scholarly journals Resilience of caregivers of people with dementia: a systematic review of biological and psychosocial determinants

2015 ◽  
Vol 37 (1) ◽  
pp. 12-19 ◽  
Author(s):  
Rachel Dias ◽  
Raquel Luiza Santos ◽  
Maria Fernanda Barroso de Sousa ◽  
Marcela Moreira Lima Nogueira ◽  
Bianca Torres ◽  
...  
Keyword(s):  
Social Support ◽  
Perceived Control ◽  
Well Being ◽  
Positive Adaptation ◽  
Factors Associated ◽  
Search Terms ◽  
People With Dementia ◽  
Positive Feelings ◽  
Definition Of ◽  
Mental Overload

Introduction: Although caregivers of people with dementia may face difficulties, some positive feelings of caregiving may be associated with resilience.Objective: This study systematically reviewed the definitions, methodological approaches and determinant models associated with resilience among caregivers of people with dementia.Methods: Search for articles published between 2003 and 2014 in ISI, PubMed/MEDLINE, SciELO and Lilacs using the search terms resilience, caregivers and dementia.Results and conclusions: Resilience has been defined as positive adaptation to face adversity, flexibility, psychological well-being, strength, healthy life, burden, social network and satisfaction with social support. No consensus was found about the definition of resilience associated with dementia. We classified the determinant variables into biological, psychological and social models. Higher levels of resilience were associated with lower depression rates and greater physical health. Other biological factors associated with higher levels of resilience were older age, African-American ethnicity and female sex. Lower burden, stress, neuroticism and perceived control were the main psychological factors associated with resilience. Social support was a moderating factor of resilience, and different types of support seemed to relieve the physical and mental overload caused by stress.

scholarly journals Attractions to Fuel the Imagination: Reframing Understandings of the Role of Distraction Relative to Well-Being in the Pediatric Hospital

2018 ◽  
Vol 12 (2) ◽  
pp. 130-146 ◽  
Author(s):  
Rebecca McLaughlan ◽  
Ahmed Sadek ◽  
Julie Willis
Keyword(s):  
Well Being ◽  
Hospital Staff ◽  
Hospital Environment ◽  
Photo Elicitation ◽  
Pediatric Hospital ◽  
Waiting Room ◽  
Positive Feelings ◽  
Definition Of ◽  
Patient Resistance ◽  
Outpatient Appointments

Objective: Ulrich’s (1991) definition of “positive distraction” includes that which “elicits positive feelings and holds attention,” implying that the capacity of an environmental feature to hold attention is a necessary component. This article examines whether, in the context of a pediatric hospital, a distraction needs to “hold attention” to secure positive benefits for patient well-being. Background: Data collected from 246 patients at Melbourne’s Royal Children’s Hospital (Australia) revealed a discrepancy between what children and young people told us they did, and valued, within the hospital, relative to the time they spent engaging in, or paying attention to, these same features. This motivated a closer interrogation of the relationship between well-being, distraction, and socialization within the pediatric context. Method: Data were collected using a mixed-methods approach that included 178 surveys, 43 drawings contributed by patients/siblings within the outpatient waiting room, 25 photo-elicitation interviews with patients, and 100 hr of spatial observations within public and waiting room spaces. This was supplemented by interviews with architects and hospital staff. Conclusions: The mechanism by which we have understood positive distraction to contribute to well-being within the pediatric hospital environment is more complex than existing models accept. Within this context, environmental features that can positively transform expectations of visiting the hospital—that can ignite the imagination and incite a desire to return—can offer significant benefits to well-being. This is particularly relevant in the context of absenteeism from outpatient appointments and in reducing patient resistance to future, or ongoing, treatments.

scholarly journals Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia

2018 ◽  
Vol 48 (13) ◽  
pp. 2130-2139 ◽  
Author(s):  
Anthony Martyr ◽  
Sharon M. Nelis ◽  
Catherine Quinn ◽  
Yu-Tzu Wu ◽  
Ruth A. Lamont ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Life Satisfaction ◽  
Social Engagement ◽  
Meta Analysis ◽  
Well Being ◽  
Factors Associated ◽  
Living Well ◽  
People With Dementia

