Death of a Child at Home or in the Hospital: Subsequent Psychological Adjustment of the Family

PEDIATRICS ◽  
1983 ◽  
Vol 71 (5) ◽  
pp. 743-747
Author(s):  
Raymond K. Mulhern ◽  
Mary E. Lauer ◽  
Raymond G. Hoffmann

Twenty-four families who had participated in a Home Care Program for children terminally ill with cancer and 13 families of similar children who had died in the hospital completed inventories on parent and sibling personality as well as family functioning three to 29 months after the child's death. Parents of patients who received terminal care in the hospital were more anxious, depressed, and defensive and had greater tendencies toward somatic and interpersonal problems than parents of patients in the Home Care Program. Siblings of patients who received terminal care in the hospital were more emotionally inhibited, withdrawn, and fearful than their counterparts in the Home Care Program. Although some group differences in parental personality may have antedated terminal care, these results confirm parental reports of more adequate family adjustment following participation in a structured Home Care Program.

PEDIATRICS ◽  
1967 ◽  
Vol 40 (3) ◽  
pp. 504-507

DR. RICHARD OLMSTED: I would like to ask both Dr. Green and Dr. Friedman about the matter of the child being in the hospital as opposed to being at home. What effect does this have on the child, and, conversely perhaps, what effect does it have on the parents who are keeping a child who may be close to being terminal at home? Very often we adopt the philosophy that it is better for the child to be at home, but I am sure this creates difficulties for parents at times. DR. Morris Green: We usually assume in this country that terminal care can best be handled in the hospital; however, in recent years we have questioned this concept, and now we like to have as much of this care occur at home as is practicable. In order to do this effectively, however, we should provide the family with supportive services from the hospital, a type of home care program involving the physician, the social worker, and the nurse. With some of our recent patients the nurse has been present in the home at the time of death and has made visits frequently before that time. The hospital physician has also been there. We do not have sufficient data on this, but I think there are many things to be said in its favor. As we are now examining other aspects of hospital care of children, we should also examine this method of terminal care. Is it best for the child to be in the hospital at this time or can he be cared for better at home with supplementary services from the hospital? Certainly I think this is an area in which the personal physician of the family needs to have some support from the community oriented hospital.


1993 ◽  
Vol 9 (1) ◽  
pp. 5-13 ◽  
Author(s):  
Barbro Beck-Friis ◽  
Peter Strang

Eighty-seven next of kin, 80 spouses and seven adult children, were the primary caregivers of terminally ill patients (87% cancer patients) cared for at the hospital-based home care (HBHC) unit of Motala Hospital during 1989–1990. All of the patients died in their homes. Next of kin were asked to complete self-questionnaires and to give written comments on their experiences and their perception of how the patient had felt about 13 aspects of home care provided by the HBHC staff. The response rate was 94%. In nine out of 13 areas, such as adequate information at the time of referral about the HBHC, security, support, immediate extra help when needed, high quality of nursing, and care and pain control, 86%–97% of next of kin were very satisfied (7–9 on a 9-point scale); whereas information provided about the disease, economic support, and support given after death were very satisfactory according to 72%, 58%, and 80% of relatives, respectively. Gender and time from diagnosis to death did not seem to affect responses. Next of kin of cancer patients were generally more satisfied than next of kin of other terminally ill patients. A total time of care of more than 60 days (median time) was associated with significantly more positive responses. Older spouses were significantly more satisfied with the HBHC than younger ones; despite this, 99% of all next of kin would choose HBHC again in a similar situation. It is concluded that very satisfactory terminal home care can be achieved, but it presupposes effective, prompt support and symptom control, 24 hours per day, and that both patient and family wish to participate in the HBHC.


