RECEIVED INFORMATION AND SOCIAL SUPPORT FOR WOMEN LIVING WITH HIV DURING THE PERINATAL PERIOD

2018 ◽  
Vol 1 ◽  
Author(s):  
Ilze Ansule ◽  
Inese Stars ◽  
Anda Ķīvīte ◽  
Inga Millere
Keyword(s):  
Social Support ◽  
Health Care ◽  
Health Care Professionals ◽  
Phenomenological Study ◽  
Perinatal Period ◽  
Human Action ◽  
People Living With Hiv ◽  
Women Living With Hiv ◽  
Study Results ◽  
Living With Hiv

The actual number of people living with HIV Latvian is estimated at 1.5 to 2 times higher than proven. Statistical data on the vertical mode of transmission shows that only half of HIV-infected pregnant women start the preventive therapy in a timely manner. As health care professionals we need to establish and react to the women`s who live with HIV personal experiences with support and information received during health care in the perinatal period. Aim. Research women`s living with HIV and perinatal health care professionals personal experience about received information and social support for women living with HIV during the perinatal period. Material and methods. Study tool was selected semi-structured, in-depth interview, which allows to discover not only the status quo, but also what has been in the other stories, depicting human action and belief diversity. It was part of the master's thesis (at Riga Stradiņš University)and was conducted as part qualitative phenomenological study. Results. Summarizing the information obtained through interviews several topics emerged, two of them was social support persons and RAKUS stationary Latvian Infectology Center as safe social and informational support basis. Conlusions. Experts and women living with HIV, notes the lack of information on preventive medical measures succession of women living with HIV, and social support availability. Social support mainly had been received from the closest relatives (mothers, grandmothers, sisters). There were not even one person who named friend or neighbor as social support person. 

scholarly journals PATIENTS NEED TO RECEIVE THE SAME KIND OF INFORMATION ABOUT THE SAME ISSUE FROM EACH PROFESSIONAL

2021 ◽  
Vol 4 ◽  
pp. 265-273
Author(s):  
Ilze Ansule ◽  
Anda Kīvīte - Urtāne ◽  
Inga Millere
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Perinatal Period ◽  
Maternity Hospital ◽  
Postnatal Period ◽  
Communication Process ◽  
Women Living With Hiv ◽  
Living With Hiv ◽  
To Receive ◽  
Validated Instrument

The questionnaire has been developed from a validated instrument “Women’s Experience of Maternity Care” (author - National Health Service, (Great Britain, 2019) and adapted to the situation in Latvia. The permission to use it has been obtained from authors. The questionnaire is meant for women regardless of their health status during the perinatal period or who have no co-morbidities, diagnosed in perinatal period of care. The questionnaire is designed to find out patients' experiences of receiving healthcare and its compliance with the guidelines, identifying potential problems and creating opportunities to correct them. There were 50 patients in Maternity Hospital postpartum unit interviewed. 12 of them were women living with HIV. Results. One of five main comment themes was - patients felt the need to receive the same kind of information about the same issue from all health care professional regardless of staff changes on call. The women point out that they have no problems with content in communication process during intranatal period, at labor unit. The problem with different kind of information about the same matter is emerging in postpartum period, at maternity unit. This issue is bothering both groups of patients in postnatal period, those women who live with HIV and those who have no co-morbidities, diagnosed in perinatal period. This shows that there is different kind of knowledge and professional skills among health care professionals, even if they work in the same field, the same hospital and the same unit. There should be done more research to identify the source of this problem. Is it the different experience, knowledge, informational field where professionals seek for information or totally different reason for this phenomena. 

“I’m Just Forgetting and I Don’t Know Why”: Exploring How People Living With HIV-Associated Neurocognitive Disorder View, Manage, and Obtain Support for Their Cognitive Difficulties

2018 ◽  
Vol 28 (6) ◽  
pp. 859-872 ◽  
Author(s):  
Alexander R. Terpstra ◽  
Catherine Worthington ◽  
Francisco Ibáñez-Carrasco ◽  
Kelly K. O’Brien ◽  
Aiko Yamamoto ◽  
...  
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Professionals ◽  
Management Strategies ◽  
Well Being ◽  
People Living With Hiv ◽  
Neurocognitive Disorder ◽  
Cognitive Difficulties ◽  
Hiv Associated Neurocognitive Disorder ◽  
Living With Hiv

HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with community members living with HIV, focused on how cognitive difficulties manifested and progressed, impacted well-being, and were discussed with others. We analyzed interview transcripts using a team-based, thematic approach. Participants described concentration, memory, and multitasking difficulties that fluctuated over time, as well as potential risk factors, management strategies, and psychosocial consequences. They reported they seldom discussed cognitive impairment with health care professionals, and that receiving a HAND diagnosis was validating, informative, yet somewhat disconcerting. Conversations between health care professionals and people living with HIV about HAND may provide opportunities for education, assessment, and support.

