scholarly journals Emphasise Capability, Not Disability: Exploring public perceptions, facilitators and barriers to living well with dementia in Northern Ireland.

2020 ◽  
Author(s):  
Gary Mitchell ◽  
Victoria McTurk ◽  
Gillian Carter ◽  
Christine Brown-Wilson
Keyword(s):  
Thematic Analysis ◽  
Public Perceptions ◽  
Death Sentence ◽  
Northern Irish ◽  
Living Well ◽  
People With Dementia ◽  
Ethical Approval ◽  
Facilitators And Barriers ◽  
Group Interviews ◽  
Modes Of Life

Abstract Background: Improving public knowledge and understanding about dementia has been identified as a priority area by people living with the condition, researchers, educators, and policymakers for several years. Societies that have a better understanding of the condition are more likely to enable people living with dementia to enjoy a better quality of life. The aim of this study was to explore current public perceptions of dementia along with the facilitators and barriers to living well from the perspective of people living with the condition in Northern Ireland.Methods: Four focus group interviews were conducted with a total of 20 people living with dementia across three Northern Irish Counties in June 2019. These interviews were audio-recorded, transcribed verbatim and analysed using thematic analysis. Ethical approval was obtained for this study prior to data collection.Findings: Following thematic analysis, three themes emerged in relation to barriers and facilitators to living well with dementia. These were: ‘Emphasis on Disability NOT Capability’, which highlighted societal misconceptions about the activities and modes of life which people with dementia could or could not do; ‘Normalise Dementia – We Don’t Want a Fool’s Pardon’, which focused on how the public could encourage people living with the condition to enjoy greater independence, and ‘Dementia isn’t a Death Sentence’, which considered how professionals, family members and friends treated the person after diagnosis.Conclusions: Public perceptions about dementia have the potential to act as both facilitators and barriers to living well with dementia. People with dementia stated that they are more likely sustain wellbeing when they are valued and can maintain independence. On the contrary, poor public and professional attitudes to dementia had the potential to disempower people living with dementia.

scholarly journals Emphasise Capability, Not Disability: Exploring public perceptions, facilitators and barriers to living well with dementia in Northern Ireland.

2020 ◽  
Author(s):  
Gary Mitchell ◽  
Victoria McTurk ◽  
Gillian Carter ◽  
Christine Brown-Wilson
Keyword(s):  
Northern Ireland ◽  
Thematic Analysis ◽  
Public Perceptions ◽  
Death Sentence ◽  
Northern Irish ◽  
Living Well ◽  
People With Dementia ◽  
Ethical Approval ◽  
Facilitators And Barriers ◽  
Modes Of Life

Abstract Background: Improving public knowledge and understanding about dementia has been identified as a priority area by people living with the condition, researchers, educators, and policymakers for several years. Societies that have a better understanding of the condition are more likely to enable people living with dementia to enjoy a better quality of life. The aim of this study was to explore current public perceptions of dementia along with the facilitators and barriers to living well from the perspective of people living with the condition in Northern Ireland. Methods: Four focus group interviews were conducted with a total of 20 people living with dementia across three Northern Irish Counties in June 2019. These interviews were audio-recorded, transcribed verbatim and analysed using thematic analysis. Ethical approval was obtained for this study prior to data collection. Findings: Following thematic analysis, three themes emerged in relation to barriers and facilitators to living well with dementia. These were: ‘Emphasis on Disability NOT Capability’, which highlighted societal misconceptions about the activities and modes of life which people with dementia could or could not do; ‘Normalise Dementia – We Don’t Want a Fool’s Pardon’, which focused on how the public could encourage people living with the condition to enjoy greater independence, and ‘Dementia isn’t a Death Sentence’, which considered how professionals, family members and friends treated the person after diagnosis. Conclusions: Public perceptions about dementia have the potential to act as both facilitators and barriers to living well with dementia. People with dementia articulated that they are more likely sustain wellbeing when they are valued and can lead the type of life, they are able to lead. On the contrary, poor public and professional attitudes to dementia had the potential to disempower people living with dementia.

scholarly journals Emphasise capability, not disability: exploring public perceptions, facilitators and barriers to living well with dementia in Northern Ireland

