scholarly journals Recovery After Psychosis: Qualitative Study of Service User Experiences of Lived Experience Videos on a Recovery-Oriented Website (Preprint)

2018 ◽  
Author(s):  
Anne Williams ◽  
Ellie Fossey ◽  
John Farhall ◽  
Fiona Foley ◽  
Neil Thomas
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Lived Experience ◽  
Health Worker ◽  
Health Workers ◽  
Qualitative Interviews ◽  
Support Service ◽  
Service Users ◽  
Mental Health Worker ◽  
Use Of Technology

BACKGROUND Digital interventions offer an innovative way to make the experiences of people living with mental illness available to others. As part of the Self-Management And Recovery Technology (SMART) research program on the use of digital resources in mental health services, an interactive website was developed including videos of people with lived experience of mental illness discussing their recovery. These peer videos were designed to be watched on a tablet device with a mental health worker, or independently. OBJECTIVE Our aim was to explore how service users experienced viewing the lived experience videos on this interactive website, as well as its influence on their recovery journey. METHODS In total, 36 service users with experience of using the website participated in individual semistructured qualitative interviews. All participants had experience of psychosis. Data analysis occurred alongside data collection, following principles of constructivist grounded theory methodology. RESULTS According to participants, engaging with lived experience videos was a pivotal experience of using the website. Participants engaged with peers through choosing and watching the videos and reflecting on their own experience in discussions that opened up with a mental health worker. Benefits of seeing others talking about their experience included “being inspired,” “knowing I’m not alone,” and “believing recovery is possible.” Experiences of watching the videos were influenced by the participants’ intrapersonal context, particularly their ways of coping with life and use of technology. The interpersonal context of watching the videos with a worker, who guided website use and facilitated reflection, enriched the experience. CONCLUSIONS Engaging with lived experience videos was powerful for participants, contributing to their feeling connected and hopeful. Making websites with lived experience video content available to service users and mental health workers demonstrates strong potential to support service users’ recovery.

scholarly journals Recovery After Psychosis: Qualitative Study of Service User Experiences of Lived Experience Videos on a Recovery-Oriented Website

2018 ◽  
Vol 5 (2) ◽  
pp. e37 ◽  
Author(s):  
Anne Williams ◽  
Ellie Fossey ◽  
John Farhall ◽  
Fiona Foley ◽  
Neil Thomas
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Lived Experience ◽  
Health Worker ◽  
Health Workers ◽  
Qualitative Interviews ◽  
Support Service ◽  
Service Users ◽  
Mental Health Worker ◽  
Use Of Technology

Background Digital interventions offer an innovative way to make the experiences of people living with mental illness available to others. As part of the Self-Management And Recovery Technology (SMART) research program on the use of digital resources in mental health services, an interactive website was developed including videos of people with lived experience of mental illness discussing their recovery. These peer videos were designed to be watched on a tablet device with a mental health worker, or independently. Objective Our aim was to explore how service users experienced viewing the lived experience videos on this interactive website, as well as its influence on their recovery journey. Methods In total, 36 service users with experience of using the website participated in individual semistructured qualitative interviews. All participants had experience of psychosis. Data analysis occurred alongside data collection, following principles of constructivist grounded theory methodology. Results According to participants, engaging with lived experience videos was a pivotal experience of using the website. Participants engaged with peers through choosing and watching the videos and reflecting on their own experience in discussions that opened up with a mental health worker. Benefits of seeing others talking about their experience included “being inspired,” “knowing I’m not alone,” and “believing recovery is possible.” Experiences of watching the videos were influenced by the participants’ intrapersonal context, particularly their ways of coping with life and use of technology. The interpersonal context of watching the videos with a worker, who guided website use and facilitated reflection, enriched the experience. Conclusions Engaging with lived experience videos was powerful for participants, contributing to their feeling connected and hopeful. Making websites with lived experience video content available to service users and mental health workers demonstrates strong potential to support service users’ recovery.

scholarly journals Community-based participatory research to improve primary mental health services

2017 ◽  
Vol 5 (6) ◽  
pp. 2524
Author(s):  
Abi Muhlisin ◽  
Arum Pratiwi
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Health Worker ◽  
Health Workers ◽  
Skill Training ◽  
Mental Health Workers ◽  
P Value ◽  
Mental Health Worker ◽  
Remarkable Improvement ◽  
Periodic Analysis

