scholarly journals Factors Associated to Positive Aspects in Caregiving for People Living with Dementia in Family Caregivers

2021 ◽  
Vol 4 (2) ◽  
pp. 149
Author(s):  
Dian Pratiwi ◽  
Retno Indarwati ◽  
Rr. Dian Tristiana
Keyword(s):  
Social Support ◽  
Filial Piety ◽  
Education Level ◽  
Care Recipient ◽  
Negative Effects ◽  
Factors Associated ◽  
People With Dementia ◽  
Positive Aspects Of Caregiving ◽  
Negative Impacts ◽  
And Gender

Caring for People with Dementia (PwD) has various negative effects that are detrimental to caregivers. The existence of Positive Aspects of Caregiving (PAC) makes the experience of caring for PwD more positive, valuable and protects caregivers from various negative impacts while caring for PwD. This study aims to explain the factors associated with PAC. These literature reviews were accessed from six databases (Scopus, CINAHL, Science Direct, ProQuest, PubMed, and SAGE Journal), with the keywords factor, positive aspects of caregiving, Dementia/ Alzheimer’s, during January 2021, limited to 2016-2020, and in English. A total of 318 journals were selected using PRISMA, then leaving 16 journals to be analyzed using The Joanna Briggs Institution Checklist. Sixteen journals were analyzed and divided into two themes, factors that affect PAC (n = 9) and factors affected by PAC (n = 7). Factors that affect PAC are caregiver characteristics, care-recipient characteristics, and social support. Factors affected by PAC are caregiving outcomes. Factors that increase PAC are lower education level, good social support, severe BPSD, shorter duration of care, and relationship with care-recipient (except spouse), and gender (male). The mediating factors that increase PAC are unmet needs and reciprocal filial piety. Factors that lower PAC are higher education level, the use of avoidance coping, and older age. We found inconsistencies in caregiver marital status and relationship with care-recipient because the finding still uncertain.

scholarly journals Resilience of caregivers of people with dementia: a systematic review of biological and psychosocial determinants

2015 ◽  
Vol 37 (1) ◽  
pp. 12-19 ◽  
Author(s):  
Rachel Dias ◽  
Raquel Luiza Santos ◽  
Maria Fernanda Barroso de Sousa ◽  
Marcela Moreira Lima Nogueira ◽  
Bianca Torres ◽  
...  
Keyword(s):  
Social Support ◽  
Perceived Control ◽  
Well Being ◽  
Positive Adaptation ◽  
Factors Associated ◽  
Search Terms ◽  
People With Dementia ◽  
Positive Feelings ◽  
Definition Of ◽  
Mental Overload

Introduction: Although caregivers of people with dementia may face difficulties, some positive feelings of caregiving may be associated with resilience.Objective: This study systematically reviewed the definitions, methodological approaches and determinant models associated with resilience among caregivers of people with dementia.Methods: Search for articles published between 2003 and 2014 in ISI, PubMed/MEDLINE, SciELO and Lilacs using the search terms resilience, caregivers and dementia.Results and conclusions: Resilience has been defined as positive adaptation to face adversity, flexibility, psychological well-being, strength, healthy life, burden, social network and satisfaction with social support. No consensus was found about the definition of resilience associated with dementia. We classified the determinant variables into biological, psychological and social models. Higher levels of resilience were associated with lower depression rates and greater physical health. Other biological factors associated with higher levels of resilience were older age, African-American ethnicity and female sex. Lower burden, stress, neuroticism and perceived control were the main psychological factors associated with resilience. Social support was a moderating factor of resilience, and different types of support seemed to relieve the physical and mental overload caused by stress.

scholarly journals Sources of Positivity in the Daily Life of Family Caregivers of Persons with Dementia

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 655-655
Author(s):  
Kyungmi Lee ◽  
Breannlyn Archer ◽  
Kaitlyn Cox ◽  
Carolyn Pickering
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Daily Life ◽  
Secondary Analysis ◽  
Well Being ◽  
Care Recipient ◽  
Daily Diaries ◽  
Positive Aspects Of Caregiving ◽  
Health Complications

