Publico – A Digital Tool for Pandemic Crisis Communication and Management

"COVID-19 vividly demonstrates the global challenges of crisis communication. A flood of pandemic-related information from various sources and highly variable quality is inundating media platforms. To counter this “infodemic”, providing high-quality information is not sufficient. Real-time feedback loops from the public to policy-makers are urgently needed to better align communication strategies, actions taken, and public perception. To achieve this, the PubliCo online platform was launched in November 2020 in Switzerland. It follows a transdisciplinary multi-stakeholder approach rooted in participatory citizen science. PubliCo (https://publico.community/en/) includes three parts: 1. PubliCo Survey, collecting quantitative data, e.g. on moral preferences, while feeding back contextualized, tailored information to users; 2. PubliCo Diaries, collecting in-depth qualitative data, which also informs efforts to adapt PubliCo Survey to the evolving situation; and 3. PubliCo Analytics, which allows policymakers and other platform users to continuously analyse the collected data. We will present the PubliCo concept, considering the following key points: 1. Ethical considerations in the development of PubliCo concerning citizen science and crisis management. 2. PubliCo as a practical tool to implement the procedural ethics concepts such as Accountability for Reasonableness. 3. Lessons learned challenges, and opportunities for the transferability of PubliCo to better manage future crises in different global contexts. With our contribution, we aim to simulate a discussion on the ethical aspects of crisis communication and the strengths and limitations of citizen participation. "

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Citizen Science and Its Role in Sustainable Development

Sustainable Development ◽

10.4018/978-1-5225-3817-2.ch048 ◽

2017 ◽

pp. 1088-1108

Author(s):

Hai-Ying Liu ◽

Mike Kobernus

Keyword(s):

Sustainable Development ◽

Citizen Science ◽

Environmental Sustainability ◽

Lessons Learned ◽

Environmental Research ◽

Future Research ◽

Challenges And Opportunities ◽

Core Components ◽

Future Research Directions

The chapter aims to analyse the role of citizen science in sustainable development, including case studies implementation, with specific focus on its suitability of citizen science in environmental sustainability. The authors structured this chapter in five sections: Background; Main focus; Solutions and recommendations for designing and executing citizen science initiatives; Future research directions with thoughts on the future role of citizen science; and Conclusion. In section of main focus, first, the authors reviewed the state of citizen science in sustainable development and explored the potential of citizen science for environmental research and governance. Second, authors identified and elaborated the core components that support the role of citizen science and demonstrated the practical approach to realize its objective. Third, using several citizens' observatories studies from various regions in Europe and within diverse environmental fields, authors highlighted the lessons learned, and reflected on major outcomes, challenges and opportunities.

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Citizen Science and Its Role in Sustainable Development

Analyzing the Role of Citizen Science in Modern Research - Advances in Knowledge Acquisition, Transfer, and Management ◽

10.4018/978-1-5225-0962-2.ch007 ◽

2017 ◽

pp. 147-167 ◽

Cited By ~ 3

Author(s):

Hai-Ying Liu ◽

Mike Kobernus

Keyword(s):

Sustainable Development ◽

Citizen Science ◽

Environmental Sustainability ◽

Lessons Learned ◽

Environmental Research ◽

Future Research ◽

Challenges And Opportunities ◽

Core Components ◽

Future Research Directions

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Scientometric Analysis of Research in Energy Efficiency and Citizen Science through Projects and Publications

Sustainability ◽

10.3390/su12125175 ◽

2020 ◽

Vol 12 (12) ◽

pp. 5175 ◽

Cited By ~ 1

Author(s):

Daniela De Filippo ◽

María Luisa Lascurain ◽

Andres Pandiella-Dominique ◽

Elias Sanz-Casado

Keyword(s):

Energy Efficiency ◽

Citizen Science ◽

Citizen Participation ◽

Environmental Sustainability ◽

Public Perception ◽

Scientometric Analysis ◽

Responsible Consumption ◽

High Figure ◽

Number Of Publications ◽

The Impact

Energy efficiency is part of the commitment to environmental sustainability made by the organizations that promote and finance research and by the researchers that make this field their subject of study. Although there is growing interest in the subject, it is worth asking whether the research has been approached considering citizens’ needs or citizens’ participation. The main objective of this study is to analyse whether energy efficiency research has adopted a citizen science perspective. Using scientometric methods, the SCOPUS and CORDIS databases were consulted and a document search strategy was developed to gather information on publications and projects. The analysis revealed that, out of 265 projects under the Seventh Framework Programme on Energy Efficiency, only seven (3%) were related to citizen science. Although there is a large volume of publications on energy efficiency (over 200,000) and a considerable number of publications on citizen science (>30,000 articles), only 336 documents were identified that deal with both topics. The number of projects and publications on these topics has increased in recent years, with universities being the institutions that have published the most. Content analysis found that the most frequent topics are public perception of the use of renewable energies; citizen participation in measures to address climate change and global warming; and the involvement of different stakeholders in the use and responsible consumption of energy. Finally, information was collected on the impact of these publications on social media and altmetric tools. It was revealed that 33% of the 336 papers have had a presence in different sources, especially Twitter. This is a high figure compared with the dissemination achieved by papers from other disciplines.

