scholarly journals Design and Creation of Multi-Source Enduring Linked Assets

Author(s):  
Elena Ougrinovsk

IntroductionThe Australian Institute of Health and Welfare is collaborating with a range of government and other institutions to build enduring data assets for improving analysis and informed policy outcomes. There were lessons learnt that can be shared, in addition to the architecture and linkage techniques. The enduring assets were created by linking States’ and Territories’ health or welfare data to Commonwealth datasets such as Medicare Consumer Directory (MCD), Residential Aged Care (RAC) and National Death Index (NDI) data. The linkage was carried out by the Australian Institute of Health and Welfare (AIHW) Data Integration Services Centre (DISC). Objectives and ApproachTo create the integrated asset, the linkage spine was assembled by de-duplicating and linking MCD and NDI data. The states’ datasets and other commonwealth datasets involved in the project were linked to this spine. Each unique individual in the spine was assigned Personal Project Number (PPN) which was added to each record linked to the individual. The unlinked individuals from these datasets were de-duplicated and assigned different PPNs. Names, dates of birth and addresses were used in probabilistic linkage process. To enable investigators to interrogate the sequences of the events without releasing the exact dates, the central events file was created. It contains date differences for every event in the asset, calculated as the difference (in days) between event and not released “date zero”, different for each individual. ResultsBetween 96% and 99% of records in the supplied datasets were linked to the spine with linkage accuracy at least 98.5%. The linkage rates depends on the data completeness and the nature of the datasets as not all individuals accessing states’ servicers are eligible for Medicare. Conclusion / ImplicationsThe person-focused de-identified analytical assets allow to study journeys of the individual through Australian health and welfare systems which transcends jurisdictional boundaries.

2018 ◽  
Vol 20 (1) ◽  
pp. 37-48 ◽  
Author(s):  
Sandra Barry ◽  
Lucy Knox ◽  
Jacinta M. Douglas

Background and aims: Previous research has highlighted that living in residential aged care (RAC) is associated with a range of negative outcomes for adults with acquired neurological disorders. This study sought to understand the lived experience of entering RAC for young people and their family members and characterise their needs during this process.Method: Data included 64 written and verbal submissions to the 2015 Senate Inquiry into the Adequacy of existing residential care arrangements available for young people with severe physical, mental or intellectual disabilities in Australia. In line with hermeneutic tradition, text was analysed using thematic analysis.Results: Entry to RAC was experienced as a complex process that coalesced around three key events: an unexpected health crisis, a directive that time's up and the individual is required to leave the healthcare setting, with a subsequent decision to move into RAC. This decision was made in the absence of time, knowledge of options or adequate support.Conclusions: Findings suggest that there are both immediate practice changes and longer term policy responses that can support the health and disability systems to uphold the rights of people with acquired disability to choose where and how they will live their lives.


1970 ◽  
Vol 17 (1) ◽  
Author(s):  
Deborah Parker

This article explores residential aged care facilities (RACFs) as places of dying and death, and the role these spaces and places have in the construction of self identity for dying residents.  It argues that RACFs, rather than being static places where events such as dying and death occur, are places that shape these experiences. They are social institutions where the construction of self identity for dying residents arises out of the individual experience within the setting, most specifically the experience of social interaction. Drawing on ethnographic work in two Australian facilities the article explores how macro level influences such as economic, social and political discourses intersect with micro level experiences of dying for those approaching death as well as family members and health professionals who support the dying.


Pharmacy ◽  
2021 ◽  
Vol 9 (4) ◽  
pp. 162
Author(s):  
William Murray Thomson ◽  
Moira B. Smith ◽  
Catherine Anna Ferguson ◽  
Geraldine Moses

With a reported prevalence between 20% and 30%, dry mouth is more common among older people than any other age group. The major risk factor for dry mouth is polypharmacy. Older people take more medications than any other age group, not only for symptomatic relief of various age-associated chronic diseases, but also to reduce the likelihood of the complications that may arise from those conditions. Most aged care residents take even more medications than older people who are living in their own homes. The greater the number of medications taken, the greater the associated anticholinergic burden, and the more likely it is that the individual will suffer from dry mouth. The condition not only affects the dentition and ability to wear dentures, but also the sufferers’ quality of life. Treating dry mouth is a considerable challenge for clinicians. As medication use is by far the most important risk factor, there is a need for pharmacists, doctors and dentists to work together to prevent this from occurring. Medication review and deprescribing is a key strategy, but there have not yet been any randomised control trials of its efficacy in reducing the occurrence of dry mouth.