Abstract Family caregivers often experience fatigue, burnout, and health complications yet also enjoy many aspects of caregiving that may benefit their well-being. This study identifies positive aspects of caregiving in the daily life experiences of dementia family caregivers in order to inform interventions to support caregivers’ well-being. This case study entails a secondary analysis of open-ended question data obtained from 165 family caregivers who answered daily diaries over 21 days (n = 2841 responses). We used content analysis to organize and elicit thematic categories from the data collected in response to the question “what was the best part of your day.” A final 762 responses were selected as meeting the “care” criteria for the study, with an inter-rater reliability of 91.6%. Data analysis revealed three major sources of daily positive aspects including: caregiver-focused, patient-oriented, and support-system based. The analysis also revealed seven different kinds of daily positive aspects, such as getting to enjoy time with the care recipient or getting to accomplish other non-caregiving tasks. Many of the positive aspects of caregiving reported were enabled by social support, but they were ultimately from how they utilized that support (e.g., getting alone time) that provided the positivity. The findings of this study demonstrate the important role social support plays in caregiving, as well as highlights other possible intervention targets to create easier, more positive days for family caregivers.

scholarly journals Living with dementia under COVID-19 restrictions: coping and support needs among people with dementia and carers from the IDEAL cohort

2021 ◽  
pp. 1-23
Author(s):  
Gareth O'Rourke ◽  
Claire Pentecost ◽  
Eleanor van den Heuvel ◽  
Christina Victor ◽  
Catherine Quinn ◽  
...  
Keyword(s):  
Psychological Resources ◽  
Online Forums ◽  
Family Carers ◽  
Negative Effects ◽  
Telephone Interviews ◽  
Phone Calls ◽  
People With Dementia ◽  
Negative Impacts ◽  
The Impact ◽  
The Ideal

Abstract Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 people with dementia and 11 family carers who were ongoing participants in the IDEAL cohort during the initial ‘lockdown’ period in May and June 2020, and follow-up interviews with five people with dementia and two carers as restrictions were eased in July. We analysed interview data and triangulated the findings with issues raised in dementia-specific online forums. Findings showed some people with dementia were coping well, but others experienced a range of negative impacts, with varying degrees of improvement as restrictions were eased. The need for clear personalised information relating to COVID-19 and the value of support in the form of regular ‘just checking’ phone calls was emphasised. This exceptional situation provides a natural demonstration of how social and psychological resources shape the potential to ‘live well’ with dementia. While some support is recommended for all, a personalised approach to determine needs and coping ability would ensure that further practical and emotional support is targeted effectively.

scholarly journals Sexual and Gender Minority Caregivers of People With Dementia and Their Care Recipients

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 697-697
Author(s):  
Joel Anderson ◽  
Jason Flatt ◽  
Jennifer Jabson Tree ◽  
Alden Gross ◽  
Karen Rose
Keyword(s):  
Activities Of Daily Living ◽  
Daily Living ◽  
Care Recipient ◽  
Electronic Survey ◽  
Targeted Interventions ◽  
Gender Minority ◽  
Care Recipients ◽  
People With Dementia ◽  
Sexual And Gender Minority ◽  
And Gender

Abstract Little is known about the unique experiences of sexual and gender minority (SGM) caregivers of people with dementia or their care recipients. We used an electronic survey to assess psychosocial measures within this caregiving population, including measures related to the care recipient. The majority of caregivers (N=285) were gay men (62%). Most respondents were white (80%), with a quarter identifying as Latinx. The majority of caregivers were a spouse/partner (59.3%) and were providing care for someone who identified as LGB (70%), with 20% caring for someone transgender. Half of care recipients did not have an advance directive. The majority of care recipients needed assistance with ≥5 instrumental activities of daily living (83%) and ≥1basic activities of daily living (74%). This study is the first to provide data regarding the unique needs of SGM caregivers of someone with dementia and will support the development of targeted interventions for this population.

scholarly journals The price of prosociality in pandemic times

2022 ◽  
Vol 9 (1) ◽  
Author(s):  
Hernando Santamaría-García ◽  
Miguel Burgaleta ◽  
Agustina Legaz ◽  
Daniel Flichtentrei ◽  
Mateo Córdoba-Delgado ◽  
...  
Keyword(s):  
Behavioral Change ◽  
Cognitive Skills ◽  
Global Scale ◽  
Moral Judgments ◽  
Personal Distress ◽  
Factors Associated ◽  
Government Capacity ◽  
Negative Impacts ◽  
And Gender

