Bridging the Communication Gap in Hospice and Palliative Care for Hispanics and Latinos

2013 ◽  
Vol 67 (1-2) ◽  
pp. 193-200 ◽  
Author(s):  
Sonia Quinones-Gonzalez
Keyword(s):  
Palliative Care ◽  
Service Providers ◽  
Minority Group ◽  
The United States ◽  
Outreach Program ◽  
Service Areas ◽  
Pasco County ◽  
Hispanic And Latino ◽  
Hospice And Palliative Care ◽  
The Impact

The Hispanic and Latino populations have increased nationwide. Hispanics are now the largest minority group in the United States. This increase in population will have an impact on all service areas, including hospice and palliative care. The goal as service providers is to remove barriers to care in order to increase opportunities for all the people residing in the communities. This project addresses the impact of the Hispanic and Latino populations in Pasco County, Florida, and the need to develop Latino outreach programs that will inform, educate, and provide culturally sensitive services which will decrease the barriers of communication and accessibility for Hispanics and Latinos who are in need of hospice and palliative care. The new outreach program, named Nuestro, which means “ours” in Spanish, is designed with this purpose in mind. The project's goal was to increase service by 200%; the outcome after 2 years was an increase of services by 900%.

scholarly journals 523. COVID-19 Preparedness in Hospice and Palliative Care

2020 ◽  
Vol 7 (Supplement_1) ◽  
pp. S328-S328
Author(s):  
Monika Pogorzelska-Maziarz ◽  
Jeannette Kates ◽  
Jingjing Shang ◽  
Angela M Gerolamo
Keyword(s):  
Palliative Care ◽  
Hospice Care ◽  
Group Discussion ◽  
Discussion Board ◽  
Community Group ◽  
Care Community ◽  
Care Services ◽  
Do It Yourself ◽  
Hospice And Palliative Care ◽  
The Impact

Abstract Background Due to the emergence of COVID-19 and resulting pandemic, there is an increased demand for palliative care and hospice care services. However, the impact of COVID-19 on the hospice and palliative agencies is unknown. Methods An electronic survey was disseminated via the Hospice & Palliative Nurses Association newsletter, posted to the Sigma Theta Tau Hospice and Palliative Care Community Group discussion board and advertised through social media from May 7–28, 2020. Summary statistics were computed. Results We collected 36 surveys representing all U.S. regions. Most respondents (78%) reported that their agency has cared for confirmed COVID-19 patients. Only half of agencies had access to laboratory facilities for surveillance and detection of the presence of outbreaks in both patients and staff (58%) and the ability to test patients and providers for COVID-19 (55%). Due to COVID-19, participants stated that the agency added new protocols regarding aerosol-generating procedures policies (58%), use of surface barriers (61%) and PPE usage (e.g. donning and doffing) in patient homes (56%). The majority (76%) reported that their agency required field clinicians to call ahead to ascertain COVID-19 exposure/symptoms before a home visit. More than half (58%) reported that their agency lacked supplies, including N95 respirators (45%), cleaning/disinfectant product (23%), alcohol based sanitizer (18%), eye protection (18%), gowns (18%), and surgical masks (14%). Overall, participants shared that field clinicians had to reuse (76%), extend (73%) or ration (30%) PPE supplies. Respondents reported that their agency accessed supplemental PPE through state/local resources (67%), private/community donations (67%), and do-it-yourself efforts (55%). One third (31%) reported that their agency was experiencing staffing shortages due to COVID-19; of these, 60% reported that shortages were due to staff infected with/quarantined due to COVID-19. Conclusion Our findings suggest that COVID-19 has presented significant challenges for palliative care and hospice agencies as they provide care to patients and families at an unprecedented rate. Disclosures All Authors: No reported disclosures

