Effects of a Future Care Planning Workshop for Aging Parents of the Mentally Ill

2008 ◽  
Vol 89 (1) ◽  
pp. 44-50 ◽  
Author(s):  
Fang-pei Chen
Keyword(s):  
Mentally Ill ◽  
Well Being ◽  
Evaluation Study ◽  
Specific Information ◽  
Care Planning ◽  
Single Group ◽  
Future Planning ◽  
Aging Parents ◽  
Future Care

This article presents a future care planning workshop for aging parents of adult children with severe mental illness and also presents workshop effects including parents' knowledge gains of future planning, psychological well-being, and future care planning behavior. The evaluation study had a single-group, pretest, posttest, and 6-month follow-up design. All 14 parents showed increased knowledge and confidence about future care planning at the posttest and the followup, and additional future care planning behavior was reported in the follow-up period. The findings support the importance of providing specific information and resources about future care planning to these aging parents. Practitioners are encouraged to incorporate future care planning issues in their practice and to support families on this difficult yet essential task.

scholarly journals Feasibility of a Mobile Phone App and Telephone Coaching Survivorship Care Planning Program Among Spanish-Speaking Breast Cancer Survivors (Preprint)

2019 ◽  
Author(s):  
Anna María Nápoles ◽  
Jasmine Santoyo-Olsson ◽  
Liliana Chacón ◽  
Anita L Stewart ◽  
Niharika Dixit ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Breast Cancer Survivors ◽  
Well Being ◽  
Care Planning ◽  
Survivorship Care ◽  
Spanish Speaking ◽  
Health Distress ◽  
Follow Up Care ◽  
Survivorship Care Planning

BACKGROUND Spanish-speaking Latina breast cancer survivors experience disparities in knowledge of breast cancer survivorship care, psychosocial health, lifestyle risk factors, and symptoms compared with their white counterparts. Survivorship care planning programs (SCPPs) could help these women receive optimal follow-up care and manage their condition. OBJECTIVE This study aimed to evaluate the feasibility, acceptability, and preliminary efficacy of a culturally and linguistically suitable SCPP called the Nuevo Amanecer (New Dawn) Survivorship Care Planning Program for Spanish-speaking breast cancer patients in public hospital settings, approaching the end of active treatment. METHODS The 2-month intervention was delivered via a written bilingual survivorship care plan and booklet, Spanish-language mobile phone app with integrated activity tracker, and telephone coaching. This single-arm feasibility study used mixed methods to evaluate the intervention. Acceptability and feasibility were examined via tracking of implementation processes, debriefing interviews, and postintervention satisfaction surveys. Preliminary efficacy was assessed via baseline and 2-month interviews using structured surveys and pre- and postintervention average daily steps count based on activity tracker data. Primary outcomes were self-reported fatigue, health distress, knowledge of cancer survivorship care, and self-efficacy for managing cancer follow-up health care and self-care. Secondary outcomes were emotional well-being, depressive and somatic symptoms, and average daily steps. RESULTS All women (n=23) were foreign-born with limited English proficiency; 13 (57%) had an elementary school education or less, 16 (70%) were of Mexican origin, and all had public health insurance. Coaching calls lasted on average 15 min each (SD 3.4). A total of 19 of 23 participants (83%) completed all 5 coaching calls. The majority (n=17; 81%) rated the overall quality of the app as “very good” or “excellent” (all rated it as at least “good”). Women checked their daily steps graph on the app between 4.2 to 5.9 times per week. Compared with baseline, postintervention fatigue (B=–.26; P=.02; Cohen d=0.4) and health distress levels (B=–.36; P=.01; Cohen d=0.3) were significantly lower and knowledge of recommended follow-up care and resources (B=.41; P=.03; Cohen d=0.5) and emotional well-being improved significantly (B=1.42; P=.02; Cohen d=0.3); self-efficacy for managing cancer follow-up care did not change. Average daily steps increased significantly from 6157 to 7469 (B=1311.8; P=.02; Cohen d=0.5). CONCLUSIONS We found preliminary evidence of program feasibility, acceptability, and efficacy, with significant 2-month improvements in fatigue, health distress, and emotional well-being and increased knowledge of recommended follow-up care and average daily steps. Tailored mobile phone and health coaching SCPPs could help to ensure equitable access to these services and improve symptoms and physical activity levels among Spanish-speaking Latina breast cancer survivors.

