scholarly journals Understanding patient outcomes to develop a multimorbidity adapted patient-reported outcomes measure: a qualitative description of patient and provider perspectives.

2021 ◽  
Author(s):  
Maxime Sasseville ◽  
Maud-Christine Chouinard ◽  
Martin Fortin

Abstract Background: Multimorbidity is a complex health situation that requires interventions tailored to patient needs; the outcomes of such interventions are difficult to evaluate. The purpose of this study was to describe the outcomes of patient-centred interventions for people with multimorbidity from the patients’ and healthcare providers’ perspectives.Methods: This study followed a qualitative descriptive design. Nine patients with multimorbidity and 18 healthcare professionals (nurses, general practitioners, nutritionists, and physical and respiratory therapists), participating in a multimorbidity-adapted intervention in primary care were recruited. Data were collected using semi-structured interviews with 12 open-ended questions. Triangulation of disciplines among interviewers, research team debriefing, data saturation assessment and iterative data collection and analysis ensured a rigorous research process.Results: Outcome constructs described by participants covered a wide range of themes and were grouped into seven outcome domains: Health Management, Physical Health, Functional Status, Psychosocial Health, Health-related Behaviours, General Health and Health Services. The description of constructs by stakeholders provides valuable insight on how outcomes are experienced and worded by patients.Conclusion: Participants described a wide range of outcome constructs, which were relevant to and observable by patients and were in line with the clinical reality. The description provides a portrait of multimorbidity-adapted intervention outcomes that are significant for the selection and development of clinical research outcome measures.

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Maxime Sasseville ◽  
Maud-Christine Chouinard ◽  
Martin Fortin

Abstract Background Multimorbidity is a complex health situation that requires interventions tailored to patient needs; the outcomes of such interventions are difficult to evaluate. The purpose of this study was to describe the outcomes of patient-centred interventions for people with multimorbidity from the patients’ and healthcare providers’ perspectives. Methods This study followed a qualitative descriptive design. Nine patients with multimorbidity and 18 healthcare professionals (nurses, general practitioners, nutritionists, and physical and respiratory therapists), participating in a multimorbidity-adapted intervention in primary care were recruited. Data were collected using semi-structured interviews with 12 open-ended questions. Triangulation of disciplines among interviewers, research team debriefing, data saturation assessment and iterative data collection and analysis ensured a rigorous research process. Results Outcome constructs described by participants covered a wide range of themes and were grouped into seven outcome domains: Health Management, Physical Health, Functional Status, Psychosocial Health, Health-related Behaviours, General Health and Health Services. The description of constructs by stakeholders provides valuable insight on how outcomes are experienced and worded by patients. Conclusion Participants described a wide range of outcome constructs, which were relevant to and observable by patients and were in line with the clinical reality. The description provides a portrait of multimorbidity-adapted intervention outcomes that are significant for the selection and development of clinical research outcome measures.


2020 ◽  
Author(s):  
Maxime Sasseville ◽  
Maud-Chrisitne Chouinard ◽  
Martin Fortin

Abstract Background: Understanding the outcomes of multimorbidity-adapted interventions from the perspective of patients and providers is essential to research and practice in this population, but is currently lacking. The purpose of this study was to describe the outcomes of patient-centred interventions for people with multimorbidity from the patients’ and providers’ perspectives.Methods: This study followed a qualitative descriptive design. Nine patients with multimorbidity and 18 healthcare professionals (nurses, general practitioners, nutritionists, and physical and respiratory therapists), participating in a multimorbidity-adapted intervention in primary care were recruited. Data was collected using semi-structured interviews with 12 open-ended questions. Triangulation of disciplines among interviewers, research team debriefing, data saturation assessment and iterative data collection and analysis ensured a rigorous research process.Results: Outcome constructs described by participants covered a wide range of themes and were grouped into seven outcome domains: Health Management, Functional Status, Physical Symptoms, Psychosocial Health, Health-oriented Behaviours, General Health and Health Services. The description of constructs by stakeholders provides valuable insight on how outcomes are experienced and worded by patients in that context.Conclusion: Stakeholders described a wide range of outcome constructs, which were relevant to and observable by patients and were in line with the clinical reality. The description provides a portrait of multimorbidity-adapted intervention outcomes that are significant for the selection and development of clinical research outcome measures.


