scholarly journals Communication Services and Supports for Individuals With Severe Disabilities: Guidance for Assessment and Intervention

Author(s):  
Nancy C. Brady ◽  
Susan Bruce ◽  
Amy Goldman ◽  
Karen Erickson ◽  
Beth Mineo ◽  
...  

Abstract The National Joint Committee for the Communication Needs of People With Severe Disabilities (NJC) reviewed literature regarding practices for people with severe disabilities in order to update guidance provided in documents originally published in 1992. Changes in laws, definitions, and policies that affect communication attainments by persons with severe disabilities are presented, along with guidance regarding assessment and intervention practices. A revised version of the Communication Bill of Rights, a powerful document that describes the communication rights of all individuals, including those with severe disabilities is included in this article. The information contained within this article is intended to be used by professionals, family members, and individuals with severe disabilities to inform and advocate for effective communication services and opportunities.

2003 ◽  
Vol 28 (2) ◽  
pp. 70-78 ◽  
Author(s):  
Martha E. Snell ◽  
Kevin Caves ◽  
Lee McLean ◽  
Beth Mineo Mollica ◽  
Pat Mirenda ◽  
...  

Sometimes communication supports and services for school-aged children with extensive disabilities are re-duced over time or removed on the basis of inappropri-ate reasons or eligibility criteria that are flawed. Family members may feel unequipped to argue against the de-cisions that schools or agencies make for their child, and professionals may be in a difficult position to disagree with their administrators. The National Joint Committee for the Communication Needs of Persons with Severe Disabilities has written a position statement on these re-strictive eligibility practices. This position statement ad-dresses concerns about inappropriate eligibility criteria and may be used to help individuals, family members, and providers gain access to necessary communication supports and services.


2001 ◽  
Vol 10 (2) ◽  
pp. 24-27 ◽  
Author(s):  
Lee K. McLean ◽  
Beth Mineo ◽  
Pat Mirenda ◽  
Diane Paul-Brown ◽  
Mary Ann Romski ◽  
...  

2001 ◽  
Vol 8 (1) ◽  
pp. 28-32
Author(s):  
Lee K. McLean ◽  
Beth Mineo Molica ◽  
Pat Mirenda ◽  
Diane Paul-Brown ◽  
Mary Ann Romski ◽  
...  

2020 ◽  
Vol 45 (2) ◽  
pp. 98-114
Author(s):  
Morgan E. Herbert ◽  
Matthew E. Brock ◽  
Mary A. Barczak ◽  
Eric J. Anderson

Peer networks are a promising intervention for increasing social interactions between students with severe disabilities and their peers. However, this approach has not been well studied with high school students who have complex communication needs and use augmentative and alternative communication (AAC). In this study, we used a multiple probe across participants design to evaluate the effectiveness of a lunchtime peer-network intervention for three high school students with autism and/or multiple disabilities who had complex communication needs. The intervention involved recruiting peers, sharing practical background information and modeling how to communicate with the student, and then providing support as needed. A functional relation was established between the introduction of the peer-network intervention and both social interactions and social engagement. Interactions increased substantially across communication modalities. This study builds on the peer-network literature by demonstrating how this approach can be tailored for high school students with complex communication needs.


2014 ◽  
Vol 3 (3-4) ◽  
Author(s):  
Nguyen Tai Hung ◽  
Nguyen Huu Thanh ◽  
Julius Mueller

Recently, mobile operators all over the world are facing big challenges on the decreasing of the revenues from its traditional killer-applications like SMS/MMS and even voice services. The challenges come from a new trend of services called OTT (Over The Top). These OTT services provide the mobile users with flexible, convenient and more importantly free means to do their daily multimedia communication needs and seamlessly without any border so that operators couldn’t be just simply block it, but in opposite, need to find solutions to compete against it. Because of that, nowadays, more and more operators choose to deploy the standard RCS (Rich Communication Suite). RCS is a set of rich features communication services developed on top of IMS framework. Although there have been tremendous efforts to develop the architecture and protocols for IMS, which is a key technology of the NGN, it is far from being widely deployed. There are many reasons for that unpopularity (of IMS commercial deployment), namely, the lacking of clear business model for IMS-based services, no big difference between IMS-based services and SOA (Service Oriented Architecture) services, lack of the true demands for features that IMS based services have, etc... However, one of the most important reason that till now not many researchers have pointed out and addressed it, is about the OSS (Operation and Support Subsystem) functions. The lacking of OSS clearly defined functions and interfaces make the difficulties for operators and even equipment manufacturers to collect the pay back for any big scale IMS deployment for their networks. This paper presents our proven that IMS can provide the killer applications with blending features like mash-up and readily equipped with the intelligent charging and policy control functions. That may partly help to speed up the deployment process of IMS in real networking environment.