Integrating Comprehensive Geriatric Assessment Into HIV Care Systems in Indonesia: A Synthesis of Recent Evidence

2020 ◽  
Vol 26 (1) ◽  
pp. 9-16
Author(s):  
Linlin Lindayani ◽  
Irma Darmawati ◽  
Heni Purnama ◽  
Bhakti Permana
Keyword(s):  
Health Care ◽  
Geriatric Assessment ◽  
Comprehensive Geriatric Assessment ◽  
Health Care Professionals ◽  
Hiv Care ◽  
Geriatric Syndrome ◽  
People Living With Hiv ◽  
Age Related ◽  
Care Systems ◽  
Living With Hiv

Combination antiretroviral therapy (cART) has improved the health and life expectancy of people living with human immunodeficiency virus (HIV). Comorbidities and geriatric syndrome are more prevalent in patients with HIV than in the general population. As a result, people living with HIV may face unique characteristics and needs related to aging. Health-care systems need to prepare to encounter those issues that not only focus on virology suppression and cART management but also chronic non-AIDS comorbidities and geriatric syndrome. However, there are limited data on geriatric assessment among people living with HIV. The purpose of this article is to present findings of a literature search that integrate age-related issues in HIV care management for health-care professionals caring for people living with HIV in Indonesia to consider. Integrating comprehensive geriatric assessment (CGA) into HIV care is essential. However, some critical issues need to be considered prior to implementing CGA in HIV primary care, including social vulnerability, economic inequality, and aging-related stigma. Developing guidelines for implementing CGA in HIV primary clinics remains a priority. Studies of HIV in the aging population in Indonesia need to be conducted to understand the burden of geriatric syndrome.

scholarly journals The Dark Side of Female HIV Patient Care: Sexual and Reproductive Health Risks in Pre- and Post-Clinical Treatments

2018 ◽  
Vol 7 (11) ◽  
pp. 402 ◽  
Author(s):  
Thu Khuat ◽  
Thu Do ◽  
Van Nguyen ◽  
Xuan Vu ◽  
Phuong Nguyen ◽  
...  
Keyword(s):  
Health Care ◽  
High Risk ◽  
Reproductive Health ◽  
Sexual And Reproductive Health ◽  
Hiv Care ◽  
High Risk Population ◽  
People Living With Hiv ◽  
Women Living With Hiv ◽  
Women And Girls ◽  
Living With Hiv

This study examines the pre- and post-clinical issues in human immunodeficiency virus (HIV) care and treatment for women and girls of high-risk population groups—namely sex workers, injecting drug users, women living with HIV, primary sexual partners of people living with HIV, adolescent girls who are children of these groups, and migrant young girls and women—in five provinces and cities in Vietnam. Through a sample of 241 surveyed participants and 48 respondents for in-depth interviews and 32 respondents in the focus group discussions, the study identifies multiple barriers that keep these groups from receiving the proper health care that is well within their human rights. Most respondents rated HIV testing as easily accessible, yet only 18.9% of the surveyed women living with HIV disclosed their infection status, while 37.8% gave no information at the most recent prenatal care visit. The level of knowledge and proper practices of sexual and reproductive health (SRH) care also remains limited. Meanwhile, modern birth control methods have yet to be widely adopted among these populations: only 30.7% of respondents reported using condoms when having sex with their husband. This increases the risks of unwanted pregnancy and abortion, as well as vulnerability to sexually transmitted infections (STIs) and HIV transmission. On the other hand, HIV-related stigma and discrimination at health care settings are still pervasive, which create significant barriers for patients to access proper care services. Based on these results, six recommendations to improve SRH status of women and girls of populations at high risk are put forward.

