scholarly journals Contextual factors of self-regulation in adolescent medical rehabilitation patients—a qualitative study

2020 ◽  
Author(s):  
Cindy Höhn ◽  
Gloria Metzner ◽  
Edith Waldeck ◽  
Manuela Glattacker
Keyword(s):  
Children And Adolescents ◽  
Chronic Diseases ◽  
Contextual Factors ◽  
Self Regulation ◽  
Chronically Ill ◽  
Medical Rehabilitation ◽  
Personal Factors ◽  
Structured Interviews ◽  
Living Situation ◽  
Treatment Representations

Abstract Background:In recent decades, the prevalence of chronic diseases in children and adolescents has increased significantly. Contextual factors play a central role in the self-regulation of chronic diseases. They influence illness and treatment representations, disease management, and health outcomes. While previous studies have investigated the influence of contextual factors on children's beliefs about their illness, little is known about subjective contextual factors of treatment representations of children and adolescents with chronic diseases, especially in the context of rehabilitation. Therefore, the aim of this qualitative analysis was to examine the contextual factors reported by chronically ill adolescents in relation to their treatment representations. Furthermore, we aimed to assign the identified themes to classifications of environmental and personal contextual factors in the context of the ICF.Methods:Between July and September 2018, semi-structured interviews were conducted with N=13 adolescent rehabilitants to explore their rehab-related treatment representations and associated contextual factors. The interviews started with an open narrative question about expectations and beliefs about rehabilitation, followed by further detailed questions. The interviews were recorded on audio tape, transcribed, and analysed using thematic content analysis. Results:Participants raised six themes associated with their rehab-related treatment representations that were interpreted as contextual factors: the living situation before rehabilitation, characterised by school and family problems, few social contacts, and intensive media consumption; the idea of rehabilitation, which mostly came from various people in the adolescent’s social environment; previous solution attempts; rehab pre-experiences; information that the adolescents received from the clinic or sought themselves; and the assumed attitudes of their parents concerning the presumed necessity of rehabilitation and expectations regarding the process and its outcome. All the themes could be assigned to the classification of environmental and personal factors in the context of the ICF for children and youth.Conclusions:Although contextual factors have an important impact on self-regulation, little attention is paid to their investigation. Personal and environmental factors probably influence patients’ treatment representations in terms of expectations and concerns as well as emotions regarding the treatment. Considering contextual factors could lead to the more appropriate allocation of medical care and the better customisation of treatment.

scholarly journals Contextual factors of self-regulation in children and adolescents with chronic diseases – a qualitative analysis

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Cindy Höhn ◽  
Gloria Metzner ◽  
Edith Waldeck ◽  
Manuela Glattacker
Keyword(s):  
Qualitative Analysis ◽  
Children And Adolescents ◽  
Chronic Diseases ◽  
Contextual Factors ◽  
Self Regulation ◽  
Chronically Ill ◽  
Personal Factors ◽  
Living Situation ◽  
Treatment Representations

Abstract Background In recent decades, the prevalence of chronic diseases in children and adolescents has increased significantly. Contextual factors play a central role in the self-regulation of chronic diseases. They influence illness and treatment representations, disease management, and health outcomes. While previous studies have investigated the influence of contextual factors on children’s beliefs about their illness, little is known about subjective contextual factors of treatment representations of children and adolescents with chronic diseases, especially in the context of rehabilitation. Therefore, the aim of this qualitative analysis was to examine the contextual factors reported by chronically ill children and adolescents in relation to their treatment representations. Furthermore, we aimed to assign the identified themes to classifications of environmental and personal contextual factors in the context of the International Classification of Functioning, Disability and Health (ICF). Methods Between July and September 2018, semi-structured interviews were conducted with N = 13 children and adolescents in rehabilitation to explore their rehab-related treatment representations and associated contextual factors. The interviews started with an open narrative question about expectations and beliefs about rehabilitation, followed by further detailed questions. The interviews were recorded on audio tape, transcribed, and analysed using thematic content analysis. Results Participants raised six themes associated with their rehab-related treatment representations that were interpreted as contextual factors: the living situation before rehabilitation, the idea of rehabilitation, previous solution attempts, rehab pre-experiences, information that the children and adolescents received from the clinic or sought themselves, and the assumed attitudes of their parents concerning rehabilitation. All the themes could be assigned to the classification of environmental and personal factors in the context of the ICF for children and youth. Conclusions Although contextual factors have an important impact on self-regulation, little attention is paid to their investigation. Personal and environmental factors probably influence patients’ treatment representations in terms of expectations and concerns as well as emotions regarding the treatment. Considering contextual factors could lead to the more appropriate allocation of medical care and the better customisation of treatment.

