Exploring the experience of returning to work after personal bereavement

2019 ◽  
Vol 25 (11) ◽  
pp. 525-530
Author(s):  
Elizabeth Reed ◽  
Melanie Waghorn ◽  
Amanda Gregory ◽  
Jo Vriens ◽  
Emily Sills ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Professional Life ◽  
Significant Part ◽  
The Face ◽  
Returning To Work ◽  
Ongoing Support

Background: The ability of nurses with experience of personal bereavement to work with patients can have immediate and/or long-term repercussions on their personal and professional life. Aims: To explore the experience of a personal bereavement, through the death of a significant relative or friend, for nurses working in palliative care. Methods: A multicentre qualitative study interviewed nurses working in palliative care who experienced a significant bereavement within the last 24 months. Findings: Key themes: circumstances surrounding bereavement; conflict between the personal and professional; returning to work; grief as a continuum. Advice to bereaved nurses was for them to be open and honest and that work can be grounding; that they should take time off; that grief does not stop on returning to work; and that they should do what feels right for them. Conclusions: Bereaved palliative care nurses strive to maintain their roles in the face of bereavement. Hospices have a significant part to play in offering ongoing support and flexibility.

scholarly journals The Challenges, Coping Mechanisms, and the Needs of the Inhospital Parents Caring for Children with Life-limiting Neurological Disorders: A Qualitative Study

2021 ◽  
Vol 0 ◽  
pp. 1-7
Author(s):  
Fahisham Taib ◽  
Khoo Teik Beng ◽  
Lee Chee Chan
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Thematic Analysis ◽  
Neurological Disorders ◽  
English Language ◽  
Kuala Lumpur ◽  
Neurological Conditions ◽  
Depth Interviews

Objective: Parents who have children with complex lifelong and life-limiting neurological conditions experienced many stresses and anxieties throughout their lives as caregivers. However, this information is still very limited. The study aimed to explore the challenges faced by parents with children who have complex neurological conditions, their coping strategies, needs, and expectations. Materials and Methods: A semi-structured, in-depth interviews were conducted in the either Malay or English language among the parents of children with complex lifelong neurological conditions and have been on long-term in-patient hospital care. The interviews were audio-recorded and transcribed for thematic analysis. The qualitative study was conducted from October to November 2016 at the Paediatric Institute of Hospital Kuala Lumpur. Grounded theory was used to examine the qualitative data with inductive and deductive types of coding. The transcripts were read repeatedly to allow familiarity to the themes presented by the participants. Further discussions were conducted among the researchers to triangulate the information. Results: A total of 11 parents were interviewed for this study. The thematic analysis resulted in 8 challenges: Physical wellbeing, Environment, Relationship, Financial, Occupational, Rational, Mental, and Spiritual. Coping strategies comprised problem focused issues related to the key challenges in the caregivers’ context. Similar to the needs and expectations, the key themes were derived from the key understandings of the challenges and looking at the palliative care impacts for these children. Conclusion: There are various challenges faced by parents of children with life-limiting neurological disorders. Physical, Environment, Relationship, Financial, Occupational, Rational, Mental, and Spiritual Wellbeing can be a platform for the assessment of the caregivers’ needs and the planning for palliative care support.

Cicely Saunders

2018 ◽  
Author(s):  
David Clark
Keyword(s):  
Twentieth Century ◽  
Palliative Care ◽  
End Of Life ◽  
Advanced Disease ◽  
Professional Life ◽  
The World ◽  
The Face ◽  
The Individual ◽  
Hospice And Palliative Care ◽  
First Time

Cicely Saunders founded St Christopher’s Hospice in London in 1967 as a centre for teaching, research, and care. Its influence quickly spread around the world. Cicely Saunders — A Life and Legacy shows how she played a crucial role in shaping a new discourse of care at the end of life. From the nihilism of ‘there is nothing more we can do’, medicine and healthcare gradually adopted a more purposeful approach to care in the face of advanced disease and at the end of life. This came to be known as palliative care. This biography links for the first time the ideas and practice of Cicely Saunders to the spreading global interest in hospice and palliative care. It explores her deep reflection on the nature of suffering at the end of life, the possibilities of a more informed approach to the medical management of pain and other symptoms, and above all the importance of remaining focussed on the personal and spiritual concerns of the individual patient as death approaches. It is a story of a remarkable personal and professional life and of a seismic shift in twentieth-century medical history.

scholarly journals Long-term nurse–parent relationships in paediatric palliative care: a narrative literature review