The Micro Dynamics of Support Seeking

2013 ◽  
Vol 647 (1) ◽  
pp. 83-101 ◽  
Author(s):  
Celeste Watkins-Hayes
Keyword(s):  
Social Support ◽  
Middle Class ◽  
Low Income ◽  
Service Providers ◽  
Hiv Positive ◽  
People Living With Hiv ◽  
Women Living With Hiv ◽  
Hiv Positive Women ◽  
Living With Hiv ◽  
Hiv Aids

Previous literature suggests that AIDS Service Organizations (ASOs) play an important support role in the lives of impoverished women living with HIV. Less is known about the dynamics of institutional support for middle-class women living with HIV/AIDS, who are assumed to possess a broader base of resources to address their diagnosis. Using qualitative data collected from a racially and economically diverse group of HIV-positive women in Chicago, this article compares how low-income and middle-class women utilize ASOs and reveals how the women’s divergent approaches to availing themselves of institutional resources have important implications for their social and economic coping. For example, associating with ASOs can be status-improving for impoverished women and status-diminishing for middle-class women. As a result, middle-class women report a less robust network of social service providers and people living with HIV/AIDS on whom they rely for HIV-related information and social support, making them vulnerable to HIV-specific social isolation. In sum, the ways that HIV-positive women deploy institutional ties to negotiate their HIV/AIDS status differs markedly depending on socioeconomic status, suggesting that the role of class in gathering social support may be more complex than previously understood.

Changing access to mental health care and social support when people living with HIV/AIDS become service providers

AIDS Care ◽  
2014 ◽  
Vol 27 (2) ◽  
pp. 176-181 ◽  
Author(s):  
Alan Tai-Wai Li ◽  
Joshua Wales ◽  
Josephine Pui-Hing Wong ◽  
Maureen Owino ◽  
Yvette Perreault ◽  
...  
Keyword(s):  
Mental Health ◽  
Social Support ◽  
Health Care ◽  
Mental Health Care ◽  
Service Providers ◽  
People Living With Hiv ◽  
Living With Hiv ◽  
Hiv Aids

scholarly journals Experiences of People Living with HIV (PLHIV) in Jahrom, Southern Iran: A Phenomenological Study

2021 ◽  
Vol In Press (In Press) ◽  
Author(s):  
Hassan Safarzadeh Jahromy ◽  
Mojtaba Hemayatkhah ◽  
Sedigheh Rezaei Dehnavi ◽  
Vahid Rahmanian
Keyword(s):  
Social Support ◽  
Phenomenological Study ◽  
Public Awareness ◽  
Public Health Issue ◽  
People Living With Hiv ◽  
Structured Interviews ◽  
Southern Iran ◽  
The Future ◽  
Living With Hiv ◽  
Hiv Aids

Background: HIV/AIDS has remained a public health issue, especially in developing countries. The contributing factors to HIV/AIDS include poor access to medical care, fear, shame because of stigmatization, and lack of social support resulting in the isolation of people who share their status. Objectives: Taking a phenomenological descriptive approach, this qualitative study investigated the experiences of people living with HIV (PLHIV) in Jahrom, Southern Iran. Materials and Methods: The data were collected through in-depth and semi-structured interviews (face to face) with 21 (10 males and 11 females) participants who were referred to the Jahrom Counseling Center for Behavioral Diseases. They were selected by the purposive sampling technique according to theoretical saturation. Results: Analysis of the interview data and notes resulted in the four key themes: (I) emotional and psychological disturbances with three sub-themes: fear, depression, and feeling victimized; (II) stigma with three subthemes, including fear of being exposed, false judgment, and discrimination; (III) supportive environment with two sub-themes of family and social support; (IV) patients’ perspective of the future with three sub-themes, including hopelessness for the future, the future importance of children and hope for the future, and find a cure. Conclusions: Developing educational programs for the public can greatly increase public awareness of HIV, change attitudes and beliefs about HIV, and modify the behavior of others in dealing with PLHIV. This change of attitude creates social support and facilitates the acceptance of the infection for PLHIV.

scholarly journals Adoption and Attitudes of eHealth Among People Living With HIV and Their Physicians: Online Multicenter Questionnaire Study

