scholarly journals Assessing the Quality of Patient Information for Cholesteatoma on the Video Sharing Platform YouTube

Author(s):  
Rithvik Reddy ◽  
Horace Cheng ◽  
Nicholas Jufas ◽  
Nirmal Patel

Objectives: The objective of this study is to assess quality of the most popular cholesteatoma videos on YouTube using recognized scoring systems and to determine if video quality metrics correlated with video popularity based on likes and views Design: Cross sectional survey of available data Setting: Metadata acquisition using YouTube searches using Australian IP addresses Participants: Three independent neuro-otologists partaking in scoring videos Main outcome measures: Each video was viewed and scored by three independent assessors using both a novel tool to score the usefulness of the video as well as the validated DISCERN scoring tool. Popularity metrics were analyzed and compared to video popularity. Results: A total of 90 YouTube videos were analyzed with an average 55,292 views per video with an average of 271 likes and 22 dislikes. The inter-rater correlation was moderate with Fleiss-kappa score 0.42 [P < 0.01] using a novel scoring tool for cholesteatoma and inter-rater correlation coefficient was 0.78 [95% CI = 0.58 - 0.90] indicating good reliability for DISCERN scores. The overall video quality was poor with higher DISCERN scores found in videos uploaded from Academic Institutions. Conclusions: Informative video quality on YouTube on cholesteatoma is overall of poor quality. Videos with unclassified sources or more dislikes correlated poorly with video quality. Given the increase in patients turning to the internet for information regarding their health conditions, otology and otolaryngology societies should be encouraged to publish high quality YouTube videos on cholesteatoma and other ear conditions.

2018 ◽  
Vol 1 ◽  
pp. 22 ◽  
Author(s):  
Fred Maniragaba ◽  
Betty Kwagala ◽  
Emmanuel Bizimungu ◽  
Stephen Ojiambo Wandera ◽  
James Ntozi

Background: Little is known about the quality of life of older persons (OPs) in Uganda in particular, and Africa in general. This study examined factors associated with quality of life of older persons in rural Uganda. Method: We performed a cross-sectional survey of 912 older persons from the four regions of Uganda. Data were analyzed at univariate, bivariate and multivariate level where ordinal logistic regression was applied. Results: Older persons in northern (OR=0.39; CI=0.224-0.711) and western (OR=0.33; CI=0.185-0.594) regions had poor quality of life relative to those in central region. Those who were HIV positive had poor quality of life (OR=0.45; CI=0.220-0.928) compared to those who were HIV negative. In contrast, living in permanent houses predicted good quality of life (OR=2.04; CI=1.391-3.002). Older persons whose household assets were controlled by their spouses were associated with good quality of life (OR=2.06;CI=1.032-4.107) relative to those whose assets were controlled by their children. Conclusion: Interventions mitigating the HIV and AIDS related Quality of life should target older persons. The government of Uganda should consider improving housing conditions for older persons in rural areas.


2020 ◽  
pp. 247553032096478
Author(s):  
Pavane L. Gorrepati ◽  
Gideon P. Smith

Background: YouTube is currently the second most popular website in the world, with over 1 billion hours watched each day. Unlike peer-reviewed journals, there is no process to ensure the quality of YouTube videos that cover medical and treatment information, which could lead to patient misinformation. Objective: We set out to use the DISCERN instrument, which has previously been used in studies to assess the quality of consumer health information regarding treatment choices, to systematically evaluate the quality of the information. Methods: A YouTube search was performed on April 12, 2020, using the keyword “psoriasis treatments.” Since 90% of YouTube users do not view past the first 30 videos, only the first 30 results were selected. Non-English videos, advertisements, and videos that were too specific for the search criteria entered were excluded. Results: The average total DISCERN score was 38.3, which categorizes the videos overall as “poor” quality of content. There was a statistically significant difference in total DISCERN scores between the videos created by patients and those created by hospital/physician sources ( P < .015), with hospital-/physician-made videos scoring higher. However, regardless of the source of the video, there were still significant shortcomings in all the videos assessed. Conclusion: We feel we have a responsibility and an opportunity as a specialty to provide high-quality information, with a specific focus on the areas identified by the DISCERN tool as lacking, to help guide patients on evidence-based therapeutic options.