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ECLIPSEMOB: LESSONS LEARNED FROM A NATIONAL SCALE CITIZEN SCIENCE EXPERIMENT DURING THE 2017 SOLAR ECLIPSE

10.1130/abs/2017am-306234 ◽

2017 ◽

Author(s):

Laura A. Lukes ◽

◽

J. Nelson ◽

K.C. Kerby-Patel ◽

W.C. Liles ◽

...

Keyword(s):

Citizen Science ◽

Solar Eclipse ◽

Lessons Learned ◽

National Scale

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Researcher perspectives on challenges and opportunities in conservation physiology revealed from an online survey

Conservation Physiology ◽

10.1093/conphys/coab030 ◽

2021 ◽

Vol 9 (1) ◽

Author(s):

Christine L Madliger ◽

Oliver P Love ◽

Vivian M Nguyen ◽

Neal R Haddaway ◽

Steven J Cooke

Keyword(s):

Online Survey ◽

Stakeholder Involvement ◽

Reference Ranges ◽

Conservation Science ◽

Policy And Practice ◽

Conservation Action ◽

Conservation Physiology ◽

Biodiversity Crisis ◽

Challenges And Opportunities ◽

Multi Stakeholder

Abstract Conservation physiology represents a recently emerging arm of conservation science that applies physiological tools and techniques to understand and solve conservation issues. While a multi-disciplinary toolbox can only help to address the global biodiversity crisis, any field can face challenges while becoming established, particularly highly applied disciplines that require multi-stakeholder involvement. Gaining first-hand knowledge of the challenges that conservation physiologists are facing can help characterize the current state of the field and build a better foundation for determining how it can grow. Through an online survey of 468 scientists working at the intersection of physiology and conservation, we aimed to identify characteristics of those engaging in conservation physiology research (e.g. demographics, primary taxa of study), gauge conservation physiology’s role in contributing to on-the-ground conservation action, identify the perceived barriers to achieving success and determine how difficult any identified barriers are to overcome. Despite all participants having experience combining physiology and conservation, only one-third considered themselves to be ‘conservation physiologists’. Moreover, there was a general perception that conservation physiology does not yet regularly lead to tangible conservation success. Respondents identified the recent conceptualization of the field and the broader issue of adequately translating science into management action as the primary reasons for these deficits. Other significant barriers that respondents have faced when integrating physiology and conservation science included a lack of funding, logistical constraints (e.g. sample sizes, obtaining permits) and a lack of physiological baseline data (i.e. reference ranges of a physiological metric’s ‘normal’ or pre-environmental change levels). We identified 12 actions based on suggestions of survey participants that we anticipate will help deconstruct the barriers and continue to develop a narrative of physiology that is relevant to conservation science, policy and practice.

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The Patient in Patient Safety: Contemporary Issues, From COVID-19 to Citizen Science

Proceedings of the International Symposium on Human Factors and Ergonomics in Health Care ◽

10.1177/2327857921101263 ◽

2021 ◽

Vol 10 (1) ◽

pp. 301-303

Author(s):

Elizabeth Lerner Papautsky ◽

Richard J. Holden ◽

Rupa S. Valdez ◽

Jordan Hill ◽

Janetta Brown

Keyword(s):

Social Media ◽

Patient Safety ◽

Citizen Science ◽

Human Subjects ◽

Lessons Learned ◽

Human Subjects Research ◽

Research Strategies ◽

Face To Face

In the 4th panel on the topic of The Patient in Patient Safety, we highlighted topics of current relevance and facilitated a reflection session. The objective was to highlight the ways in which the COVID-19 pandemic has impacted patient ergonomics research and work, with particular focus on safety. After a topic overview, panelists presented their work on overcoming challenges to human subjects research created by the suspension of face-to-face activities during the COVID-19 pandemic. A facilitated reflection and brainstorming session using Miro followed. We used questions to elicit examples of patient and caregiver roles in safety during the pandemic and research strategies and challenges. These questions were also distributed on social media prior to the event. The panel served as an opportunity to share lessons learned.

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Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol

Research Involvement and Engagement ◽

10.1186/s40900-020-00246-x ◽

2021 ◽

Vol 7 (1) ◽

Author(s):

Kufre Joseph Okop ◽

Kathy Murphy ◽

Estelle Victoria Lambert ◽

Kiya Kedir ◽

Hailemichael Getachew ◽

...

