Effectiveness of Sensory Discrimination Training When Delivered By Family Members: A Pilot Study

2008 ◽  
Vol 9 (2) ◽  
pp. 140-151 ◽  
Author(s):  
Leeanne M. Carey ◽  
Thomas A. Matyas
Keyword(s):  
Training Program ◽  
Single Case ◽  
Low Cost ◽  
Family Members ◽  
Extended Period ◽  
Stroke Survivors ◽  
Training And Supervision ◽  
Positive Treatment ◽  
Informal Carers ◽  
And Function

AbstractThe proportion of disabled stroke survivors is increasing. These people may experience loss of sensation that negatively impacts on performance and participation in daily activities. The value of adopting active approaches to rehabilitation is growing; however, high costs and demand over an extended period of time impose limits on therapist-based application. Informal carers and family members are a potential, low-cost resource for expanding the scope of rehabilitation across environments and over extended time periods. We systematically developed and established the effectiveness of an approach to retraining lost sensation and function in the hand that has positive outcomes in relation to the ability to feel everyday textures and objects and use the hand in daily tasks. The purpose of this study was to investigate whether family members, as surrogate therapists, are able to effectively conduct the sensory training program in home environments. Three single-case quasi-experiments were conducted in which stroke survivors' spouses implemented the training program across touch or limb position sensations. We found positive treatment effects in all cases. These findings indicate that selected surrogate therapists (spouses) can successfully implement a program of sensory retraining when provided 2 to 3 hours of training and supervision by a qualified therapist.

A Family Training Program for Adventitiously Blinded and Low Vision Veterans

1984 ◽  
Vol 78 (10) ◽  
pp. 473-478 ◽  
Author(s):  
Arlene Dumas ◽  
Alan D. Sadowsky
Keyword(s):  
Training Program ◽  
Exploratory Study ◽  
Marked Reduction ◽  
Interpersonal Relations ◽  
Low Vision ◽  
Family Members ◽  
Rehabilitation Center ◽  
Rehabilitation Process ◽  
The Family ◽  
Sight Loss

The family training program at the Western Blind Rehabilitation Center is an integral part of the rehabilitation process for adventitiously blinded and low vision adults. An exploratory study was conducted to assess which aspects of the training were most outstanding and to inquire how the program affected interpersonal relations and attitudes towards sight loss. Results showed a marked reduction in stated problems immediately after the training and over a three-and-a-half-year period of time. The study demonstrates similar benefits for older family members, those receiving shortened programs, and those who have been living with sight loss for many years.

The role and function of family caring for family members with chronic disease in medan

2021 ◽  
Author(s):  
Cholina Trisa Siregar ◽  
Siti Zahara Nasution ◽  
Reni Asmara Ariga ◽  
Lufthiani ◽  
Dudut Tanjung ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Family Members ◽  
And Function ◽  
Role And Function ◽  
Family Caring

scholarly journals Design of Mechanism and Preliminary Field Validation of Low-Cost Transfemoral Rotator for Use in the Developing World

2016 ◽  
Author(s):  
Matthew L. Cavuto ◽  
Matthew Chun ◽  
Nora Kelsall ◽  
Karl Baranov ◽  
Keriann Durgin ◽  
...  
Keyword(s):  
Developing World ◽  
Low Cost ◽  
Field Studies ◽  
Field Validation ◽  
User Testing ◽  
Common Solution ◽  
Locking Mechanism ◽  
Medial Rotation ◽  
Transfemoral Amputees ◽  
And Function

Transfemoral (above-knee) amputees face a unique and challenging set of restrictions to movement and function. Most notably, they are unable to medially rotate their lower-leg and subsequently cross their legs. The best and most common solution to this issue today is a transfemoral rotator, which allows medial rotation of the leg distal to the knee through a lockable turntable mechanism. However, currently available transfemoral rotators can cost thousands of dollars, and few equivalent technologies exist in the developing world. This paper, supported by the results of field studies and user testing, establishes a framework for the design of a low-cost and easily manufacturable transfemoral rotator for use in the developing world. Two prototypes are presented, each with a unique internal locking mechanism and form. A preliminary field study was conducted on six transfemoral amputees in India and qualitative user and prosthetist feedback was collected. Both prototypes successfully allowed all subjects to complete tasks such as crossing legs, putting on pants, and tying shoes while maintaining functionality of walking and standing. Future iterations of the mechanism will be guided by a combination of the most positively received features of the prototypes and general feedback suggestions from the users.