2018 ◽  
Vol 1 ◽  
pp. 22 ◽  
Author(s):  
Fred Maniragaba ◽  
Betty Kwagala ◽  
Emmanuel Bizimungu ◽  
Stephen Ojiambo Wandera ◽  
James Ntozi

Background: Little is known about the quality of life of older persons (OPs) in Uganda in particular, and Africa in general. This study examined factors associated with quality of life of older persons in rural Uganda. Method: We performed a cross-sectional survey of 912 older persons from the four regions of Uganda. Data were analyzed at univariate, bivariate and multivariate level where ordinal logistic regression was applied. Results: Older persons in northern (OR=0.39; p=0.002) and western (OR=0.33; p<0.001) regions had poor quality of life relative to those in central region. Those who were HIV positive had poor quality of life (OR=0.45; p=0.031) compared to those who were HIV negative. In contrast, living in permanent houses predicted good quality of life (OR=2.04; p=<0.001). Older persons whose household assets were controlled by their spouses were associated with good quality of life (OR=2.06; p=0.040) relative to those whose assets were controlled by their children. Conclusion: Interventions mitigating the HIV and AIDS related Quality of life should target older persons. The government of Uganda should consider improving housing conditions for older persons in rural areas.


2020 ◽  
Author(s):  
Connie Dodds ◽  
Andrew Blaikie ◽  
Sirjhun Patel

BACKGROUND The importance of red reflex testing as part of neonatal screening is recognised worldwide. The technique is ideally suited to online video-based instruction. The quality of online teaching material is however unknown OBJECTIVE We aim to objectively score the quality of red reflex demonstration videos in order to determine their pedagogical effectiveness and to assess the relationship between search engine ranking and quality. METHODS An internet search was performed on 12th February 2020 using keywords related to red reflex examination on search engine platforms YouTube, Google and DuckDuckGo. Video characteristics were recorded and popularity determined by calculating a Video Power Index (VPI) score. The videos were assessed by two medical students and two ophthalmologists using scoring systems: Red Reflex Specific (RRS), Understandability & Attractiveness (U&A), Reliability (JAMA), and Global Quality Score (GQS). A Total Quality Score (TQS) was created from RRS, U&A and JAMA scores as a measure of overall quality. Videos were categorised by source and in terms of usefulness. Correlations between audience interaction parameters and video quality alongside ranking position on the three search engines were investigated using Spearman’s rho. RESULTS Of the 625 videos screened, 14 were eligible for inclusion. Overall, videos had a mean TQS of 24.3/50 (range: 9 – 41) with six videos considered “educationally useful” based on the GQS. The main video source was physicians (43%), with videos uploaded by academics being of greatest overall quality (P = .023). There was a positive correlation between TQS and ranking position of videos using Google (rs= 0.569, P = .034) but not with other platforms. CONCLUSIONS The limited red reflex training videos currently available on the internet are generally poor and of variable quality. We recommend Google as a suitable platform to search for red reflex videos of better quality. These results may play a role in ensuring video teaching is performed optimally and highlight the need for improved access worldwide to videos of greater accuracy and reliability.


2020 ◽  
pp. jrheum.200733
Author(s):  
Sara S. McCoy ◽  
Christie M. Bartels ◽  
Ian J. Saldanha ◽  
Vatinee Y. Bunya ◽  
Esen K. Akpek ◽  
...  

Objective To define the association between oral and systemic manifestations of Sjӧgren’s syndrome (SS) and quality of life. Methods We analyzed a cross-sectional survey conducted by the Sjӧgren’s Foundation in 2016, with 2961 eligible responses. We defined oral symptom and sign exposures as parotid gland swelling, dry mouth, mouth ulcers/sores, oral candidiasis, trouble speaking, choking or dysphagia, sialolithiasis or gland infection, and dental caries. Systemic exposures included interstitial lung disease, purpura/petechiae/cryoglobulinemia, vasculitis, neuropathy, leukopenia, interstitial nephritis, renal tubular acidosis, autoimmune hepatitis, primary biliary cholangitis, or lymphoma. Outcomes included SS-specific quality of life questions generated by SS experts and patients. Results Using multivariable regression models adjusted for age, sex, race, and employment, we observed that mouth ulcers or sores, trouble speaking, and dysphagia were associated with poor quality of life. The following oral aspects had the greatest impact on these following quality of life areas: i) mouth ulcers/sores on the challenge and burden of living with SS (odds ratio [OR] 4.26, 95% confidence interval [CI] 2.89- 5.48), ii) trouble speaking on memory and concentration (OR 4.24, 95% CI 3.28-5.48), and iii) dysphagia on functional interference (OR 4.25, 95% CI 3.13-5.79). In contrast, systemic manifestations were associated with quality of life to a lesser extent or not at all. Conclusion Oral manifestations of SS, particularly mouth ulcers or sores, trouble speaking, and dysphagia, were strongly associated with worse quality of life. Further study and targeted treatment of these oral manifestations provides the opportunity to improve quality of life in patients with SS.


