scholarly journals Assessment of Adaptive Engagement and Support Model for People With Chronic Health Conditions in Online Health Communities: Combined Content Analysis (Preprint)

2019 ◽  
Author(s):  
Brian M Green ◽  
Katelyn Tente Van Horn ◽  
Ketki Gupte ◽  
Megan Evans ◽  
Sara Hayes ◽  
...  
Keyword(s):  
Social Support ◽  
Content Analysis ◽  
Insurance Coverage ◽  
Software Tool ◽  
Health Condition ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Chronic Health ◽  
Online Health Communities ◽  
Health Communities

BACKGROUND With the pervasiveness of social media, online health communities (OHCs) are an important tool for facilitating information sharing and support among people with chronic health conditions. Importantly, OHCs offer insight into conversations about the lived experiences of people with particular health conditions. Little is known about the aspects of OHCs that are important to maintain safe and productive conversations that support health. OBJECTIVE This study aimed to assess the provision of social support and the role of active moderation in OHCs developed in accordance with and managed by an adaptive engagement model. This study also aimed to identify key elements of the model that are central to the development, maintenance, and adaptation of OHCs for people with chronic health conditions. METHODS This study used combined content analysis, a mixed methods approach, to analyze sampled Facebook post comments from 6 OHCs to understand how key aspects of the adaptive engagement model facilitate different types of social support. OHCs included in this study are for people living with multiple sclerosis, migraine, irritable bowel syndrome, rheumatoid arthritis, lung cancer, and prostate cancer. An exploratory approach was used in the analysis, and initial codes were grouped into thematic categories and then confirmed through thematic network analysis using the Dedoose qualitative analysis software tool. Thematic categories were compared for similarities and differences for each of the 6 OHCs and by topic discussed. RESULTS Data on the reach and engagement of the Facebook posts and the analysis of the sample of 5881 comments demonstrate that people with chronic health conditions want to engage on the web and find value in supporting and sharing their experiences with others. Most comments made in these Facebook posts were expressions of social support for others living with the same health condition (3405/5881, 57.89%). Among the comments with an element of support, those where community members validated the knowledge or experiences of others were most frequent (1587/3405, 46.61%), followed by the expression of empathy and understanding (1089/3405, 31.98%). Even among posts with more factual content, such as insurance coverage issues, user comments still had frequent expressions of support for others (80/213, 37.5%). CONCLUSIONS The analysis of this OHC adaptive engagement model in action shows that the foundational elements—social support, engagement, and moderation—can effectively be used to provide a rich and dynamic community experience for individuals with chronic health conditions. Social support is demonstrated in a variety of ways, including sharing information or validating information shared by others, expressions of empathy, and sharing encouraging statements with others.

scholarly journals Assessment of Adaptive Engagement and Support Model for People With Chronic Health Conditions in Online Health Communities: Combined Content Analysis

10.2196/17338 ◽  
2020 ◽  
Vol 22 (7) ◽  
pp. e17338
Author(s):  
Brian M Green ◽  
Katelyn Tente Van Horn ◽  
Ketki Gupte ◽  
Megan Evans ◽  
Sara Hayes ◽  
...  
Keyword(s):  
Social Support ◽  
Content Analysis ◽  
Insurance Coverage ◽  
Software Tool ◽  
Health Condition ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Chronic Health ◽  
Online Health Communities ◽  
Health Communities

