Web-Based Health Intervention for Young People Who Have a Parent with a Mental Illness: Delphi Study Among Potential Future Users

BACKGROUND Young people who have a parent with a mental illness face elevated risks to their mental health and well-being. However, they may not have access to appropriate interventions. Web-based interventions may reach and meet the needs of this at-risk group, yet their preferences regarding the features of this medium are unknown. OBJECTIVE This study sought to determine the utility of a Web-based intervention to meet the needs of young people who have a parent with a mental illness and their perspectives regarding the types of features of such a website. METHODS A systematic, 2-round Delphi study was employed to solicit the views of 282 young people aged 16 to 21 years (Round 1, n=14; Round 2, n=268) from urban and regional settings in Australia who self-reported that their parent has a mental illness. “Regional” was used to refer to nonurban participants in the study. After ascertaining whether a Web-based intervention was warranted, Web-based intervention features were identified, including how the site might be facilitated, topics, duration and frequency, and the nature of the professional contact. The extent to which young people agreed on the importance of these factors was assessed. Differences and similarities across gender and location were investigated. A mixed method analytic framework was employed using thematic analysis as well as 2-way between-groups analysis of covariance (ANCOVA) controlling for age and chi-square test of independence analysis. RESULTS Both rounds highlighted a strong preference for a Web-based intervention. Consensus was reached for a professionally monitored site, young people and professionals having equal input into the weekly facilitated sessions (eg, sharing the lead role in discussions or deciding on relevant session content), unlimited time access, 1-hour, open discussion, weekly sessions over 6 weeks, psychoeducation about mental illness, and considerations for the management of safety violations. There were significant main effects of location type and several of the preferred features for a Web-based intervention for young people who have a parent with a mental illness. However, effect sizes were small to moderate, limiting practical application. CONCLUSIONS Young people aged 16 to 21 years indicated a need for a professionally monitored, psychoeducational, Web-based intervention, with input from professional facilitators and other young people who have a parent with a mental illness, in addition to recommendations to external resources. These findings may inform the development of future Web-based interventions for this highly vulnerable group.

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Establishing consensus on the best ways to educate children about animal welfare and prevent harm: An online Delphi study

Animal Welfare ◽

10.7120/09627286.30.2.179 ◽

2021 ◽

Vol 30 (2) ◽

pp. 179-195

Author(s):

JC Muldoon ◽

JM Williams

Keyword(s):

Young People ◽

Animal Welfare ◽

Delphi Study ◽

Web Based ◽

Children And Young People ◽

Intervention Process ◽

The Us ◽

Education Interventions ◽

The Common ◽

High Level

Many animal welfare organisations deliver education programmes for children and young people, or design materials for schoolteachers to use. However, few of these are scientifically evaluated, making it difficult for those working in this field to establish with any certainty the degree of success of their own programmes, or learn from others. There has been no guidance specifically tailored to the development and evaluation of animal welfare education interventions. Accordingly, a three-stage online Delphi study was designed to unearth the expertise of professionals working in this field and identify degree of consensus on various aspects of the intervention process: design, implementation and evaluation. Thirty-one experts participated in Round 1, representing eleven of 13 organisations in the Scottish Animal Welfare Education Forum (SAWEF), and eleven of 23 members of the wider UK-based Animal Welfare Education Alliance (AWEA). Seven further professionals participated, including four based in Canada or the US. Eighty-four percent of the original sample participated in Round 2, where a high level of consensus was apparent. However, the study also revealed areas of ambiguity (determining priorities, the need for intervention structure and degree of success). Tensions were also evident with respect to terminology (especially around cruelty and cruelty prevention), and the common goal for animal welfare to be part of school curricula. Findings were used to develop a web-based framework and toolkit to enable practitioners to follow evidence-based guidance. This should enable organisations to maximise the quality and effectiveness of their interventions for children and young people.