AbstractCurrent policy emphasises the importance of ‘living well’ with dementia, but there has been no comprehensive synthesis of the factors related to quality of life (QoL), subjective well-being or life satisfaction in people with dementia. We examined the available evidence in a systematic review and meta-analysis. We searched electronic databases until 7 January 2016 for observational studies investigating factors associated with QoL, well-being and life satisfaction in people with dementia. Articles had to provide quantitative data and include ⩾75% people with dementia of any type or severity. We included 198 QoL studies taken from 272 articles in the meta-analysis. The analysis focused on 43 factors with sufficient data, relating to 37639 people with dementia. Generally, these factors were significantly associated with QoL, but effect sizes were often small (0.1–0.29) or negligible (<0.09). Factors reflecting relationships, social engagement and functional ability were associated with better QoL. Factors indicative of poorer physical and mental health (including depression and other neuropsychiatric symptoms) and poorer carer well-being were associated with poorer QoL. Longitudinal evidence about predictors of QoL was limited. There was a considerable between-study heterogeneity. The pattern of numerous predominantly small associations with QoL suggests a need to reconsider approaches to understanding and assessing living well with dementia.

scholarly journals Factors Associated to Positive Aspects in Caregiving for People Living with Dementia in Family Caregivers

2021 ◽  
Vol 4 (2) ◽  
pp. 149
Author(s):  
Dian Pratiwi ◽  
Retno Indarwati ◽  
Rr. Dian Tristiana
Keyword(s):  
Social Support ◽  
Filial Piety ◽  
Education Level ◽  
Care Recipient ◽  
Negative Effects ◽  
Factors Associated ◽  
People With Dementia ◽  
Positive Aspects Of Caregiving ◽  
Negative Impacts ◽  
And Gender

Caring for People with Dementia (PwD) has various negative effects that are detrimental to caregivers. The existence of Positive Aspects of Caregiving (PAC) makes the experience of caring for PwD more positive, valuable and protects caregivers from various negative impacts while caring for PwD. This study aims to explain the factors associated with PAC. These literature reviews were accessed from six databases (Scopus, CINAHL, Science Direct, ProQuest, PubMed, and SAGE Journal), with the keywords factor, positive aspects of caregiving, Dementia/ Alzheimer’s, during January 2021, limited to 2016-2020, and in English. A total of 318 journals were selected using PRISMA, then leaving 16 journals to be analyzed using The Joanna Briggs Institution Checklist. Sixteen journals were analyzed and divided into two themes, factors that affect PAC (n = 9) and factors affected by PAC (n = 7). Factors that affect PAC are caregiver characteristics, care-recipient characteristics, and social support. Factors affected by PAC are caregiving outcomes. Factors that increase PAC are lower education level, good social support, severe BPSD, shorter duration of care, and relationship with care-recipient (except spouse), and gender (male). The mediating factors that increase PAC are unmet needs and reciprocal filial piety. Factors that lower PAC are higher education level, the use of avoidance coping, and older age. We found inconsistencies in caregiver marital status and relationship with care-recipient because the finding still uncertain.

scholarly journals Scoping Review: The Trajectory of Recovery of Participation Outcomes following Stroke

2018 ◽  
Vol 2018 ◽  
pp. 1-22 ◽  
Author(s):  
Batya Engel-Yeger ◽  
Tamara Tse ◽  
Naomi Josman ◽  
Carolyn Baum ◽  
Leeanne M. Carey
Keyword(s):  
Scoping Review ◽  
Well Being ◽  
International Classification Of Functioning ◽  
Stroke Survivors ◽  
Ongoing Research ◽  
Meaningful Participation ◽  
Search Terms ◽  
Review Question ◽  
Definition Of

Participation is a central concept in health and well-being and healthcare, yet operationalizing this concept has been difficult. Its definition, uses in healthcare, and impacts on recovery require ongoing research. Our review question goes like this: from the longitudinal evidence investigating participation among stroke survivors, what are the patterns of participation recovery in stroke survivors over time, and what interventions are used to improve participation? To fully understand these questions, we also ask, how is participation defined in the stroke literature, and what are the measures of participation used in the stroke literature? A systematic scoping review was undertaken using the search terms “stroke,” “longitudinal,” “participation,” and “outcome” in seven databases. Articles included were published until April 2017, written in English, and had at least two longitudinal assessments of participation. Fifty-nine articles met the inclusion criteria. The International Classification of Functioning, Disability and Health was the most frequent definition of participation used (34%). There were 22 different measures of participation. Eight of ten studies demonstrated significant improvements in participation up to 12 months poststroke. Efficacy of interventions and their impact on participation varied. The various definitions, measures, and intervention efficacies of participation highlight the need for further research worldwide into achieving meaningful participation and quality of life among stroke survivors. Future practice should include participation as a main outcome measure.

scholarly journals Quality of Life and Well-being of Carers of People With Dementia: Are There Differences Between Working and Nonworking Carers? Results From the IDEAL Program

2020 ◽  
pp. 073346482091786
Author(s):  
Rachel Clarke ◽  
Nicolas Farina ◽  
Henglien Lisa Chen ◽  
Jennifer M. Rusted ◽  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Well Being ◽  
Relative Contribution ◽  
People With Dementia ◽  
Caregiver Experiences ◽  
Working Status ◽  
Supported Work ◽  
Severity Of Dementia