Background With the pervasiveness of social media, online health communities (OHCs) are an important tool for facilitating information sharing and support among people with chronic health conditions. Importantly, OHCs offer insight into conversations about the lived experiences of people with particular health conditions. Little is known about the aspects of OHCs that are important to maintain safe and productive conversations that support health. Objective This study aimed to assess the provision of social support and the role of active moderation in OHCs developed in accordance with and managed by an adaptive engagement model. This study also aimed to identify key elements of the model that are central to the development, maintenance, and adaptation of OHCs for people with chronic health conditions. Methods This study used combined content analysis, a mixed methods approach, to analyze sampled Facebook post comments from 6 OHCs to understand how key aspects of the adaptive engagement model facilitate different types of social support. OHCs included in this study are for people living with multiple sclerosis, migraine, irritable bowel syndrome, rheumatoid arthritis, lung cancer, and prostate cancer. An exploratory approach was used in the analysis, and initial codes were grouped into thematic categories and then confirmed through thematic network analysis using the Dedoose qualitative analysis software tool. Thematic categories were compared for similarities and differences for each of the 6 OHCs and by topic discussed. Results Data on the reach and engagement of the Facebook posts and the analysis of the sample of 5881 comments demonstrate that people with chronic health conditions want to engage on the web and find value in supporting and sharing their experiences with others. Most comments made in these Facebook posts were expressions of social support for others living with the same health condition (3405/5881, 57.89%). Among the comments with an element of support, those where community members validated the knowledge or experiences of others were most frequent (1587/3405, 46.61%), followed by the expression of empathy and understanding (1089/3405, 31.98%). Even among posts with more factual content, such as insurance coverage issues, user comments still had frequent expressions of support for others (80/213, 37.5%). Conclusions The analysis of this OHC adaptive engagement model in action shows that the foundational elements—social support, engagement, and moderation—can effectively be used to provide a rich and dynamic community experience for individuals with chronic health conditions. Social support is demonstrated in a variety of ways, including sharing information or validating information shared by others, expressions of empathy, and sharing encouraging statements with others.

scholarly journals Using Qualitative Analysis to Assess a Model of Support for Online Health Communities for People Living with Chronic Health Conditions (Preprint)

2018 ◽  
Author(s):  
Brian M. Green ◽  
Kaitlyn Van Horn ◽  
Ketki Gupta ◽  
Amrita Bhowmick ◽  
Michael Booth
Keyword(s):  
Network Analysis ◽  
Qualitative Data ◽  
Pearson Correlation ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Practical Significance ◽  
Chronic Health ◽  
Online Health Communities ◽  
Health Communities ◽  
Thematic Network Analysis

BACKGROUND Online health communities (OHC) can be a powerful tool to facilitate communication among patients, professionals and family members who live with or care for someone with a chronic health condition(s). Health Union LLC’s OHC model engages, empowers and encourages people to take an active role in their health by providing content that aligns with their needs and interests and by cultivating a safe environment where communication, understanding and meaningful relationships can thrive. OHCs included in this study target people living with multiple sclerosis, migraine, IBS, rheumatoid arthritis, lung cancer, and prostate cancer. OBJECTIVE Using qualitative methods we sought to determine if constructs in the Health Union OHC model are supported by themes identified in OHC participant comments. Key components of the model to be tested include: content tailored to needs of community, facilitation, and encouragement of social support, active moderation, opportunities for active and passive engagement, and transparency of community norms and rules. METHODS A sample of over 5800 comments exported from over 40 Facebook posts from 6 OHCs was analyzed using the Dedoose qualitative data analysis software. Comments from these Facebook posts were extracted, imported into Dedoose software and coded. Interrater reliability of initial coding was calculated using Pearson Correlation Coefficient. An exploratory approach was taken in the analysis and initial codes were grouped into thematic categories and then confirmed through thematic network/framework analysis using the Dedosse software tool. Thematic categories were compared for similarity and differences for each of the 6 OHCs, original post type, and by the extent of active moderation evident in each comment thread. RESULTS Qualitative thematic network analysis of posts and comments from 6 OHCs correspond to the primary components of the Health Union OHC model. This analysis suggests that the structural elements of the OHC model, including active site moderation, support high levels of community engagement and information sharing and mutual support of OHC participants. CONCLUSIONS Qualitative data from the 6 OHCs demonstrates the positive impact the community has on participants, often helping them reframe their health care experience and coping strategies. The principle of adaptive engagement is demonstrated by the thematic network analysis and illustrates the Health Union OHC model constructs. Different community segments have different patterns of engagement. Our primary focus on the content of participant comments in this analysis is a current limitation. While we also examine more passive methods of liking and sharing posts utilized by OHC participants, these may warrant further analysis. This study has practical significance as it helps to demonstrate the value of online health communities for people living with chronic health conditions by providing meaningful engagement, support, and information in an accessible environment.

