Alzheimer-Erkrankungen, Autonomie und zwei Paradigmen der Pflegeethik

2018 ◽  
Vol 66 (1) ◽  
pp. 75-86
Author(s):  
Klaus-Peter Rippe
Keyword(s):  
Thought Experiment ◽  
Family Members ◽  
Best Interests ◽  
Capacity To Consent ◽  
Care Givers ◽  
Professional Care

Abstract Family members and professional care-givers are often confronted with challenging and self-destructive behaviours of people suffering from dementia, and it is not clear at all if these situations should be regulated by principles of autonomy or by principles of care, which consider the best interests of the patients. With reference to a thought experiment, this paper argues that it is not possible to control these situations by implementing principles of autonomy. Instead, while taking into account the patients’ capacity to consent, it is better to apply principles of care in challenging situations.

scholarly journals A qualitative investigation of the psychosocial services utilised by care-givers of patients with Alzheimer's disease and related dementias in southwestern Uganda

2021 ◽  
pp. 1-14
Author(s):  
Catherine Abaasa ◽  
Celestino Obua ◽  
Edith K. Wakida ◽  
Godfrey Zari Rukundo
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Medical Care ◽  
Family Members ◽  
Medical Care System ◽  
Psychosocial Services ◽  
Care Givers ◽  
Care Giving ◽  
Southwestern Uganda ◽  
Care System

Abstract Individuals with Alzheimer's disease and related dementias often require substantial support from other people. Much of the care-giving is from family members who eventually experience physical, emotional and financial stress, depression and fatigue. In Uganda, families are a cornerstone in providing care to individuals with dementia. However, little is known about the psychosocial supports available to the care-givers in their care-giving role. We assessed the psychosocial supports available to care-givers of individuals with Alzheimer's disease and related dementias in southwestern Uganda. We conducted 34 in-depth interviews at three referral hospitals at which care-givers identified by the treating clinicians were approached for informed consent. The interviews were conducted until thematic saturation was reached, and the interviews were translated and transcribed. Thematic content analysis was used to analyse the data. Care-giver supports were structured into two major themes: medical supports utilised and supports beyond the medical care system. Medical supports highlighted information provided by medical professionals. Supports beyond the medical care system included emotional and instrumental supports provided by religious leaders, the local communities and family members. Care-givers for individuals with dementia in southwestern Uganda receive educational support from medical practitioners, and unstructured emotional and instrumental supports from the family and community.

scholarly journals Why Early Diagnosis Is Better for Alzheimer’s Patients

2009 ◽  
Vol 4 (1) ◽  
pp. 10
Author(s):  
Thierry Voisin ◽  
Sandrine Sourdet ◽  
Julien Delrieu ◽  
Bruno Vellas ◽  
◽  
...  
Keyword(s):  
Quality Of Life ◽  
General Practitioner ◽  
Cognitive Function ◽  
Early Diagnosis ◽  
Family Members ◽  
Special Role ◽  
Significant Deterioration ◽  
Common Cause ◽  
Care Givers

Alzheimer’s disease (AD) is the most common cause of dementia. AD progression leads to a significant deterioration in cognitive function, resulting in a significant impact not only on patient quality of life but also on the quality of life of family members/care-givers. Some physicians do not feel that diagnosing AD is necessary due to the absence of any cure and the stress related to diagnosis. Nevertheless, it is important to diagnose AD as early as possible. Early diagnosis of AD allows the patient to be more involved in treatment planning, since at this stage the patient’s cognitive function will be near normal. Many forms of the disease do not progress rapidly, and early diagnosis and treatment will allow a good quality of life for the patient, family members and care-givers. The general practitioner has a special role in detecting and following up patients diagnosed with AD.

Elder Abuse and Consent Capacity

2018 ◽  
pp. 207-221 ◽  
Author(s):  
Vaitsa Giannouli
Keyword(s):  
Elder Abuse ◽  
Empirical Studies ◽  
Family Members ◽  
Prevention Programs ◽  
Small Scale ◽  
Sexual Relations ◽  
Future Directions ◽  
Capacity To Consent ◽  
Greek Society ◽  
Knowledge And Attitudes

This chapter explores the findings of theoretical and empirical studies for the complicated construct of capacity to consent to sexual relations in elders. This is alongside an attempt to clarify through small-scale research, the knowledge and attitudes towards consent capacity as reported by elders themselves. Results indicate that Greek respondents are not fully informed about consent capacity and approach this topic as a taboo. Moreover, they believe that the Greek society and state do not provide adequate prevention programs. Future directions on how to make elders and their family members aware of consent capacity problems are discussed.

4. Consent to Treatment

2018 ◽  
Author(s):  
Jonathan Herring
Keyword(s):  
Mental Capacity ◽  
Best Interests ◽  
Living Wills ◽  
Ethical Aspects ◽  
Capacity To Consent ◽  
Delicate Balance ◽  
Mental Capacity Act 2005 ◽  
Consent To Treatment ◽  
Advance Decisions ◽  
Mental Capacity Act

This chapter examines the legal and ethical aspects of treating a patient without consent. It considers the meaning of ‘consent’ and the position of patients who lack the capacity to consent. For children who lack capacity, consent involves a delicate balance between the rights of the children and those of their parents. For adults lacking capacity, the Mental Capacity Act 2005 has emphasized the ‘best interests’ test, but has largely left open the question of how a person’s best interests are to be ascertained. The chapter also considers what weight should be attached to advance decisions (sometimes called living wills).

