scholarly journals “Data is the new oil”: citizen science and informed consent in an era of researchers handling of an economically valuable resource

2021 ◽  
Vol 17 (1) ◽  
Author(s):  
Etain Quigley ◽  
Ingrid Holme ◽  
David M. Doyle ◽  
Aileen K. Ho ◽  
Eamonn Ambrose ◽  
...  

AbstractAs with other areas of the social world, academic research in the contemporary healthcare setting has undergone adaptation and change. For example, research methods are increasingly incorporating citizen participation in the research process, and there has been an increase in collaborative research that brings academic and industry partners together. There have been numerous positive outcomes associated with both of these growing methodological and collaborative processes; nonetheless, both bring with them ethical considerations that require careful thought and attention. This paper addresses the ethical considerations that research teams must consider when using participatory methods and/or when working with industry and outlines a novel informed consent matrix designed to maintain the high ethical standard to which academic research in the healthcare arena has traditionally adhered.

Author(s):  
Reneta D. Lansiquot

The emerging critical global collaboration paradigm and the use of virtual learning communities can form structured domains that require complementary methods for educational research. The purpose of this chapter is to illustrate how the social nature of virtual worlds can be used to teach technical writing and the academic research process. A yearlong, mixed methodology, research study is used to demonstrate the effect of this blended learning pedagogical approach on writing apprehension in advanced technical writing courses. Students wrote manuals collaboratively for an audience of their peers. Second Life, the online 3D virtual world created entirely by its residents, was both their subject of study and a mode of meaningful communication.


2020 ◽  
Vol 19 ◽  
pp. 160940692094409
Author(s):  
Quaylan Allen

Participant photography is a visual method that has been widely used in research to elevate the voices of historically marginalized populations. Although much has been written about the nature of the visual method, including its benefits and challenges, less is known about how meaning is made of the visual images as they move throughout the research process. To this end, this article draws upon data and the methodological notes from a research study examining Black masculinities and employs a critical visual methodology to examine the different sites of meaning-making in a participant photography research project with Black college men. First, the participant reflections on the visual methodology will be used to examine the image production process, which includes the men’s decisions regarding photographic tools and their image-making strategies. Then, select images from the project and the corresponding narratives will be shared and situated within the social context in which they were produced. Finally, this article will discuss practical and ethical considerations regarding the circulation and audiencing of the project images and conclude with a discussion of the lessons learned in using a critical visual methodology to explore how meaning is made in a participant photography project with Black men.


Author(s):  
Erin Hardie Hale ◽  
Christopher C. Jadallah ◽  
Heidi L. Ballard

AbstractMulti-stakeholder initiatives for biodiversity conservation on working landscapes often necessitate strategies to facilitate learning in order to foster successful collaboration. To investigate the learning processes that both undergird and result from collaborative efforts, this case study employs the concept of boundary work as a lens to examine learning between rice growers and conservation professionals in California’s Central Valley, who were engaged in a collaborative research project focused on migratory bird conservation. Through analysis of workshop observations, project documents, and interviews with rice growers and conservation professionals, we identified five distinct factors of the collaborative research process that influenced learning amongst these two groups: having mutually beneficial goals, sharing ownership of the collaborative research process, building trust, integrating knowledge, and institutional alignment. We also examined and identified learning outcomes for both rice growers and conservation professionals, which included new knowledge of the social-ecological system, new practices around farming and collaboration, and shifting identities. Our findings suggest that applying these factors and outcomes for learning when structuring collaborative research, and other multi-stakeholder initiatives, can foster learning amongst diverse stakeholder groups to support new approaches for balancing resource use and adaptive management.