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Use of a Web-Based Delphi Study in the Development of a Training Resource for Workers Supporting Families where Parents Experience Mental Illness

International Journal of Mental Health Promotion ◽

10.1080/14623730.2009.9721786 ◽

2009 ◽

Vol 11 (2) ◽

pp. 42-52 ◽

Cited By ~ 5

Author(s):

Justine N. Whitham ◽

Kylie Eddy ◽

Darryl Maybery ◽

Andrea Reupert ◽

Elizabeth Fudge

Keyword(s):

Mental Illness ◽

Delphi Study ◽

Web Based

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“Click for Support” – Guidelines for Effective Web-Based Interventions for Young People in Selective Drug Prevention

SUCHT - Zeitschrift für Wissenschaft und Praxis / Journal of Addiction Research and Practice ◽

10.1024/0939-5911.a000396 ◽

2015 ◽

Vol 61 (6) ◽

pp. 367-376 ◽

Cited By ~ 1

Author(s):

Doris Sarrazin ◽

Rebekka Steffens

Keyword(s):

Young People ◽

Delphi Study ◽

New Technologies ◽

Guideline Development ◽

Drug Prevention ◽

Target Group ◽

New Psychoactive Substances ◽

Special Focus ◽

Second Phase ◽

Web Based

Abstract. Objective: New technologies and modern media play an important role in the daily life and communication of young people. The objective of the EU-funded project “Click for Support” is to develop a guideline for effective web-based interventions for young people in the field of selective drug prevention, with a special focus on illicit drugs and new psychoactive substances. The target group is young drug consumers between 14 and 21 years. A second objective is to promote the application of new technologies like social networks by prevention professionals. Method: The project is divided in two main parts: The first phase includes research on web-based interventions and assessment workshops with the target group, and the second phase consists of actual guideline development, based on the previously gained results and knowledge. A Delphi study serves to determine recommendations and statements that were discussed ambiguously. Conclusion: Following completion of the first project phase we now have a large amount of information and knowledge concerning the current supply of web-based interventions in many European countries as well as important elements and aspects the offers should include – and most importantly, the preferences and needs of the target group. Based on this knowledge we plan to develop the guideline during the next project phase. We will use a Delphi study to discuss uncertain aspects together with a panel of experts in two rounds. The final guideline will be available in July 2015 and will be translated into ten different languages.

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Lived Experiences of Young People who Live with Mental Healthcare Users in Limpopo, South Africa

Africa Journal of Nursing and Midwifery ◽

10.25159/2520-5293/4713 ◽

2020 ◽

Vol 22 (2) ◽

Author(s):

Mamakota Maggie Molepo ◽

Faniswa Honest Mfidi

Keyword(s):

South Africa ◽

Mental Illness ◽

Young People ◽

Lived Experiences ◽

Daily Living ◽

Support Systems ◽

Family Members ◽

Mental Healthcare ◽

Limpopo Province ◽

Burden Sharing

Mental illness is more than just the diagnosis to an individual – it also has an impact on the social functioning of the family at large. When a parent or relative has a mental illness, all other family members are affected, even the children. The purpose of the study was to provide insight into the lived experiences of young people who live with mental healthcare users and the way in which their daily coping can be maximised. A qualitative, descriptive, phenomenological research was undertaken to explore and describe the lived experiences of young people who live with mental healthcare users in the Limpopo province, South Africa. Audiotaped, unstructured in-depth interviews were conducted with 10 young people who grew up and lived with a family member who is a mental healthcare user in their homes, until data saturation was reached. A content analysis was used to derive themes from the collected qualitative data. Four major themes emerged as features reflective of the young people’s daily living with mental healthcare user, namely psychological effects, added responsibilities, effects on school performances, and support systems. This study recommends that support networks for young people be established through multidisciplinary team involvement and collaboration and the provision of burden-sharing or a relief system during times of need. With the availability of healthy coping mechanisms and support systems, the daily living situations and coping of young people could be maximised, thereby improving their quality of life while living with their family members with mental illness.

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A Community Outreach and Education Model for Early Identification of Mental Illness in Young People

Adolescent Psychiatry ◽

10.2174/2210676611202020140 ◽

2012 ◽

Vol 2 (2) ◽

pp. 140-145 ◽

Cited By ~ 4

Author(s):

Anita Ruff ◽

William R. McFarlane ◽

Donna Downing ◽

William Cook ◽

Kristen Woodberry

Keyword(s):

Mental Illness ◽

Young People ◽

Early Identification ◽

Community Outreach ◽

Education Model ◽

Outreach And Education

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POS1321 MENTAL HEALTH SCREENING IN PATIENTS WITH JUVENILE IDIOPATHIC ARTHRITIS

Annals of the Rheumatic Diseases ◽

10.1136/annrheumdis-2021-eular.3249 ◽

2021 ◽

Vol 80 (Suppl 1) ◽

pp. 943.1-943

Author(s):

S. Eulert ◽

M. Niewerth ◽

J. Hörstermann ◽

C. Sengler ◽

D. Windschall ◽

...

