scholarly journals Evaluation of the parents’ anxiety levels before and after the diagnosis of their child with a rare genetic disease: the necessity of psychological support

2021 ◽  
Vol 16 (1) ◽  
Author(s):  
Ayse B. Kolemen ◽  
Enes Akyuz ◽  
Ali Toprak ◽  
Erdem Deveci ◽  
Gozde Yesil
Keyword(s):  
Trait Anxiety ◽  
Genetic Disease ◽  
Disease Risk ◽  
Genetic Diseases ◽  
Diagnostic Procedures ◽  
The State ◽  
Psychological Support ◽  
Rare Genetic Disease ◽  
Genetic Test Results ◽  
Anxiety Levels

Abstract Background The diagnosis of the rare genetic diseases has great importance in treating multisystemic conditions, preventing potential complications, and estimating disease risk for family members. The duration of obtaining genetic test results is varies. The demand to learn the diagnosis of a possible untreatable illness involves a struggle between uncertainty and a lifetime chronic disease. The current uncertainty of their child's condition and the long wait for a diagnosis may increase the parents' anxiety level and cause difficulties in the continuation of diagnostic procedures in some families. This study aimed to investigate the prediagnosis and postdiagnosis anxiety levels of parents who have a child with a rare genetic disease. Method The parents in this study, mothers or fathers, admitted their children to the Bezmialem Vakıf University Medical Genetics Clinic due to a suspected rare genetic disease (n = 40). Researchers created “The Sociodemographic Questionnaire” and used it to analyze the parents' sociodemographic status. In addition, they used the State-Trait Anxiety Inventory (STAI) to determine the anxiety levels of the parents. Results The state anxiety levels of parents decreased significantly after learning the diagnosis. However, there was no statistically significant decrease observed in trait anxiety levels. Conclusion Data from this study revealed that informing parents about their child's disease and properly explaining to them the expected difficulties might help to reduce their anxiety levels. Psychological support for parents is necessary to reduce their long-term stress, thus increasing the patient's compliance with treatment.

scholarly journals Evaluation Of The Parents’ Anxiety Levels Before And After The Diagnosis Of Their Child With A Rare Genetic Disease: The Necessity Of Psychological Support

2021 ◽  
Author(s):  
Ayse Betul Kolemen ◽  
Enes Akyuz ◽  
Ali Toprak ◽  
Erdem Deveci ◽  
Gozde Yesil
Keyword(s):  
Genetic Disease ◽  
Disease Risk ◽  
Genetic Disorder ◽  
Diagnostic Procedures ◽  
Psychological Support ◽  
Rare Genetic Disease ◽  
Long Duration ◽  
Genetic Test Results ◽  
Before And After ◽  
Anxiety Levels

Abstract Background The diagnosis of the rare genetic disease has great importance in treating multi-systemic conditions, preventing potential complications, and estimating disease risk for family members. The duration of getting genetic test results is variable. The demand of learning the diagnosis of a possible untreatable illness is a double-edged sword between obscurity and a lifetime chronic disease. The current uncertainty of their child's condition and the long duration time of diagnosis may increase the parents' anxiety level and causes difficulties to a continuation of diagnostic procedures in some families. This study aimed to investigate the pre-diagnosis and the post-diagnosis anxiety levels of parents who have a child with a rare genetic disorder. Results The state anxiety levels of parents decreased significantly after learning the diagnosis. However, there was no statistically significant decrease observed in trait anxiety levels. Conclusion Data from this study revealed that informing parents about their child's disease and properly explaining to them expected difficulties might help to reduce their anxiety levels. Psychological support from the hospital should be provided to help them cope with the stress before and after the diagnosis. Increasing the number of samples, interviews, and psychological inventory are recommended for future studies.

scholarly journals Anxiety Levels of Primary Caregivers of Children With Tracheostomy During the COVID-19 Pandemic

2021 ◽  
pp. 000992282110406
Author(s):  
Zeynep Reyhan Onay ◽  
Tugba Ramasli Gursoy ◽  
Tugba Sismanlar Eyuboglu ◽  
Ayse Tana Aslan ◽  
Azime Sebnem Soysal Acar ◽  
...  
Keyword(s):  
Trait Anxiety ◽  
State Anxiety ◽  
Primary Caregivers ◽  
The State ◽  
Control Group ◽  
Healthy Children ◽  
State And Trait Anxiety ◽  
Anxiety Levels ◽  
High Trait Anxiety ◽  
Moment State

