scholarly journals Ethical issues and practical barriers in internet-based suicide prevention research: a review and investigator survey

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Eleanor Bailey ◽  
Charlotte Mühlmann ◽  
Simon Rice ◽  
Maja Nedeljkovic ◽  
Mario Alvarez-Jimenez ◽  
...  
Crisis ◽  
2017 ◽  
Vol 38 (2) ◽  
pp. 107-114 ◽  
Author(s):  
Melanie A. Hom ◽  
Matthew C. Podlogar ◽  
Ian H. Stanley ◽  
Thomas E. Joiner

Abstract. Background: Research with human subjects represents a critical avenue for suicide prevention efforts; however, such research is not without its ethical and practical challenges. Specifically, given the nature of research with individuals at elevated risk for suicide (e.g., increased concerns regarding participant safety, adverse events, liability, difficulties often arise during the institutional review board (IRB) evaluation and approval process. Aims: This paper aims to discuss IRB-related issues associated with suicide prevention research, including researcher and IRB panel member responsibilities, suicide risk assessment and management ethics and procedures, informed consent considerations, preparation of study protocols, and education and training. Points to consider and components to potentially include in an IRB application for suicide-related research are additionally provided. Method: Literature relevant to ethics in suicide research and suicide risk assessment and management was reviewed and synthesized. Results: Suicide research can be conducted in accordance with ethical principles while also furthering the science of suicide prevention. Conclusion: Despite the challenging nature of suicide prevention research, empirically informed solutions exist to address difficulties that may emerge in interfacing with IRBs. There remain areas for improvement in the IRB approval process that warrant further investigation and work.


2007 ◽  
Vol 55 (3) ◽  
pp. 237-253 ◽  
Author(s):  
Karolina E. Krysinska ◽  
Diego De Leo

Development of information technology has created new opportunities and challenges in suicide prevention, research, and clinical practice. This article presents an overview of the wide range of telecommunication-based suicide prevention approaches. Interventions using the Internet, telephone, and videoconferencing are discussed, including crisis intervention, referral, and support, suicide risk assessment, psychotherapy for individuals at risk, and online-based suicide prevention training and education. Research regarding effectiveness of telecommunication-based suicide prevention in various demographic and clinical populations is reviewed, as well as concerns regarding this type of intervention. Future areas of research and development in the use of telecommunication media in prevention of suicide are discussed.


2021 ◽  
pp. injuryprev-2021-044322
Author(s):  
Avital Rachelle Wulz ◽  
Royal Law ◽  
Jing Wang ◽  
Amy Funk Wolkin

ObjectiveThe purpose of this research is to identify how data science is applied in suicide prevention literature, describe the current landscape of this literature and highlight areas where data science may be useful for future injury prevention research.DesignWe conducted a literature review of injury prevention and data science in April 2020 and January 2021 in three databases.MethodsFor the included 99 articles, we extracted the following: (1) author(s) and year; (2) title; (3) study approach (4) reason for applying data science method; (5) data science method type; (6) study description; (7) data source and (8) focus on a disproportionately affected population.ResultsResults showed the literature on data science and suicide more than doubled from 2019 to 2020, with articles with individual-level approaches more prevalent than population-level approaches. Most population-level articles applied data science methods to describe (n=10) outcomes, while most individual-level articles identified risk factors (n=27). Machine learning was the most common data science method applied in the studies (n=48). A wide array of data sources was used for suicide research, with most articles (n=45) using social media and web-based behaviour data. Eleven studies demonstrated the value of applying data science to suicide prevention literature for disproportionately affected groups.ConclusionData science techniques proved to be effective tools in describing suicidal thoughts or behaviour, identifying individual risk factors and predicting outcomes. Future research should focus on identifying how data science can be applied in other injury-related topics.


2022 ◽  
pp. 1-17
Author(s):  
Georgia Dempster ◽  
Ingrid Ozols ◽  
Karolina Krysinska ◽  
Lennart Reifels ◽  
Marisa Schlichthorst ◽  
...  

2020 ◽  
Vol 43 (5) ◽  
pp. 538-547
Author(s):  
Laurel A. Gaeddert ◽  
Alexandra L. Schneider ◽  
Christin N. Miller ◽  
Lindsey L. Monteith ◽  
Lisa A. Brenner ◽  
...  

Author(s):  
Sarah Wayland ◽  
Kathy McKay ◽  
Myfanwy Maple

People with a lived experience of suicide are commonly included within suicide prevention research. This includes participation in conferences, policy development, research and other activities. Yet little is known about the impact on the person in the long term of regularly sharing one’s experience to different audiences and, in some cases, to a schedule not of your choosing. This qualitative study asked twenty people to share their reflections of being lived experience representatives within suicide prevention. Participants varied in the length of time they had been sharing their stories, and how they shared with different audiences. These narratives were thematically analysed within a reflective framework, including field notes. Four broad themes were noted that highlighted participants’ recommendations as to how the lived experience speaker training could grow alongside suicide prevention activities to facilitate safe activities that include a shared understanding of the expected outcome from participation. The environment for people with lived experience of suicide to tell their stories already exists, meaning that the suicide prevention sector needs to move quickly to ensure people understand the variety of spaces where lived experience needs to be incorporated, evaluated and better supported. When lived experience is a valued inclusion in the creation of effective and appropriate suicide prevention research and interventions, those who share their experience must be valued and supported in a way that reflects this. This study recommends strategies to practically and emotionally support speakers, including ways to ensure debriefing and support, which can enhance the longevity of the speakers in the suicide prevention space by valuing the practical and emotional labour required to be suicide prevention representatives, with an outcome recommendation for best practice guidelines for those who engage people with lived experience in suicide prevention activities.


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