Advance care planning in hospitals

2018 ◽  
Author(s):  
Clare Marlow ◽  
Karen Groves ◽  
Premila Fade
Keyword(s):  
Advance Care Planning ◽  
Hospital Setting ◽  
Well Being ◽  
Family Satisfaction ◽  
Hospital Environment ◽  
Care Planning ◽  
Good Communication ◽  
Challenges And Opportunities ◽  
Future Care ◽  
Advance Care

This chapter outlines the challenges and opportunities surrounding advance care planning (ACP) within the hospital setting. Although the hospital environment may not seem the obvious place for future care planning, the triggers to these conversations may occur during a hospital admission. Around a third of all patients in general hospitals are likely to be in the last year of life and nearly 90% of people who die are hospitalized in the last year of life. ACP can help improve end-of-life care in hospital, with the potential to improve communication, increase quality of life and well-being of patients and those important to them, reduce use of futile and often unwanted treatments and unnecessary hospitalizations, and improve patient and family satisfaction with hospital care. Recognition that someone is in the last year of life, good communication skills, and a clear process for documentation and dissemination are key to successful ACP in hospitals.

scholarly journals Patterns of Intergenerational Care Planning Among Chinese Aging Families in Hong Kong

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 530-530
Author(s):  
Xue Bai ◽  
Chang Liu ◽  
Tongling Xu
Keyword(s):  
Hong Kong ◽  
Latent Profile Analysis ◽  
Service Providers ◽  
Profile Analysis ◽  
Care Transitions ◽  
Care Planning ◽  
Care Needs ◽  
Aging Parents ◽  
Future Care ◽  
Intergenerational Care

Abstract Care planning before the onset of intensive care needs can increase families’ ability to manage caregiving crises and cope with care transitions. However, future care planning has not been substantially examined in a family context. Drawing on the model of Preparation for Future Care Needs and a family systems perspective, this study investigated patterns of intergenerational care planning across multiple planning domains (awareness, avoidance, information gathering, decision making, and concrete planning) among Chinese intergenerational pairs. Quantitative data of 213 pairs of aging parents and adult children were collected in Hong Kong. Latent Profile Analysis was conducted to examine typological structure underlying care planning patterns. Three patterns were discovered: filial-maximal, dyadic-moderate, and filial-minimal. Profile 1 contained approximately 9.9% of pairs, which demonstrated a relatively higher level of avoidance on considering the need of care preparation and engaged less in concrete planning activities. Profile 2 contained 68.5% of intergenerational pairs that had a moderate preparation level. Profile 3 contained 21.6% of intergenerational pairs that were comparatively active in care planning. The findings also indicated that although older adults across three groups demonstrated a similar level of awareness to prepare for future care, their engagement in the concrete planning activities may be driven by their children’s awareness and preparation toward future care. The findings will enhance professionals’ and service providers’ awareness of diverse care planning patterns among Asian aging families, and inform targeted policies and programmes to alleviate unpreparedness for eldercare through intergenerational care planning which can be more effective than unilateral preparation.

Shared reality of the abusive and the vulnerable: the experience of aging for parents living with abusive adult children coping with mental disorder

2014 ◽  
Vol 26 (11) ◽  
pp. 1917-1927 ◽  
Author(s):  
Tova Band-Winterstein ◽  
Yael Smeloy ◽  
Hila Avieli
Keyword(s):  
Content Analysis ◽  
Mental Disorder ◽  
Old Age ◽  
Mentally Ill ◽  
Adult Child ◽  
Well Being ◽  
Structured Interviews ◽  
Shared Reality ◽  
Aging Parents

