scholarly journals Mobilizing mHealth Data Collection in Older Adults: Challenges and Opportunities (Preprint)

2018 ◽  
Author(s):  
Theodore D Cosco ◽  
Joseph Firth ◽  
Ipsit Vahia ◽  
Andrew Sixsmith ◽  
John Torous
Keyword(s):  
Older Adults ◽  
Data Collection ◽  
Digital Divide ◽  
Health Care Systems ◽  
Smart Devices ◽  
Data Collection And Analysis ◽  
Challenges And Opportunities ◽  
Aging Populations ◽  
Care Systems ◽  
Expanding Population

UNSTRUCTURED Worldwide, there is an unprecedented and ongoing expansion of both the proportion of older adults in society and innovations in digital technology. This rapidly increasing number of older adults is placing unprecedented demands on health care systems, warranting the development of new solutions. Although advancements in smart devices and wearables present novel methods for monitoring and improving the health of aging populations, older adults are currently the least likely age group to engage with such technologies. In this commentary, we critically examine the potential for technology-driven data collection and analysis mechanisms to improve our capacity to research, understand, and address the implications of an aging population. Alongside unprecedented opportunities to harness these technologies, there are equally unprecedented challenges. Notably, older adults may experience the first-level digital divide, that is, lack of access to technologies, and/or the second-level digital divide, that is, lack of use/skill, alongside issues with data input and analysis. To harness the benefits of these innovative approaches, we must first engage older adults in a meaningful manner and adjust the framework of smart devices to accommodate the unique physiological and psychological characteristics of the aging populace. Through an informed approach to the development of technologies with older adults, the field can leverage innovation to increase the quality and quantity of life for the expanding population of older adults.

scholarly journals Collecting clinical data in primary ciliary dyskinesia- challenges and opportunities

F1000Research ◽  
2016 ◽  
Vol 5 ◽  
pp. 2031 ◽  
Author(s):  
Israel Amirav ◽  
Mary Roduta Roberts ◽  
Huda Mussaffi ◽  
Avigdor Mandelberg ◽  
Yehudah Roth ◽  
...  
Keyword(s):  
Data Collection ◽  
Clinical Research ◽  
Clinical Data ◽  
Primary Ciliary Dyskinesia ◽  
Completion Rates ◽  
End User ◽  
Revision Process ◽  
Data Collection And Analysis ◽  
Challenges And Opportunities ◽  
Ciliary Dyskinesia

Rationale: Primary ciliary dyskinesia (PCD) is under diagnosed and underestimated. Most clinical research has used some form of questionnaires to capture data but none has been critically evaluated particularly with respect to its end-user feasibility and utility. Objective: To critically appraise a clinical data collection questionnaire for PCD used in a large national PCD consortium in order to apply conclusions in future PCD research. Methods: We describe the development, validation and revision process of a clinical questionnaire for PCD and its evaluation during a national clinical PCD study with respect to data collection and analysis, initial completion rates and user feedback. Results: 14 centers participating in the consortium successfully completed the revised version of the questionnaire for 173 patients with various completion rates for various items. While content and internal consistency analysis demonstrated validity, there were methodological deficiencies impacting completion rates and end-user utility. These deficiencies were addressed resulting in a more valid questionnaire. Conclusions: Our experience may be useful for future clinical research in PCD. Based on the feedback collected on the questionnaire through analysis of completion rates, judgmental analysis of the content, and feedback from experts and end users, we suggest a practicable framework for development of similar tools for various future PCD research.

Public-Private Partnership in Health and Long-Term Care

2018 ◽  
pp. 103-124
Author(s):  
Wing Tung Ho ◽  
Ben Yuk Fai Fong
Keyword(s):  
Hong Kong ◽  
Long Term Care ◽  
Health Care Systems ◽  
Public Private Partnership ◽  
Term Care ◽  
Related Services ◽  
Private Partnership ◽  
Aging Populations ◽  
Care Systems

An exponential growth in elderly population reflects a proportional increase in recourses that are unaffordable and unsustainable to the economy. This rapid demand for health services and long-term care not only leads to non-financial implication like shortage of manpower and long waiting time, but this also creates a large burden on health and related services in the public sector. Involving the private sector to provide better and more efficient facilities and services and to encourage innovation will enhance productivity, speed up project and service delivery, and increase opportunities for investment in health. This chapter examines existing problems within health care systems in aging populations such as Hong Kong, explores the advantages and challenges of Public Private Partnership (PPP), identifies successful factors in establishing PPPs models, reviews the PPP projects in Hong Kong and elsewhere and recommends methods in promoting PPP in health and long-term care as sustainable solutions.