AbstractThe SARS-CoV-2 pandemic has imposed widespread negative impacts (economically, psychologically, neurologically, and societally), and has changed daily behaviors on a global scale. Such impacts are more significant and pervasive in countries with higher levels of inequality and reduced Government capacity and responsiveness, such as those in the Global South (e.g., Colombia). Differences in social and moral cognitive skills may significantly impact individual attitudes and responses to the pandemic. Here, we aimed to assess the extent to which factors associated with prosociality (including empathy, theory of mind (ToM), and moral judgments) predict the perception of SARS-CoV-2 impacts and responses. Participants (N = 413) from Colombia answered factors associated with prosociality measures and judgments about SARS-CoV-2 risk, impact, and acceptance of quarantine guidelines. Results revealed that affective empathy (personal distress and empathic concern) and moral tendencies (deontological trends) predicted greater acceptance of quarantine but in turn yielded an increased perception of risks and individual impacts of SARS-CoV-2. Moreover, age (older) and gender (female) also increased the risk perception and impact estimation. These results underscore the role of prosocial-related predispositions informing individual responses to the pandemic and provide an opportunity to exploit this knowledge to inform successful interventions favoring behavioral change.

scholarly journals FACTORS ASSOCIATED WITH MEANINGFUL ACTIVITIES AMONG ETHNICALLY DIVERSE OLDER ADULTS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S516-S517
Author(s):  
Dolapo O Adeniji ◽  
Michin Hong
Keyword(s):  
Social Support ◽  
Older Adults ◽  
Physical Health ◽  
Healthy Aging ◽  
Positive Influence ◽  
Outcome Variable ◽  
Activity Participation ◽  
Hierarchical Regression ◽  
Factors Associated ◽  
And Gender

Abstract Objectives: With aging, there is an increased chance for older adults to experience negative health outcome and lose independence. Previous studies have shown the positive influence of engagement in physical, religious, recreational and social activities on healthy aging. This study aims to examine the factors contributing to the frequency of activity participation that helps older adults achieve the goal of staying healthy. Method: A sample (n=480) aged 60-90 with M=74.31, SD=7.65, and female 55.6 % from Well Elderly II were surveyed for the study. Hierarchical regression analysis was performed to examine factors associated with the frequency of activity participation. Age, ethnicity, education and gender controlling for meaning ascribed to activity were entered in model I. While the independent variables: social support, perceived mental and physical health and meaning ascribed for activity participation were in model II. Model II (R2=57.8%) significantly improved the prediction of the outcome variable greater than model I (R2=13.4%). Results: Results showed that age, education, ethnicity, perceived mental health, physical health, social support were significant. Of all variables the meaning attributed to activity participation (β =59.2%, <.001) is the most predictor of meaningful frequency of activity participation in older adults. This implies that the meaning individuals attribute to activity participation increases their frequency of activity participation. Also, age, education, and ethnicity play important role in understanding the importance of consistency in activity participation. Implications: Meaningful activity participation should be encouraged to enable older adults increase their participation in activities that promote healthy living.

scholarly journals THE EFFECT OF PERCEIVED APPRECIATION ON CAREGIVER WELL-BEING: A TEST OF EQUITY THEORY

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S728-S728
Author(s):  
Kylie Meyer ◽  
Frank Puga ◽  
Carolyn E Pickering
Keyword(s):  
Social Support ◽  
Social Relationships ◽  
Equity Theory ◽  
Well Being ◽  
Communication Training ◽  
Care Recipient ◽  
National Study ◽  
Cognitive Changes ◽  
People With Dementia ◽  
Lagged Dependent Variable

Abstract Equity theory suggests that equal (reciprocal) exchange of support in social relationships leads to better outcomes for members. However, in caregiving, exchange of support may become unbalanced due to heightened instrumental support from caregivers (CG). Imbalance may be exacerbated in dyads where the care recipient (CR) has dementia, since cognitive changes can attenuate expression of social support. One way social support is demonstrated in through show of appreciation. We used data from National Study on Caregiving (NSOC) to test whether CGs who did not feel appreciated by CRs were more likely to experience depression in the future. To accomplish this, we applied lagged dependent variable (LDV) models to the 2011 and 2015 NSOC waves (N=150). CGs who felt appreciated by the CR in the 2011 wave had 0.22 times the odds of being depressed in 2015 as those who did not feel appreciated by the CR (CI 0.07 to 0.68). This effect appears to exist primarily among CGs to people with dementia. In stratified models, we found CGs to people with dementia in 2015 had 0.04 times the odds of being depressed in 2015 if they previously felt appreciated by the CR (CI 0.003 to 0.40). A statistically significant effect was not observed among those assisting someone without depression (OR=0.65, CI 0.22 to 1.91). Results suggest that CGs to people with dementia who feel appreciated have less risk of experiencing depression. Findings have applications for future interventions for caregiver wellbeing, such as enhancing perceived appreciation (e.g., cognitive restructuring, communication training).