2020 ◽  
Author(s):  
Alireza Nikbakht nasrabadi ◽  
soodabeh joolaee ◽  
Elham Navab ◽  
Maryam esmaeilie ◽  
mahboobe shali

Abstract Background: Keeping the patients well and fully informed about diagnosis, prognosis, and treatments is one of the patient’s rights in any healthcare system. Although all healthcare providers have the same viewpoint about rendering the truth in treatment process, sometimes the truth is not told to the patients; that is why the healthcare staff tell “white lie” instead. This study aimed to explore the nurses’ experience of white lies during patient care. Methods: This qualitative study was conducted from June to December 2018. Eighteen hospital nurses were recruited with maximum variation from ten state-run educational hospitals affiliated to Tehran University of Medical Sciences. Purposeful sampling was used and data were collected by semi-structured interviews that were continued until data saturation. Data were classified and analyzed by content analysis approach. Results: The data analysis in this study resulted in four main categories and eleven subcategories. The main categories included hope crisis, bad news, cultural diversity, and nurses’ limited professional competences. Conclusion: Results of the present study showed that, white lie told by nurses during patient care may be due to a wide range of patient, nurse and/or organizational related factors. Communication was the main factor that influenced information rendering. Nurses’ communication with patients should be based on mutual respect, trust and adequate cultural knowledge, and also nurses should provide precise information to patients, so that they can make accurate decisions regarding their health care.


2020 ◽  
Author(s):  
Alireza Nikbakht nasrabadi ◽  
soodabeh joolaee ◽  
Elham Navab ◽  
Maryam esmaeilie ◽  
mahboobe shali

Abstract Background: Keep the patients well and fully informed about diagnosis, prognosis, and treatments is one of the patient’s rights in any healthcare system. Although all healthcare providers have the same viewpoint about rendering the truth in treatment process, sometimes the truth is not told to the patients and instead, healthcare staff use “white lie”. This study aimed to explore the nurses’ experience of white lies during patient care.Methods: This qualitative and descriptive study was conducted during June to December 2018. Eighteen hospital nurses were purposively recruited with maximum variation from ten teaching and public hospitals affiliated to Tehran University of Medical Sciences. Purposeful sampling was used and data were collected by semi-structured interviews that were continued until data saturation. Data was classified and analyzed by content analysis approach.Results: The data analysis in this study resulted in four main categories and eleven subcategories. The main categories included hope crisis, bad news, cultural diversity, and nurses’ limited professional competence. Conclusion: Results of the present study showed that, the use of white lie by nurses during patient care may be due to a wide range of patient, nurse and organizational-related factors. Communication was the main factor that influenced information rendering. Nurses’ communication with patients should be based on mutual respect, trust and adequate cultural knowledge, and also nurses should provide precise information to patients, so they can make accurate decisions regarding their health care.


Author(s):  
Taylor Riffel ◽  
Shu-Ping Chen

Background: The stigma of mental illness causes delays in seeking help, and often compromises victims’ therapeutic relationships with healthcare providers. The knowledge, attitudes, and behavioural responses of future healthcare professionals toward individuals with mental illnesses are explored here to suggest steps that will reduce mental illness stigma in healthcare providers. Methods: A generic qualitative approach—Qualitative Description—was used. Eighteen students from nine healthcare programs at a Canadian University participated in individual semi-structured interviews. Participants answered questions regarding their knowledge, attitudes, and behavioural responses towards individuals with mental illnesses. Thematic content analysis guided the data analysis. Results: Four main themes were constructed from the data: positive and negative general perceptions toward mental illness; contact experiences with mental illnesses; mental illness in a healthcare setting; and learning about mental illness in healthcare academia. Conclusions: Students showed well-rounded mental health knowledge and mostly positive behaviours toward individuals with mental illnesses. However, some students hold stigmatizing attitudes and do not feel prepared through their academic experiences to work with individuals with mental illnesses. Mental health education can reduce the stigma toward mental illness and improve the care delivered by healthcare professionals.