scholarly journals Using Qualitative Analysis to Assess a Model of Support for Online Health Communities for People Living with Chronic Health Conditions

Iproceedings ◽  
10.2196/11774 ◽  
2018 ◽  
Vol 4 (2) ◽  
pp. e11774
Author(s):  
Brian M Green ◽  
Kaitlyn Van Horn ◽  
Ketki Gupta ◽  
Amrita Bhowmick ◽  
Michael Booth
Keyword(s):  
Qualitative Analysis ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Chronic Health ◽  
Online Health Communities ◽  
Health Communities

Psychosocial Risks of Chronic Health Conditions in Childhood and Adolescence

PEDIATRICS ◽  
1993 ◽  
Vol 92 (6) ◽  
pp. 876-878 ◽  
Author(s):  
Keyword(s):  
Children And Adolescents ◽  
Health Condition ◽  
Work And Family ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Medical Attention ◽  
Childhood And Adolescence ◽  
Chronic Health ◽  
Persistent Symptoms ◽  
The Impact

Chronic health conditions affect many children and adolescents. These conditions are illnesses or impairments that are expected to last for an extended period of time and require medical attention and care that is above and beyond what would normally be expected for a child or adolescent of the same age, extensive hospitalization, or in-home health services.1 These conditions include, among others, juvenile rheumatoid arthritis, asthma, cystic fibrosis, diabetes, spina bifida, hemophilia, seizure disorders, neuromuscular disease, acquired immunodeficiency syndrome, and congenital heart diseases. Although each specific condition may be relatively or extremely rare, when they are considered together, many children and adolescents are affected. Health conditions may be characterized by their duration and their severity. Although these terms are often linked, they refer to different aspects of a health condition. A chronic condition is generally one that has lasted or is expected to last more than a defined period of time, usually 3 months or longer. Conditions vary widely in their onset, course, and duration.2 Severity refers to the impact a condition has on a child's physical, intellectual, psychological, or social functioning.3 This impact may occur as a result of persistent symptoms, required treatments, limitations of activity or mobility, or interference with school, recreation, work, and family activities. Current estimates are that between 10 and 20 million American children and adolescents have some type of chronic health condition or impairment. Most of these conditions are relatively mild and interfere little with the children's ability to participate in usual childhood activities.4 However.

scholarly journals The relationship between medication adherence, health literacy and social support network in the hypertensive emergency department patient

2020 ◽  
Author(s):  
◽  
Benjamin L. Coe
Keyword(s):  
Social Support ◽  
Emergency Department ◽  
Medication Adherence ◽  
Health Literacy ◽  
Chronic Health Conditions ◽  
Support Network ◽  
Health Conditions ◽  
Social Support Network ◽  
Chronic Health ◽  
Ed Visits

Hypertension (HTN) is a major risk factor for the development of heart disease, which is the number one cause of death in the United States (U.S.). The Affordable Care Act of 2010 (ACA) led to a significant increase in emergency department (ED) visits: up to 20 [percent] of visits are considered as avoidable. Many patients present to EDs with uncontrolled chronic health conditions, such as HTN, which can be successfully managed in the outpatient setting. Factors contributing to the large volume of patients that present to the ED with uncontrolled HTN has been understudied. This cross-sectional study examined relationships between selected demographic and health variables, medication adherence, health literacy and social support network among adults (n=50) with HTN that presented to the ED. Participants were predominantly male (56 [percent]), 41-60 years old (46 [percent]), and Caucasian (60 [percent]). Only 36 [percent] of participants were adherent to their HTN medications, 42 [percent] had adequate health literacy, and 38 [percent] perceived high levels of social support. The variable with the strongest correlation to medication adherence was last primary care provider (PCP) visit (-0.473, p [less than] 0.001). However only 54 [percent] of participants had seen a PCP over the last 6 months. Increasing PCP visits and reducing avoidable ED visits has the potential to improve chronic disease health outcomes and reduce health care costs. This study has provided evidence that it is both acceptable and feasible to perform research in the ED setting that addresses chronic health conditions, such as HTN. Findings from this study may be used to inform novel ED interventions that can help adults to better manage their chronic health conditions, such as HTN, outside of the acute care setting.

