Stable Self-Concepts and Flexible Coping Strategies of People with Dementia Attending Dementia Self-Help Groups in Germany

Author(s):  
Milena von Kutzleben ◽  
Birgit Panke-Kochinke

In this chapter, results from the qualitative longitudinal Selbstbestimmung und Intervention (SEIN) study conducted at the DZNE site in Witten are presented and discussed against the background of a previously conducted systematic review of the subjective needs, demands, and coping strategies of community-dwelling people with dementia. The objective of the study was to examine how participants of dementia self-help groups in the early and middle stages of the condition cope with their illness. A phenomenological approach with a life-course perspective served as the framework for the study. The findings suggest that a person's self-concept is not changed by dementia but instead adapts over the trajectory of the illness. Struggling between external control (defence against stigmatization) and external protection (being taken seriously), and aiming for “Inner Security” were central concerns for the participants. Biographical background and social network are determining factors in the development and use of coping strategies.

Dementia ◽  
2017 ◽  
Vol 18 (6) ◽  
pp. 2107-2121 ◽  
Author(s):  
Jennifer Perion ◽  
Victoria Steiner

Positive social interaction is important for people with dementia, providing emotional and psychological benefits. Friendships may retain more reciprocal balance than caregiver relationships, which often become one-sided. This qualitative study investigates the meaning that friendship has for people with dementia, and how reciprocity relates to positive social identity. Individuals experiencing dementia were recruited from programs sponsored by a Midwest chapter of The Alzheimer’s Association. In a face-to-face, one-time interview, participants were asked to share their perceptions about reciprocal friendship. Participants included 10 individuals who were primarily White, averaged 76 years old, with at least some college education. The data were analyzed using a phenomenological approach that revealed five themes of reciprocal friendship: recognizing the importance of longevity in friendship, helping one another is a normal part of friendship, feeling “alive” through the give and take in friendship, knowing somebody is there for them, and seeking security through friendship.


2019 ◽  
Vol 8 (1) ◽  
pp. 20
Author(s):  
Ridhoyanti Hidayah ◽  
Retno Lestari

Coping strategies were significant predictors of psychosocial adaptation in parents of children with autism spectrum disorder (ASD). Self-help groups could be effective resources for parents in dealing with problems wile caring for children with ASD. The purpose of this study was to analyze the effects of self-help groups on coping strategies in parents of children with ASD. This study used pre and post quasi-experimental tests without a control group using self-help group interventions. There were thirty-three participants taken from the Malang City Autism Service Center using purposive sampling. Coping strategies based on cognitive and psychomotor abilities were measured using a questionnaire. The results showed paired t-test in all groups, at 5% significance level, statistically significant difference between mean score before and after self-help group interventions. Coping strategies in groups that received two supervised sessions and four times independently reached higher score compared to other groups. It can be concluded that it is important to implement self-help groups for parents who care for children with special needs.


Author(s):  
Patrizia Vannini ◽  
Geoffroy P. Gagliardi ◽  
Madeline Kuppe ◽  
Michelle L. Dossett ◽  
Nancy J. Donovan ◽  
...  

Author(s):  
Darrick Tovar-Murray ◽  
A. J. Metz ◽  
Janice E. Jones

Qualitative methodology was used to explore the transitioning experiences of African American males at a large public university in the Midwest. Researchers facilitated a focus group in which seven African American male students described their transitioning experiences and coping strategies attending a predominantly White college and university (PWCU). An interpretative phenomenological approach (IPA) guided by grounded theory was used to analyze the data. Results are discussed with recommendations for researchers and university practitioners.


1998 ◽  
Vol 45 (1) ◽  
pp. 61-75
Author(s):  
Pamela M. Sourgen ◽  
Eleanor Ross

Although previous research has highlighted the debilitating effects of tinnitus on quality of life, most studies appear to have targeted the general population, with few researchers focusing specifically on elderly persons. Hence, the purpose of this study was to investigate the perceptions of tinnitus in a group of 20 senior citizens. A questionnaire based on existing research instruments developed by Stouffer and Tyler (1990) and Wilson et al. (1991) was used to elicit information regarding the auditory-perceptual characteristics of tinnitus, effects of tinnitus on lifestyle, perceived causes, factors aggravating or ameliorating tinnitus and coping strategies employed. Results supported findings from earlier research and indicated that tinnitus did indeed exert an impact on respondents' lives with 65% avoiding noisy situations, 65% having difficulty relaxing, and 55% struggling to follow conversations. Almost two-thirds, namely 70%, of respondents reported feelings of frustration, 60% and 55% mentioned feelings of tenseness and irritability respectively, while 50% experienced depression associated with the tinnitus. These findings are discussed in terms of their implications for the education of health care professionals, management of tinnitus patients in general, public and patient awareness campaigns, the establishment of Tinnitus Self Help Groups, and further research.


2015 ◽  
Vol 3 (1) ◽  
Author(s):  
Dr. Santoshkumar

Weiten et al (2009) propose that stress that stress is an epidemic in the 21st century that commonly affects of us on a daily basis, when considering minor s from environmental conditions such as noise and pollution; Even though saving gadgets and self-help tools have increased substantially in the 20th century and people have more control over their lives, there is an increase of society and people have less free time. “We well define stress as any instances that threaten or are perceived to threaten one’s well-being and hereby tax one’-s coping abilities “for example a person can no longer meet journal demands such as work or relationships they feel they do not have the eye beholder.


1990 ◽  
Vol 157 (2) ◽  
pp. 221-227 ◽  
Author(s):  
K. D. Bledin ◽  
B. Maccarthy ◽  
L. Kuipers ◽  
R. T. Woods

Twenty-five women who were the primary carers for a parent with dementia were rated for expressed emotion (EE) and then divided into two groups: 11 with low-EE ratings and 14 with high-EE ratings. Although there were no differences between these groups in the levels of their parents' cognitive impairment, when such impairment was taken into account, high-EE subjects were found to report higher levels of strain and distress. More efficient coping strategies were reported by subjects who made fewer critical comments and more positive remarks. High-EE subjects more frequently had no living siblings, and were more likely to have had a respite break from caring. EE status was not associated with continuing care in the community at a nine-month follow-up.


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