Keyword(s):

Mental Health ◽

Young People ◽

Mental Health Problems ◽

Functional Limitations ◽

Health Problems ◽

Health Screening ◽

Mental Health Screening ◽

Psychological Support ◽

Web Based ◽

Patient Health

Background:Mental disorders often begin in the vulnerable phase of adolescence and young adulthood. Young people with chronic diseases are particularly at risk. Early recognition of mental health problems is necessary in order to be able to support those affected in a timely and adequate manner. By implementing a web-based generic screening tool for mental health in routine care, patients with juvenile idiopathic arthritis (JIA) and mental health conditions can be identified and provided with targeted treatment.Objectives:To investigate the prevalence of mental health conditions in young people with JIA in routine rheumatology care.Methods:Mental health screening is implemented as an add-on module to the National Paediatric Rheumatology Database (NPRD). The current data was gathered over a period of 24 months. Patients complete the screening tool which includes the Patient Health Questionnaire1 (PHQ-9, score 0-27) and the Generalized Anxiety Disorder scale2 (GAD-7, score 0-21) via a web-based questionnaire. The cut-off for critical values in PHQ-9 and GAD-7 were defined as values ≥ 10. Simultaneously, other data, such as sociodemographic data, disease activity (cJADAS10, score 0-30), functional status (CHAQ, score 0-3) were collected as well.Results:The analysis included 245 patients (75% female) with a mean age of 15.7 years and a mean disease duration of 8.8 years. 38.8% of the patients had oligoarthritis (18.0% OA, persistent/20.8% OA, extended) and 23.3% RF negative polyarthritis. At the time of documentation 49 patients (30.6%) had an inactive disease (cJADAS10 ≤ 1) and 120 (49.4%) no functional limitations (CHAQ = 0). In total, 53 patients (21.6%) had screening values in either GAD-7 or PHD-9 ≥10. Patients with critical mental health screening values showed higher disease activity and more frequent functional limitations than inconspicuous patients (cJADAS10 (mean ± SD): 9.3 ± 6 vs. 4.9 ± 4.9; CHAQ: 0.66 ± 0.6 vs. 0.21 ± 0.42). When compared to males, females were significantly more likely to report either depression or anxiety symptoms (11.7% vs. 24.9%, p = 0.031).17.6% of all patients with valid items for these data reported to receive psychological support, meaning psychotherapeutic support (14.5%) and/or drug therapy (8.6%). Among those with a critical mental health screening score, 38.7% received psychological support (psychotherapeutic support (35.5%) and/or drug therapy (16.1%)).Conclusion:Every fifth young person with JIA reported mental health problems, however, not even every second of them stated to receive psychological support. The results show that screening for mental health problems during routine adolescent rheumatology care is necessary to provide appropriate and targeted support services to young people with a high burden of illness.References:[1]Löwe B, Unützer J, Callahan CM, Perkins AJ, Kroenke K. Monitoring depression treatment outcomes with the patient health questionnaire-9. Med Care. 2004 Dec;42(12):1194-201.[2]Spitzer RL, Kroenke K, Williams JB, Löwe B. A brief measure for assessing generalized anxiety disorder: the GAD-7. Arch Intern Med. 2006 May 22; 166(10):1092-7.[3]The screening data were collected as part of COACH (Conditions in Adolescents: Implementation and Evaluation of Patient-centred Collaborative Healthcare), a project supported by the Federal Ministry of Education and Research (FKZ: 01GL1740F).Disclosure of Interests:Sascha Eulert: None declared, Martina Niewerth: None declared, Jana Hörstermann: None declared, Claudia Sengler: None declared, Daniel Windschall: None declared, Tilmann Kallinich: None declared, Jürgen Grulich-Henn: None declared, Frank Weller-Heinemann Consultant of: Pfizer, Abbvie, Sobi, Roche, Novartis, Ivan Foeldvari Consultant of: Gilead, Novartis, Pfizer, Hexal, BMS, Sanofi, MEDAC, Sandra Hansmann: None declared, Harald Baumeister: None declared, Reinhard Holl: None declared, Doris Staab: None declared, Kirsten Minden: None declared

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