Daughters of People with Dementia Expressed Emotion, Strain and Coping

1990 ◽  
Vol 157 (2) ◽  
pp. 221-227 ◽  
Author(s):  
K. D. Bledin ◽  
B. Maccarthy ◽  
L. Kuipers ◽  
R. T. Woods
Keyword(s):  
Cognitive Impairment ◽  
Coping Strategies ◽  
Expressed Emotion ◽  
Continuing Care ◽  
People With Dementia ◽  
And Coping

Twenty-five women who were the primary carers for a parent with dementia were rated for expressed emotion (EE) and then divided into two groups: 11 with low-EE ratings and 14 with high-EE ratings. Although there were no differences between these groups in the levels of their parents' cognitive impairment, when such impairment was taken into account, high-EE subjects were found to report higher levels of strain and distress. More efficient coping strategies were reported by subjects who made fewer critical comments and more positive remarks. High-EE subjects more frequently had no living siblings, and were more likely to have had a respite break from caring. EE status was not associated with continuing care in the community at a nine-month follow-up.

Coping strategies in relatives of people with schizophrenia before and after psychiatric admission

1999 ◽  
Vol 174 (2) ◽  
pp. 154-158 ◽  
Author(s):  
Marcia Scazufca ◽  
Elizabeth Kuipers
Keyword(s):  
Coping Strategies ◽  
Expressed Emotion ◽  
Stress And Coping ◽  
Psychiatric Admission ◽  
Ways Of Coping ◽  
Care Givers ◽  
Before And After ◽  
Coping Model ◽  
And Coping

BackgroundMost research on expressed emotion (EE) has used an empirical approach to describe relatives' ways of coping with people with schizophrenia.AimsTo use the stress and coping model proposed by Lazarus and Folkman to examine how relatives coped with patients.MethodPatients with DSM–III–R schizophrenia and their relatives were assessed just after hospitalisation of the patients and nine months after discharge. Both assessments included the symptoms of the patients and the coping strategies, burden, distress and levels of EE of the relatives.ResultsFifty patients and 50 relatives were assessed at inclusion, and 31 patients and 36 relatives at follow-up. Coping strategies were used more frequently at inclusion than at follow-up. Problem-focused coping was the strategy used more often at both assessments. Avoidance coping was strongly associated with burden, distress and high EE at both assessments.ConclusionsWays of coping are influenced by relatives' perceptions of the situation with patients. Avoidance strategies seem to be less effective in regulating the distress of care-givers than problem-focused strategies.

Stable Self-Concepts and Flexible Coping Strategies of People with Dementia Attending Dementia Self-Help Groups in Germany

2015 ◽  
pp. 159-182
Author(s):  
Milena von Kutzleben ◽  
Birgit Panke-Kochinke
Keyword(s):  
Coping Strategies ◽  
Phenomenological Approach ◽  
Community Dwelling ◽  
Life Course Perspective ◽  
External Control ◽  
Self Help ◽  
People With Dementia ◽  
Determining Factors ◽  
Self Help Groups ◽  
And Coping

In this chapter, results from the qualitative longitudinal Selbstbestimmung und Intervention (SEIN) study conducted at the DZNE site in Witten are presented and discussed against the background of a previously conducted systematic review of the subjective needs, demands, and coping strategies of community-dwelling people with dementia. The objective of the study was to examine how participants of dementia self-help groups in the early and middle stages of the condition cope with their illness. A phenomenological approach with a life-course perspective served as the framework for the study. The findings suggest that a person's self-concept is not changed by dementia but instead adapts over the trajectory of the illness. Struggling between external control (defence against stigmatization) and external protection (being taken seriously), and aiming for “Inner Security” were central concerns for the participants. Biographical background and social network are determining factors in the development and use of coping strategies.

Family burden and coping strategies in schizophrenia: 1-year follow-up data from the BIOMED I study

2000 ◽  
Vol 35 (3) ◽  
pp. 109-115 ◽  
Author(s):  
G. Fadden ◽  
M. Economou ◽  
T. Held ◽  
M. Xavier ◽  
M. Guarneri ◽  
...  
Keyword(s):  
Coping Strategies ◽  
Family Burden ◽  
And Coping

scholarly journals Incidence of and Risk Factors for Missing Events Due to Wandering in Community-dwelling Older People with Dementia and Mild Cognitive Impairment

2021 ◽  
Author(s):  
seungwon Jeong ◽  
Takao Suzuki ◽  
Kiyoko Miura ◽  
Takashi Sakurai
Keyword(s):  
Risk Factors ◽  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Recurrence Rate ◽  
Community Dwelling ◽  
Disease Assessment ◽  
People With Dementia ◽  
One Year ◽  
The One

Abstract BackgroundThe burden of missing incidents is not only on the person with dementia, but also on their family, neighbors, and community. The extent to which dementia-related wandering and missing incidents occur in the community has not been evaluated thoroughly in the published literature. Therefore, we evaluated the incidence of and risk factors for missing events due to wandering.MethodsWe conducted a non-randomized prospective one-year follow-up cohort study based on symptom registration with missing events due to wandering as the endpoint. In the first consultation, 374 patients with dementia or mild cognitive impairment (MCI) and their caregivers who visited the National Center for Geriatrics and Gerontology in Japan were included. The incidence and recurrence rate of missing events were calculated. Participants were divided into (those with) dementia and (those with) MCI. Patients' basic and medical information was documented at baseline and after one year of follow-up. Furthermore, analysis of variance and logistic regression analysis were performed to clarify the risk factors associated with the missing event.ResultsAmong the 236 patients with dementia enrolled, 65 (27·5%) had a previous missing event at baseline, and 28 had a missing event during the one-year follow-up period (recurrence rate of 43·1%). Of the 171 who did not have a previous missing event at baseline, 23 had a missing event during the one-year follow-up period (incidence rate of 13·5%). The scores of Mini-Mental State Examination (MMSE), Dementia Behavior Disturbance Scale (DBD), and Alzheimer's Disease Assessment Scale (ADAS) were statistically significant as the risk factors for the incidence of wandering leading to a missing event (p<0·05).ConclusionsPrevention of missing event due to wandering requires focused attention on changes in the MMSE, DBD, ADAS scores, and the development of a social environment to support family caregivers.

