scholarly journals Trajectories of the deaf: a retrospective study based on the deaf and their family members

2021 ◽  
Vol 17 (22) ◽  
pp. 85
Author(s):  
Ivani Rodrigues Silva ◽  
Kate Mamhy Oliveira Kumada ◽  
Zelia Zilda Lourenço de Camargo Bittencourt

The article aims to analyze the narrative of deaf and family members of an assistance service for the deaf people, identifying more striking perceptions in their life trajectories. The qualitative approach research was carried out through semi-structured interviews with three hearing mothers and three deaf children, former members of a university service for the deaf offered in the inland cities of the state of São Paulo, since the 1970’s. The results showed that the aspects with the greatest impact for the participants return to the moment of diagnosis and forwarding to the referred specialized service; the challenges experienced in the school trajectory and the communication barriers still faced in the interaction with society.

Rev Rene ◽  
2015 ◽  
Vol 16 (2) ◽  
Author(s):  
Janaína Lopes da Silva ◽  
Emelynne Gabrielly de Oliveira Santos ◽  
Cintia Capistrano Teixeira Rocha ◽  
Cecília Nogueira Valença ◽  
Osvaldo De Góes Bay Júnior

Objective: to discuss the organization of Nursing technician’s work in the interface of the care of family members ofhospitalized children and to identify their perception of the insertion of family in caring for this child. Methods: this is anexploratory descriptive study with a qualitative approach, undertaken in the pediatric inpatient unit of a university hospitalwith six Nursing technicians, through semi-structured interviews. Results: professionals realized the importance of thefamily’s presence for the child’s recovery; however, in basic care which was previously developed by Nursing, they wereeventually delegated to be companions, with care for the child-family binomial forgotten by the professional. Conclusion:nursing technicians recognize the benefits and difficulties of the presence of a companion. However, it is perceived that therewas a lack of professional preparation when considering the binomial of child-family during hospitalization.


2021 ◽  
Vol 8 (3) ◽  
Author(s):  
Makri M ◽  
◽  
Tsatali M ◽  
Tsolaki M ◽  
Sourgouni E ◽  
...  

When dementia is diagnosed, specific emotions, crucial for the postdiagnostic experience, emerge in the family members of the person with dementia. The present study investigated feelings about the diagnosis at the time of its announcement as well as the feelings that urged family members to get involved in counseling sessions or delay seeking help. Semi-structured interviews were conducted with nine participants recruited from an Alzheimer Association. Three key topics emerged from the analysis: "Experiencing the diagnosis", "Experiencing dementia" and "Understanding psychotherapy". The three topics included five, three, and three specific sub-topics, respectively. Most participants reported having feelings of loss, a sense of helplessness, and feelings of responsibility and trauma that were followed by a period of loneliness. They also reported having developed defenses and having reached their limits. All participants perceived psychotherapy as a means of bringing relief, a sense of sharing, empowerment, and an opportunity for openness.


2020 ◽  
Vol 73 (suppl 1) ◽  
Author(s):  
Paula Antunes Bezerra Nacamura ◽  
Sonia da Silva Marcon ◽  
Marcelle Paiano ◽  
Maria Aparecida Salci ◽  
Cremilde Aparecida Trindade Radovanovic ◽  
...  

ABSTRACT Objective: to apprehend the guidelines provided by the interdisciplinary team to the user’s family member at a Centro de Atenção Psicossocial Álcool e Drogas (Psychosocial Care Center for Alcohol and Drugs). Methods: descriptive-exploratory study, with a qualitative approach, carried out in a Psychosocial Care Center for alcohol and drugs in the southern region of Brazil, using the Psychiatric Reform as a conceptual basis. Data collection took place from June to August of 2019 through semi-structured interviews with a multidisciplinary team. The data were organized and operationalized in the IRAMUTEQ® software, and submitted to content analysis, thematic modality. Results: two classes emerged: “Guidelines referring to moments of crisis and the family members’ arrival to the service” and “Difficult factors and strategies to enhance the guidance to family members”. Final Considerations: The guidelines focus on pathology and the service itself. Participants highlighted embracement, the group for families, qualified listening, and cooperation with primary care as ways to enhance the service to families.