2016 ◽  
Vol 18 (2) ◽  
pp. 114-119 ◽  
Author(s):  
Maria Teresa Parisotto ◽  
Francesco Pelliccia ◽  
Aileen Grassmann ◽  
Daniele Marcelli

Background/aim Vascular access (VA) cannulation is an essential skill for dialysis nurses: failure to correctly repeat this operation daily may result in serious complications for the patients. This study investigates if different aspects of arteriovenous fistula and graft cannulation have an effect on the development of acute access complications, which may affect the VA survival. Methods In April 2009 a cross-sectional survey was conducted in 171 dialysis units located in Europe, the Middle East and Africa to collect details on VA cannulation practices. Information on cannulation retrieved from the survey comprised fistula type and location, cannulation technique, needle size, use of disinfectants and of local anaesthetics, application of arm compression at the time of cannulation, needle and bevel direction, needle rotation, and needle fixation. Five categories of complications were investigated: multiple-cannulation, infiltration, haematoma, haemorrhage and unknown. Results There were 10,807 cannulation procedures evaluated in the same number of patients. Of these, 367 showed some kind of complication, the most frequent (33.8%) being the need for multiple-cannulation. The following were associated with a significantly higher odds ratio for occurrence of an acute complication: prescription of back-eye needles, use of rope-ladder cannulation technique, insertion of venous needle as first needle, and rotation of the arterial needle. Use of 16-17-gauge needles was also significantly associated with complications, but this possibly reflects poor quality of the VA. Conclusions The risk of an acute VA complication could be reduced with appropriate training of nurses, physicians and patients. This could potentially prolong the VA life.


2021 ◽  
Vol 2021 ◽  
pp. 1-5
Author(s):  
Joseph N. Hewitt ◽  
Joshua G. Kovoor ◽  
Christopher D. Ovenden ◽  
Gayatri P. Asokan

Background. Surgical patients frequently seek information from digital sources, particularly before common operations such as laparoscopic cholecystectomy (LC). YouTube provides a large amount of free educational content; however, it lacks regulation or peer review. To inform patient education, we evaluated the quality of YouTube videos on LC. Methods. We searched YouTube with the phrase “laparoscopic cholecystectomy.” Two authors independently rated quality of the first 50 videos retrieved using the JAMA, Health on the Net (HON), and DISCERN scoring systems. Data collected for each video included total views, time since upload, video length, total comments, and percentage positivity (proportion of likes relative to total likes plus dislikes). Interobserver reliability was assessed using an intraclass correlation coefficient (ICC). Association between quality and video characteristics was tested. Results. Mean video quality scores were poor, scoring 1.9/4 for JAMA, 2.0/5.0 for DISCERN, and 4.9/8.0 for HON. There was good interobserver reliability with an ICC of 0.78, 0.81, and 0.74, respectively. Median number of views was 21,789 (IQR 3000–61,690). Videos were mostly published by private corporations. No video characteristic demonstrated significant association with video quality. Conclusion. YouTube videos for LC are of low quality and insufficient for patient education. Treating surgeons should advise of the website’s limitations and direct patients to trusted sources of information.


2021 ◽  
Author(s):  
asli cetinkaya yaprak ◽  
Çisil Erkan Pota

Abstract Purpose To evaluate the reliability, quality and effectiveness of YouTube videos adressing treatment of keratoconus. Methods This is a retrospective, cross-sectional and register-based study. A YouTube search was performed using the keyword treatment of keratoconus and the first 100 videos that came out were included in the study. The numbers of views, likes, dislikes, comments, daily viewing rate (number of views per day), uploaded source (physicians, public or private institution, health channel or patients), country of origin, video type (patient experience, scholarly information), and describe treatment technique (contact lens, corneal crosslinking, intrastromal corneal ring, topography guided-photorefractive keratectomy, keratoplasty) were evaluated for all videos. They were also evaluated regarding their DISCERN, Journal of the American Medical Association (JAMA), global quality (GQS) and usefulness scores by two independent ophthalmologists. Results Of the top 100 videos, 83 videos met the criteria. The mean DISCERN, JAMA, GQS and usefulness score were 42.92 ± 18.14, 2.7 ± 0.73,3.07 ± 1.25 and 2.99 ± 1.44, respectively. Of the 83 videos, 35(42.2%) had been uploaded by physicians, 19(22.9%) by patients, 15(18.1%) by health channel and 14(16.9%) by institutions/private health institutions. In the correlation analysis, the four scoring systems showed a statistically significant and strong positive correlation with each other (p < 0.001). In addition, viewing rate DISCERN, GQS, usefulness scores, number of likes, dislikes and comments showed a statistically significant positive correlation. Conclusion The content of YouTube videos regarding treatment of keratoconus is of generally good quality and is educational for patients. Increasing the number of videos uploaded by healthcare professionals will increase the quality, reliability and informative features of the videos.


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