Knowledge and Attitude in Indonesian Patients and Parents of Patient with Turner Syndrome towards Fertility Treatment

KnE Medicine ◽  
2017 ◽  
Vol 1 (1) ◽  
pp. 180
Author(s):  
Achmad Kemal ◽  
Irfan Deliandra ◽  
Renny Julianti ◽  
Kartika Iswaranti ◽  
Melisa Silvia ◽  
...  
Keyword(s):  
Turner Syndrome ◽  
Support Group ◽  
Social Life ◽  
Lower Cost ◽  
Time Pressure ◽  
Hormonal Treatment ◽  
Fertility Treatment ◽  
Pediatric Endocrinologist ◽  
Future Fertility ◽  
Knowledge And Attitude

<p>The objective of the study was to prospectively determine the knowledge and attitude in Indonesian girls and parents of patients diagnosed with Turner Syndrome (TS) towards future fertility treatment possibility. Data collected from in-depth interviews with 20 TS patients or parents. The first group was composed of 16 patients selected from Indonesian Turner Syndrome Society and 4 patients from dr. Cipto Mangunkusumo National Hospital Jakarta. All participants were stratified by characteristics, physical appearance, hormonal therapy and TS knowledge and attitude towards future fertility treatment possibility.</p><p> </p><p class="ng-scope">More than half of the TS patients belong to the support grup have better knowledge than the patients in the non support group. This study showed that 31.25% patients from support group and 25% patients from non support group believed that TS patients still have normal social life, but still concern about TS fertility (support group 87% and non support group 100%). Most of them (support group 93.75% and non support group 100%) agree to have possible fertility treatment, but 31.25% of them insisted on lower cost of hormonal treatment and medication. The greatest barriers for accepting fertility preservation by the parents and TS patients were lack of information (41.2%), fear of complication (22.1%) and lower cost for hormonal treatment (15.3%).</p><p class="ng-scope">The challenges of counseling and fertility treatment for TS patients in Indonesia are the time pressure diagnosis and the possible fertility treatment and lack of knowledge about TS fertility condition by pediatric endocrinologist, fertility experts and parents; therefore a team consisting of pediatric endocrinologist, infertility specialists and support group is recommended in these setting.</p>

Knowledge and Attitude in Indonesian Patients and Parents of Patient with Turner Syndrome Towards Fertility Treatment

2017 ◽  
Vol 23 (7) ◽  
pp. 7027-7029 ◽  
Author(s):  
Achmad Kemal ◽  
Irfan Deliandra ◽  
Renny Julianti ◽  
Kartika Iswaranti ◽  
Melisa Silvia ◽  
...  
Keyword(s):  
Turner Syndrome ◽  
Fertility Treatment ◽  
Knowledge And Attitude

Advances in Fertility Preservation for Young Women With Cancer

2018 ◽  
pp. 27-37 ◽  
Author(s):  
Karen Lisa Smith ◽  
Clarisa Gracia ◽  
Anna Sokalska ◽  
Halle Moore
Keyword(s):  
Fertility Preservation ◽  
Young Female ◽  
Current Data ◽  
Reproductive Age ◽  
Fertility Treatment ◽  
Ovarian Suppression ◽  
Female Patients ◽  
Ovarian Protection ◽  
Future Fertility ◽  
Reproductive Techniques

Female patients of reproductive age with cancer often require treatment that can compromise their future fertility. Treatment-related infertility is an important cancer survivorship issue and is associated with depression and diminished quality of life. Recent advances in reproductive health care provide the opportunity to preserve fertility prior to the initiation of cancer therapy. Clinical guidelines recommend that oncology providers counsel patients about the risk of treatment-related infertility and fertility preservation options, and that they refer those who are interested in fertility preservation to fertility specialists. Guidelines endorse the use of assisted reproductive techniques (ART) provided by reproductive endocrinologists to preserve fertility in young female patients with cancer. In addition, ovarian suppression with gonadotropin-releasing hormone (GnRH) agonists may be considered for ovarian protection during chemotherapy. This article reviews currently available and emerging ART for fertility preservation in female patients of reproductive age with cancer and current data supporting the use of ovarian suppression for ovarian protection during chemotherapy in this population. We also review the uptake of fertility services and discuss barriers to fertility preservation in female patients of reproductive age with cancer.

scholarly journals Conservative Management of Placenta Accreta in a Multiparous Woman

2010 ◽  
Vol 2010 ◽  
pp. 1-5 ◽  
Author(s):  
Jennifer C. Hunt
Keyword(s):  
Conservative Management ◽  
Placenta Accreta ◽  
Placental Tissue ◽  
Intrauterine Infection ◽  
Small Bowel Resection ◽  
Fertility Treatment ◽  
Retained Placenta ◽  
Future Fertility ◽  
Close Observation

Placenta accreta refers to any abnormally invasive placental implantation. Diagnosis is suspected postpartum with failed delivery of a retained placenta. Massive obstetrical hemorrhage is a known complication, often requiring peripartum hysterectomy. We report a case of presumed placenta accreta in a patient following failed manual removal of a retained placenta. We describe an attempt at conservative management with methotrexate in a stable patient desiring future fertility. Treatment was unsuccessful and led to the development of a disseminated intrauterine infection complicated by a bowel obstruction, requiring both a hysterectomy and small bowel resection. In hemodynamically stable patients, conservative management of placenta accreta may involve leaving placental tissuein situwith subsequent administration of methotrexate. However, ongoing close observation is required to identify complications.