2019 ◽  
Vol 25 (11) ◽  
pp. 542-550 ◽  
Author(s):  
Mandy J Brimble ◽  
Sally Anstey ◽  
Jane Davies
Keyword(s):  
Palliative Care ◽  
Literature Review ◽  
Emotional Support ◽  
Healthcare Professionals ◽  
Grey Literature ◽  
Paediatric Palliative Care ◽  
The Face ◽  
Narrative Literature ◽  
Narrative Literature Review

Background: Paediatric palliative care (PPC) is an active, total approach to the holistic care of the child and family. Close, long-lasting relationships between healthcare professionals and parents in paediatric palliative care enhance quality, provide emotional support and can influence how parents manage their role in the face of uncertainty. Aim: To present a narrative literature review of long-term relationships between children's nurses and parents in PPC settings. Methods: Six databases (CINAHL, PsycINFO, ASSIA, Scopus, Medline and BNI) were searched, identifying 35 articles. A grey literature search produced seven additional relevant items. Findings: Four themes were identified: bonds; attachments and trust; sharing the journey; going the extra mile; and boundaries and integrity. All themes revealed an element of tension between closeness and professionalism. Conclusion: Gaining a greater understanding of how closeness and professionalism are successfully managed by children's palliative care nurses could positively influence pre- and post-registration nurse education.

scholarly journals From Plastered Skulls to Palliative Care: What the Past Can Teach Us About Dealing with Death

2018 ◽  
Vol 8 (2) ◽  
pp. 249 ◽  
Author(s):  
Lindsey Büster ◽  
Karina Croucher ◽  
Jennifer Dayes ◽  
Laura Green ◽  
Christina Faull
Keyword(s):  
Palliative Care ◽  
Case Studies ◽  
Healthcare Professionals ◽  
Daily Life ◽  
Professional Life ◽  
Mortuary Practices ◽  
Continuing Bonds ◽  
Contemporary Society ◽  
The Past

Modern, advanced healthcare detects and monitors long-term and life-limiting illness more comprehensively than ever before. Death is now, however, often considered as medical failure, and is a virtually taboo topic of conversation in daily life. At a time when the relevance of archaeology is under scrutiny, the AHRC-funded ‘Continuing Bonds’ project – a collaboration between archaeology and palliative care – explores the potential of the past to promote discussion. Not only does archaeology illuminate the diversity of practice surrounding death, the past provides a safe, distanced platform for considering death, dying and bereavement today. Through archaeological and ethnographic case studies, healthcare professionals explore topics such as place, choice and identity, in both personal and professional life. This paper explores some of the most thought-provoking materials and participant responses, and discusses the implications for contemporary society and for the ways in which archaeologists interpret mortuary practices of the past.

scholarly journals Returning to work after long term sickness absence due to low back pain – the struggle within: A qualitative study of the patient's experience

Work ◽  
2014 ◽  
Vol 49 (3) ◽  
pp. 433-444 ◽  
Author(s):  
Cormac G. Ryan ◽  
Douglas Lauchlan ◽  
Leigh Rooney ◽  
Caroline Hollins Martins ◽  
Heather Gray
Keyword(s):  
Low Back Pain ◽  
Back Pain ◽  
Qualitative Study ◽  
Sickness Absence ◽  
Low Back ◽  
Patient’S Experience ◽  
Returning To Work

scholarly journals Global palliative nursing partnerships in the face of COVID-19

2021 ◽  
Vol 27 (8) ◽  
pp. 410-416
Author(s):  
William E Rosa ◽  
Julia Downing ◽  
Betty R Ferrell ◽  
Liz Grant ◽  
Samuel T Matula ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health Coverage ◽  
Middle Income ◽  
Care Access ◽  
Global Partnerships ◽  
Health Related ◽  
The Face ◽  
Role Of Nursing ◽  
Hospice And Palliative Care

Background: Mutually respectful and long-term global partnerships are critical to increasing hospice and palliative care access as a key component of universal health coverage. The importance of sustained, transnational palliative care collaboration has become more urgent since the COVID-19 pandemic. Aim: To provide an overview of characteristics for successful global palliative nursing partnerships. Method: The authors highlight the need to adapt approaches to meet the challenges and demands of COVID-19 in both clinical and academic spaces. Exemplars of thriving global partnerships are provided, alongside palliative nursing considerations and strategies to advance and sustain them. Conclusion: The role of nursing to drive and enhance palliative care partnerships, especially with equitable input from low- and middle-income country stakeholders, must be leveraged to advance shared goals and reduce serious health-related suffering around the world.

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