PEDIATRICS ◽  
1984 ◽  
Vol 73 (6) ◽  
pp. 845-853 ◽  
Author(s):  
Ruth E. K. Stein ◽  
Dorothy Jones Jessop

The ongoing care needed by children with chronic physical illness is a topic of national concern. The Pediatric Ambulatory Care Treatment Study (PACTS) is a classic pretest-posttest randomized experiment designed to evaluate a Pediatric Home Care (PHC) program in which an interdisciplinary team provides comprehensive primary health care, support, coordination, patient advocacy, and education to chronically ill children and their families. Home interviews were conducted by an independent research team with the 219 families at enrollment, 6 months, and 1 year; 80% completed all three interviews. Analyses indicate that pediatric home care is effective in improving the satisfaction of the family with care, in improving the child's psychological adjustment, and in lessening the psychiatric symptoms of the mother. The functional status of the children was equally well maintained in both groups, and there was no significant difference in the impact of the illness on the family between the two groups. There are indications that there may be a dose-related effect with respect to the child's psychological adjustment with those in the program for the longest period of time showing the greatest benefit. Such a home care program can be an effective intervention for minimizing the social and psychological consequences of chronic illness.


PEDIATRICS ◽  
1983 ◽  
Vol 71 (1) ◽  
pp. 107-112 ◽  
Author(s):  
Mary E. Lauer ◽  
Raymond K. Mulhern ◽  
Joyce M. Wallskog ◽  
Bruce M. Camitta

Mothers and fathers of 37 deceased pediatric oncology patients were interviewed 3 to 28 months after their child's death. Twenty-four of these families had participated in a formal Home Care Program for dying children, whereas the remaining 13 families had children who died in the hospital. Parental adaptation following the home care experience appeared to be more favorable than following terminal care and death in the hospital. Specifically, the parents who had cared for their terminally ill child at home displayed more positive adjustment patterns as indexed by their perception of how the child's death had affected their marriage, social reorientation, religious beliefs, and views on the meaning of life and death. Ratings given by parents providing home care indicated a significant reduction in guilt during the home care experience which was maintained at 6 and 12 months following the child's death. In contrast, parents who did not provide home care reported intensified feelings of guilt during their child's terminal hospitalization which were unresolved at one year after the child's death. The results are discussed in terms of the practical and emotional benefits that may be derived from a family's voluntary choice of home care for dying children.


Author(s):  
Maria Galogavrou ◽  
Elpis Hatziagorou ◽  
Petrina Vantsi ◽  
Ilketra Toulia ◽  
Elisavet-Anna Chrysochoou ◽  
...  

1966 ◽  
Vol 11 (4) ◽  
pp. 314-323
Author(s):  
H. Langevin ◽  
J. N. Fortin ◽  
F. Léonard