Abstract 87: Assessment of Stroke Caregiver Readiness: A Primary Prevention Strategy

Stroke ◽  
2012 ◽  
Vol 43 (suppl_1) ◽  
Author(s):  
Barbara J Lutz ◽  
Mary Ellen Young
Keyword(s):  
Primary Prevention ◽  
Family Caregivers ◽  
Family Members ◽  
Inpatient Rehabilitation ◽  
Stroke Survivors ◽  
Post Discharge ◽  
Readiness Assessment ◽  
Increased Risk ◽  
Transition Home

Introduction: More than 3.5 million family caregivers provide assistance with activities and instrumental activities of daily living for stroke survivors living at home. Studies consistently indicate that stroke family caregivers are inadequately assessed and under prepared for their new caregiver roles and responsibilities as stroke survivors transition home from inpatient rehabilitation. Several tools exist to assess caregivers once they have assumed the caregiving role, however, there are no tools assess stroke caregiver readiness prior to discharge. Research has indicated the need for a thorough and systematic pre-discharge assessment of the caregiver’s ability to assume the caregiving role. The purpose of this presentation is to describe ten critical stroke caregiver readiness assessment domains and to discuss their relevance for long-term outcomes for stroke survivors and family caregivers. Methods: In this grounded theory study, data were collected from19 persons with stroke and 19 family caregivers. Semi-structured interviews were conducted during inpatient rehabilitation and within 6 months post-discharge. First interviews focused on expectations for recovery and caregiving needs post-discharge. Follow-up interviews focused on how families managed the transition from rehabilitation to home and how their initial expectations matched the reality of their post-discharge experience. Interviews were analyzed using dimensional analysis and coded in NVivo data management software. Findings: Participants indicated that stroke was an overwhelming, life changing crisis event. Family members felt abandoned, isolated, and under prepared to assume the fulltime caregiving role as stroke survivors transitioned home. They described using ineffective or risky caregiving strategies that resulted in safety and health issues for both stroke survivors and caregivers. Ten pre-discharge caregiver readiness assessment domains were identified in the interviews and a corresponding stroke caregiver readiness assessment interview guide was developed. Conclusion: Stroke survivors and family caregivers are extremely vulnerable as they transition home from inpatient rehabilitation leaving them at risk for poorer health, depression, and increased risk for injury. In order to prevent these deleterious outcomes, caregivers should be assessed, and potential areas of risk identified and addressed prior to discharge from inpatient rehabilitation. As new interventions are developed to improve survival rates for persons with stroke, we must also develop and implement primary prevention strategies for family members who are called upon to provide care following discharge to protect their health and improve the long-term recovery outcomes for the stroke survivor.

scholarly journals Estrogen-related Receptor β (ERRβ) – Renaissance Receptor or Receptor Renaissance?

2016 ◽  
Vol 14 (1) ◽  
pp. nrs.14002 ◽  
Author(s):  
Shailaja D. Divekar ◽  
Deanna M. Tiek ◽  
Aileen Fernandez ◽  
Rebecca B. Riggins
Keyword(s):  
Alternative Splicing ◽  
Nuclear Receptor ◽  
Family Members ◽  
Structure And Function ◽  
The Other ◽  
Orphan Nuclear Receptor ◽  
Nuclear Receptor Superfamily ◽  
And Function ◽  
The Impact ◽  
Estrogen Related Receptor

Estrogen-related receptors (ERRs) are founding members of the orphan nuclear receptor (ONR) subgroup of the nuclear receptor superfamily. Twenty-seven years of study have yet to identify cognate ligands for the ERRs, though they have firmly placed ERRα (ESRRA) and ERRγ (ESRRG) at the intersection of cellular metabolism and oncogenesis. The pace of discovery for novel functions of ERRβ (ESRRB), however, has until recently been somewhat slower than that of its family members. ERRβ has also been largely ignored in summaries and perspectives of the ONR literature. Here, we provide an overview of established and emerging knowledge of ERRβ in mouse, man, and other species, highlighting unique aspects of ERRβ biology that set it apart from the other two estrogen-related receptors, with a focus on the impact of alternative splicing on the structure and function of this receptor.

scholarly journals “Swinging Pendulum”: Lives of Family Members Caring for A Dying Relative

2019 ◽  
Author(s):  
Robert Sumaguingsing ◽  
Rudolf Cymorr Kirby Palogan Martinez
Keyword(s):  
Health Care Providers ◽  
Family Members ◽  
Spiritual Support ◽  
Care Providers ◽  
Interpretive Phenomenology ◽  
Home Setting ◽  
Face To Face ◽  
Van Manen ◽  
Informal Carers ◽  
The Individual