We aim to evaluate the anxiety levels of caregivers of children with tracheostomy during the COVID-19 (coronavirus disease 2019) pandemic. Caregivers of 31 children with tracheostomy and 105 healthy children (control group) were included. The State-Trait Anxiety Inventory was administered via teleconference in order to investigate how participants describe how they feel at a particular moment (State) and how they generally feel (Trait). The trait anxiety levels of caregivers of children with tracheostomy were significantly higher ( P = .02). Their state anxiety levels were similar. The state and trait anxiety levels of caregivers of children with tracheostomy correlated ( r = 0.70, P < .001). At the end of the teleconference, caregivers of children with tracheostomy experienced greater anxiety relief than controls ( P < .001). Trait anxiety scores were higher among caregivers of children with tracheostomy, but their state anxiety levels were comparable to those of controls. Caregivers with high trait anxiety also exhibited high state anxiety. Informing caregivers of children with tracheostomy about COVID-19 via teleconference can reduce their anxiety during such stressful times.

High Levels of State or Trait Anxiety and Performance on Selected Verbal WAIS Subtests

1970 ◽  
Vol 27 (2) ◽  
pp. 375-379 ◽  
Author(s):  
Wilma J. Knox ◽  
Ricardo Grippaldi
Keyword(s):  
Trait Anxiety ◽  
State Anxiety ◽  
Digit Span ◽  
The State ◽  
State Trait Anxiety Inventory ◽  
High Anxiety ◽  
Anxiety Group ◽  
Anxiety Levels ◽  
And Performance ◽  
Curvilinear Relationships

Upon entering a VA domiciliary Ss were given the State-Trait Anxiety Inventory (STAI) and WAIS subtests, Arithmetic ( A), Similarities ( S) and Digit Span ( DS). Two analyses of variance were carried out among WAIS weighted scores on the three subtests for three groups of different state or trait anxiety levels (high, medium, and low). Analyses showed significant interactions between WAIS scaled scores and anxiety: p < .05 for state anxiety and p < .001 for trait anxiety. The high-anxiety group in each instance showed the classical expectation of a lower A and DS in comparison to S; performance on DS was highest for each medium anxiety group. The study of curvilinear relationships and interaction effects in anxiety was discussed.

scholarly journals New Diagnostic Approaches for Undiagnosed Rare Genetic Diseases

2020 ◽  
Vol 21 (1) ◽  
pp. 351-372 ◽  
Author(s):  
Taila Hartley ◽  
Gabrielle Lemire ◽  
Kristin D. Kernohan ◽  
Heather E. Howley ◽  
David R. Adams ◽  
...  
Keyword(s):  
Molecular Diagnosis ◽  
Genetic Disease ◽  
New Technologies ◽  
Genetic Diseases ◽  
Well Being ◽  
Accurate Diagnosis ◽  
Diagnostic Odyssey ◽  
Rare Genetic Disease ◽  
Rare Genetic Diseases ◽  
Diagnostic Approaches

Accurate diagnosis is the cornerstone of medicine; it is essential for informed care and promoting patient and family well-being. However, families with a rare genetic disease (RGD) often spend more than five years on a diagnostic odyssey of specialist visits and invasive testing that is lengthy, costly, and often futile, as 50% of patients do not receive a molecular diagnosis. The current diagnostic paradigm is not well designed for RGDs, especially for patients who remain undiagnosed after the initial set of investigations, and thus requires an expansion of approaches in the clinic. Leveraging opportunities to participate in research programs that utilize new technologies to understand RGDs is an important path forward for patients seeking a diagnosis. Given recent advancements in such technologies and international initiatives, the prospect of identifying a molecular diagnosis for all patients with RGDs has never been so attainable, but achieving this goal will require global cooperation at an unprecedented scale.

scholarly journals Surgery information reduces anxiety in the pre-operative period