2016 ◽  
Vol 25 (1) ◽  
Author(s):  
Maria José Lumini Landeiro ◽  
Teresa Vieira Martins ◽  
Heloísa Helena Ciqueto Peres

The transition of dependent people from hospital to the home is a situation that generates stress for them and for the family. This descriptive, exploratory study with a qualitative approach aims to identify the perception of nurses about the difficulties that face a family caring for a dependent person, including information needs, and with reference to applicability of use of educational technology. The data were collected through semi-structured interviews with 14 nurses of a hospital and two health centers in the region of Porto, Portugal. The majority of participants were men, with average age of 32.64 years, and an average of 9.86 years' experience of exercise of the profession. The nurses identified needs for information for the development of competencies in the areas of knowledge of instruments related to the self-care of moving, turning and changing place, and the utility of use of educational technology. It is concluded that mastering the areas of knowledge identified would facilitate the construction and application of educational technology for family members caring for a patient


1998 ◽  
Vol 3 (3) ◽  
pp. 209-218 ◽  
Author(s):  
André Büssing ◽  
Thomas Bissels

The extended model of different forms of work satisfaction ( Büssing, 1991 ), originally proposed by Bruggemann (1974) , is suggested as a distinctive qualitative approach to work satisfaction. Six forms of work satisfaction—progressive, stabilized, resigned satisfaction, constructive, fixated, resigned dissatisfaction—are derived from the constellation of four constituent variables: comparison of the actual work situation and personal aspirations, global satisfaction, changes in level of aspiration, controllability at work. Preliminary evidence from semi-structured interviews with 46 nurses shows that the dynamic model is headed in the right direction (qualitative differentiation of consistently high propertions of satisfied employees, uncovering processes of person-work situation interaction). Qualitative methods demonstrated their usefulness in accessing underlying cognitive and evaluative processes of the forms, which are often neglected by traditional attitude-based satisfaction research.


Author(s):  
Christine De Goede ◽  
Abraham P Greeff

The aim of this qualitative study was to explore what assists couples in sustaining family routines after the transition to parenthood. Participants were recruited from two day-care centres in Cape Town, South Africa. In-depth, semi-structured interviews were conducted with 10 couples, mostly from low-income households, who had gone through this transition between one and four years previously. Grounded theory analysis revealed one major theme, Factors that decrease task and temporal complexity, with seven subthemes: Support from the wider family network; Couple cooperation and tag-teaming; Planning and pre-empting future problems; Adhering to schedules; Facilitative characteristics and skills of individual family members; Parents’ sense of commitment and responsibility towards family members; and idiosyncratic accommodations. Results underscore the need for professionals to help parents gain support from relatives; strengthen partner teamwork; foster schedule consistency; improve skills such as planning; foster their caretaker self-concepts; and facilitate context-specific problem-solving.


2019 ◽  
Vol 19 (1) ◽  
Author(s):  
R. Forde ◽  
S. Peters ◽  
A. Wittkowski

Abstract Background Postpartum psychosis is a rare, yet severe disorder, in which early identification and immediate intervention are crucial. Despite recommendations for psychological input, little is known about the types of psychological intervention reported to be helpful. The aim of this study was to explore the experiences, needs and preferences for psychological intervention from the perspective of women with postpartum psychosis and from the perspective of family members. Methods Thirteen women and eight family members, including partners were interviewed. The data from these semi-structured interviews were audio-recorded, transcribed and inductively analysed using thematic analysis. Results Twelve subthemes were identified and then organised around three main themes: 1) Seeking safety and containment, 2) Recognising and responding to the psychological impact and 3) Planning for the future. These themes highlight the temporal element of recovery from postpartum psychosis, because women’s psychological needs and preferences changed over time. Emphasis was initially placed on ensuring safety, followed by a need to connect, process and adjust to their experiences. Additional needs were reported by women and family when planning for the future, including managing the fear of relapse and help to reach a decision about future pregnancies. Conclusion The results illustrate a range of areas in which psychological intervention could be delivered to facilitate and enhance recovery. Further research is needed to develop meaningful and effective psychological interventions and to investigate the most appropriate timing for this to be offered.