Among cultures which place emphasis on the centrality of family in ones lives, the care for the dying patient is more often than not delegated on family members. Given this context, it is interesting to note that few research have been done on the experiences of these individuals who provide care to their dying relatives. This research aims to understand the lives of these informal carers as they provide care to their dying relatives. After securing clearance from an IRB, seven (5) informants, deemed as coresearchers, were recruited and agreed to participate in this study. The co-researchers where selected based on a pre-set criteria and the number were reached based on theoretical saturation. Multiple individual in-depth face-to-face interviews were done to create the individual narratives which was later reflectively analysed. Interpretive phenomenology as espoused by van Manen served as the philosophical underpinning of the study. Consequently, the proposed analytic technique of van Manen was utilized as the process of reflective analysis. After the process of reflective analysis, three (3) themes were gathered, namely: Ambivalence in anticipation, Courage in uncertainty, Meaning in suffering. These themes represent for the co-researchers their lives as they care for their dying relatives. Further, these themes reflects for the co-researchers a phenomenon of living moment-to-moment, unsure of what tomorrow will bring, patiently waiting for their relative to cross over. For them, there seems to be a constant struggle of finding a reason for being and a sense of what has happened, what is happening and what could happen to their dying relative and their family after their death. This essence can be symbolically represented by a swinging pendulum, constantly in motion trying to situate ambivalence in their anticipation, looking for courage amidst uncertainty and finding formeaning in their experience of suffering. The insights suggest that there is a need for constant dialogue among family members and health care providers as they assumed the role of primary caregivers. Further continued emotional, moral and spiritual support is implied during this transition as well as follow-ups when the families are at the home setting.

Predictors of carer distress following stroke

1999 ◽  
Vol 9 (3) ◽  
pp. 265-271 ◽  
Author(s):  
Valerie Morrison
Keyword(s):  
Depressed Mood ◽  
Social Care ◽  
Stroke Survivors ◽  
Care Provision ◽  
Health And Social Care ◽  
Informal Carers ◽  
The Impact ◽  
The Relationship

Whilst there is a considerable literature surrounding predictors of depressed mood in stroke survivors, much less research has been directed towards identifying the impact of a stroke on primary informal carers and the nature of the relationship between patient and carer characteristics, stroke consequences and carer distress. This review attempts to elucidate such relationships so that implications for health and social care provision can be drawn.

Multi-Modal Diagnostics for Vehicle Fault Detection

2001 ◽  
Author(s):  
Matthew L. Schwall ◽  
J. Christian Gerdes
Keyword(s):  
Bayesian Network ◽  
Low Cost ◽  
Diagnostic System ◽  
Cost Models ◽  
Diagnostic Systems ◽  
Computationally Efficient ◽  
Analytical Redundancy ◽  
Hardware Costs ◽  
And Function ◽  
Viable Model

Abstract On-board vehicle diagnostic systems must have low development and hardware costs in order to be viable. Model-based methods have shown promise since they use analytical redundancy to reduce costly physical redundancy. However, these methods must also be computationally efficient and function accurately even with simple, low-cost models. The approach presented in this paper uses multiple simple models to analyze dissimilar observable modes of a system. Residuals generated using the models are related and interpreted in a Bayesian network to determine fault probabilities and yield a diagnosis. The technique is demonstrated with a diagnostic system for automobile handling.

Connective Memories

2021 ◽  
pp. 109-134
Author(s):  
Kathleen E. Jenkins
Keyword(s):  
Family Relationships ◽  
Group Identity ◽  
Family Members ◽  
Family Group ◽  
Emotional Energy ◽  
Emotional Memories ◽  
Spiritual Intimacy ◽  
Return Home ◽  
And Function

This chapter illustrates how families constructed recollections of spiritual intimacy that had the potential to shape new experiences of intimacy upon their return home. Drawing from Randall Collins’s work on the character and function of the emotional energy at work in ritual life, it discusses the emotional weight of ritual memories, symbolic recollections of Camino spiritual intimacy that had the potential to change family relationships and identity. It describes three types of connective memories family members talked about as significant: quiet memories (stories and sensory memories that are generally more private and shared only with intimate others), digital memories (photographs and other media forms of constructed memory), and material memories (printed photographs, symbolic objects such as jewelry, a pilgrim’s stamped credentials, and Camino tattoos). The chapter also discusses distancing memories, negative ritual emotional memories with the potential to sever feelings of family/group identity and solidarity with others and nature.

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