2004 ◽  
Vol 59 (2) ◽  
pp. 51-56 ◽  
Author(s):  
Leandro Yoshinobu Kiyohara ◽  
Lilian Kakumu Kayano ◽  
Lorena Marçalo Oliveira ◽  
Marina Uemori Yamamoto ◽  
Marco Makoto Inagaki ◽  
...  
Keyword(s):  
Trait Anxiety ◽  
State Anxiety ◽  
Surgical Procedure ◽  
The State ◽  
Anxiety Level ◽  
Lower State ◽  
State Trait Anxiety Inventory ◽  
Patient Anxiety ◽  
Males And Females ◽  
Anxiety Levels

PURPOSE: Patients preparing to undergo surgery should not suffer needless anxiety. This study aimed to evaluate anxiety levels on the day before surgery as related to the information known by the patient regarding the diagnosis, surgical procedure, or anesthesia. METHOD: Patients reported their knowledge of diagnosis, surgery, and anesthesia. The Spielberger State-Trait Anxiety Inventory (STAI) was used to measure patient anxiety levels. RESULTS: One hundred and forty-nine patients were selected, and 82 females and 38 males were interviewed. Twenty-nine patients were excluded due to illiteracy. The state-anxiety levels were alike for males and females (36.10 ± 11.94 vs. 37.61 ± 8.76) (mean ± SD). Trait-anxiety levels were higher for women (42.55 ± 10.39 vs. 38.08 ± 12.25, P = 0.041). Patient education level did not influence the state-anxiety level but was inversely related to the trait-anxiety level. Knowledge of the diagnosis was clear for 91.7% of patients, of the surgery for 75.0%, and of anesthesia for 37.5%. Unfamiliarity with the surgical procedure raised state-anxiety levels (P = 0.021). A lower state-anxiety level was found among patients who did not know the diagnosis but knew about the surgery (P = 0.038). CONCLUSIONS: Increased knowledge of patients regarding the surgery they are about to undergo may reduce their state-anxiety levels.

scholarly journals A DESCRIPTION AND COMPARISON OF THE LEVELS OF ANXIETY AMONG COLLEGE ADMINISTRATORS

2006 ◽  
Vol 34 (6) ◽  
pp. 739-746
Author(s):  
Mehmet Durdu Karsli ◽  
Mustafa Baloğlu
Keyword(s):  
Trait Anxiety ◽  
Private Universities ◽  
The State ◽  
State Trait Anxiety Inventory ◽  
College Administrators ◽  
Significant Difference ◽  
State And Trait Anxiety ◽  
Anxiety Levels ◽  
Turkish State

Administrators, in general, are at greater risk of facing anxiety than are other people, due to their duties and responsibilities. In this study, both state and trait anxiety levels of college administrators were assessed and the administrators were compared based on their anxiety levels. For the purpose of assessing state and trait anxiety levels, the State-Trait Anxiety Inventory (STAI) (Spielberger, Gorsuch, & Lushene, 1970) adapted to Turkish by LeCompte and Oner (1975) was used. The sample of the study included 72 college administrators who were working in Turkish state and private universities in different regions of the country. Results showed significant correlation between the state and trait anxiety levels. No significant difference was found based on gender, age, administrative level, or tenure. However, the direction of the differences was similar to those of the previous studies. Results are discussed and suggestions are given.

Subjective Anxiety Measurements and Cortisol Responses in Adults Who Stutter

1994 ◽  
Vol 37 (4) ◽  
pp. 760-768 ◽  
Author(s):  
Gordon W. Blood ◽  
Ingrid M. Blood ◽  
Stephanie Bennett ◽  
Kathleen C. Simpson ◽  
Elizabeth J. Susman
Keyword(s):  
Trait Anxiety ◽  
Salivary Cortisol ◽  
State Anxiety ◽  
Communication Apprehension ◽  
High Stress ◽  
The State ◽  
Self Report ◽  
Cortisol Responses ◽  
Anxiety Levels ◽  
Cortisol Levels

Anxiety, as measured by self-report inventories and salivary cortisol levels, was examined in 11 males who stutter and 11 males who do not stutter during baseline, low stress, and high stress sessions. During the high stress session salivary cortisol was significantly greater in persons who stutter than in persons who do not stutter. No significant differences were found between the two groups on the State-Anxiety Inventory, Trait-Anxiety Inventory, or the Personal Report of Communication Apprehension. Significant differences in anxiety levels among the baseline, low stress, and high stress sessions for both groups of subjects were found for the State-Anxiety Inventory. No other significant differences or relationships were found between the two groups.