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Gary Mitchell ◽  
Victoria McTurk ◽  
Gillian Carter ◽  
Christine Brown-Wilson
Keyword(s):  
Northern Ireland ◽  
Thematic Analysis ◽  
Public Perceptions ◽  
Death Sentence ◽  
Northern Irish ◽  
Living Well ◽  
People With Dementia ◽  
Ethical Approval ◽  
Facilitators And Barriers ◽  
Modes Of Life

Abstract Background Improving public knowledge and understanding about dementia has been identified as a priority area by people living with the condition, researchers, educators, and policymakers for several years. Societies that have a better understanding of the condition are more likely to enable people living with dementia to enjoy a better quality of life. The aim of this study was to explore current public perceptions of dementia along with the facilitators and barriers to living well from the perspective of people living with the condition in Northern Ireland. Methods Four focus group interviews were conducted with a total of 20 people living with dementia across three Northern Irish Counties in June 2019. These interviews were audio-recorded, transcribed verbatim and analysed using thematic analysis. Ethical approval was obtained for this study prior to data collection. Findings Following thematic analysis, three themes emerged in relation to barriers and facilitators to living well with dementia. These were: ‘Emphasis on Disability NOT Capability’, which highlighted societal misconceptions about the activities and modes of life which people with dementia could or could not do; ‘Normalise Dementia – We Don’t Want a Fool’s Pardon’, which focused on how the public could encourage people living with the condition to enjoy greater independence, and ‘Dementia isn’t a Death Sentence’, which considered how professionals, family members and friends treated the person after diagnosis. Conclusions Public perceptions about dementia have the potential to act as both facilitators and barriers to living well with dementia. People with dementia stated that they are more likely sustain wellbeing when they are valued and can maintain independence. On the contrary, poor public and professional attitudes to dementia had the potential to disempower people living with dementia.

scholarly journals Exploring Perceptions of Dementia in Northern Ireland

2020 ◽  
Author(s):  
Gary Mitchell ◽  
Victoria McTurk ◽  
Gillian Carter ◽  
Christine Brown-Wilson
Keyword(s):  
Northern Ireland ◽  
Thematic Analysis ◽  
Public Perception ◽  
Death Sentence ◽  
Northern Irish ◽  
Daily Lives ◽  
Living Well ◽  
People With Dementia ◽  
Ethical Approval ◽  
Modes Of Life

Abstract Background: Improving public knowledge and understanding about dementia has been identified as a priority area by people living with the condition, researchers, educators and policymakers for a number of years. Societies that have a better understanding of the condition are more likely to enable people living with dementia to enjoy a better quality of life. The aim of this study was to explore current public perceptions of dementia from people living with the condition in Northern Ireland.Methods: Four focus group interviews were conducted with a total of 20 people living with a dementia across three Northern Irish Counties in June 2019. These interviews were audio-recorded, transcribed verbatim and analysed using thematic analysis. Ethical approval was obtained for this study prior to data collection.Findings: Following thematic analysis, three themes emerged in relation to barriers and facilitators to living well with dementia. These were: ‘Emphasis on Disability NOT Capability’, which highlighted societal misconceptions about the activities and modes of life which people with dementia could or could not do; ‘Normalise Dementia – We Don’t Want a Fool’s Pardon’, which focused on how society could encourage people living with the condition to enjoy greater independence, and ‘Dementia isn’t a Death Sentence’, which considered how professionals, family members and friends treated the person after diagnosis.Conclusions: Public perception and knowledge about dementia are improving but people living with the condition still face significant challenges in their daily lives. Participants in this study acknowledged improvements in societal knowledge and perception about dementia, however they also acknowledged there is still an urgent need for continued improvement.

scholarly journals Support Needs and Expectations of People Living with Dementia and Their Informal Carers in Everyday Life: A European Study

2019 ◽  
Vol 8 (7) ◽  
pp. 203 ◽  
Author(s):  
Lethin ◽  
Hanson ◽  
Margioti ◽  
Chiatti ◽  
Gagliardi ◽  
...  
Keyword(s):  
Everyday Life ◽  
Early Stage ◽  
Well Being ◽  
Community Dwelling ◽  
Design Data ◽  
Living Well ◽  
People With Dementia ◽  
Trusting Relationships ◽  
Informal Carers ◽  
Group Interviews