scholarly journals Major depressive disorder, suicidal behaviour, bipolar disorder, and generalised anxiety disorder among emerging adults with and without chronic health conditions

2015 ◽  
Vol 25 (5) ◽  
pp. 462-474 ◽  
Author(s):  
M. A. Ferro
Keyword(s):  
Bipolar Disorder ◽  
Mental Disorder ◽  
Emerging Adults ◽  
Chronic Health Condition ◽  
Health Condition ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Generalised Anxiety Disorder ◽  
Major Depressive ◽  
Chronic Health

Background.Despite the considerable physical, emotional and social change that occurs during emerging adulthood, there is little research that examines the association between having a chronic health condition and mental disorder during this developmental period. The aims of this study were to examine the sex-specific prevalence of lifetime mental disorder in an epidemiological sample of emerging adults aged 15–30 years with and without chronic health conditions; quantify the association between chronic health conditions and mental disorder, adjusting for sociodemographic and health factors; and, examine potential moderating and mediating effects of sex, level of disability and pain.Method.Data come from the Canadian Community Health Survey-Mental Health. Respondents were 15–30 years of age (n = 5947) and self-reported whether they had a chronic health condition. Chronic health conditions were classified as: respiratory, musculoskeletal/connective tissue, cardiovascular, neurological and endocrine/digestive. The World Health Organization Composite International Diagnostic Interview 3.0 was used to assess the presence of mental disorder (major depressive disorder, suicidal behaviour, bipolar disorder and generalised anxiety disorder).Results.Lifetime prevalence of mental disorder was significantly higher for individuals with chronic health conditions compared with healthy controls. Substantial heterogeneity in the prevalence of mental disorder was found in males, but not in females. Logistic regression models adjusting for several sociodemographic and health factors showed that the individuals with chronic health conditions were at elevated risk for mental disorder. There was no evidence that the level of disability or pain moderated the associations between chronic health conditions and mental disorder. Sex was found to moderate the association between musculoskeletal/connective tissue conditions and bipolar disorder (β = 1.71, p = 0.002). Exploratory analyses suggest that the levels of disability and pain mediate the association between chronic health conditions and mental disorder.Conclusions.Physical and mental comorbidity is prevalent among emerging adults and this relationship is not augmented, but may be mediated, by the level of disability or pain. Findings point to the integration and coordination of public sectors – health, education and social services – to facilitate the prevention and reduction of mental disorder among emerging adults with chronic health conditions.

Shared Vision: Concordance Among Fathers, Mothers, and Pediatricians About Unmet Needs of Children With Chronic Health Conditions

PEDIATRICS ◽  
2000 ◽  
Vol 105 (Supplement_2) ◽  
pp. 277-285
Author(s):  
Ellen C. Perrin ◽  
Corinne Lewkowicz ◽  
Martin H. Young
Keyword(s):  
Primary Care Physicians ◽  
Unmet Needs ◽  
Chronic Health Condition ◽  
Health Condition ◽  
Shared Vision ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Pediatric Practice ◽  
Chronic Health ◽  
The Face

Objective. These analyses were undertaken to investigate the number and types of services and assistance believed to be useful to children with a chronic health condition and their families. The perspective of mothers, fathers, and primary care physicians were sought separately and compared. Methods. Families that include at least 1 child with a chronic health condition were selected from pediatric practices in Central Massachusetts. All 3 respondents completed a questionnaire describing their own perspective of current needs and of the severity of the child's condition. The 3 perspectives are compared statistically and areas of agreement/disagreement are described. Results. Mothers, fathers, and physicians described children's and families' needs with a surprising degree of concordance. On the other hand, pediatricians identified fewer needs, despite rating the severity of children's illnesses as greater than did parents. Mothers and fathers agreed substantially about the level of severity of their child's condition and about their unmet needs. Conclusions. It is important that pediatric practice systems include effective mechanisms to assess parents' opinions regarding the unmet needs of their child/family in the face of a child with a chronic health condition. Without input from families, pediatricians are aware of only some of the needs that parents identify. Pediatrics 2000;105:277–285;children, chronic health condition.