scholarly journals The Experience of Do-Not-Resuscitate Orders and End-of-Life Care Discussions among Physicians

2020 ◽  
Vol 17 (18) ◽  
pp. 6869
Author(s):  
Sheng-Yu Fan ◽  
Jyh-Gang Hsieh
Keyword(s):  
End Of Life ◽  
Hospice Care ◽  
Family Members ◽  
Multiple Roles ◽  
Best Interests ◽  
Do Not Resuscitate ◽  
Time Urgency ◽  
Care Surgery ◽  
Eol Care ◽  
Analyze Data

Physicians have a responsibility to discuss do-not-resuscitate (DNR) decisions and end-of-life (EOL) care with patients and family members. The aim of this study was to explore the DNR and EOL care discussion experience among physicians in Taiwan. A qualitative study was conducted with 16 physicians recruited from the departments of hospice care, surgery, internal medicine, emergency, and the intensive care unit. The interview guidelines included their DNR experience and process and EOL care discussions, as well as their concerns, difficulties, or worries in discussions. Thematic analysis was used to analyze data. Four themes were identified. First, family members had multiple roles in the decision process. Second, the characteristics of the units, including time urgency and relationships with patients and family members, influenced physicians’ work. Third, the process included preparation, exploration, information delivery, barrier solution, and execution. Fourth, physicians shared reflections on their ability and the conflicts between law, medical professionals, and the best interests of patients. Physicians must consider not only patients’ but also family members’ opinions and surmount several barriers in decision-making. They also experienced negative and positive impacts from these discussions.

Body work and later-life care in Turkey: a qualitative study of paid and unpaid carers of older people

2019 ◽  
Vol 40 (10) ◽  
pp. 2106-2127
Author(s):  
Yelda Özen
Keyword(s):  
Family Care ◽  
Later Life ◽  
Care Work ◽  
Ageing Population ◽  
Life Care ◽  
Unpaid Care ◽  
Care Givers ◽  
Private And Public ◽  
Professional Care ◽  
Home Space

AbstractThe ageing population of Turkey has brought later-life care into question. Family care remains most prevalent, but institutional, paid and professional care are increasing. Literature in Turkey has focused on the medical or social policy aspects but not care-givers’ experiences, nor how the care is performed. This study aims to illuminate care-givers’ experiences using qualitative methods, through in-depth interviews in Ankara with 19 care-givers providing home care for people aged 65 and over. Commonalities and differences were revealed among unpaid family care-givers, paid care-givers and professional care-givers. First, whether paid or unpaid, the bodily and emotional aspects of care work are intertwined. To cope with the ‘negativities’ involved in the work, nurses usually medicalised bodily tasks, unpaid care-givers cited traditional responsibilities and employed infantilisation, while paid care-givers mostly informalised the relationship, infantilised the person cared for and underlined their asexuality. Secondly, care work is gendered; silenced, invisible and ambivalent; related to intimacy with older bodies; and performed in the home space, which blurs the distinction between the private and public field for paid care. Finally, it involves emotional work regarding managing the bodily aspects and navigating the relationships surrounding the older person; and it is labour-intensive with an exploitative character.

Assistance from Family Members, Friends, Paid Care Givers, and Volunteers in the Care of Terminally Ill Patients

1999 ◽  
Vol 341 (13) ◽  
pp. 956-963 ◽  
Author(s):  
Ezekiel J. Emanuel ◽  
Diane L. Fairclough ◽  
Julia Slutsman ◽  
Hillel Alpert ◽  
DeWitt Baldwin ◽  
...  
Keyword(s):  
Family Members ◽  
Terminally Ill ◽  
Terminally Ill Patients ◽  
Care Givers

Coping strategies and social support-seeking behaviour among Chinese caring for older people with dementia

2012 ◽  
Vol 33 (8) ◽  
pp. 1422-1441 ◽  
Author(s):  
ALMA AU ◽  
STEVEN M. SHARDLOW ◽  
YUE TENG ◽  
TERESA TSIEN ◽  
CHARLES CHAN
Keyword(s):  
Hong Kong ◽  
Older People ◽  
Coping Strategies ◽  
Help Seeking ◽  
Family Members ◽  
Chinese Society ◽  
Family Obligations ◽  
Convenience Sample ◽  
Care Givers ◽  
Help Seeking Behaviour

ABSTRACTThe study reviewed coping and help-seeking behaviour among Hong Kong Chinese family care-givers of older people diagnosed with dementia. A convenience sample of those caring for family members with dementia (N=11) was recruited in Hong Kong. Semi-structured interviews were conducted, transcribed and analysed using NVivo. The study found evidence of distinct Chinese coping strategies that focused upon internal self-regulation, forbearance and family obligations. In terms of help-seeking behaviour, these care-givers expressed great concern about bothering their family members. When there is a desperate need for help, they turn to community services. Results are discussed in the context of both traditional Chinese cultural values as well as the modern transformations of the Chinese society. In particular, Eastern philosophical teachings tend to focus on changing personal inner perception and thoughts rather than attempting to change the environment. Although family obligations have been traditionally upheld, many modern Chinese societies are undergoing social and demographic changes, resulting in marked decline in multi-generational households. Our findings can have applications not only for Chinese cities but also may have implications to the West as strong well-established Chinese communities are widespread.

Sign in / Sign up

Export Citation Format

Share Document