scholarly journals Sociocultural Influences on the Feeling of Loneliness of Family Caregivers of People with Dementia: The Role of Kinship

2021 ◽  
Vol 18 (9) ◽  
pp. 4700
Author(s):  
Cristina Huertas-Domingo ◽  
María Márquez-González ◽  
Isabel Cabrera ◽  
Samara Barrera-Caballero ◽  
María del Sequeros Pedroso-Chaparro ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Leisure Activities ◽  
Care Process ◽  
Sociocultural Factors ◽  
Psychological Variables ◽  
Factors Associated ◽  
People With Dementia ◽  
And Coping

The extent to which familism, dysfunctional thoughts, and coping variables contribute to explaining feelings of loneliness in caregivers, controlling for kinship, is analyzed. Participants were 273 family caregivers of people with dementia. Sociodemographic variables, familism, dysfunctional thoughts, coping strategies for requesting and receiving help, perceived social support, and leisure activities were assessed. The fit of a theoretical model for explaining the effect of cultural and psychological variables on feelings of loneliness in each kinship group was tested. No significant differences in the distribution of loneliness by kinship were found. Higher levels of familism are associated with more dysfunctional thoughts, that are linked to more maladaptive strategies for coping with caring (e.g., less social support and fewer leisure activities). This in turn is associated with higher scores in the feeling of loneliness. The model bore particular relevance to the group of daughters, husbands, and sons, yet not in the case of wives. Sociocultural and coping factors associated with the caring process seem to play an important role in explaining feelings of loneliness in caregivers. Sociocultural factors associated with the care process seem to play an important role in explaining feelings of loneliness in caregivers.

Age- and gender-specific prevalence and risk factors for depressive symptoms in the elderly: a population-based study

2011 ◽  
Vol 23 (8) ◽  
pp. 1294-1300 ◽  
Author(s):  
H. Glaesmer ◽  
S. Riedel-Heller ◽  
E. Braehler ◽  
L. Spangenberg ◽  
M. Luppa
Keyword(s):  
Risk Factors ◽  
Social Support ◽  
Depressive Symptoms ◽  
Old Age ◽  
Age Groups ◽  
Total Sample ◽  
Age And Gender ◽  
Factors Associated ◽  
And Gender ◽  
Gender Specific

ABSTRACTObjectives: Information on the prevalence and risk factors for depressive disorders in old age is of considerable interest for the assessment of future needs of the health care system. The aim of the study is to determine age- and gender-specific prevalence of major depression (MD), minor depression (MiD), and depressive symptoms, and to analyze risk factors associated with depressive symptoms.Methods: A representative sample of the German population of 1,659 individuals aged 60 to 85 years were visited at home and answered self-rating questionnaires. Depressive symptoms and syndromes (MD, MiD) were assessed using the Patient Health Questionnaire (PHQ-9). Factors associated with depressive symptoms were determined with linear regression models for the total sample and for men and women separately.Results: Depressive symptoms were found in 28.7% of the participants, while 6.6% were affected by MD or MiD. The highest prevalence of MD and depressive symptoms was found in the oldest age groups. MiD showed an unsteady course across age groups in both sexes. In the total sample as well as in the male subsample, depressive symptoms were significantly associated with increasing age, lower household income, an increasing number of medical conditions, and lower social support. In women only, the number of medical conditions and lacking social support were significantly associated with depressive symptoms.Conclusions: Depressive symptoms are common in old age and occur on a spectrum ranging from very mild forms to MD. The potential modifiability of a number of risk factors for depressive symptoms opens possibilities of secondary prevention such as treatment of chronic diseases as well as support in requirements of daily living.

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