2017 ◽  
Vol 8 (1) ◽  
pp. 66-83 ◽  
Author(s):  
Alexandra Coghlan ◽  
Bev Sparks ◽  
Wei Liu ◽  
Mike Winlaw

Purpose Whilst academic research can capture an existing sense of place, the act of placemaking through strategies such as events depends upon the attitudes and actions of precinct managers and event organisations. The purpose of this paper is to investigate the collaborative research process between researchers and a precinct manager that highlighted an event’s ability to contribute to placemaking within that precinct. Design/methodology/approach Using the results of this event experience study, informal interviews with the SPA research partners, secondary data and a longitudinal, reflective account of the research collaboration, the research process itself was investigated to see how it assisted in the (re)design of the event within the precinct manager’s placemaking strategy to encourage a family-friendly, beach-centred culture within the precinct. Findings It is proposed that the research results combined with a collaborative research process itself facilitated a shift from the business imperative on the event’s economic performance indicators to a broader discussion of the event’s role in shaping local’s (and visitor’s) perceptions of place, and allowed a broader discussion of the role of events in driving a “liveability” and/or placemaking agenda, complementing the economic impact agenda, for the precinct manager. Practical implications The paper suggests how and why it is important for academics to work collaboratively with precinct managers to translate the concept of placemaking into the actual design of events within a place. To do so requires the researchers to bridge the gap between theory and practice. For the concept to be translated into action, greater attention was drawn to the placemaking role of events, positioning it along economic impact measures as a valuable outcome of events. Originality/value Few co-authored studies, representing both researchers and practitioners exist within the events sector, and this study contributes towards understanding process of research impact, by considering the forces capable of delivering a placemaking agenda through a precinct’s event portfolio.


2018 ◽  
Vol 18 (1) ◽  
pp. 55-66 ◽  
Author(s):  
Helle Merete Nordentoft ◽  
Birgitte Ravn Olesen

Purpose The purpose of the paper is to show power mechanisms of in- and exclusion in moments where certain participants appeared to be othered in two collaborative research and development projects in a healthcare setting. Design/methodology/approach The paper contributes to critical-reflexive analyses of reflexive processes within collaborative knowledge production. The authors use an analytical framework combining Bakhtin and Foucault to investigate processes of inclusion and exclusion in the interplay between dominant and subordinated voices in a moment-by-moment analysis of two incidents from interdisciplinary workshops. Findings The analysis illuminates how differences between voices challenge participants’ reflexive awareness and lead to the reproduction of contextual power and knowledge hierarchies and the concomitant silencing of particular participants. Thus, the findings draw attention to the complex and ethical nature of collaborative knowledge production. Practical implications To invite researchers to be reflexive about the complex, situated and emergent character of reflexive processes and consider ethics to be a critical stance that encourages continuous reflection and critique of collaborative knowledge production. Originality/value To show the importance of not sweeping incidents in which participants are othered “under the carpet” in collaborative research. To present an analytical framework for analysing the contextual and emergent nature of collaborative research processes and discuss the ethical conundrums, which arise in the research process.


2012 ◽  
Vol 3 (2) ◽  
pp. 97-114 ◽  
Author(s):  
Trine Lund Thomsen

This article focuses on researching differences in relation to irregular migration and various methodological challenges and ethical considerations that arise when working in this type of research field. Due to the precarious character of the migration and the vulnerability of the migrants, a large degree of responsibility is placed on the researcher in order to refrain from harming the researched group(s) further. Yet, the need to access information about their life situations are of great importance to shed light on matters that otherwise would remain hidden and undisclosed. How do researchers recognize the implications of the methods used in researching irregular migration and other vulnerable people and sensitive subjects? How do we carry out research in this field without causing further harm to the subjects researched? What kind of differentiating categorization of migrants do researchers construct, produce and reproduce during the research process? This article addresses the above questions by looking at the construction and categorization of irregular migrants in both the research process and as the products of research conducted, using the biographical narrative method in order to obtain a deeper and more complex understanding of the social dynamics involved in the field of irregular migration.


2012 ◽  
Vol 35 (1-2) ◽  
pp. 107-126 ◽  
Author(s):  
Lawrence F. Felt ◽  
David Natcher

Academic research in Canada involving Aboriginal peoples has changed dramatically during the last 20 years. From an academic researcher’s perspective, the changes have recently become formalised in the release of the 2nd edition of the Tri-Council Policy Statement on Ethics in Human Research. In this article we examine similarities and differences in the way ethical review is constructed and approached from university, Aboriginal and, in particular, Inuit perspectives. We begin our argument with a general comparison of research ethics as expressed in academic and Aboriginal sources in order to find areas of commonality, difference, and potential ambiguity between the two perspectives. We then briefly review our own experience with a multiyear research project involving several Inuit governments of different spatial and administrative scales. We conclude with discussion of a common issue arising from academic research, including our own work with Inuit and the research ethics board chaired by one of the authors. It concerns how to address potential tension between critical inquiry associated with Western scientific paradigms and respect and use of Inuit knowledge within a collaborative research process. In conclusion, we offer some “best practice advice” to academic researchers who face such a dilemma.