The COVID-19 Challenges and Opportunities for Immigrant Career Development

2021 ◽  
pp. 172-196
Author(s):  
Lizette Solis-Cortes ◽  
Falu Rami
Keyword(s):  
Career Development ◽  
Service Providers ◽  
The United States ◽  
Structural Barriers ◽  
Executive Orders ◽  
Challenges And Opportunities ◽  
Development Paths ◽  
Immigrant And Refugee ◽  
The Impact ◽  
To Receive

This chapter focuses on the impact of the COVID-19 pandemic, it's disproportionate impact on immigrants' careers and employment opportunities, and the dire need to address inequitable career development opportunities. COVID-19 has also highlighted the anti-immigrant sentiment and structural barriers that impact immigrant career experiences and outcomes. A second interrelated obstacle to immigrant career development paths are recent executive orders signed by Donald Trump in the United States against immigrants and refugees as well as global anti-immigrant and refugee policies such as Brexit and the Citizenship Amendment Act. Immigrant workers require advocacy, protection, and avenues to receive continued support during and post-pandemic. Resources for immigrant employers and employees including international resources, avenues for advocacy, and recommendations to service providers are discussed.

Improving the Quality of Care across All Settings

2019 ◽  
pp. 573-605
Author(s):  
Marilyn Bookbinder ◽  
Romina Arceo ◽  
James T. McDaniel
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
The United States ◽  
Healthcare Settings ◽  
National Priority ◽  
Hospice And Palliative Care ◽  
Eol Care ◽  
Clinician Assessment ◽  
Care Path

This chapter provides perspectives on quality-based initiatives in the United States across healthcare settings and populations and describes their impact on patient, professional, and system outcomes. The authors discuss the need for quality improvement (QI) at end of life, QI principles, and the models, methods, and tools most frequently used. Also described are areas of national priority for improving end-of-life (EOL) care. A care-path for the end of life is used to illustrate a QI effort and the FOCUS_PDSA method and to encourage use of specific tools for improving EOL care, including respiratory distress, and a clinician assessment of EOL care using The Joint Commission (TJC) tracer methodology. The authors review the linkages between QI and practice changes in hospitals and hospices that ultimately lead to improved EOL care and close with examples of how nurses are providing leadership in the field of quality hospice and palliative care.

Complementary and Integrative Therapies in Palliative Care

2019 ◽  
pp. 361-370
Author(s):  
Mary-Anne Meyer ◽  
Melinda Ring
Keyword(s):  
United States ◽  
Palliative Care ◽  
Integrative Medicine ◽  
Critical Factor ◽  
The United States ◽  
Integrative Care ◽  
Complementary And Integrative Medicine ◽  
Integrative Therapies ◽  
Hospice And Palliative Care

A large portion of adults in the United States use some form of complementary and integrative medicine, but while these therapies are offered in many hospice and palliative care programs, few patients end up accessing the therapies. Studies show that patients who receive these services are more satisfied with their care. Additionally, surveys show that nurses are often the critical factor is assessing a patient’s appropriateness for integrative care and making the referrals. This chapter reviews therapies and supplements that can be used for specific conditions, and it ends with a list of resources to help put ideas into practice.

scholarly journals A novel recruiting and surveying method: Participatory research during a Pacific Islander community’s traditional cultural event

2015 ◽  
Vol 8 (1) ◽  
pp. 150-59 ◽  
Author(s):  
Grace Donoho ◽  
Pearl McElfish ◽  
Rachel Avants ◽  
Emily Hallgren
Keyword(s):  
Participatory Research ◽  
Service Providers ◽  
Minority Group ◽  
Pacific Islander ◽  
Health Assessment ◽  
Community Based Participatory Research ◽  
The United States ◽  
Research Process ◽  
Lessons Learned ◽  
Cultural Event

Little is known about the health status of Marshallese, a Pacific Islander subpopulation living in the United States. The Marshallese have established a growing community in Northwest Arkansas, providing a unique opportunity for increasing knowledge regarding the health of this minority group. This article describes how a community-based participatory research process was used by a community and university coalition to identify and refine questionnaires and recruit study participants. Questionnaires were self-administered on computers during a one-week traditional cultural event. A total of 874 Marshallese from Arkansas completed the questionnaire, exceeding the goal of 600 respondents. Lessons learned, including the level and timing of involvement of both the leadership and the community at large, are discussed in detail. This approach enhanced communication and collaboration between the Marshallese community, service providers and researchers, resulting in higher participation and interest among the Marshallese community.Keywords: participatory research, minority populations, community health assessment, community coalition, Marshallese