The aim of this study was to describe the needs and expectations of support within everyday life among community-dwelling people living well with an early stage dementia and their informal carers. The study employed a qualitative design. Data were collected in 2018, via four focus group interviews with, in total, 17 people with dementia and 21 informal carers, transcribed and analyzed with manifest content analysis. Needs and expectations of support among persons with dementia were expressed as the importance of “Participation in my own care,” “Attitude of the informal carers,” and “Trusting relationships with informal carers.” Informal carers’ needs and expectations of support were expressed as the importance of “Formal care and services,” “Getting out of a carer mindset,” and “Family context.” The findings from this study highlighted that persons with dementia were well aware of their cognitive impairments and tried to maintain their independence, with both formal and informal care to help remain “being themselves.” Health professionals should acknowledge persons with dementia and informal carers’ well-being, and acknowledge the importance of their needs together with an understanding of the importance of continuity of frontline carers to building trusting relationships.

Mobile phone apps’ support for people with mild dementia: A systematic review (Preprint)

2019 ◽  
Author(s):  
Leona Cilar ◽  
Lucija Gosak ◽  
Amanda Briggs ◽  
Klavdija Čuček Trifkovič ◽  
Tracy McClelland ◽  
...  
Keyword(s):  
Mobile Phone ◽  
Thematic Analysis ◽  
Daily Life ◽  
General Term ◽  
Cognitive Domain ◽  
Mild Dementia ◽  
Daily Life Activities ◽  
Human Needs ◽  
People With Dementia ◽  
System Usability Scale

BACKGROUND Dementia is a general term for various disorders characterized by memory impairment and loss of at least one cognitive domain. People with dementia are faced with different difficulties in their daily life activities (DLA). With the use of modern technologies, such as mobile phone apps – often called health apps, their difficulties can be alleviated. OBJECTIVE The aim of this paper was to systematically search, analyze and synthetize mobile phone apps designed to support people with mild dementia in daily life activities in two apps bases: Apple App Store and Google Play Store. METHODS A search was conducted in May 2019 following PRISMA recommendations. Results were analyzed and displayed as tables and graphs. Results were synthetized using thematic analysis which was conducted from 14 components, based on human needs for categorized nursing activities. Mobile phone apps were assessed for quality using the System Usability Scale. RESULTS A total of 15 mobile phone apps were identified applying inclusion and exclusion criteria. Five major themes were identified with thematic analysis: multi-component DLA, communication and feelings, recreation, eating and drinking, and movement. Most of the apps (73%) of the apps were not mentioned in scientific literature. CONCLUSIONS There are many mobile phone apps available in mobile phone markets for the support for people with mild dementia; yet only a few of them are focused on challenges in daily life activities. Most of the available apps were not evaluated nor assessed for quality.

scholarly journals Facilitators and barriers to implement nurse-led interventions in long-term dementia care: a qualitative interview study with Swiss nursing experts and managers

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Julian Hirt ◽  
Melanie Karrer ◽  
Laura Adlbrecht ◽  
Susi Saxer ◽  
Adelheid Zeller
Keyword(s):  
Nursing Home ◽  
Nursing Homes ◽  
Public Perception ◽  
Dementia Care ◽  
Term Care ◽  
Face To Face ◽  
People With Dementia ◽  
Qualitative Interview Study ◽  
Facilitators And Barriers

Abstract Background To support the implementation of nurse-led interventions in long-term dementia care, in-depth knowledge of specific supporting factors and barriers is required. Conditions and structures of caring for people with dementia differ widely, depending on the country and the care context. Our study aimed to describe the experiences and opinions of nursing experts and managers with regard to facilitators and barriers to the implementation of nurse-led interventions in long-term dementia care. Methods We conducted a qualitative descriptive study using individual interviews based on qualitative vignettes as a useful stimulus to generate narrations allowing to study peoples’ perceptions and beliefs. The study took place in nursing homes in the German-speaking part of Switzerland and in the Principality of Liechtenstein using purposive sampling. We intended to conduct the interviews face-to-face in a quiet room according to the participant’s choice. However, due to the lockdown of nursing homes during the COVID-19 pandemic in spring 2020, we performed interviews face-to-face and by video. We analysed data thematically following Braun and Clarke to achieve a detailed, nuanced description. To verify our interpretation and to ensure congruence with participants’ perspectives, we conducted member checks. The Standards for Reporting Qualitative Research (SRQR) served to structure our manuscript. Results Six dyads of nursing home managers and nursing experts from six nursing homes took part in our study (n = 12). Our thematic analysis yielded seven themes reflecting facilitators and barriers to implementing nurse-led interventions in long-term dementia care: «A common attitude and cohesion within the organization», «Commitment on several levels», «A needs-oriented implementation», «The effect and the public perception of the intervention», «A structured and guided implementation process», «Supporting knowledge and competencies», as well as «Resources for implementing the intervention». Conclusions To support the implementation of nurse-led interventions in long-term dementia care, active commitment-building seems essential. It is necessary that the value of the intervention is perceptible.Commitment-building is the precondition to reach the persons involved, such as nursing home managers, nursing staff, residents and relatives. Furthermore, nurses should precisely inform about the intervention. It is necessary that the value of the intervention is perceptible. In addition, nurses should adjust the interventions to the situational needs of people with dementia, thus. Therefore, it is important to support dementia-specific competencies in long-term care. Findings indicate that the barrier is determined by the intervention and its implementation – and not by the behaviour of the person with dementia.

