scholarly journals Adults with Loeys-Dietz syndrome and vascular Ehlers-Danlos syndrome: A cross-sectional study of life satisfaction

2021 ◽  
Author(s):  
Heidi Johansen ◽  
Gry Velvin ◽  
Kerstin Fugl-Meyer ◽  
Ingeborg Beate Lidal
Keyword(s):  
Life Satisfaction ◽  
Depression Scale ◽  
Cross Sectional Study ◽  
Postal Survey ◽  
Sexual Life ◽  
Cross Sectional ◽  
Ehlers Danlos Syndrome ◽  
Severe Fatigue ◽  
Clinical Measurements ◽  
Danlos Syndrome

Objective: To explore life satisfaction among adults with Loeys-Dietz and those with vascular Ehlers-Danlos syndrome. Design: Postal survey in 2018. Participants and methods: Persons with molecularly verified Loeys-Dietz syndrome or vascular Ehlers-Danlos syndrome were recruited through the TRS [AQ2] National Resource Centre for Rare Disorders in Norway. The study used the Life Satisfaction Questionnaire 11, Hospital Anxiety and Depression Scale, Fatigue Severity Scale, and questions about physical activity and disease burden. Descriptive statistics were conducted with Bonferroni corrections. Results: The response rate was 74%, 52 participants, age range 18–68 years, and 58% were women. Only half of the participants were satisfied with their lives as a whole. Participants reported dissatisfaction with vocation, somatic health, and sexual life in particular. Participants with vascular Ehlers-Danlos syndrome (n = 18) were satisfied with more areas of life than those with Loeys-Dietz syndrome (n = 34). Low overall satisfaction was significantly associated with severe fatigue (p = 0.002) and symptoms of anxiety (p = 0.001). Conclusion: This study provides important information about living with Loeys-Dietz syndrome and vascular Ehlers-Danlos syndrome. Future studies should identify factors that reduce/increase life satisfaction. Professionals in welfare systems need more information about the unique challenges of living with these diagnoses. Guidelines for research and clinical measurements of life satisfaction should be updated.

scholarly journals Self-Perceived Life Satisfaction during the First Wave of the COVID-19 Pandemic in Sweden: A Cross-Sectional Study

2021 ◽  
Vol 18 (12) ◽  
pp. 6234
Author(s):  
Christina Brogårdh ◽  
Catharina Sjödahl Hammarlund ◽  
Frida Eek ◽  
Kjerstin Stigmar ◽  
Ingrid Lindgren ◽  
...  
Keyword(s):  
Life Satisfaction ◽  
Online Survey ◽  
Satisfaction With Life ◽  
Sociodemographic Factors ◽  
Cross Sectional Study ◽  
Sexual Life ◽  
Life Domains ◽  
Sectional Study ◽  
Cross Sectional ◽  
Perceived Life Satisfaction

Currently, there is limited knowledge on how the Swedish strategy with more lenient public health restrictions during the COVID-19 pandemic has influenced people’s life satisfaction. Here, we investigated self-reported life satisfaction during the first wave of the pandemic in Sweden, and perceived changes in life satisfaction in relation to various sociodemographic factors. A total of 1082 people (mean age 48 (SD 12.2); 82% women) responded to an online survey during autumn 2020 including the “Life Satisfaction Questionnaire-11”. A majority (69%) were satisfied with life as a whole, and with other important life domains, with the exception of contact with friends and sexual life. An equal share reported that life as a whole had either deteriorated (28%) or improved (29%). Of those that perceived a deterioration, 95% considered it to be due to the pandemic. Regarding deteriorated satisfaction with life as a whole, higher odds were found in the following groups: having no children living at home; being middle aged; having other sources of income than being employed; and having a chronic disease. The Swedish strategy might have contributed to the high proportion of satisfied people. Those who perceived a deterioration in life satisfaction may, however, need attention from Swedish Welfare Authorities.

scholarly journals Severe Fatigue is Highly Prevalent in Patients with IPF or Sarcoidosis

2020 ◽  
Vol 9 (4) ◽  
pp. 1178 ◽  
Author(s):  
Ada E. M. Bloem ◽  
Rémy L. M. Mostard ◽  
Naomi Stoot ◽  
Jan H. Vercoulen ◽  
Jeannette B. Peters ◽  
...  
Keyword(s):  
Functional Activity ◽  
Depression Scale ◽  
Patient Characteristics ◽  
Respiratory Illness ◽  
Cross Sectional Study ◽  
Pulmonary Sarcoidosis ◽  
Limited Information ◽  
Activity Impairment ◽  
Cross Sectional ◽  
Severe Fatigue