Author(s):  
Néstor García Montes ◽  
María José Díaz Santiago

El artículo reflexiona sobre la importancia de las metodologías IAP dentro de las ciencias sociales. Ubicándola más allá de las metodologías tradicionales, éste muestra la singularidad de esta metodología desde su génesis, que aparece con el objetivo de la participación ciudadana en el proceso de investigación, a través de la aplicación de una pluralidad de técnicas y herramientas que, usadas de forma combinada, favorecen debates y transformaciones sociales situadas del sujeto en proceso. A partir de su desarrollo histórico y territorial, así como de su variedad científica, el artículo realiza un análisis ontológico y deontológico que termina con una breve explicación de una selección de ocho artículos que reflexionan sobre las posibilidades de esta metodología.Article reflects on the importance of PAR (IAP) methodologies within the social sciences. Locating it beyond traditional methodologies, this shows the uniqueness of this methodology from its genesis, which appears with the aim of citizen participation in the research process, through of the application of a plurality of techniques and tools that, used in combination, favor debates and situated social transformations of the subject in process. Based on its historical and territorial development, as well as its scientific variety, the article carries out an ontological and deontological analysis that ends with a brief explanation of a selection of eight articles that reflect on the possibilities of this methodology.


2010 ◽  
Vol 10 (4) ◽  
pp. 467-484 ◽  
Author(s):  
Dunya Ahmed Abdulla Ahmed ◽  
Gillian Lewando Hundt ◽  
Clare Blackburn

This article examines how the social and cultural context influence the way in which field research methods are utilized. Research methods need to be modified to meet the sensibilities and sensitivities of particular social groups and settings. Through a reflexive analysis of a research study on the lives of visually impaired young people and adults in Bahrain, this article discusses how gender, religion and culture need to be taken account of. It also discusses how the research process needed to take account of the participants’ disabilities. It examines the issues of research access, informed consent, researcher’s dress, confidentiality, research location, and time. It highlights how the gender of the researcher was constraining in some gender segregated educational settings in a Muslim society. The article engages with the researcher’s positionality through reflexive discussion.


2010 ◽  
Vol 3 (1) ◽  
pp. 103-124
Author(s):  
Mona Livholts

This article, written in the form of an untimely academic novella is a text, which explores academic authoring as thinking and writing practice in a place called Sweden. The aim is on inquiries of geographical space, place, and academia, and the interrelation between the social and symbolic formation of class, gender and whiteness. The novella uses different writing strategies and visual representations such as documentary writing and photographing from the research process, letters to a friend, and memories from childhood, based on three generations of women's lives. The methodology can be described as a critical reflexive writing strategy inspired by poststructuralist and postcolonial feminist theory and literary fiction, and additionally by methodological approaches in the humanities and social sciences, such as theorizing of letters, memory work, and narrative, and autobiographical approaches. In particular, it draws on work by the theorist critic and writer of fiction, Hélène Cixous, and the feminist author and theorist Charlotte Perkins Gilman, drawing on interpretation of Cixous' essay “Enter the Theatre” and Gilman's story “The Yellow Wallpaper.” Characteristics of the untimely academic novella elaborate with possible forms of the symbolic, visual, and performative photographic and sensory in writing research; furthermore, time, social change, and unfinal endings play a pervasive role. It may be read as a story that situates and theorizes embodyment, landscape, and power through the interweaving of forest rural farming spaces and academic office spaces by tracing autobiographical imprints of an untimely feminist author. “The Snow Angel and Other Imprints” is the second article in a trilogy of untimely academic novellas. The first, with the title “The Professor's Chair,” was published in Swedish in 2007 (in the anthology “Genus och det akademiska skrivandets former,” (Eds.) Bränström Öhman & Livholts), and forthcoming in English in the journal Life Writing 2010.


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