Background: Global statistics show that mental illness is among the three most common diseases globally: about 12% to 15% of the global population suffer from mental illness, this is a rate higher than heart disease and disability and twice as high as cancer. The objective of this study was to improve public health conditions through community involvement and social action that is mental health worker knowledge and skill.Methods: A purposive sampling of communities was undertaken in a village of Indonesia. The numbers of participants were trained about knowledge and skill as a mental health workers, then selected 15 people who have the best score and the most capable. Level of knowledge and skill were measured sequent for three times using multiple choice test questions. Periodic analysis used repeated measure ANOVA.Results: There were differences of mental health worker knowledge of each period. The differences between the mental health workers’ knowledge in each period is shown by a test of between-subjects effect to have an F score of 189.476 with a P value of 0.00; and the most remarkable improvement in knowledge as after given skill training in Wilk lambda of 248.71 by P value 0.00.Conclusions: There were differences of mental health worker knowledge of each period. The differences between the mental health workers’ knowledge in each period is shown by a test of between-subjects effect to have an F score of 189.476 with a P value of 0.00; and the most remarkable improvement in knowledge as after given skill training in Wilk lambda of 248.71 by P value 0.00.

Community Families: Bridging the gap between mental health services and civil society – A qualitative study from users’ perspective

2017 ◽  
Vol 63 (2) ◽  
pp. 132-138 ◽  
Author(s):  
Ulla Væggemose ◽  
Stina Lou ◽  
Michal Frumer ◽  
Nanna Limskov Stærk Christiansen ◽  
Jørgen Aagaard ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Severe Mental Illness ◽  
Health Workers ◽  
Qualitative Interviews ◽  
Mental Health Workers ◽  
Service Users ◽  
Social Interventions ◽  
The Social

Background: Social interventions to support people with severe mental illness are important to improving the quality of life. The perspectives of users are essential in this process. This article explores users’ experiences, investments and concerns of a befriending programme. Material: Focus group and individual qualitative interviews with service users. Discussion: Overall, the experiences with the programme were positive, and the social interaction was highly valued. However, that the relationships were arranged and facilitated by mental health workers remained an unresolved concern even after several years. Conclusion: People with severe mental illness benefit from relationships despite the need of professional assistant.

scholarly journals Clinical effectiveness and cost effectiveness of individual mental health workers colocated within primary care practices: a systematic literature review

BMJ Open ◽  
2020 ◽  
Vol 10 (12) ◽  
pp. e042052
Author(s):  
Jean-Baptiste Woods ◽  
Geva Greenfield ◽  
Azeem Majeed ◽  
Benedict Hayhoe
Keyword(s):  
Mental Health ◽  
Primary Care ◽  
Cost Effectiveness ◽  
Health Worker ◽  
Health Workers ◽  
Risk Of Bias ◽  
Mental Health Workers ◽  
Mental Health Worker ◽  
Care Practices ◽  
Primary Care Practices

ObjectivesMental health disorders contribute significantly to the global burden of disease and lead to extensive strain on health systems. The integration of mental health workers into primary care has been proposed as one possible solution, but evidence of clinical and cost effectiveness of this approach is unclear. We reviewed the clinical and cost effectiveness of mental health workers colocated within primary care practices.DesignSystematic literature review.Data sourcesWe searched the Medline, Embase, PsycINFO, Healthcare Management Information Consortium (HMIC) and Global Health databases.Eligibility criteriaAll quantitative studies published before July 2019 were eligible for the review; participants of any age and gender were included. Studies did not need to report a certain outcome measure or comparator in order to be eligible.Data extraction and synthesisData were extracted using a standardised table; however, pooled analysis proved unfeasible. Studies were assessed for risk of bias using the Risk Of Bias In Non-randomised Studies - of Interventions (ROBINS-I) tool and the Cochrane collaboration’s tool for assessing risk of bias in randomised trials.ResultsFifteen studies from four countries were included. Mental health worker integration was associated with mental health benefits to varied populations, including minority groups and those with comorbid chronic diseases. Furthermore, the interventions were correlated with high patient satisfaction and increases in specialist mental health referrals among minority populations. However, there was insufficient evidence to suggest clinical outcomes were significantly different from usual general practitioner care.ConclusionsWhile there appear to be some benefits associated with mental health worker integration in primary care practices, we found insufficient evidence to conclude that an onsite primary care mental health worker is significantly more clinically or cost effective when compared with usual general practitioner care. There should therefore be an increased emphasis on generating new evidence from clinical trials to better understand the benefits and effectiveness of mental health workers colocated within primary care practices.