scholarly journals The Level of Stress and Coping Strategies in Patients with Multiple Sclerosis and Their Relationships with the Disease Course

2021 ◽  
Vol 10 (17) ◽  
pp. 3916
Author(s):  
Roman Kotas ◽  
Marta Nowakowska-Kotas ◽  
Sławomir Budrewicz ◽  
Anna Pokryszko-Dragan
Keyword(s):  
Multiple Sclerosis ◽  
Coping Strategies ◽  
Course Design ◽  
Stress And Coping ◽  
Disease Course ◽  
Related Factors ◽  
Type D ◽  
Health Related ◽  
And Coping

Objectives: Stress is supposed to be linked with a background of multiple sclerosis (MS) and the disease course. Design: The study aimed to assess the level of stress and coping strategies in MS patients within a year of follow-up and to investigate the relationships between these aspects and factors related—or not—to MS. Methods: In 65 patients with MS, the Perceived Stress Scale (PSS-10), Type D Scale (DS14) and Coping Orientations to Problems Experienced (COPE) were performed at baseline and after a year. Baseline PSS-10, DS-14 and COPE scores were analyzed with regard to demographics, MS duration, treatment, indices of disability and self-reported stressful events (SEs). Final PSS-10 and COPE results were analyzed with reference to MS activity and SE within a year of follow-up. Results: Initially, 67% of patients reported a moderate or high level of stress and 31% met Type-D personality criteria. Diverse coping strategies were preferred, most of which were problem-focused. The negative affectivity DS-14 subscore (NEG) was correlated with disability level. Non-health-related SEs were associated with higher PSS-10 and NEG scores. After a year, the mean PSS-10 score decreased, while COPE results did not change significantly. Non-health-related SEs were associated with a higher PSS-10 score and less frequent use of acceptance and humor strategies. Those with an active vs. stable MS course during the follow-up did not differ in terms of PSS-10 and COPE results. Conclusions: MS patients experienced an increased level of stress. No significant relationships were found between stress or coping and MS course within a year. Non-health-related factors affected measures of stress more than MS-related factors.

Impact of social isolation and coping strategies in older adults with mild cognitive impairment during the covid-19 pandemic: A qualitative study

2021 ◽  
pp. 1-22
Author(s):  
Maryam Farhang ◽  
Claudia Miranda-Castillo ◽  
Maria Isabel Behrens ◽  
Eduardo Castillo ◽  
Sandra Mosquera Amar ◽  
...  
Keyword(s):  
Older Adults ◽  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Social Isolation ◽  
And Coping

Do Anxiety, Body Image, Social Support and Coping Strategies Predict Survival in Breast Cancer? A Ten-Year Follow-Up Study

2007 ◽  
Vol 48 (3) ◽  
pp. 211-216 ◽  
Author(s):  
Florence Cousson-Gelie ◽  
Marilou Bruchon-Schweitzer ◽  
Jean Marie Dilhuydy ◽  
Marthe-Aline Jutand
Keyword(s):  
Breast Cancer ◽  
Social Support ◽  
Body Image ◽  
Coping Strategies ◽  
Follow Up Study ◽  
And Coping

scholarly journals Can depression in psychogeriatric inpatients at one year follow-up be explained by locus of control and coping strategies?

2017 ◽  
Vol 22 (3) ◽  
pp. 379-388 ◽  
Author(s):  
Guro Hanevold Bjørkløf ◽  
Knut Engedal ◽  
Geir Selbæk ◽  
Deborah Bezerra Maia ◽  
Tom Borza ◽  
...  
Keyword(s):  
Locus Of Control ◽  
Coping Strategies ◽  
One Year ◽  
And Coping

scholarly journals Burden, Coping, Physical Symptoms and Psychological Morbidity in Caregivers of Functionally Dependent Family Members

2013 ◽  
Vol 21 (4) ◽  
pp. 935-940 ◽  
Author(s):  
Ana Catarina Guedes ◽  
Maria da Graça Pereira
Keyword(s):  
Cognitive Impairment ◽  
Coping Strategies ◽  
Family Caregivers ◽  
Family Members ◽  
Significant Negative Correlation ◽  
Physical Symptoms ◽  
Psychological Morbidity ◽  
Adaptive Coping ◽  
And Coping ◽  
The Relationship

OBJECTIVES: this study assessed burden, coping, physical symptoms and psychological morbidity in caregivers of functionally dependent family members. METHODS: fifty family caregivers completed self-reported measures of burden, physical symptoms, psychological morbidity and coping strategies. RESULTS: there was a significant negative correlation between coping strategies and the different clinical variables, as well as a significant positive correlation between coping strategies and duration of care. It appears that the stronger bond between caregiver and family member leads to a poorer use of adaptive coping strategies. It also appears that the deterioration of the relationship between them and the lower perceived self-efficacy are more prominent in caregivers of family members with cognitive impairment, indicating that caregivers with family members without cognitive impairment face fewer difficulties. CONCLUSION: these results emphasize the need for interventions to include coping strategies, since they are important in reducing caregivers' burden, psychological morbidity and physical symptoms.

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