ABSTRACTBackground:Increasing numbers of aging parents are finding themselves in the role of caregiver for their mentally ill adult child due to global deinstitutionalization policy. The aim of this paper is to describe the daily aging experience of parents abused by an adult child with mental disorder and the challenges confronting them in this shared reality.Methods:Data collection was performed through in-depth semi-structured interviews with 16 parents, followed by content analysis.Results:Three major themes emerged: (a) old age as a platform for parent's vulnerability facing ongoing abuse; (b) “whose needs come first?” in a shared reality of abusive and vulnerable protagonists; (c) changes in relationship dynamics.Conclusions:Old age becomes an arena for redefined relationships combining increased vulnerability, needs of both sides, and its impact on the well-being of the aging parents. This calls for better insights and deeper understanding in regard to intervention with such families.

scholarly journals The Experience of Melanoma Follow-Up Care: An Online Survey of Patients in Australia

2014 ◽  
Vol 2014 ◽  
pp. 1-7 ◽  
Author(s):  
Janine Mitchell ◽  
Peta Callaghan ◽  
Jackie Street ◽  
Susan Neuhaus ◽  
Taryn Bessen
Keyword(s):  
Quality Of Care ◽  
Online Survey ◽  
Psychosocial Support ◽  
Essential Element ◽  
Primary Melanoma ◽  
Well Being ◽  
Specific Information ◽  
Follow Up Care

Investigating patients’ reports on the quality and consistency of melanoma follow-up care in Australia would assist in evaluating if this care is effective and meeting patients’ needs. The objective of this study was to obtain and explore the patients’ account of the technical and interpersonal aspects of melanoma follow-up care received. An online survey was conducted to acquire details of patients’ experience. Participants were patients treated in Australia for primary melanoma. Qualitative and quantitative data about patient perceptions of the nature and quality of their follow-up care were collected, including provision of melanoma specific information, psychosocial support, and imaging tests received. Inconsistencies were reported in the provision and quality of care received. Patient satisfaction was generally low and provision of reassurance from health professionals was construed as an essential element of quality of care. “Gaps” in follow-up care for melanoma patients were identified, particularly provision of adequate psychosocial support and patient education. Focus on strategies for greater consistency in the provision of support, information, and investigations received, may generate a cost dividend which could be reinvested in preventive and supportive care and benefit patient well-being.

eLearning Technologies on the follow-up of Young People with Chronic Diseases

2020 ◽  
Vol 30 (Supplement_2) ◽  
Author(s):  
J Pascual ◽  
S García ◽  
I Pedrosa ◽  
I Lapuente ◽  
B Lapuente ◽  
...  
Keyword(s):  
Young People ◽  
Chronic Diseases ◽  
Role Models ◽  
Economic Status ◽  
Young Patients ◽  
Well Being ◽  
Daily Routine ◽  
Specific Information ◽  
Obesity And Diabetes

Abstract Introduction Non-communicable diseases are increasing worldwide due mainly to rapidly changing lifestyles and socio-economic status affecting the well-being and the lives of young people along their whole life. Hence, there is a need to provide adequate and useful measures to support patients living with those diseases in order to foster youth emotional and physical health and improve their daily life. Objectives The aim of this presentation is to demonstrate the use of eLearning content to empower families, communities and young patients in dealing with the daily routine of chronic diseases. Methodology Based on a human centred design, 176 youngsters with asthma, obesity, and diabetes aged between 3-16 years old were assessed to gather information about perceived needs and preferences in relation to disease management. Ineffective communication, lack of knowledge/skills, poor adherence to treatment and low acceptance of the disease were the main aspects highlighted. Based on those results, participants were fully involved participating in the iterative development of eLearning package to face these needs, gathering specific information about its content, design and usability. Results The project has generated eLearning modules, using Articulate technologies, providing practical information and learning content in three languages, in partnership with health research centres, hospitals and patient associations in Portugal, Spain and France. There are lots of packages: obesity, respiratory diseases and diabetes. In each of these, the content is provided using gamification strategies and role models. eLearning is one of the components of the follow up process, being complemented by a mobile application with an interactive support chat and fun games. Conclusion ELearning tools, along with other online tools, contribute to generate a more positive perspective on the control of the disease and to support families and patients to get reliable information and connect with medical assistance.

scholarly journals Refining Care to Plan: Delivering Personalized Recommendations to Support Dementia Caregivers