10.2196/16140 ◽  
2020 ◽  
Vol 8 (4) ◽  
pp. e16140 ◽  
Author(s):  
Christine Jacomet ◽  
Roxana Ologeanu-Taddei ◽  
Justine Prouteau ◽  
Céline Lambert ◽  
Françoise Linard ◽  
...  
Keyword(s):  
Health Care ◽  
Health Information ◽  
Health Care Professionals ◽  
Multiple Correspondence Analysis ◽  
Mobile Apps ◽  
People Living With Hiv ◽  
Group 3 ◽  
Group 2 ◽  
Living With Hiv ◽  
Group 1

Background The development of electronic health (eHealth) has offered the opportunity for remote care provision. eHealth addresses issues for patients and professionals favoring autonomy and compliance, respectively, while fostering closer links both between patients and health care professionals and among health care professionals themselves. Objective The aim of this study was to analyze the patterns of use, benefits, and perceived obstacles in eHealth among people living with HIV (PLHIV) and their caring physicians at hospitals. Methods An online multicenter observational survey was conducted October 15-19, 2018 in 51 medical units across France by means of self-administered questionnaires to collect sociodemographic and medical data, and perceptions of eHealth. Multiple correspondence analysis followed by mixed unsupervised classification were performed to analyze data of the respondents. Results A total of 279 PLHIV and 219 physicians responded to all parts of the questionnaire. Three groups of PLHIV were identified based on multivariate analysis. Group 1 comprised “eHealth believers” (121/279, 43.4%), who were more frequently above 60 years old and more likely to be receiving treatments other than antiretrovirals. Group 2, the “technology skeptics” (86/279, 30.8%), comprised more women with at least one child. Group 3, the “internet adopters” (72/279, 25.8%), were more frequently under 49 years of age, men who have sex with men, and more likely to use mobile apps for obtaining wellness/health information and related subjects. Three groups of physicians also emerged. Group 1 comprised those “strongly confident in eHealth” (95/219, 43.4%), who more frequently used mobile apps for wellness/health information and were more likely to accept prescription assistance software. Group 2 comprised physicians “strongly opposed to eHealth” (80/219, 36.5%), frequently asserting that eHealth challenges confidentiality. Group 3 were “open to eHealth” (44/219, 20.1%), comprising a higher proportion of infectious disease specialists, and were more likely to believe that medical apps are useful for patient education and information. No link was found between the groups of PLHIV and physicians. Conclusions The literature on eHealth mainly classifies people as enthusiasts and skeptics; however, we identified a third profile among both PLHIV and physicians, albeit without a direct link between them. For PLHIV, this third group is attentive to eHealth for improving their health condition, and for physicians, this group considers eHealth to offer benefits to patients and their own practice.

scholarly journals ‘The own’ and ‘the wise’ as social support for older people living with HIV in the United Kingdom

2018 ◽  
Vol 40 (1) ◽  
pp. 188-204 ◽  
Author(s):  
Dana Rosenfeld ◽  
Jane Anderson
Keyword(s):  
Social Support ◽  
United Kingdom ◽  
Older People ◽  
People Living With Hiv ◽  
Black African ◽  
Formal Service ◽  
Women Living With Hiv ◽  
The United Kingdom ◽  
Sex With Men ◽  
Living With Hiv

AbstractAs the HIV population ages, how the ageing and HIV experiences intersect to shape the lives of older people living with HIV (PLWH) becomes an increasingly pressing question. This multi-method study investigated social support, mental health and quality of life among 100 older PLWH in the United Kingdom. Drawing on data from three focus groups and 74 life-history interviews with older (aged 50+) White men who have sex with men (MSM), and Black African and White heterosexual men and women, living with HIV, we explore participants’ distinctions between, evaluations of and access to sources of social support. Participants distinguished between support from the HIV-negative (Goffman's ‘the own’) and experientially based support from other PLWH (Goffman's ‘the wise’), and viewed the former, while valuable, as needing to be supplemented by the latter. Furthermore, access to experientially based support varied across participant groups, whose communities had different histories with HIV/AIDS and thus different degrees of knowledge about HIV and avenues for connecting to other PLWH. Thus, social support among older PLWH cannot be neatly divided into ‘formal’ and ‘informal’ domains, or fully appreciated by applying traditional social support measures, including, in the context of health conditions, ‘peer support’ created through formal service organisations. Rather, older PLWH's own distinctions and evaluations better illuminate the complexities of social support in the context of ageing with HIV.

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