Middle-aged women with Turner's syndrome. Medical status, hormonal treatment and social life

1991 ◽  
Vol 125 (4) ◽  
pp. 359-365 ◽  
Author(s):  
Lisskulla Sylvén ◽  
Kerstin Hagenfeldt ◽  
Karen Bröndum-Nielsen ◽  
Bo von Schoultz
Keyword(s):  
Social Life ◽  
Chorionic Villus ◽  
Estrogen Therapy ◽  
Hormonal Treatment ◽  
Turner's Syndrome ◽  
Adopted Children ◽  
Turner’S Syndrome ◽  
Middle Aged ◽  
Medical Status ◽  
Elevated Liver Enzymes

Abstract. A study of 49 middle-aged (>35 years old) women with Turner's syndrome was performed to evaluate medical status, hormonal treatment and social life. Most of the women lived a normal social life in stable relationships and all were employed. Some had adopted children and 4 had children of their own. They had all been informed about Turner's syndrome at time of diagnosis, but after the induced puberty they did not know who to turn to with their variety of medical problems. They were healthy except for reduced hearing, which in many cases required hearing aid. Elevated liver enzymes were found in almost all the women. The mechanism behind this finding is unclear, but it does not seem to imply severe liver damage why the indicated estrogen therapy should not be withdrawn from these women. Today amniocentesis and chorionic villus biopsies are commonly used to detect chromosome abnormalities. It is our duty as counsellors to give adequate information on the prognosis of a specific finding in the fetus to help future parents in their decision.

scholarly journals Tobacco Addiction: Quitting Smoking Through Systemic Approach

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 29s-29s ◽  
Author(s):  
J. Bilachi Algosini ◽  
Bilaqui Aldemir
Keyword(s):  
Support Group ◽  
Social Life ◽  
Brief Therapy ◽  
Family System ◽  
Individual Therapy ◽  
Systemic Approach ◽  
System Transformation ◽  
Quit Smoking ◽  
Quitting Smoking ◽  
The Individual

Background: The main reason for carrying out this study was the wish to understand the reasons leading to smoking, the influence of such behavior in people's ways of thinking, as well as methods of quitting. It was necessary to understand that the dependents are more than their beliefs, family, social life, religion, profession, and paradigms. Aim: Smokers who want to quit smoking through their cognitive system transformation. Objectives: The objective of this project was to help patients quit smoking through systemic approach and, consequently, to help them face quitting methods more comfortably and safely and also to avoid relapse. Methods: This project started from a systemic model that is based on the conscience of the essential interrelation and interdependence state of all physical, biologic, psychological, social, and cultural phenomena. Support brief therapy and support group were the resources used during this research. As well as these methods, some patients, assisted by a medical team, underwent drug therapy. Therapeutic techniques (such as verbal techniques; action; creation of contexts; opening to the emerging narratives; paradoxical; structural; strategic; and the problem externalizations) were developed both in support brief therapy and support group. Results: The quantitative results will be presented here to show the effectiveness of the project developed. The most important information is the number of people who interrupted tobacco dependence: 322 (70%) out of 460 quit smoking, of which 186 (58%) were men and 136 (42%) were women. Among the men who quit smoking, 41 were in the support group, 76 were in the support brief therapy, and 69 were in both. Among the women, 43 participated of the group therapy, 48 of the support brief therapy and 45 were in both; 48 men and 25 women took antismoking medication, while 11 men and 2 women used patches. Relapse occurred in 26 out of 322 patients who had quit smoking, 9 out of the 26 restarted therapy, and 6 of them quit smoking. The patients who relapsed, 9 attended the support group (4 men and 5 women), 10 attended the support brief therapy (6 men and 4 women), and 7 attended both (4 men and 3 women). Those who restarted the treatment, 6 were in the support group (2 men and 4 women), 3 were in the support brief therapy (1 man and 2 women), and no one was in both. Among the patients who quit smoking, 2 were in the group work (1 man and 1 woman), 4 were in the individual therapy (1 man and 3 women), and no one was in both. Conclusion: It was possible to verify that quitting smoking through systemic approach is effective, because it gives the individual, immersed in his/her family system, the opportunity to discern all his/her integrated and interdependent aspects (biologic, psychological and social phenomena) and, thus, restructure his/her paradigms and patterns of behavior.

scholarly journals Time to explore: Adaptation of exploration under time pressure

2021 ◽  
Author(s):  
Charley M Wu ◽  
Eric Schulz ◽  
Timothy Joseph Pleskac ◽  
Maarten Speekenbrink
Keyword(s):  
Decision Making ◽  
Lower Cost ◽  
Time Pressure ◽  
Cost Benefit ◽  
Decision Time ◽  
Cognitive Constraints ◽  
Evidence Accumulation ◽  
The Cost ◽  
Pressure Changes ◽  
Shed Light