Academic Issues Related to Pediatric Health Conditions in Schools

2019 ◽  
pp. 43-60
Author(s):  
Christy M. Walcott ◽  
Sayward E. Harrison
Keyword(s):  
Medical Condition ◽  
Health Condition ◽  
School Refusal ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Chronic Health ◽  
Pediatric Health ◽  
Academic Challenges ◽  
School Based ◽  
Neurodevelopmental Effects

Children with chronic health conditions may experience academic challenges for a multitude of reasons. This chapter provides an overview of the educational difficulties encountered by children with pediatric health conditions. It also provides a summary of the causes of some of the difficulties, such as the neurodevelopmental effects of a medical condition or treatment, school absenteeism, and school refusal. The chapter includes a table summarizing the neurocognitive effects of common pediatric health conditions. Information about school-based strategies for students with chronic health conditions is presented. The strategies include individual health plans, individualized accommodations, and individualized interventions to address factors that may affect educational outcomes. Finally, the chapter includes a problem-solving framework for school-based professionals to use when engaging in educational planning for a student with a pediatric health condition.

Children and Adolescents with Chronic Health Conditions

2017 ◽  
pp. 145-155
Author(s):  
Alina Morawska
Keyword(s):  
Well Being ◽  
Health Condition ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Triple P ◽  
Childhood Health ◽  
Chronic Health ◽  
Parenting Support ◽  
The Family ◽  
The Impact

Chronic childhood health conditions are common and significantly affect the child and family. This chapter begins by describing the central role parents play in children’s health outcomes and illness management and the impact the child’s health condition has on parents and the family. Few parenting interventions have been evaluated, and most focus on medical aspects rather than psychosocial factors related to child and family well-being. Existing approaches to parenting support are described, followed by an exploration of the evidence for Triple P interventions. Recent research using Positive Parenting for Healthy Living, a brief parenting intervention for parents with children with chronic health conditions, is showing promising outcomes. Policy and service implications of recent research are summarized.

Psychometric evaluation of the Multi-Dimensional Scale of Perceived Social Support in young adults with chronic health conditions

2019 ◽  
pp. 1-5
Author(s):  
F. Nearchou ◽  
A. Davies ◽  
E. Hennessy
Keyword(s):  
Social Support ◽  
Young Adults ◽  
Convergent Validity ◽  
Perceived Social Support ◽  
Short Form ◽  
Well Being ◽  
Further Education ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Chronic Health

Introduction. The Multi-Dimensional Scale of Perceived Social Support (MSPSS) is one of the most widely employed tools for measuring perceived social support from three sources: family, friends and a significant other. This study aimed to establish the factor structure of the MSPSS in young adults living with chronic health conditions (CHCs). It also aimed to examine the reliability and convergent validity of the tool. Methods. A cross-sectional quantitative design was applied. Participants (n = 123, 90 females) were students aged 18–25 years recruited from Colleges of Further Education in Ireland (mean age of 20.1 years, s.d. = 2.43). Participants completed the MSPSS and two subscales of the Medical Outcomes Study 36-item Short Form Health Survey that assessed social functioning and emotional well-being. Results. Exploratory factor analysis yielded a three-factor solution of the MSPSS in young adults living with CHCs. The three factors together explained 83% of the variance in MSPSS scores. All the items had high loadings on the factors (0.72–0.94). The MSPSS showed satisfactory reliability and convergent validity. Conclusions. These findings suggest that the MSPSS is a valid and reliable tool for measuring perceived social support from three sources in young adults living with CHCs. Social support has been associated with positive outcomes in young adults living with CHCs, thus it is imperative for researchers and clinicians to have access to psychometrically sound instruments to evaluate the construct.

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