Author(s):  
Michael T Compton ◽  
Beth Broussard

As discussed in previous chapters, psychosis often first begins in late adolescence or young adulthood. Thus, many people who experience a first episode of psychosis live with and rely on their families for support. In addition to providing a place to live and other basic support, families are key in the recovery process because they love and care for the person with the illness and they want to help. Family members may need to provide emotional support, arrange for treatment, and find new ways to cope with the signs and symptoms of psychosis or other problems that result from the illness. Families are a very important part of the team that is necessary to properly manage psychosis. In fact, now that more effective antipsychotic medicines and psychosocial treatments are available, many people with psychosis often can receive treatment in the community and with their families rather than having extended stays in the hospital. Families play a major role in helping their loved ones manage their illness. As a result, it is vital to create a supportive family environment by reducing stress, coping, and communicating effectively. This chapter focuses on three essential domains of a supportive family environment: reducing stress, enhancing coping, and ensuring effective communication. First, we begin by defining …Families play a major role in helping their loved ones manage their illness. As a result, it is vital to create a supportive family environment by reducing stress, coping, and communicating effectively.… stress and the ways that the early stages of psychosis can lead to stress. We discuss three ways to reduce stress in the family as well as three related ways the family can help the patient to reduce stress. Second, we define coping and talk about the importance of coping with a stressful event, like an episode of psychosis in a family member. We offer three ways of coping effectively for family members as well as three ways that patients can practice effective coping. Third, we address the value of good communication and how the symptoms of psychosis can sometimes interfere with productive communication patterns. We then provide eight points of advice for effective communication within the family.


2019 ◽  
Vol 44 (4) ◽  
pp. 280-292 ◽  
Author(s):  
K. Charlie Lakin ◽  
Meghan M. Burke

People aging with severe disabilities face many age- and disability-related challenges that are shared with a range of family members and other caregivers. Although these challenges are often exacerbated by substantial physical, cognitive, communication, health, and other impairments associated with severe disabilities, thematically, they are often similar to the challenges faced by other older persons as they navigate the aging process. These themes include (a) planning for a desired post–working years lifestyle, (b) identifying and securing services and supports that accommodate disability, (c) sustaining the support of family and friends, (d) maintaining optimal health, (e) dealing with grief and end-of-life issues, and (f) avoiding loneliness and isolation. Using these themes, this final article reviews the findings of the articles in this special issue as well as other related studies to suggest potentially fruitful directions in future research to contribute to the well-being of the rapidly growing population of persons aging with severe disabilities.


2017 ◽  
Vol 26 (2) ◽  
pp. 162-180 ◽  
Author(s):  
Susan M. Bruce ◽  
Susan M. Bashinski

PurposeIndividuals with severe disabilities are a diverse group of learners with complex communication needs. This article presents a synthesis of the literature addressing the five strategies of the trifocus framework, with its triadic structure of learner with disability, communication partner, and environment. The application of interprofessional collaborative practice (IPCP) to the implementation of trifocus framework communication strategies is emphasized.MethodA literature search was conducted using Google Scholar and EBSCO to identify literature and research studies on IPCP and communication intervention for learners with severe disabilities, published 1994–2015, and then organized within the trifocus framework. The trifocus strategies are enhancing sensitivity, utilizing routines, increasing communication opportunities, modifying the communication environment, and augmenting input. Studies that included at least one participant with severe disabilities and their communication partners were considered. A secondary search was then conducted by reviewing the articles referenced in the original articles.ConclusionEffective IPCP in communication intervention considers the learner's characteristics, the knowledge and skills required of communication partners, and effective environmental arrangements to support communication. Future research should include clear participant descriptions, documentation of fidelity measures, and evidence of generalization to support professionals to know when findings are relevant to the individuals they serve.


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