This paper describes the activities of a home treatment program for psychiatric patients. In 1962 the Canadian Mental Health Association, Quebec Division, awarded a grant to the Notre-Dame Hospital for the establishment of a Home-Care Program and Emergency Psychiatric Service. To demonstrate the type of patient admitted to this newly established service and the results obtained, special records were compiled for 69 patients for the purpose of a study. All patients were admitted at random to the investigation and all received thioridazine, the drug employed by the service because of its reported margin of safety. Diagnostically, the patient population can be grouped into four separate categories: a) Schizophrenic reaction 38 patients b) Depressive reaction 20 patients c) Anxiety reaction 6 patients d) Character disorder 5 patients Total 69 patients The dosage range of thioridazine varied from 10 mg. t.i.d. to 200 mg. t.i.d. depending upon the severity of the symptoms with a mean average of 25 to 50 mg. A beneficial effect was noted in 74% of the patients. The data presented describing the cooperation of the patients and their environment towards treatment of the psychiatric disorder, clearly demonstrate that the treatment prescribed had to overcome many difficulties. Most patients were unco-operative and there was also strong resistance towards the treatment of the patient by his family. In conclusion, the therapeutic results are gratifying. This is especially so in view of the majority of the patients who were not co-operative or severely ill who would never have obtained a psychiatric consultation were it not for the Home-Care Psychiatric Service. The lack of serious side effects and therapeutic effectiveness of thioridazine observed during this trial contributed to the improvement of the patient population. Many questions should be raised concerning home treatment or house call by psychiatrists. The experience of the service can be termed a research experiment by only the broadest interpretation. The most important appear evident in our concluding observations: 1) Home treatment could reach a large segment of people who otherwise would not receive treatment and are in need of it. 2) The co-operation and motivation of the patient is not necessarily a pre-requisite for treatment as it was previously believed. 3) The use of auxiliary services, social agencies and drug therapy facilitate the treatment. 4) A better understanding of the institution—the family, will be required in the near future. The meaning of the coined words ‘family crisis’ is still esoteric and should be defined according to scientific measurable standards. The psychiatrist, in order to proceed with the treatment depends on the family and must allow the family to depend on him, with the implication that he must do certain things according to the way of the family. An acute situation resulting either in a psychotic breakdown and/or emergency call must be understood as a communication between the patient and the ‘milieu’. The crisis provoked is a message of the distress of the patient, which means despite the negativistic facade that the patient wished to be helped. It has also been our experience that the family resorts to the service with the concealed desire to have a witness to their situation. The psychiatrist then becomes the ‘pacifier’ by only his presence, whether he takes a direct active role or not. Repeated crises have appeared to us as a means to solve difficult problems in front of a passive outsider — thus the family dynamics were operative towards seeking a solution and integrative measures. In other words, if an individual demands attention the same can be said for a family, which explains many additional visits required in certain cases. 5) The role and change in the therapist as a result of the home visit will ensue. It is quite clear that the fact of the role reversal, that the patient is the host and the psychiatrist the visitor, unlike the situation in the office, places the onus and burden on the psychiatrist. The use of manipulation which then becomes a social prescription can be attained if only communication is established between the family and the psychiatrist. In many instances various members of the team are better suited for the initial visit at the onset of treatment be it a nurse, a social worker, or a doctor. The establishment of a therapeutic alliance should be the major objective but additional knowledge must be gained before principles are clearly outlined in this area.


2013 ◽  
Author(s):  
Els Rutten ◽  
Dashty Husein ◽  
Pascale Abrams ◽  
Linsey Winne ◽  
Els Feyen ◽  
...  

1951 ◽  
Vol 51 (4) ◽  
pp. 233 ◽  
Author(s):  
John D. Thompson

Author(s):  
Lynda S. Robson ◽  
Charlene Bain ◽  
Shann Beck ◽  
Suzanne Guthrie ◽  
Peter C. Coyte ◽  
...  

ABSTRACT:Background:Intravenous methylprednisolone (IVMP) is the treatment of choice for multiple sclerosis (MS) patients undergoing acute exacerbation of disease symptoms and yet its cost has not been accurately determined. Determination of this cost in different settings is also pertinent to consideration of cost-saving alternatives to in-patient treatment.Methods:Cost analysis from the point of view of the health care system of IVMP treatment of MS patients receiving treatment in association with a selected Toronto teaching hospital in fiscal year 1994/95 was carried out. Costs of any concurrent treatments were excluded.Results:Total cost for 92 patients, based on a 4 dose regime, was estimated to be $78,527. The the cost per patient was $1,1181.84 for in-patients (IP), $714.64 for out-patients of the MS Clinic (OP) and $774.21 for patients whose treatment was initiated in the Clinic, but completed in the home (HC). Sensitivity analyses indicated: 1) IP treatment was in all cases more expensive than that of OP or HC; 2) the cost savings of OP vs. HC was sensitive to assumptions made regarding Clinic overhead, Clinic nursing costs and Home Care Program overhead.Conclusion:Alternatives to in-patient care must be considered carefully. In this study, both out-patient and in-home treatment were cost-saving alternatives to in-patient treatment, but large differences in the cost of hospital out-patient vs. in-home care could not be demonstrated.


1993 ◽  
Vol &NA; (918) ◽  
pp. 6
Author(s):  
&NA;
Keyword(s):  

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