scholarly journals State-trait anxiety condition and its affecting factors in pregnant women linked to the COVID-19 pandemic

2021 ◽  
Author(s):  
Handan Ozcan ◽  
Ayse Elkoca ◽  
Cagla Yigitbas
Keyword(s):  
Pregnant Women ◽  
Sample Size ◽  
Trait Anxiety ◽  
Personal Information ◽  
The State ◽  
Affecting Factors ◽  
Quantitative Design ◽  
Anxiety Levels ◽  
Short Time ◽  
Anxiety Condition

Background and aim COVID-19 outbreak occurred in Wuhan, China in December 2019, and caused a worldwide crisis by becoming a pandemic in a short time. This study intends to address the COVID-19 pandemic process with specific regard to pregnant women, aiming to determine their state-trait anxiety levels. Methods The study has a quantitative design. Ethical permissions were obtained, data were collected digitally, and power analysis was performed for sample size. The sample size was calculated as 656 pregnant women. In the collection of the data, the Personal Information Form, and the State-Trait Anxiety Inventory (STAI) were used. Results In our study, the majority of pregnant women (86.3%) were concerned about the pandemic process, with more than half thinking that their pregnancy (62.9%) and delivery processes would be affected (66.2%). In the meantime, 60.2% of the pregnant women postponed their health checks and they indicated being most concerned about their babies (57.1%). In 51.2% of the pregnant women, the state anxiety levels were low, and 89.8% of the trait anxiety levels were moderate. Conclusion In crisis periods like the pandemic, pregnant women are among the priority groups. Screening, prevention, early diagnosis, and treatment of affective disorders in the prenatal period are important for maternal and fetal health. Keywords: COVID-19, pregnant, anxiety

scholarly journals An Examination of the Performance Anxiety Levels of Undergraduate Music Teaching Students in the Instrument Exams According to Various Variables (Case of Tokat Province)

2019 ◽  
Vol 8 (4) ◽  
pp. 221 ◽  
Author(s):  
Mehmet Serkan Umuzdaş ◽  
Hatice Tök ◽  
Serpil Umuzdaş
Keyword(s):  
Academic Achievement ◽  
Trait Anxiety ◽  
Education Program ◽  
State Anxiety ◽  
Teacher Education Program ◽  
The State ◽  
Music Teaching ◽  
Achievement Scores ◽  
Significant Difference ◽  
Anxiety Levels

Quantitative descriptive method was used in order to examine the state-trait and total anxiety levels of the students in the Undergraduate Music Teaching Program by gender, instrument difference, school year and academic achievement scores of students. The study has been conducted in the fall semester of 2018-2019 academic year in Turkey with Tokat University Faculty of Education, Fine Arts Education Department Music Education Program students (n = 77). For data collection, "The State-Trait Anxiety Inventory" developed by Spielberg et al. (1964) and adopted to Turkish by Öner and Le Compte (1983). The trait anxiety inventory was applied in a time period when the students were away from exam stress. The state anxiety inventory, on the other hand, was conducted just before the final exams. According to the results of the study, when the state-trait and total anxiety of the students receiving musical instrument education in Music Teacher Education Program is examined, it was found that there is a significant difference between trait and state anxiety, that female students' trait and total anxiety levels are higher, and the male students' state anxiety is higher; when it is considered in terms of instrument differences, it was seen that students playing stringed instruments have higher anxiety than those who play bow and wind instruments, A significant difference was found in terms of academic achievement scores in undergraduate freshman and senior students who have higher anxiety.

EVALUATION OF THE STATE-TRAIT ANXIETY LEVELS (STAIC) IN SCHOOLCHILDREN FROM 10 TO 12 YEARS OLD AFTER A MINDFULNESS PROGRAM IN THE CLASSROOMS

2018 ◽  
Author(s):  
Carolina Pérez-Lancho ◽  
Marta Modrego-Alarcón ◽  
Paola Herrera-Mercadal ◽  
María Teresa Navarro-Gil ◽  
Irene Delgado-Suárez ◽  
...  
Keyword(s):  
Trait Anxiety ◽  
The State ◽  
Anxiety Levels
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