scholarly journals Facilitators and barriers to remaining at home for people with dementia who live alone

2016 ◽  
Vol 14 (4) ◽  
pp. 20-29
Author(s):  
Emma Kirk ◽  
Lisa Burrows ◽  
Bridie Kent ◽  
Rebecca Abbott ◽  
Alison Warren
Keyword(s):  
People With Dementia ◽  
Facilitators And Barriers ◽  
At Home

The meaning of slow nursing in dementia care

Dementia ◽  
2015 ◽  
Vol 16 (7) ◽  
pp. 930-947 ◽  
Author(s):  
Daniela Lillekroken ◽  
Solveig Hauge ◽  
Åshild Slettebø
Keyword(s):  
Nursing Homes ◽  
Focus Group ◽  
Best Practices ◽  
Sense Of Coherence ◽  
Participant Observation ◽  
Research Literature ◽  
Focus Group Interviews ◽  
People With Dementia ◽  
Group Interviews ◽  
The Moment

Research literature in the dementia field lacks examples of ‘best-practices’ demonstrating concretely how it is possible to support the sense of coherence in people with dementia. The purpose of this study was to elucidate the nurses’ views concerning a caring approach that may support the sense of coherence in people with dementia. The data were collected through participant observation and focus group interviews during a four-month period in 2011. Sixteen registered nurses recruited from two Norwegian nursing homes participated in this study. The data were interpreted using a phenomenological-hermeneutical method. Three themes were identified: ‘being in the moment’, ‘doing one thing at a time’, and ‘creating joy and contentment’. An overall interpretation of these themes is described by the metaphor ‘slow nursing’, a caring approach that may lead to supporting the sense of coherence in people with dementia.

How accessible are grocery shops for people with dementia? A qualitative study using photo documentation and focus group interviews

Dementia ◽  
2018 ◽  
Vol 19 (6) ◽  
pp. 1872-1888 ◽  
Author(s):  
Anna Brorsson ◽  
Annika Öhman ◽  
Stefan Lundberg ◽  
Malcolm P Cutchin ◽  
Louise Nygård
Keyword(s):  
Grounded Theory ◽  
Focus Group ◽  
Qualitative Study ◽  
Grocery Shopping ◽  
Theory Approach ◽  
Focus Group Interviews ◽  
People With Dementia ◽  
Photo Documentation ◽  
Group Interviews ◽  
Grounded Theory Approach

Background People with dementia who live in ordinary housing need to perform activities outside the home such as visiting friends, talking walks and doing grocery shopping. This article identifies and examines characteristics that may influence accessibility in the space of a grocery shop as perceived by people with dementia. Methods This is a qualitative study with a grounded theory approach. The data collection was done with two different methods. It started with photo documentation and continued with focus group interviews in combination with photo elicitation. Data from both photo documentation and focus groups were analysed according to a grounded theory approach. Results The categories “illogical arrangement”, “overload of products, information and people”, “visual illusions” and “intrusive auditory stimuli” showed characteristics in the grocery shop that influenced how accessible and usable the informants experienced a shop to be. Furthermore, personal capacities in relation to the specific characteristics of the grocery shop space had an influence on how accessible and usable the informants experienced the grocery shop to be. Capacities to find, stay focused and concentrated, meet stress, remember, interpret and discriminate sensory impressions through hearing and sight came to the fore as important. Conclusions Characteristics of both the shop and the person need to be taken into account when supporting people with dementia in grocery shopping.

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