The Indigenous Mental Health Worker

2003 ◽  
Vol 11 (3) ◽  
pp. 295-297 ◽  
Author(s):  
Robert Parker
Keyword(s):  
Mental Health ◽  
New Zealand ◽  
Health Worker ◽  
Health Workers ◽  
National Association ◽  
Mental Health Workers ◽  
Mental Health Worker ◽  
One Step ◽  
Zealand College ◽  
Indigenous Mental Health

Objective: To provide background and context for the recent Royal Australian and New Zealand College of Psychiatrists (RANZCP) statement on indigenous mental health workers. Conclusions: There are a number of difficulties facing indigenous mental health workers in Australia today. The RANZCP statement is one step in a move to increase recognition of these workers. National registration of Aboriginal mental health workers or the formation of a national association may further promote their identity.

The Social and Emotional Impact of Involving Individuals With Mental Illness in the Research Process

2019 ◽  
Vol 29 (11) ◽  
pp. 1634-1640 ◽  
Author(s):  
Aliza Werner-Seidler ◽  
Frances Shaw
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Lived Experience ◽  
Qualitative Interviews ◽  
Research Process ◽  
Mental Health Research ◽  
Advisory Panel ◽  
Emotional Impact ◽  
Social And Emotional ◽  
The Social

There is a need to involve individuals with a lived experience in health and medical research. Some organizations have developed mechanisms to seek the input of people with a lived experience. However, there are few examples of qualitative research into the impacts of participation. In this study, we investigate the social and emotional impact of participation on individuals, as well as the perceived impact on the organization, in an advisory panel at an Australian mental health research institute. In-depth qualitative interviews were conducted with 50% of the participants on the panel to understand how they conceptualized their involvement. Participants became invested in the organization and their role within it, and found it personally valuable to access diverse perspectives and discuss mental health outside a treatment context. These findings suggest that participating in the research process is beneficial to individuals with a lived experience of mental illness.

Community families: A qualitative study of families who volunteer to support persons with severe mental illness

2017 ◽  
Vol 63 (1) ◽  
pp. 33-39 ◽  
Author(s):  
Lotte Groth Jensen ◽  
Stina Lou ◽  
Jørgen Aagaard ◽  
Ulla Væggemose
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Qualitative Study ◽  
Severe Mental Illness ◽  
Health Workers ◽  
Qualitative Interviews ◽  
Safety Net ◽  
Professional Support ◽  
Mental Health Workers ◽  
Social Interventions

Background: Social interventions targeted at people with severe mental illness (SMI) often include volunteers. Volunteers’ perspectives are important for these interventions to work. This article investigates the experiences of volunteer families who befriend a person with SMI. Material: Qualitative interviews with members of volunteer families. Discussion: The families were motivated by helping a vulnerable person and by engaging in a rewarding relationship. However, the families often doubted their personal judgement and relied on mental health workers to act as safety net. Conclusion: The volunteer involvement is meaningful but also challenging. The families value professional support.

Now they’re listening: involvement in clinical psychology training

2019 ◽  
Vol 23 (1) ◽  
pp. 23-29
Author(s):  
Laura Lea ◽  
Sue Holttum ◽  
Victoria Butters ◽  
Diana Byrne ◽  
Helen Cable ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Professionals ◽  
Clinical Psychology ◽  
Health Professionals ◽  
Service User ◽  
Health Workers ◽  
Psychology Training ◽  
Service Users ◽  
Clinical Psychology Training ◽  
Content Type