Adult Care in Cystic Fibrosis

2019 ◽  
Vol 40 (06) ◽  
pp. 857-868 ◽  
Author(s):  
J. Stuart Elborn
Keyword(s):  
Health Care ◽  
Cystic Fibrosis ◽  
Care Delivery ◽  
Health Care Systems ◽  
Well Being ◽  
Models Of Care ◽  
Adult Care ◽  
Care Systems ◽  
Expanding Population ◽  
Almost All

AbstractCystic fibrosis (CF) is now more common in adults than children in countries with well-developed health care systems. The number of adults continues to increase and will further increase if the new cystic fibrosis transmembrane conductance regulator (CFTR) modulators are disease modifying. Most of the complex morbidity and almost all the mortality of CF occur in adults and will increasingly follow this pattern even with new effective modulator therapies. Maintaining good quality of life including social functioning and maximizing survival for adults are the key priorities. This requires a highly knowledgeable and adaptable multidisciplinary team, which, though focused on maintaining lung health, requires an increasing range of other disciplines and specialties to maximize well-being. Changes in health care systems will require current models of care to adapt to provide care for the large number of adult patients. With increasing survival and age, many are likely to have both CF morbidities and additional diseases of aging. New models are needed for health care delivery for this expanding population with complex medical conditions.

scholarly journals USING COMMUNITY-BASED MODELS TO PROVIDE INTEGRATED CARE FOR RURAL OLDER ADULTS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S553-S553
Author(s):  
Martha R Crowther ◽  
Cassandra D Ford
Keyword(s):  
Older Adults ◽  
Health Care ◽  
Rural Communities ◽  
Mental Health Problems ◽  
Health Care Systems ◽  
Physical And Mental Health ◽  
Community Based ◽  
Psychosocial Services ◽  
Care Systems ◽  
Rural Older Adults

Abstract Rural elders are one of the most at-risk populations for experiencing physical and mental health problems. In many rural communities, there are no psychosocial services available to meet the needs of the rural elderly. To provide rural older adults with integrated healthcare, we build upon our existing community-based infrastructure that has fostered community capacity for active engagement in clinical activities and has served as a catalyst to increase participation of rural older adults in clinical services. Our rural community model draws upon the role of culture in promoting health among rural older adults to provide rural service delivery. This model is built upon our network of partnerships with surrounding communities, including potential research participants, community-based organizations, community leaders, and community health-care systems and providers. By engaging the community we can create a sustainable system that will encourage rural older adults to utilize the health care system at a higher rate.

Data collection and changing health care systems

1993 ◽  
Vol 159 (7) ◽  
pp. 471-476 ◽  
Author(s):  
Graeme Miller ◽  
Helena Britt
Keyword(s):  
Health Care ◽  
Data Collection ◽  
Health Care Systems ◽  
Care Systems

Integration of control of neglected tropical diseases into health-care systems: challenges and opportunities

The Lancet ◽  
2010 ◽  
Vol 375 (9709) ◽  
pp. 160-165 ◽  
Author(s):  
John O Gyapong ◽  
Margaret Gyapong ◽  
Nathaniel Yellu ◽  
Kwadwo Anakwah ◽  
George Amofah ◽  
...  
Keyword(s):  
Health Care ◽  
Neglected Tropical Diseases ◽  
Health Care Systems ◽  
Tropical Diseases ◽  
Challenges And Opportunities ◽  
Care Systems

Technology as a Bridge between Health Care Systems and Older Adults

2013 ◽  
pp. 59-79 ◽  
Author(s):  
Daniel Morrow ◽  
Jessie Chin
Keyword(s):  
Older Adults ◽  
Health Care ◽  
Health Care Providers ◽  
Distributed Cognition ◽  
Common Ground ◽  
Health Care Systems ◽  
Personal Health Record ◽  
Patient Portals ◽  
Access To Health ◽  
Care Systems

The authors explore the role of technology in supporting collaboration between health care providers and older adults. They focus on two technologies that help link patients to their providers by giving them access to health information and services: 1) patient portals to Electronic Health Records, and 2) Personal Health Record systems. Theories of distributed cognition and common ground are used to frame a review of the small but growing body of research that investigates which older adults use or do not use these technologies, and why. The findings, while sparse, suggest that older adults with lower levels of health literacy stand to benefit the most from this technology, but they tend to have fewer cognitive, literacy, and other psychosocial resources needed to take advantage of the technology. This discrepancy is due in part to systems that are not designed with older adults’ needs and abilities in mind. The authors conclude with recommendations for improving the use of these tools to support patient/provider collaboration by making them easier to use, and by integrating them with other communication media to support the broader context of the patient/provider relationship.

scholarly journals Sustainable Health Care Systems

2007 ◽  
Vol 16 (01) ◽  
pp. 19-21
Author(s):  
C. Lovis ◽  
Keyword(s):  
Health Care ◽  
Developing Countries ◽  
Information Technologies ◽  
Health Care Systems ◽  
Current Trends ◽  
Growing Domain ◽  
Challenges And Opportunities ◽  
Care Systems ◽  
Sustainable Health ◽  
Original Approach

SummaryTo summarize major current trends and research in the field of sustainable health care systems.Synopsis of the articles selected for the IMIA Yearbook 2007.Four excellent articles, four nations and four international peer-reviewed journals representing some important aspects of the research in this field have been selected for the IMIA Yearbook 2007. The first paper focuses on health care spending and use of information technologies in OECD countries; the second paper presents an original model and framework to describe and evaluate the risks and safety of e-health systems; the third paper, a two-part paper, reviews several models to support lifetime personal health records and proposes some original approach to this problem. Finally, the last paper presents the evaluation of feasibility, potential, problems and risks of an Internet-based telemedicine network in developing countries of Africa and challenges and opportunities that IT can bring to developing countries.Sustainability in health care and information technologies is a young but fast growing domain. This new section of the yearbook is promised to a rich future as illustrated in the variety and the importance of the challenges addressed by this 2007 selection.

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