Author(s):  
Rebecca Winnard ◽  
Mark Roy ◽  
Hannah Butler-Coyne

AbstractLittle is known about the emotional pressures and practical management of daily challenges and, intra and interpersonal demands of raising a child as a parent with a diagnosis of Autistic Spectrum Conditions. The present study utilised a qualitative approach to understand perceptions of females diagnosed on the autistic spectrum of ‘being a parent’. Eight semi-structured interviews were analysed using Interpretative Phenomenological Analysis. Benefits and challenges of being a parent were highlighted alongside population-specific skill and characteristics associated with strength and resilience, love, nurture, routine and sensory considerations. Findings identify the need for population-specific specialist parenting support, provide direction for professionals in clinical settings and expand the paucity of research in this area.


2020 ◽  
Vol 37 (5) ◽  
pp. 711-718
Author(s):  
Oscar James ◽  
Karen Cardwell ◽  
Frank Moriarty ◽  
Susan M Smith ◽  
Barbara Clyne

Abstract Background There is some evidence to suggest that pharmacists integrated into primary care improves patient outcomes and prescribing quality. Despite this growing evidence, there is a lack of detail about the context of the role. Objective To explore the implementation of The General Practice Pharmacist (GPP) intervention (pharmacists integrating into general practice within a non-randomized pilot study in Ireland), the experiences of study participants and lessons for future implementation. Design and setting Process evaluation with a descriptive qualitative approach conducted in four purposively selected GP practices. Methods A process evaluation with a descriptive qualitative approach was conducted in four purposively selected GP practices. Semi-structured interviews were conducted, transcribed verbatim and analysed using a thematic analysis. Results Twenty-three participants (three pharmacists, four GPs, four patients, four practice nurses, four practice managers and four practice administrators) were interviewed. Themes reported include day-to-day practicalities (incorporating location and space, systems and procedures and pharmacists’ tasks), relationships and communication (incorporating GP/pharmacist mode of communication, mutual trust and respect, relationship with other practice staff and with patients) and role perception (incorporating shared goals, professional rewards, scope of practice and logistics). Conclusions Pharmacists working within the general practice team have potential to improve prescribing quality. This process evaluation found that a pharmacist joining the general practice team was well accepted by the GP and practice staff and effective interprofessional relationships were described. Patients were less clear of the overall benefits. Important barriers (such as funding, infrastructure and workload) and facilitators (such as teamwork and integration) to the intervention were identified which will be incorporated into a pilot cluster randomized controlled trial.


2021 ◽  
pp. 1-8
Author(s):  
Felicity Moon ◽  
David W. Kissane ◽  
Fiona McDermott

Abstract Background Due to the unpredictable dementia trajectory, it is challenging to recognize illness progression and the appropriateness of a palliative approach. Further confusion occurs during hospitalization where the presence of comorbid conditions complicates prognostication. This research examined clinicians and families' perceptions of dementia as a terminal condition in relation to end-of-life admissions. Context The study was based in the General Medicine units of one Australian public hospital. Medical, nursing, and social work clinicians were recruited to reflect multidisciplinary perspectives. Bereaved caregivers of deceased patients with dementia were interviewed 3 months following death. Methods Qualitative research underpinned by a social constructionist epistemology and framed through complex systems theory. Semi-structured interviews generated data that illuminated perceptions of deterioration observed toward the end of life. Results Although participants anticipated general cognitive and physical deterioration associated with dementia, the emergence of comorbid illness made it difficult to predict the onset of the end of life. During a hospital admission, clinicians attributed the end of life to the advanced outcomes of dementia, whereas families described new medical crises. End-of-life admissions illuminated intersections between dementia and comorbidities rather than illness progression. In contrast with the perception that people with dementia lose awareness at the end of life, families drew attention to evidence that their loved one was present during the dying phase. Significance of results Our findings challenge the dominant understanding of dementia trajectories. Bifurcations between clinicians and families' views demonstrate the difficulties in recognizing end-of-life transitions. Implications for the integration of palliative care are considered.


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