The impact of a one month palliative care rotation on medical residents working in a tertiary cancer center in Jordan.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 168-168
Author(s):  
Omar M. Shamieh ◽  
Alia Alawneh ◽  
Wafa Ahamd ◽  
Sewar S Salmany ◽  
Barakat Altamimi ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
The United States ◽  
Medical Residents ◽  
Cancer Center ◽  
Clinical Rotation ◽  
Life Care ◽  
The Impact ◽  
Tertiary Cancer Center

168 Background: Palliative care education and training remains inadequate for medical professionals especially in developing countries. We evaluated the impact of a one month palliative care clinical rotation on medical residents’ attitude, competency, and knowledge related to palliative care in a tertiary cancer center in Jordan. Methods: All transitional Internal Medicine residents rotated in a monthly palliative care rotation at King Hussein Cancer Center (KHCC), in Amman, Jordan, were requested to participate in this educational intervention study. A concise curriculum in palliative and end of life care, adapted from the Education for Physicians on End-Of-Life Care (EPEC) Curriculum and delivered by our faculty was piloted as a part of the clinical rotation. Residents spent one month in the inpatient palliative care unit, in addition to 10 hours of classroom interactive sessions. The curriculum comprised of five modules: 1- Principles of palliative care, 2- Pain management, 3- Management of distressing symptoms, 4- Communication skills, 5- End-of- life care. To assess our educational outcomes, we adapted a previously developed instruments by David Weisman and used by the National Residency Education in the United States. All Instruments were completed by each resident before and after the rotation, and included self-assessment of attitude, competency and a knowledge test comprising of 32-items of multiple choice questions. Results: Twenty of 27 (74%) residents who started the palliative care rotation completed the required education and had paired evaluations. There was improvement in all three instruments: 37% improvement in competence (p < 0.0001), 17% Improvement in knowledge (p = 0.015), and 5% improvement in attitude (p = 0.02). Conclusions: The one-month mandatory rotation improved knowledge, attitude and competence related to palliative care for medical residents.

Potential impacts of blockchain technology on business practices of bricks and mortar (B&M) grocery stores

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Mohammed T. Nuseir
Keyword(s):  
Service Providers ◽  
Resistance To Change ◽  
The United States ◽  
Grocery Stores ◽  
Business Practices ◽  
Exploratory Research ◽  
Content Type ◽  
Functional Perspective ◽  
Blockchain Technology ◽  
The Impact

PurposeThis paper investigates the impact of blockchain technology on the Bricks and Mortar (B&M) grocery sector from a technological and functional perspective.Design/methodology/approachThe research adopted an exploratory research design and the data comprises 17 semi-structured interviews with personnel at the top grocery retail chains in the United States, for example, Wal-Mart, Tesco, Stop and Shop and Meijer. Additionally, two major US-based blockchain service providers are included – SumatoSoft and Accubits.FindingsBlockchain technology affects the business processes of B&M grocery retail by offering payment via tokens, secure payments and contracts between stakeholders, an end-to-end solution in the supply chain and secure management of the stock. However, this process is hampered by a number of challenges such as integrity and security concerns, difficulty in adapting sound logistics, lack of adequate skills and resistance to change by store managers and employees. This can be addressed by imparting education/training and creating awareness about the benefits of blockchain and generating industry-wide collaboration in which regulations can work.Practical implicationsThe research has benefits for B&M grocery stores, governments and the wider society. For example, the findings of this study will help B&M grocery retailers to confront the competition by online retailers such as Amazon, AliExpress or eBay and promote the development of a systematic collaboration to achieve the changes they need.Originality/valueThe study is original and innovative in that no research to date has focused on how blockchain can help the B&M grocery sector and address its challenges.

