίμακες: Short Form- 36 version 2(SF-36 v2), Problem Areas In Diabetes (PAID) Scale και Diabetes TreatmentSatisfaction Questionnaire status version(DTSQ-s).Για την καταχώρηση και ανάλυση των δεδομένων δημιουργήθηκε έναηλεκτρονικό σύστημα καταχώρησης ασθενών χρησιμοποιώντας FileMaker Pro από τον Δεκέμβριο του 2006 αποτελούν τον πληθυσμό της μελέτης.ΜέθοδοιΜετά από μία συστηματική αναζήτηση στη διεθνή και ελληνικήβιβλιογραφία για τον εντοπισμό εργαλείων που εκτιμούν τη σχετιζόμενη με τοσακχαρώδη διαβήτη ποιότητα ζωής στην Ελλάδα και τη διαπίστωση της έλλειψηςμιας ειδικής κλίμακας στη χώρα μας, η κλίμακα PAID μεταφράστηκε καισταθμίστηκε σύμφωνα με τις αρχές του Medical Outcomes Trust Bulletin 1997.Στη μελέτη χρησιμοποιήθηκαν οι εξής κλίμακες: Short Form- 36 version 2(SF-36 v2), Problem Areas In Diabetes (PAID) Scale και Diabetes TreatmentSatisfaction Questionnaire status version(DTSQ-s).Για την καταχώρηση και ανάλυση των δεδομένων δημιουργήθηκε έναηλεκτρονικό σύστημα καταχώρησης ασθενών χρησιμοποιώντας FileMaker Pro κέντρου υγείας Στυλίδας και 39.67 (±16.29) για τους ασθενείς του ΤζάνειουΝοσοκομείου του Πειραιά. Σχετικά με τα αποτελέσματα της κλίμακας DTSQ-s, τοτελικό αποτέλεσμα ήταν 26.81 (±8.2) για τους ασθενείς του κέντρου υγείαςΣτυλίδας και 22.13 (±8.9) για τους ασθενείς του Τζάνειου Νοσοκομείου τουΠειραιά (p< 0.0001).ΣυμπεράσματαΈνα σημαντικό αποτέλεσμα της μελέτης είναι η μετάφραση και στάθμιση στηνελληνική γλώσσα της κλίμακας Problem Areas In Diabetes (PAID) Scale, ενόςσημαντικού και πολυχρησιμοποιημένου στις διεθνείς μελέτες εργαλείου, πουαξιολογεί τις συναισθηματικές και διαπροσωπικές δυσκολίες των ασθενών μεΣΔ, που σχετίζονται με τη δίαιτα ή τη σχέση του με το γιατρό. Από τον πληθυσμό της μελέτης προέκυψε ότι οι ασθενείς πουπαρακολουθούνται στο διαβητολογικό τακτικό ιατρείο του Τζάνειου ΝοσοκομείουΠειραιά (αστικός πληθυσμός) είχαν συστηματικά χαμηλότερα αποτελέσματα σε όλες τις υποκατηγορίες της κλίμακας Short Form-36 version 2 (MCS και PCSscores) καθώς και στις κλίμακες PAID και DTSQ σε σχέση με τον πληθυσμό τουΚέντρου Υγείας Στυλίδας (αγροτικός πληθυσμός).Τα ευρήματα αυτής της μελέτης θα μπορούσαν να αξιοποιηθούν στηνπρακτική διαχείριση των ασθενών με σακχαρώδη διαβήτη, αλλά και στοναποτελεσματικό σχεδιασμό των προσφερόμενων υπηρεσιών υγείας.

Qualidade de vida de pacientes sobreviventes a sepse, sepse grave e choque séptico avaliada por meio de duas escalas

2016 ◽  
Vol 15 (4) ◽  
Author(s):  
Jeanette Janaina Jaber Lucato
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Short Form 36 ◽  
Sf 36

Introdução: As disfunções causadas pela sepse são responsáveis pela alta mortalidade e por longos períodos de hospitalização. A análise da qualidade de vida vem sendo usada como medida relevante em pacientes sobreviventes à sepse, sepse grave e choque séptico. Objetivo: Verificar se existe na literatura um perfil ou padrão na Qualidade de Vida (QV) de pacientes sobreviventes a essa condição, delineado pela aplicação das escalas Short Form-36 (SF-36) e European Quality of Life-5 Dimensions (EQ-5D). Método: Revisão integrativa da literatura para avaliar a QV de pacientes sobreviventes a essa condição, do período 2003 até 2013. Resultados: A maioria dos estudos encontrou diminuição nas pontuações ou surgimentos de maiores problemas após a alta hospitalar, comparados com os pacientes que não desenvolveram sepse ou com a população em geral, e aumento da mortalidade ao longo do tempo. Conclusão: Não há um consenso entre as escalas aplicadas. Mais estudos que apliquem algum tipo de escala e/ou questionário de mensuração nesses pacientes são necessários.Palavras-chave: qualidade de vida, sepse, escala de avaliação.

scholarly journals AB0869-HPR HOW TO IMPROVE THE QUALITY-OF-LIFE IN PATIENTS WITH OSTEOPOROSIS?