Author(s):  
Amanda Baskwill ◽  
Meredith Vanstone ◽  
Del Harnish ◽  
Kelly Dore

AbstractBackgroundA division has been described among massage therapists, some who identify as healthcare providers while others identify as service providers. The perceived division creates confusion about what it means to be a massage therapist.ObjectiveThis qualitative study answered, “How do massage therapists in Ontario describe their professional identity?”MethodsQualitative description (QD) was used and data were collected from 33 massage therapists using semi-structured interviews.ResultsThe resulting description of massage therapists’ identity in Ontario is the first of its kind. The identity described includes passion as professional motivation in practice, the importance of confidence and competence, a focus on the therapeutic relationship, individualized care, and patient empowerment, and a desire to be recognized for their role within the healthcare system.ConclusionThere is still much to be investigated about massage therapists’ identity. Future research will explore whether this description resonates with a larger sample of massage therapists in Ontario.


Author(s):  
Danae Dinkel ◽  
Jennifer Harsh Caspari ◽  
Louis Fok ◽  
Maxine Notice ◽  
David J Johnson ◽  
...  

Abstract The use of mobile applications or “apps” is beginning to be identified as a potential cost-effective tool for treating depression. While the use of mobile apps for health management appears promising, little is known on how to incorporate these tools into integrated primary care settings—especially from the viewpoints of patients and the clinic personnel. The purpose of this study was to explore patient- and clinic-level perceptions of the use of depression self-management apps within an integrated primary care setting. Patients (n = 17), healthcare providers, and staff (n = 15) completed focus groups or semi-structured interviews in-person or via Zoom between January and July 2020. Participants were asked about barriers and facilitators to app use, how to best integrate it into care, and reviewed pre-selected mental health apps. Data were analyzed using a directed content analysis approach. From a patient perspective, features within the app such as notifications, the provision of information, easy navigation, and a chat/support function as well as an ability to share data with their doctor were desirable. Providers and staff identified integration of app data into electronic health records to be able to share data with patients and the healthcare team as well as clear evidence of effectiveness as factors that could facilitate implementation. All participants who reviewed apps identified at least one of them they would be interested in continuing to use. Overall, patients, healthcare providers, and staff believed depression apps could be beneficial for both patients and the clinic.


2019 ◽  
Author(s):  
Lina Guo ◽  
Lin Wang ◽  
Jo Booth ◽  
Yanjin Liu ◽  
Yiru Zhu ◽  
...  

BACKGROUND Effective health management of people at high risk of stroke is challenging. OBJECTIVE To identify and explore the experiences of health management among people at high risk of stroke in order to inform ideas for health management service development for this population. METHODS Semi-structured interviews were conducted with 31stroke people at high risk of stroke. The interviews were collated and analyzed using Colaizzi’s 7-step method. RESULTS The experiences of health management in people at high risk of stroke were described as ‘Survival in the gap’. Themes identified limited knowledge of health management, lack of confidence in health management and poor adherence with health management. The value of health management experience was highlighted and included: becoming active learners, promoting social interaction and enhancing self-health management. Health management was seen to be sensitive to multiple influencing factors including: The severity and complexity of diseases, family income and social support. CONCLUSIONS Health management of people at high risk of stroke is challenging and they ‘survive in the gap’. They learn to manage their ongoing health based mainly on their own experiences. Government and healthcare providers should pay attention to the situation for this special population and be devoted to health system reform, financial support and social support to manage the condition in the longer term.