scholarly journals Advancing Pediatric Palliative Care In a Low-Middle Income Country: An  Implementation Study, A challenging but not impossible task

2020 ◽  
Author(s):  
Ximena Garcia-Quintero ◽  
Luis Gabriel Parra-Lara ◽  
Angelica Claros-Hulbert ◽  
Maria Isabel Cuervo-Suarez ◽  
Wendy Gomez-Garcia ◽  
...  
Keyword(s):  
Palliative Care ◽  
Service Providers ◽  
Pediatric Population ◽  
Descriptive Analysis ◽  
Tertiary Care ◽  
Care Program ◽  
University Hospital ◽  
Pediatric Palliative Care ◽  
Middle Income ◽  
The Impact

Abstract Background: The disparities in access to pediatric palliative care and pain management in Latin America remains an unaddressed global health issue. Efforts to improve the development of Palliative Care (PC) provision have traditionally targeted services for adults, leaving the pediatric population unaddressed. Examples of such services are scarce and should be portrayed in scientific literature to inform decision-makers and service providers on models of care available to tackle the burden of Pediatric Palliative Care (PPC) in Low-and middle-income countries (LMIC). The purpose of this study is to describe the implementation of a pediatric palliative care program, “Taking Care of You ” (TCY) , in a tertiary care, university hospital in Cali, Colombia. Methods: A program’s database was built with children between 0 to 18 years old and their families, from year 2017 to 2019. Descriptive analysis was carried out to evaluate the impact of the program and service delivery. A theory-based method was directed to describe the PPC program, according to the implementation of self-designed taxonomy, mapping theoretical levels and domains. Clinical outcomes in patients were included in the analysis. Results: Since 2017 the program has provided PPC services to 1.965 children. Most of them had an oncologic diagnosis and were referred from hospitalization services (53%). The number of ambulatory patients increased by 80% every trimester between 2017-2018. A 50% increase was reported in hospitalization, emergency, and intensive care units during the same time period. Conclusions: The program addressed a gap in the provision of PPC to children in Cali. It shows effective strategies used to implement a PPC program and how the referral times, coordination of care, communication with other hospital services were improved while providing compassionate/holistic care to children with life-limiting and threatening diseases and in end-of-life. The implementation of this program has required the onset of specific strategies and arrangements to promote awareness and education proving it a hard task, yet not impossible.

scholarly journals Advocating for Structural Change? Exploring the Advocacy Activities of Immigrant-Serving Organizations in an Unwelcoming Policy Context

2018 ◽  
Vol 18 (3) ◽  
pp. 682-703 ◽  
Author(s):  
Benjamin Roth ◽  
Seo Yeon Park ◽  
Breanne Grace
Keyword(s):  
South Carolina ◽  
Social Service ◽  
Service Providers ◽  
The United States ◽  
Service Organizations ◽  
Future Research ◽  
Policy Advocacy ◽  
Social Service Organizations ◽  
State And Local ◽  
The Impact

The growth of the immigrant population in the United States has prompted a recent increase in the number of restrictive immigration policies at the state and local levels. The literature on policy advocacy and social service organizations suggests that these local providers can engage in political activities that challenge the restrictive nature of these contexts. This qualitative study explored how immigrant-serving social service organizations engage in policy advocacy in a state with restrictive, anti-immigrant policies. In-depth interviews with directors of 50 service providers in South Carolina clearly indicate a tension between the need for policy advocacy and the risks associated with engaging in such activities. Fifty percent (50%) of the providers in our sample reported engaging in some form of policy advocacy. However, their policy advocacy activities were often indirect, non-confrontational, and episodic. Most were engaged in coalitions and other forms of indirect advocacy tactics. We discuss implications for the social work profession and recommendations for future research, including the need to further explore the impact of policy advocacy efforts on changing the policy landscape in places that are unwelcoming to immigrants.

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