PurposeThe 2014/2015 UK requirement for involvement of service users and carers in training mental health professionals has prompted the authors to review the work of involvement in clinical psychology training in the university programme. Have the voices of service users and carers been heard? The paper aims to discuss this issue.Design/methodology/approachThe authors update the paper of 2011 in which the authors described the challenges of inclusion and the specific approaches the authors take to involvement. The authors do this in the context of the recent change to UK standards for service user and carer involvement, and recent developments in relation to partnership working and co-production in mental healthcare. The authors describe the work carried out by the authors – members of a service user involvement group at a UK university – to ensure the voices of people affected by mental health difficulties are included in all aspects of training.FindingsCareful work and the need for dedicated time is required to enable inclusive, effective and comprehensive participation in a mental health training programme. It is apparent that there is a group of service users whose voice is less heard: those who are training to be mental health workers.Social implicationsFor some people, involvement has increased. Trainee mental health professionals’ own experience of distress may need more recognition and valuing.Originality/valueThe authors are in a unique position to review a service-user-led project, which has run for 12 years, whose aim has been to embed involvement in training. The authors can identify both achievements and challenges.

Is co-production working well in recovery colleges? Emergent themes from a systematic narrative review

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Karen Louise Bester ◽  
Anne McGlade ◽  
Eithne Darragh
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Social Care ◽  
The Body ◽  
Bibliographic Databases ◽  
Service Users ◽  
Content Type ◽  
Practitioner Attitudes ◽  
Health And Social Care ◽  
The Impact

Purpose “Co-production” is a process in health and social care wherein service users and practitioners work in partnership. Recovery colleges (RCs) are educational establishments offering mental health education; a cornerstone feature is that courses are designed and delivered in parity by both mental health practitioners and “peers” – people with lived experience of mental illness. This paper aims to consider, through the identification of key themes, whether co-production within RCs is operating successfully. Design/methodology/approach The paper is a systematic review of qualitative literature. Relevant concept groups were systematically searched using three bibliographic databases: Medline, Social Care Online and Scopus. Articles were quality appraised and then synthesised through inductive thematic analysis and emergent trends identified. Findings Synthesis identified three key themes relating to the impact of co-production in RCs: practitioner attitudes, power dynamics between practitioners and service users, and RCs’ relationships with their host organisations. As a result of RC engagement, traditional practitioner/patient hierarchies were found to be eroding. Practitioners felt they were more person-centred. RCs can model good co-productive practices to their host organisations. The review concluded, with some caveats, that RC co-production was of high fidelity. Originality/value RC research is growing, but the body of evidence remains relatively small. Most of what exists examine the impact of RCs on individuals’ overall recovery and mental health; there is a limited empirical investigation into whether their flagship feature of parity between peers and practitioners is genuine.

scholarly journals Storytelling, Safeguarding, Treatment, and Responsibility: attributes of recovery in psychiatric intensive care units

2014 ◽  
Vol 11 (02) ◽  
pp. 105-118 ◽  
Author(s):  
Karleen Gwinner ◽  
Louise Ward
Keyword(s):  
Mental Health ◽  
Decision Making ◽  
Mental Illness ◽  
Intensive Care ◽  
Lived Experience ◽  
Clinical Decision Making ◽  
Clinical Decision ◽  
Review Of Literature ◽  
Psychiatric Distress ◽  
Nurse Knowledge

AbstractBackground and aimIn recent years, policy in Australia has endorsed recovery-oriented mental health services underpinned by the needs, rights and values of people with lived experience of mental illness. This paper critically reviews the idea of recovery as understood by nurses at the frontline of services for people experiencing acute psychiatric distress.MethodData gathered from focus groups held with nurses from two hospitals were used to ascertain their use of terminology, understanding of attributes and current practices that support recovery for people experiencing acute psychiatric distress. A review of literature further examined current nurse-based evidence and nurse knowledge of recovery approaches specific to psychiatric intensive care settings.ResultsFour defining attributes of recovery based on nurses’ perspectives are shared to identify and describe strategies that may help underpin recovery specific to psychiatric intensive care settings.ConclusionThe four attributes described in this paper provide a pragmatic framework with which nurses can reinforce their clinical decision-making and negotiate the dynamic and often incongruous challenges they experience to embed recovery-oriented culture in acute psychiatric settings.

Sign in / Sign up

Export Citation Format

Share Document