2021 ◽  
Vol 80 (Suppl 1) ◽  
pp. 1458.2-1458
Author(s):  
A. Lammert ◽  
S. Lezhenina ◽  
N. Shuvalova ◽  
N. Andreeva ◽  
E. Guryanova
Keyword(s):  
Quality Of Life ◽  
Medical Care ◽  
Short Form ◽  
Well Being ◽  
Rehabilitation Program ◽  
Psychological State ◽  
Short Form 36 ◽  
Quality Of Life Indicators ◽  
Sf 36

Background:This paper is an assessment of quality-of-life for patients living with osteoporosis. It employs special questionnaires and scales to allow for more detailed observation of the patient both during initial treatment and in dynamics. This allows us to establish the effectiveness of the therapy, to assess the need to correct the treatment and rehabilitation program, and to compare the effectiveness of various treatment methods and determine disease prognosis.Objectives:to assess quality-of-life in patients with osteoporosis for further development of treatment and rehabilitation programs.Methods:To assess the quality-of-life in patients with osteoporosis, HRQOL and SF-36 scale were used. The study was conducted from January to December 2019, at the Republican Clinical Hospital of the Chuvash Republic. The study involved 70 patients (n = 70) with a diagnosis of osteoporosis with a pathological fracture. Of the 70 patients included in the study, 35 women aged 67 ± 1.2 years and 35 men aged 60 ± 1.2 years. The results were statistically processed using MS Office Excel programs.Results:According to the analysis carried out by the HRQOL method, more than half of the patients (52.13%) experienced daily back pain, which worsens their mood and well-being. When assessing the degree of pain, almost half of the patients (48.73%) rated their pain by VAS as moderate. Moreover, most of the respondents experienced a “significant” (46.51%) or “moderate” (34.29%) decrease in social activity due to pain syndrome associated with osteoporosis. In connection with this, 44.51% rated their satisfaction with their lives as “average degree of satisfaction”.When analyzing the quality-of-life indicators according to the SF-36 scales, we determined that the mental component of health predominates for women (The Short Form-36: MH=68,6±3,45 (Men: MH=48,5±2,85)). In men, high quantitative values of the scales “physical” and “role physical functioning” (The Short Form-36: PF=62,5±3,33; RP=58,4±3,81) indicate a more pronounced nature of changes in somatic status, which has a significant impact on the quality-of-life. The intensity of pain was perceived to be higher by men (The Short Form-36: BP=75,6±4,06) than by women (The Short Form-36: BP=35,7±1,86). This confirms that osteoporosis and its complications negatively affect the human psyche and can significantly worsen the quality-of-life.Conclusion:Analysis of quality-of-life indicators using the SF-36, HRQOL method contributes to a more correct choice of effective strategy for specialized medical care and rehabilitation for patients with osteoporosis. This choice should be developed individually, taking into account the age, gender characteristics, the severity of structural and functional disorders and the psychological state of the patient. It must also take into account the presence and severity of concomitant diseases, which will require additional research and discussion at different levels of the organization of medical care.Disclosure of Interests:None declared

scholarly journals Quality of life assessment in behçet’s disease: an observational case control single center study

2019 ◽  
Vol 10 (4) ◽  
pp. 2607-2611
Author(s):  
Faiq I. Gorial ◽  
Mais Ajeel Jabbar
Keyword(s):  
Quality Of Life ◽  
Behçet’S Disease ◽  
Behcet’S Disease ◽  
Behçet's Disease ◽  
Short Form ◽  
Healthy Controls ◽  
Behcet's Disease ◽  
Short Form 36 ◽  
Sf 36

Behçet’s disease (BD) is a multisystemic inflammatory disorder characterized by recurrent exacerbations. Limited studies have shown it has a negative impact on patients quality of life(QoL). This study aimed to evaluate Quality of Life in Patients with Behçet’s disease compared with healthy controls. A case-control study involved 71 patients with BD compared with 71 healthy controls matched in age and sex. Health-related quality-of-life was evaluated using the Short Form-36 (SF-36). All the components of Short Form-36 (SF-36), it's summary scores, and Total Short Form-36 (Total SF-36) score was significantly lower (p-value <0.001 ) in patients compared to controls. Each organ involvement studied may affect independently specific SF-36 subscores. Central nervous system involvement in BD  had a strong impact since it affects most of the SF-36 subscores. In conclusion: Health-related Quality of life was significantly impaired in Iraqi patients with Behçet’s disease compared to healthy controls. Each organ involvement studied may affect independently specific SF-36 subscores.

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