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 522-522
Author(s):  
Jinhee Cha ◽  
Colleen Peterson ◽  
Ashley Millenbah ◽  
Katie Louwagie ◽  
Zachary Baker ◽  
...  
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Healthcare System ◽  
Care Recipient ◽  
Specific Information ◽  
Dementia Caregivers ◽  
Online Tool ◽  
After Care ◽  
Future Care

Abstract Caregivers of persons living with Alzheimer’s disease and Alzheimer’s disease-related dementias (PLWD; AD/ADRD) benefit from unique interventions to address their different needs. While information on which interventions best meet specific needs exists, less is known about how to match caregivers with those interventions. To address this research gap, we tested Care to Plan (CtP) within a large healthcare system. After care navigators guided caregivers through twenty CtP tailoring questions to identify caregivers’ greatest needs, the online tool provided the intervention type best suited to meet their needs, along with region-specific information on available programs. This mixed methods analysis evaluated the utility of the CtP tool with 20 family caregivers of PLWD after a 1 month follow-up. Most caregivers agreed that the CtP tool was helpful (85%) and would recommend the tool to other caregivers (90%). Caregivers also said they valued being able to discuss the CtP recommendations with the care navigator (95%). However, only 65% said they found services that met their needs or planned on using services recommended by CtP. Interview data indicate time constraints and restricted availability of resources due to COVID-19 precautions reduced caregivers’ abilities to pursue some recommendations. In addition, the stage of dementia experienced by their care recipient may explain why others found CtP less useful. However, these caregivers noted the potential utility of the resources for their future care planning needs. A larger evaluation of the CtP tool within the healthcare system is ongoing.

Psychological Resilience Provides No Independent Protection From Suicidal Risk

Crisis ◽  
2016 ◽  
Vol 37 (2) ◽  
pp. 130-139 ◽  
Author(s):  
Danica W. Y. Liu ◽  
A. Kate Fairweather-Schmidt ◽  
Richard Burns ◽  
Rachel M. Roberts ◽  
Kaarin J. Anstey
Keyword(s):  
Risk Factors ◽  
Well Being ◽  
Current Status ◽  
Psychological Resilience ◽  
Cross Sectional ◽  
Life Project ◽  
Resilience Factors ◽  
First Time

Abstract. Background: Little is known about the role of resilience in the likelihood of suicidal ideation (SI) over time. Aims: We examined the association between resilience and SI in a young-adult cohort over 4 years. Our objectives were to determine whether resilience was associated with SI at follow-up or, conversely, whether SI was associated with lowered resilience at follow-up. Method: Participants were selected from the Personality and Total Health (PATH) Through Life Project from Canberra and Queanbeyan, Australia, aged 28–32 years at the first time point and 32–36 at the second. Multinomial, linear, and binary regression analyses explored the association between resilience and SI over two time points. Models were adjusted for suicidality risk factors. Results: While unadjusted analyses identified associations between resilience and SI, these effects were fully explained by the inclusion of other suicidality risk factors. Conclusion: Despite strong cross-sectional associations, resilience and SI appear to be unrelated in a longitudinal context, once risk/resilience factors are controlled for. As independent indicators of psychological well-being, suicidality and resilience are essential if current status is to be captured. However, the addition of other factors (e.g., support, mastery) makes this association tenuous. Consequently, resilience per se may not be protective of SI.

Theoretical and Methodological Problems of a 10-Year Follow-Up Program Evaluation Study

2002 ◽  
Vol 18 (3) ◽  
pp. 229-241 ◽  
Author(s):  
Kurt A. Heller ◽  
Ralph Reimann
Keyword(s):  
Program Evaluation ◽  
Evaluation Studies ◽  
Evaluation Study ◽  
Control Groups ◽  
Cross Sectional ◽  
Long Term Study ◽  
Partial Inclusion ◽  
Methodological Problems

Summary In this paper, conceptual and methodological problems of school program evaluation are discussed. The data were collected in conjunction with a 10 year cross-sectional/longitudinal investigation with partial inclusion of control groups. The experiences and conclusions resulting from this long-term study are revealing not only from the vantage point of the scientific evaluation of new scholastic models, but are also valuable for program evaluation studies in general, particularly in the field of gifted education.

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