scholarly journals Significance of quality of care for quality of life in persons with dementia at risk of nursing home admission: a cross-sectional study

BMC Nursing ◽  
2017 ◽  
Vol 16 (1) ◽  
Author(s):  
Christina Bökberg ◽  
Gerd Ahlström ◽  
Staffan Karlsson
PLoS ONE ◽  
2019 ◽  
Vol 14 (12) ◽  
pp. e0223704 ◽  
Author(s):  
Marinda Henskens ◽  
Ilse M. Nauta ◽  
Susan Vrijkotte ◽  
Katja T. Drost ◽  
Maarten V. Milders ◽  
...  

2020 ◽  
Vol 33 (7) ◽  
pp. 901-913
Author(s):  
Rim Ben Abdelaziz ◽  
Amel Ben Chehida ◽  
Henda Kachouri ◽  
Sana Ben Messaoud ◽  
Maherzia Ferchichi ◽  
...  

AbstractObjectivesWe investigated the quality of life (QOL) in parents of children with late treated phenylketonuria (PKU) and its associated factors.MethodsWe conducted a cross sectional study in the reference center of inherited metabolic disease in Tunisia. We used the Tunisian version of the 36-item short-form health survey questionnaire (SF-36). We compared variables in the groups with and without impaired QOL and the SF-36 scores between subgroups of parents and children and between our sample and the Tunisian general population based on published data. We looked for associations between SF-36 scores and quantitative variables. Linear regression and logistic binary regression were used for multivariate analysis.ResultsSixty-five parents from 42 families participated. QOL was impaired in 61% of them. The mean SF-36 score was 55.3 ± 25.07. The physical component sub-score was higher than that reported in the Tunisian general population (63.66 ± 27.77 vs. 50.11 ± 8.53; p<0.001). The mental component sub-score was comparable to that reported in the Tunisian general population (46.99 ± 25.94 vs. 47.96 ± 9.82; p=0.830). Gender (mothers) (p=0.008), low monthly income (p = 0.027), low education (p=0.011), and autism in PKU children (p = 0.001) were associated with impaired QOL.ConclusionsWe identified at risk parents for altered quality of life among parents of PKU children. Our findings were used to develop a psychological and social support strategy for at-risk parents and to promote the implementation of newborn screening of this treatable disease in our low-income country.


2016 ◽  
Vol 16 (1) ◽  
Author(s):  
Christine Olsen ◽  
Ingeborg Pedersen ◽  
Astrid Bergland ◽  
Marie-José Enders-Slegers ◽  
Nina Jøranson ◽  
...  

2017 ◽  
Vol 17 (1) ◽  
Author(s):  
Bram de Boer ◽  
Jan P.H. Hamers ◽  
Sandra M.G. Zwakhalen ◽  
Frans E.S. Tan ◽  
Hilde Verbeek

2022 ◽  
Vol 3 (1) ◽  
pp. 01-08
Author(s):  
Putu Astiswari Permata Kurniawan ◽  
Erikavitri Yulianti ◽  
Novira Widajanti

The consequence of COVID-19 pandemic conditions in vulnerable groups such as Patients with Dementia (PWD) and their caregivers are required to be urgently addressed. This study was conducted to collect data on PWD and caregiver characteristics, also concluding the profile of anxiety during the COVID-19 pandemic in Alzi Surabaya Community. This research is an observational descriptive cross-sectional study using the Beck Anxiety Inventory and Rating Anxiety in Dementia questionnaire to apprehend the profile of anxiety in PWD and caregivers in the Alzi Surabaya Community during the COVID-19 pandemic. PWD in this community experience significant anxiety (82.35%) with symptoms such as sleep disturbance (100%) worry over trifles (92.85%), complaints of headache and body aches or pains (92.85%) also sweating, flushes or chills, tingling or numbness of extremities (42.85%) and insignificant anxiety (17.65%) with symptoms such as fatigue and tiredness (100%), worry about physical health (66.57%), irritability (66.57%), heart racing or thumping (33.33%). Caregivers of PWD in this community all experience low anxiety with symptoms such as fear of something worst happening (80%), unable to relax (65%), indigestion and dizziness or lightheadedness (55%). Intervention, in order to reduce anxiety in PWD and caregiver during and post-pandemic, is substantial as establishing a good quality of life is important for PWD to increase fulfilment in life and also important for caregivers in order to maintain quality of care.


Author(s):  
C.W. Tew ◽  
S.P. Ong ◽  
P.L.K. Yap ◽  
A.Y.C. Lim ◽  
N. Luo ◽  
...  

Background: Literature emphasises the benefits of person-centred approaches in nursing homes. Objectives: To describe the quality of life, well/ill being and person-centred care of residents, and explore relationship between person-centred care and well/ill being in 7 nursing homes. Design: A cross-sectional study. Setting: Seven nursing homes of different built period and design typologies in Singapore. Participants: 696 nursing home residents. Measurements: Measures used were EQ-5D for quality of life, Dementia Care Mapping for well/ill being, Resident Satisfaction Score and Person-Directed Dementia Care Assessment Tool as measure of person-centred care. Results: Mean EQ-5D-5L index was 0.096 (SD=0.45). Most residents had at least moderate problems in mobility (66.5%), self-care (63.6%) and usual activities (63.0%). Mean well/ill being score was 1.69 (SD=0.98). A state of neutrality (WIB=+1) (48%) was most observed, followed by well-being (WIB>+1) (29%) and ill-being (WIB<+1) (6%). High positive potential behaviors were recorded 37% of the time, while low/no positive potential behaviors amount to 39%. The overall resident satisfaction score was 3.43/5 with borderline satisfaction with environment, food and activities, and low satisfaction with lifestyle and quality of interaction. The overall level of person-centred care was modest 2.3/4. Activities scored highest while the weakest domain was Environment. The overall level of person-centred care was positively correlated with resident well/ill being score (F=4.43, p<0.001). Conclusions: A higher level of person-centred care is associated with better resident well-being. Beyond their physical and custodial needs, the residents’ psychosocial needs can be better fulfilled. The areas of person-centred care amenable to improvement relate to environment, staff knowledge and training. These findings can inform resident care planning, policy development, and future research to support nursing homes in their endeavour to move towards more holistic and person-centric care.


Gerodontology ◽  
2021 ◽  
Author(s):  
Liza J. M. Rijt ◽  
Alexandra R. Feast ◽  
Victoria Vickerstaff ◽  
Elizabeth L. Sampson ◽  
Frank Lobbezoo

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