scholarly journals Intelligent Prediction and Optimization Algorithm for Chronic Disease Rehabilitation in Sports Using Big Data

2021 ◽  
Vol 2021 ◽  
pp. 1-7
Author(s):  
Xuelei Zhang ◽  
Xiaofeng Wang
Keyword(s):  
Big Data ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Care Service ◽  
Elderly Care ◽  
Chronically Ill ◽  
Medical Rehabilitation ◽  
Term Care ◽  
Rehabilitation Care ◽  
Fundamental Causes

This paper investigates chronic diseases in the older population in the Chinese province of Henan and analyzes the rehabilitation needs and the current supply of related services in different levels of medical and elderly care institutions. We explore the fundamental causes for the diversified needs and insufficient supply of chronic disease patients in professional medical services and daily care. Using big data and deep learning (DL) in the sports domain, we propose a novel and intelligent prediction system for chronic diseases. Our model explores effective sinking methods of high-quality medical resources, training and guidance practices, assistance and guidance measures, and the ability to improve the grassroots services so that more chronically ill populations can stay in the community family as long as possible. In such an environment, they can receive cheap, safe, and suitable services. It can also lead to further improvement in constructing the government’s regional medical rehabilitation care service system and can formulate long-term care relevant compensation policies.

scholarly journals Contextual factors of self-regulation in adolescent medical rehabilitation patients—a qualitative study

2020 ◽  
Author(s):  
Cindy Höhn ◽  
Gloria Metzner ◽  
Edith Waldeck ◽  
Manuela Glattacker
Keyword(s):  
Qualitative Study ◽  
Contextual Factors ◽  
Self Regulation ◽  
Medical Rehabilitation

Abstract The authors have withdrawn this preprint from Research Square

scholarly journals Primary School Teachers’ Awareness of Chronic Diseases of Children

2017 ◽  
Vol 7 (3) ◽  
pp. 111-121
Author(s):  
Barbora Plisková ◽  
Petr Snopek
Keyword(s):  
Chronic Diseases ◽  
Chronically Ill ◽  
Point Of View ◽  
School Age ◽  
Structured Interviews ◽  
School Life ◽  
Common School ◽  
Chronically Ill Children ◽  
School Care

Abstract Introduction: More and more children and adolescents suffering from chronic diseases are included in common school education. Unfortunately, teachers do not feel confident enough about how to cope, fulfil and satisfy the needs of these children in the educational, social and emotional spheres. The aim ofp this part of research was to discover how teachers work with chronically ill children of younger school-age. There were three aims. The first aim was to investigate if teachers have basic awareness and knowledge about selected chronic diseases in children of younger school-age. The second aim was to discover what experience and attitudes towards chronically ill children of younger school-age teachers have. The third aim was to discover, how the quality of school care of chronically ill children of younger school-age can be improved. Methods: We used qualitative research methodology. Data were processed and gathered from semi-structured interviews. Interviews were conducted with 12 teachers. Results: Our findings revealed that teachers should be acquainted with the disease itself and its consequences in all aspects. In some cases, teachers must be acquainted also with the practical aspects of a chronic disease, e.g. first aid and application of drugs and aids in order to assist children if necessary. Discussion: The study offers unique insights into primary teachers’ views and experiences with chronically ill children, how teachers work with chronically ill pupils of younger school-age and how the quality of school care of chronically ill children of younger school-age can be improved. Limitations: The research is still being conducted and therefore, it is not possible to provide more detailed results and conclusions. However, our main aim was to draw attention to the very problem from the point of view of teachers themselves and to highlight their vivid experiences. Conclusions: It is necessary to create interconnected networks of experts and families who will cooperate and communicate and who will participate in satisfying needs of a child together. These networks will ensure that children will be integrated into common school life in spite of their disease without serious consequences affecting their development and education.