10.29007/nhtr ◽  
2018 ◽  
Author(s):  
Trevor Hilaire ◽  
Kim Maund ◽  
Brian Swanepoel ◽  
Julie Chapple

Currently residential aged care (RAC) provides a solution to address ageing populations in many developed countries. Demand for RAC is predicted to increase as populations continue to age with the recurrent costs posing an increasing burden on society. The contribution the built environment can play to mitigate this potential burden is becoming increasingly important in the design and construction of RAC facilities. The theories of environmental psychology rationalise the relationship between the physical environment and the individual and impacts work stress/satisfaction. Work stress/satisfaction in RAC facilities has a direct influence on quality of care and can directly affect the residents’ quality of life. This paper reports on a two stage study of design influences with the potential to impact upon the care team’s work stress/satisfaction in RAC where the benefits of consultative design are indentified. When compared to other facilities in the study the facility utilising a consultative design approach demonstrated more positive and less negative results for the design influences included. The consultative design approach reduced the potential for designers to copy and adapt a previous design, afforded universal ownership of the facility and optimised the building’s impact on work stress/satisfaction. The approach formed the basis of an overarching process to ensure the necessary elements of the design influences framework can be appropriately incorporated into the built environment.


2016 ◽  
Vol 36 (9) ◽  
pp. 1070-1090 ◽  
Author(s):  
Jo-Anne Rayner ◽  
Michael Bauer

Older people living in the community use complementary medicine (CM) to manage the symptoms of chronic illness; however, little is known about CM use by older people living in care settings. Using focus groups and individual interviews, this study explored the use of CM from the perspective of 71 residents, families, and health professionals from six residential aged-care facilities in Victoria, Australia. Residents used CM to manage pain and improve mobility, often covertly, and only with the financial assistance of their families. Facility policies and funding restrictions constrained CM use at the individual and facility level. An absence of evidence to support safety and efficacy coupled with the risk of interactions made doctors wary of CM use in older people. These findings have relevance for the large number of CM using “baby-boomers” as they move into residential aged-care.


Healthcare ◽  
2021 ◽  
Vol 9 (7) ◽  
pp. 901
Author(s):  
Oyelola A. Adegboye ◽  
Emma S. McBryde ◽  
Damon P. Eisen

Background: In this study, we aimed to assess the risk factors associated with mortality due to an infectious disease over the short-, medium-, and long-term based on a data-linkage study for patients discharged from an infectious disease unit in North Queensland, Australia, between 2006 and 2011. Methods: Age-sex standardised mortality rates (SMR) for different subgroups were estimated, and the Kaplan-Meier method was used to estimate and compare the survival experience among different groups. Results: Overall, the mortality rate in the hospital cohort was higher than expected in comparison with the Queensland population (SMR: 15.3, 95%CI: 14.9–15.6). The long-term mortality risks were significantly higher for severe infectious diseases than non-infectious diseases for male sex, Indigenous, residential aged care and elderly individuals. Conclusion: In general, male sex, Indigenous status, age and comorbidity were associated with an increased hazard for all-cause deaths.


2018 ◽  
Vol 2 (1) ◽  
pp. 56-64
Author(s):  
Hamna Rao

Today’s health workforce is constantly engaged to enhance the standards of healthcare services and ensuring comprehensive healthcare standards to the community. Queensland’s health workforce is Australia’s second largest health workforce (1) and serving proportionately in all areas of QLD, making efforts to make health better by making research, surveys and developmental planning in rural and regional areas. Aged Care is currently the most concerned health issue among OECD countries (2) as aged population continues to grow and it’s challenging for Australian health sector to meet the standards of quality care in provision of aged care health services. As per Australian Institute of Health and Welfare statistics it is projected that Australia will constitute 22% of aged population in next 30 years (AIHW).


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 62-63
Author(s):  
Margaret MacAndrew ◽  
Elizabeth Beattie ◽  
Dubhglas Taylor ◽  
Jim Whitehead ◽  
John Quinn

Abstract In Australia one in five land searches conducted by Police involve a person with dementia. Over a third of these people go missing from a health care service and 15% are not found alive. Delays in commencing a specialised search for the missing person with dementia contributes to the risk of death. Delays in Police searching may result from ambiguity in current policies about how to report a missing patient/client. This study aimed to explore health professional’s knowledge about how to report a missing person with dementia and reasons for delayed reports to Police. 246 Australian health professionals completed an online survey. Most were registered nurses (n=124), allied health professionals (n=69) and medical practitioners (n=22) who worked in a range of settings including acute care (n=111), community care (n=59) and residential aged care (n=44). Over a third (n=81) did not know their care service policy for reporting a missing patient/client and did not know if their health service had a policy specific to reporting a missing person with dementia. 20% did not know how long they needed to wait before reporting a missing person to Police and fear of calling Police too soon or wasting their time were common reasons for delaying a report. These findings confirm a degree of misunderstanding about current policy and procedures for reporting a missing person with dementia. Addressing knowledge deficits and standardising approaches to reporting a missing person with dementia in Australia would be recommended as a step toward improving their health outcomes.


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