The aim of this study was to identify the differences in quality of life (QoL) and well-being between working and nonworking dementia carers and the relative contribution of psychological characteristics, caregiving experience, and social support. Multiple regressions modeled the contribution of working status, caregiver experiences, and psychological and social resources to carer QoL (EQ-5D) and well-being (WHO-5). After controlling for age, gender, carer–dyad relationship, and severity of dementia, working status contributed significant variance to EQ-5D (2%) but not to WHO-5 scores. Independent of working status, higher self-esteem and reduced stress contributed to variance in both models. Self-efficacy, social support, and positive perceptions of caregiving additionally contributed to higher WHO-5 scores. Working status associated with higher EQ-5D QoL; this may reflect the sustained sense of independence associated with supported work opportunities for carers. Outside of working status, the findings support the importance of psychological and social factors as targets to improved mental health for dementia carers.

scholarly journals Well-Being in Residency: A Systematic Review

2016 ◽  
Vol 8 (5) ◽  
pp. 674-684 ◽  
Author(s):  
Kristin S. Raj
Keyword(s):  
Well Being ◽  
Small Samples ◽  
Future Research ◽  
Cross Sectional ◽  
Social Relatedness ◽  
Factors Associated ◽  
Definition Of ◽  
And Coping ◽  
Quality Instrument ◽  
Time Away

ABSTRACT Background  Rates of physician burnout have increased in recent years, and high burnout levels are reported by physicians in training. Objective  This review of the research on resident well-being seeks to identify factors associated with well-being, summarize well-being promotion interventions, and provide a framework for future research efforts. Methods  Keywords were used to search PubMed, PsycINFO, and MEDLINE. Studies included were conducted between 1989 and 2014. The search yielded 82 articles, 26 which met inclusion criteria, and were assessed using the Medical Education Research Study Quality Instrument. Results  Articles measured resident well-being and associated factors, predictors, effects, barriers, as well as interventions to improve well-being. Factors identified in psychological well-being research—autonomy, building of competence, and strong social relatedness—are associated with resident well-being. Sleep and time away from work are associated with greater resident well-being. Perseverance is predictive of well-being, and greater well-being is associated with increased empathy. Interventions focused on health and coping skills appear to improve well-being, although the 3 studies that examined interventions were limited by small samples and single site administration. Conclusions  An important step in evolving research in this area entails the development of a clear definition of resident well-being and a scale for measuring the construct. The majority (n = 17, 65%) of existing studies are cross-sectional analyses of factors associated with well-being. The literature summarized in this review suggests future research should focus on factors identified in cross-sectional studies, including sleep, coping mechanisms, resident autonomy, building competence, and enhanced social relatedness.

scholarly journals Factors Associated With Social Isolation Among Older Adults: The Singapore Chinese Health Study

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 168-168
Author(s):  
Jon Barrenetxea ◽  
Yang Yi ◽  
Woon Puay Koh ◽  
Feng Qiushi
Keyword(s):  
Social Support ◽  
Older Adults ◽  
Cognitive Impairment ◽  
Social Isolation ◽  
Well Being ◽  
Population Based ◽  
Living Alone ◽  
Health Study ◽  
Factors Associated ◽  
Singapore Chinese

Abstract Social isolation is a determinant of mortality and well-being among older people. Factors associated with isolation could be different in societies where older adults live mainly with family, as individuals might feel isolated despite living with others. We studied the factors associated with isolation among 16,948 older adults from follow-up 3 of the Singapore Chinese Health Study, a population-based cohort of older Singapore Chinese (mean age of 73, range: 61-96 years). We defined social isolation as having “zero hour per week” of participation in social activities involving 3 or more people and scoring the lowest decile on the Duke Social Support Scale of perceived social support. We used multivariable logistic regressions to compute odds ratio (OR) and 95% confidence interval (CI) for factors associated with likelihood of social isolation. Although only 14.4% of isolated participants lived alone, living alone remained a significant factor associated with isolation (OR 1.93, 95% CI 1.58-2.35), together with cognitive impairment (OR 1.73, 95% CI 1.46-2.04) and depression (OR 2.44, 95% CI 2.12-2.80). Higher education level was inversely associated with isolation (p for trend&lt;0.001). In stratified analysis, among those living alone, compared to women, men had higher odds of social isolation (OR 2.18, 95% CI 1.43-3.32) than among those not living alone (OR 0.99, 95% CI 0.84-1.17) (p for interaction&lt;0.001). Our results showed that living alone, cognitive impairment and depression were indicators of isolation among older Singaporeans. In addition, among those living alone, men were more likely to experience social isolation than women.

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