2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Navjot Sandhu

PurposeThis paper aims to evaluate whether small marginal farmers in India have financial constraints and to examine how bank managers make lending decisions.Design/methodology/approachA survey approach was employed, using semi-structured questionnaires with a sample of 42 banks and 185 farmers from the state of Punjab in India. The questionnaires and semi-structured interviews were carried out on a one-to-one basis and in focus groups, and their responses were analysed from the supply (banks) and demand (farmers) side regarding access to finance.FindingsThe results indicate that the Indian farming sector is a complex and multidimensional one that has dependency on both the private and public sectors because of its national importance to varying degrees. Financial lending decisions are dependent upon several non-quantifiable factors (culture, caste, family size, education) and relational bank lending practices. Such practices have an adverse impact on bankable loan applications, and this gives rise to moral hazards. Relational banking and recommendations minimise default rates, but this does not minimise information asymmetry. Subjectivity in decision-making persists, which is compounded by underdeveloped financial markets for small farmers, giving rise to financial exclusion and negatively impacting on economic growth. To overcome information asymmetry, banks rely on the qualitative factors and an excessive level of collateral when making lending decisions. The findings provide valuable insight into how banks make lending decisions and evaluates a complex matrix of relationships between farmers and providers of debt finance in a developing economy such as India.Practical implicationsPolicy makers nationally and internationally could use the results of this research to develop relevant and targeted policies to promote the agricultural sector through adopting efficient provision of finance for farmers. A major contribution of this research is to provide a fundamental evaluation of the issues facing farmers in accessing finance in developing countries.Originality/valueThis study provides an original empirical insight into a sector of the economy that has implications for food security for a country. The study has relevance for a wide range of stakeholders and policy makers of both developed and emerging economies in the world.


2019 ◽  
Vol 13 ◽  
Author(s):  
Karla Rona da Silva ◽  
Wesley Vieira Andrade ◽  
Gabriel Vieira Perdigão Maia ◽  
Shirlei Moreira da Costa Faria ◽  
Marina Lanari Fernandes ◽  
...  

Objetivo: descrever como acontece a comunicação verbal oral e escrita entre os gestores e as equipes das Unidades de Pronto Atendimento (UPAs 24h). Método: trata-se-de estudo qualitativo, descritivo. Utilizar-se-á o estudo de caso como método, tendo como unidade de análise as quatro UPAs 24h de um município e os participantes da pesquisa serão os profissionais que ocupam função de gestão nas UPAs 24h, entre eles, gerentes, referências técnicas médicas e de Enfermagem, amparado nos critérios de saturação dos dados. Realizar-se-á a coleta de dados por meio de entrevista semiestruturada utilizando um roteiro validado. Analisar-se-á o conteúdo das entrevistas por meio da técnica de Análise de Conteúdo. Resultados esperados: pretende-se possibilitar a elaboração de um instrumento norteador, a partir das tecnologias gerenciais em saúde, para o alcance da comunicação efetiva entre gestores e equipes das UPAs 24h. Descritores: Comunicação; Gestão em Saúde; Serviços Médicos de Emergência; Emergências; Pessoal de Saúde; Meios de Comunicação.AbstractObjective: to describe how oral and written verbal communication happens between managers and teams of Emergency Care Units (24-hour ECUs). Method: this is a qualitative, descriptive study. The case study will be used as a method, having as a unit of analysis the four 24h ECUs of a municipality and the research participants will be the professionals who perform the management function in the 24h ECUs, including managers, medical and technical references based on data saturation criteria. Data collection will be performed through semi-structured interviews using a validated script. The content of the interviews will be analyzed using the Content Analysis technique. Expected results: it is intended to enable the development of a guiding instrument, based on health management technologies, to achieve effective communication between managers and teams of 24-hour ECUs. Descriptors: Communication; Health Management; Emergency Medical Services; Emergencies; Health Personnel; Communications Media.ResumenObjetivo: describir cómo ocurre la comunicación verbal oral y escrita entre los gerentes y los equipos de las Unidades de Atención de Emergencia (UPAs 24h). Método: este es un estudio cualitativo y descriptivo. Se utilizará el estudio de caso como método, tomando como unidad de análisis las cuatro UPAs de 24 horas de un municipio y los participantes en la investigación serán los profesionales que ocupan la función de gestión en las UPAs de 24 horas, incluidos los gerentes, las referencias técnicas médicas y de Enfermería, respaldadas por los criterios de saturación de datos. La recopilación de datos se realizará a través de entrevistas semiestructuradas utilizando un guión validado. El contenido de las entrevistas se analizará utilizando la técnica de Análisis de Contenido. Resultados esperados: está destinado a permitir la elaboración de un instrumento de guía, basado en tecnologías de gestión de la salud, con el fin de lograr una comunicación efectiva entre los gerentes y equipos de las UPAs 24 horas Descriptores: Comunicación; Gestión en Salud; Servicios Médicos de Urgencia; Urgencias Médicas; Personal de Salud; Medios de Comunicación.


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