scholarly journals Vicious cycle of chronic disease and poverty: a qualitative study in present day Nepal

2020 ◽  
Author(s):  
Taranath Sapkota ◽  
Inge Houkes ◽  
Hans Bosma
Keyword(s):  
Chronic Disease ◽  
Chronic Diseases ◽  
Social Life ◽  
Chronically Ill ◽  
Adaptation Strategies ◽  
Life Course Perspective ◽  
Poverty Trap ◽  
Vicious Cycle ◽  
Payment Systems ◽  
Structured Interviews

Abstract Background In countries with out-of-pocket (OOP) payment systems for healthcare, the combination of chronic disease and poverty can have damaging socio-economic and health impacts for affected households. Using a life course perspective, this article aims to explore how Nepalese people struggle with, experience and adapt to chronic disease, poverty and their consequences, and how chronic diseases and poverty reinforce each other. Methods In-depth semi-structured interviews were conducted with 21 chronically ill Nepalese people with one or more chronic diseases and/or their caretakers. Data were transcribed and analysed thematically. Results The adaptation strategies for the consequences of the huge OOP costs make patients and their households financially disadvantaged. The impoverishment has major social impacts and often persists across generations. The situation forces people to choose between avoiding medical treatment or further impoverishing their families. Conclusions This study explored how chronically ill Nepalese people struggle with socio-economic and health consequences of OOP payments for their disease. The article sheds light on circumstances and adaptation strategies that obstruct every attempt to escape from the vicious cycle of the poverty trap. Hence poverty and health adversities accumulate across generations and contribute to greater health expenditures, worse health outcomes and severely compromised social life.

Mentalizing Imagery Therapy mobile application for family dementia caregivers: feasibility and effects on mood and caregiving

2018 ◽  
Author(s):  
Abu Sikder ◽  
Francis Yang ◽  
Rhiana Schafer ◽  
Glenna A. Dowling ◽  
Lara Traeger ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Mobile Application ◽  
Self Regulation ◽  
Pilot Trial ◽  
Depression Symptom ◽  
Structured Interviews ◽  
Physical Strain ◽  
Dementia Caregivers ◽  
Loved One ◽  
People With Dementia

Objectives: Due to psychological and physical strain, family caregivers of patients with Alzheimer’s disease and related dementias are at high risk for depression and stress related disorders. We investigated the feasibility of a mobile application (App) intervention delivering Mentalizing Imagery Therapy (MIT), which incorporates guided imagery and mindfulness, to facilitate self-regulation and increase perspective on the mental life of self and others. Method: A 4-week pilot trial of an MIT App for family caregivers of people with dementia was conducted to assess feasibility of use, mood and depression symptom benefit, and relationship changes. Semi-structured interviews were conducted at the study’s conclusion to characterize participants’ perceived benefits. Results: 80% of 21 consented participants downloaded the App, utilized it at least once, and were further analyzed. Of these participants, average usage of audio recordings was 14 ± 10 (SD) days out of 28 possible, and 29 ± 28 individual sessions. Acute improvement in mood from before to after completion of exercises was uniformly observed (p < .001), and after four weeks there was a significant increase in positive affect and a reduction in negative affect. Participants with severe levels of depression (n=3) at baseline exhibited an improvement in symptoms at 4 weeks averaging 30% (p < .05). Semi-structured interviews revealed an increase in the ability to remain “centered" despite caregiving challenges, take the perspective of the loved one, and positively reframe the caregiver experience.Conclusion: App delivery of MIT is feasible for family dementia caregivers. Results showed moderate to high usage of the app for a majority of the users, and promising improvements in mood and depression. These data provide justification for larger, controlled trials.