How does time pressure influence exploration and decision-making? We investigate this question using a within-subject design to manipulate decision time (limited vs. unlimited) and use a range of four-armed bandit tasks, designed to independently manipulate uncertainty and expected reward. With limited time, people have less opportunity to perform costly computations, thus shifting the cost-benefit balance of different exploration strategies. Through behavioral, reinforcement learning (RL), reaction time (RT), and evidence accumulation analyses, we show that time pressure changes how people explore and respond to uncertainty. Specifically, participants reduced their uncertainty-directed exploration under time pressure, were less value-directed, and repeated choices more often. Since our analyses relate uncertainty to slower responses and dampened evidence accumulation (i.e., drift rates), this demonstrates a resource-rational shift towards simpler, lower-cost strategies under time pressure. These results shed light on how people adapt their exploration and decision-making strategies to externally imposed cognitive constraints.

Bipolar disorder patients' attitudes to and knowledge of their illness: a retrospective study

1993 ◽  
Vol 10 (2) ◽  
pp. 71-75 ◽  
Author(s):  
Patrick McKeon ◽  
Fionnuala O'Loughlin
Keyword(s):  
Bipolar Disorder ◽  
Support Group ◽  
Economic Status ◽  
Relevant Literature ◽  
Depressive Illness ◽  
Manic Depressive Illness ◽  
Duration Of Illness ◽  
Illness Knowledge ◽  
Group Meetings ◽  
Knowledge And Attitude

AbstractObjective: To assess the effect of specific psychoeducational sources – support group meetings, lectures and literature – on bipolar disorder patients' knowledge and attitude to their illness. Methods: Eighty bipolar disorder patients attending for a lithium blood test were asked to complete a questionnaire detailing their demographic characteristics, duration of illness, knowledge of manic-depressive illness and their attitude towards their illness and what exposure they had had to relevant support group meetings, lectures and literature on bipolar disorder. Results: The 43 group attenders had a statistically significant higher mean score on the illness and lithium knowledge and the attitude to illness sections of the questionnaire than the 30 patients who did nto attend groups (P<0.001). A multiple regression analysis indicated that, in addition to group attendances, only reading literature contributed significantly to illness knowledge and attitude. Age, sex, duration of illness and socio-economic status did not contribute significantly to these outcome variables. Conclusions: Bipolar disorder patients who attended support group meetings and availed of relevant literature knew more about their illness and lithium therapy and expressed more positive and realistic views about their illness than those who only read literature and attended lectures.

The influence of hormonal treatment with beta-human chorionic gonadotropin for cryptorchidism on future fertility in rats

2015 ◽  
Vol 11 (2) ◽  
pp. 92.e1-92.e4 ◽  
Author(s):  
Ömer Yilmaz ◽  
İlker Akyol ◽  
Mustafa Özyurt ◽  
Ferhat Ateş ◽  
Hasan Soydan ◽  
...  
Keyword(s):  
Chorionic Gonadotropin ◽  
Human Chorionic Gonadotropin ◽  
Hormonal Treatment ◽  
Beta Human Chorionic Gonadotropin ◽  
Future Fertility

scholarly journals Knowledge, attitude and behaviour of women towards abnormal menstrual bleeding and its impact on quality of life

2017 ◽  
Vol 6 (10) ◽  
pp. 4291
Author(s):  
Binti R. Bhatiyani ◽  
Shrikant V. Dhumale ◽  
Pandeeswari B.
Keyword(s):  
Quality Of Life ◽  
Social Life ◽  
Current Knowledge ◽  
Tertiary Care ◽  
Hormonal Treatment ◽  
Menstrual Bleeding ◽  
Attitudes And Beliefs ◽  
Tertiary Care Centre ◽  
Group A

Background: Abnormal menstrual bleeding has a major impact on a woman's quality of life. Any intervention therefore should aim to improve this rather than focusing on the amount of menstrual blood loss. The aim of this study was to gain an in depth understanding of women’s current knowledge, attitudes and beliefs around abnormal menstrual bleeding. Also, to understand how it affects their lives, while identifying current misconceptions and gaps in knowledge and their expectations and attitudes towards the treatment so that treatment can address their most bothersome complaint.Methods: A total of 200 women, between 18-55 years of age, not on any hormonal treatment attending the gynaecology OPD at a tertiary care centre between Jan 2017 to May 2017 were interviewed by a questionnaire. Women who had undergone hysterectomy were excluded from the study.Results: Of the 200 women interviewed, 49 women felt that their bleeding was heavy and formed the heavy menstrual bleeding group (HMB) while 151 women who perceived their bleeding to be normal formed the normal bleeding group. In the (HMB) group, a significantly greater proportion of women identified their menstrual bleeding as being an inconvenience and a disruption to their lives. HMB also significantly affected their relationships, social life and productivity at work place.Conclusions: Despite its common occurrence, awareness and understanding of HMB and its treatment within the survey population was poor.

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