In patients with interstitial lung disease (ILD) next to dyspnea, fatigue is expected to be the most prevalent symptom. Surprisingly, the prevalence of severe fatigue has been scarcely studied in ILD patients and limited information on its associated factors is available. This study aimed to determine the prevalence of severe fatigue in patients with idiopathic pulmonary fibrosis (IPF) or pulmonary sarcoidosis and to identify the relationship between fatigue, patient characteristics, and clinical parameters. In this cross-sectional study, fatigue (checklist individual strength-fatigue (CIS-Fat)), demographics, lung function, dyspnea (modified-Medical Research Council (mMRC)), sleepiness (Epworth Sleepiness Scale), anxiety/depression (hospital anxiety and depression scale (HADS-A/HADS-D)), catastrophizing (fatigue catastrophizing scale (FCS)), functional activity impairment (respiratory illness quality-of-life (QoL-RIQ-Activity)), and health status (EuroQol five-dimensional descriptive system (EQ-5D-5L)) were assessed in outpatients with ILD. Mean CIS-Fat scores were 34.1 (SD ± 11.2) in 59 IPF patients and 40.0 (12.3) in 58 sarcoidosis patients. Severe fatigue (SD ± ≥36 points) was present in IPF patients (47.5%) and sarcoidosis (69%). In IPF, CIS-Fat correlated strongly (ρ > 0.5; p < 0.01) with FCS, QoL-RIQ-Activity, and EQ-5D-5L-Health and moderately (0.3 < ρ < 0.5; p < 0.01) with EQ-5D-5L-Index, mMRC, and HADS-D. In sarcoidosis, CIS-Fat correlated strongly with EQ-5D-5L-Health, QoL-RIQ-Activity, EQ-5D-5L-Index, HADS-D, and mMRC and moderately with FCS and hospitalization <12 months. Severe fatigue is highly prevalent in ILD patients and is associated with dyspnea, depression, catastrophizing, functional activity impairments, and QoL.

Determinants of Suicidal Ideation among Older Adults

GeroPsych ◽  
2020 ◽  
pp. 1-9
Author(s):  
Mahshid Foroughan ◽  
Mohammad Rostami ◽  
Seyed Jalal Younesi
Keyword(s):  
Older Adults ◽  
Life Satisfaction ◽  
Suicidal Ideation ◽  
Geriatric Depression Scale ◽  
Depression Scale ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Satisfaction Index ◽  
Relationship Of ◽  
The Relationship

Abstract. This study examined the relationship of depression and life satisfaction with suicidal ideation among older Iranian adults. In this cross-sectional study, a total of 159 older adults in Tehran (73% community-residing, 60 years or older) participated. The data were gathered using the Beck Scale for Suicidal Ideation (BSSI), the Geriatric Depression Scale (GDS), and the Life Satisfaction Index-Z (LSIZ). According to the results, depression and life satisfaction are significantly related to suicidal ideation; the two variables predict 0.39% of the variance of suicidal ideation in older adults ( p < .01). The interaction between depression and life satisfaction is a stronger predictor of suicidal ideation in older adults than each of the variables alone.

Recognizing the tenascin‐X deficient type of Ehlers–Danlos syndrome: a cross‐sectional study in 17 patients

2016 ◽  
Vol 91 (3) ◽  
pp. 411-425 ◽  
Author(s):  
S. Demirdas ◽  
E. Dulfer ◽  
L. Robert ◽  
M. Kempers ◽  
D. van Beek ◽  
...  
Keyword(s):  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Ehlers Danlos Syndrome ◽  
Danlos Syndrome

scholarly journals Does the psychological variables predict life satisfaction and purpose in life in brazilian elderly?

2021 ◽  
Vol 9 (1) ◽  
pp. e40223
Author(s):  
Daniel Vicentini De Oliveira ◽  
Renan Codonhato ◽  
Matheus Amarante Do Nascimento ◽  
Braulio Henrique Magnani Branco ◽  
Gabriel Lucas Morais Freire ◽  
...  
Keyword(s):  
Older Adults ◽  
Life Satisfaction ◽  
Geriatric Depression Scale ◽  
Depression Scale ◽  
Purpose In Life ◽  
Multivariate Regression Analysis ◽  
Cross Sectional Study ◽  
Anxiety And Depression ◽  
Satisfaction Scale ◽  
Cross Sectional

Aims: the present study aimed to investigate the association between indicatives of stress, anxiety and depression with life satisfaction and purpose in life among Brazilian older adults.Methods: this cross-sectional study was conducted with 654 Brazilian older adults who responded the Life Satisfaction Scale, Purpose in Life Scale, Perceived Stress Scale, Geriatric Anxiety Inventory and the Geriatric Depression Scale. Data were analyzed through independent t-test, Cohen’s D, Pearson Correlations and Multivariate Regression Analysis (p<0.05).Results: results indicated slightly higher levels of stress and anxiety for women when compared to men (p<0.05); indicatives of stress, anxiety and depression were inversely correlated to life satisfaction and purpose (r = -0.19 to -0.44; p<0.05); stress (β=-0.29) and depression (β=-0.36) were significant predictors of life satisfaction (R2=0.31; p<0.01), and life purpose (R2=0.18; p<0.01) was predicted by stress (β=-0.15), anxiety (β=0.10) and depression (β=-0.39).Conclusion: It can be concluded that stress and depression are significant factors hindering older adults’ satisfaction and purpose in life.

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