scholarly journals ‘I was really, really shocked’: A sociological exploration of the transition experiences of English Youth Academy male footballers from school to work

2021 ◽  
pp. 101269022110054
Author(s):  
Nicola Hague ◽  
Graeme Law
Keyword(s):  
Young Children ◽  
Children And Adolescents ◽  
Thematic Analysis ◽  
School To Work ◽  
Structured Interviews ◽  
Professional Career ◽  
Professional Experiences ◽  
Transitional Experiences ◽  
The World ◽  
Different Types

The world of football arguably brings together and unites people in support of their teams and countries, while inspiring young children and adolescents to dream of a professional career. Existing research in the field has sought to begin to understand what professional footballers experience on their journey through the game. However, much of this UK-based research has focused on first team players and their professional experiences, including transitions from youth team to first team and to retirement. This study, therefore, aimed to examine players during their youth academy scholarship at one English Championship club. This study focused on the transitional experiences of youth players from school to the academy and their resulting embodying of a footballer’s identity. Twelve semi-structured interviews with players aged 17–19, were conducted and then analysed by thematic analysis using figurational sociology concepts. Three different types of transition were identified. Among other reasons, early specialisation in football was a prevalent factor that partly influenced the way the players experienced their transition. The transition into the academy coincided with the transition from youth to adulthood that was arguably anything but linear as players managed the dominant sub-cultures present in the club.

Bone Health in Children and Adolescents With Chronic Diseases That May Affect the Skeleton: The 2013 ISCD Pediatric Official Positions

2014 ◽  
Vol 17 (2) ◽  
pp. 281-294 ◽  
Author(s):  
Maria Luisa Bianchi ◽  
Mary B. Leonard ◽  
Susanne Bechtold ◽  
Wolfgang Högler ◽  
M. Zulf Mughal ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Chronic Diseases ◽  
Bone Health

Theoretical and contextual considerations for self-management strategies of children and adolescents with chronic diseases: An integrative review

2021 ◽  
pp. 136749352110136
Author(s):  
Logan J Camp-Spivey ◽  
Ayaba Logan ◽  
Michelle Nichols
Keyword(s):  
Children And Adolescents ◽  
Chronic Diseases ◽  
Management Strategies ◽  
Healthcare Providers ◽  
Integrative Review ◽  
Self Management ◽  
Intervention Delivery ◽  
Management Interventions ◽  
Technological Platforms ◽  
Management Behaviors

The primary aim of this integrative review was to critically evaluate and synthesize published, peer-reviewed research to better understand self-management strategies of children and adolescents with chronic diseases. This review was guided by Whittemore and Knafl’s methodological framework. The Pediatric Self-management Model provided the theoretical framework for understanding how self-management behaviors operate within the domains of individual, family, community, and healthcare systems. In June 2019, the electronic databases of EBSCOhost, PubMed, and Scopus, along with reference lists of applicable studies, were searched for appropriate publications. The initial searches yielded 920 citations. Of these, 11 studies met inclusion criteria. A key finding was that involving children and adolescents in the design and delivery phases of interventions was most effective in improving self-management when the interventions did not outweigh cognitive ability or maturity level. In addition, incorporating self-efficacy promotion into self-management interventions may lead to greater sense of responsibility and improved health outcomes. In terms of intervention delivery of self-management strategies, the use of technological platforms and devices was revealed as a promising avenue for youth. A final implication was the importance of family members, peers, and healthcare providers in supporting children and adolescents in adopting self-management behaviors.

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