Keyword(s):

Cardiovascular Disease ◽

Citizen Science ◽

Risk Perceptions ◽

Disease Risk ◽

Cardiovascular Disease Risk ◽

Data Gathering ◽

Lessons Learned ◽

Sub Saharan Africa ◽

Rural And Urban ◽

Sub Saharan

Abstract Background In sub-Saharan Africa (SSA), which experiences a disproportionately high cardiovascular disease (CVD) burden, population-based screening and prevention measures are hampered by low levels of knowledge about CVD and associated risk factors, and inaccurate perceptions of severity of risk. Methods This protocol describes the planned processes for implementing community-driven participatory research, using a citizen science method to explore CVD risk perceptions and to develop community-specific advocacy and prevention strategies in the rural and urban SSA settings. Multi-disciplinary research teams in four selected African countries will engage with and train community members living in rural and urban communities as citizen scientists to facilitate conceptualization, co-designing of research, data gathering, and co-creation of knowledge that can lead to a shared agenda to support collaborative participation in community-engaged science. The emphasis is on robust community engagement, using mobile technology to support data gathering, participatory learning, and co-creation of knowledge and disease prevention advocacy. Discussion Contextual processes applied and lessons learned in specific settings will support redefining or disassembling boundaries in participatory science to foster effective implementation of sustainable prevention intervention programmes in Low- and Middle-income countries.

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Implications of the GC-HARMS Fishermen’s Citizen Science Network: Issues Raised, Lessons Learned, and Next Steps for the Network and Citizen Science

NEW SOLUTIONS A Journal of Environmental and Occupational Health Policy ◽

10.1177/1048291118810871 ◽

2018 ◽

Vol 28 (4) ◽

pp. 570-598 ◽

Cited By ~ 1

Author(s):

John Sullivan ◽

Sharon Croisant ◽

Marilyn Howarth ◽

Wilma Subra ◽

Marylee Orr ◽

...

Keyword(s):

Citizen Science ◽

Social Dynamics ◽

Gulf Coast ◽

Community Based Participatory Research ◽

Community Outreach ◽

Lessons Learned ◽

Project Outcomes ◽

Participatory Science ◽

Cultural Fluency ◽

Political Economic

This paper is intended to complement our extended documentation and analysis of the activities of the Gulf Coast Health Alliance: Health Risks related to the Macondo Spill project Community Outreach and Dissemination Core entitled, “Building and maintaining a citizen science network with fishermen and fishing communities after the Deepwater Horizon oil disaster using a Community-Based Participatory Research (CBPR) approach.” We discuss nuances of CBPR practice, including trust-building, clarification of stakeholder expectations, balancing timelines and agendas, cultural fluency, and the importance of regional history—political-economic context, regulatory practices, and cultural life-ways—in creating social dynamics that overarch and underpin the entire process. We examine the unique role of knowledge-making hybrid structures like the project’s Fishermen’s citizen science network and compare/contrast this structure with other models of participatory science or deliberation. Finally, we reiterate the importance of environmental health literacy efforts, summarize project outcomes, and offer thoughts on the future roles of collaborative efforts among communities and institutional science in environmental public health.

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Effect of Personality, Power, and Emotion on Developing the 2017-2022 Philippine Health Research Agenda: A Case Study

Acta Medica Philippina ◽

10.47895/amp.v53i3.136 ◽

2019 ◽

Vol 53 (3) ◽

Author(s):

Alejandra M. Libunao ◽

Reneepearl Kim P. Sales ◽

Jaifred Christian F. Lopez ◽

Ma. Rowena H. Alcido ◽

Lester Sam A. Geroy ◽

...

Keyword(s):

Health Research ◽

Research Agenda ◽

Social Dynamics ◽

Participant Observation ◽

Data Gathering ◽

Lessons Learned ◽

Power Dynamics ◽

Smooth Flow ◽

Process Documentation ◽

Multi Stakeholder

Background. Social dynamics, specifically personalities, power dynamics, and emotions, have been shown to influence the methods, outputs, and quality of multi-stakeholder processes, especially the development of a national health research agenda. Objective and Methods. Using a case analysis approach utilizing related conceptual frameworks, the paper determined how personalities, power dynamics, and emotions affected the research priority-setting exercise, identified lessons learned, and recommended how to effectively manage these social dynamics in consultations. Data gathering methods were participant observation and process documentation, results of which were codified and analyzed. Results. Dominant personalities, stakeholders with power, and stakeholders that openly expressed dissatisfaction were most likely to attempt to change the methods and final outputs of the consultation, with varying level of success. Other dominant personalities used their power constructively for a smooth flow of generating and agreeing on ideas. Conclusion. In this case, social dynamics was shown to heavily influence the decision-making process, thus underlining its importance in organizing multisectoral representation. Effectively managing social dynamics may thus have to consider building trust and respect between participants, mediating discussions, reaching a mutually beneficial solution, and establishing and implementing mutually agreed house rules. The significant role of facilitators in developing a climate for truly inclusive participation must also be recognized.

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The Use of Whole Genome and Exome Sequencing for Newborn Screening: Challenges and Opportunities for Population Health

Frontiers in Pediatrics ◽

10.3389/fped.2021.663752 ◽

2021 ◽

Vol 9 ◽

Author(s):

Audrey C. Woerner ◽

Renata C. Gallagher ◽

Jerry Vockley ◽

Aashish N. Adhikari

Keyword(s):

Newborn Screening ◽

Exome Sequencing ◽

Genetic Disorders ◽

Population Based ◽

Lessons Learned ◽

Screening Tests ◽

Whole Genome ◽

Whole Exome ◽

Challenges And Opportunities ◽

History Of

Newborn screening (NBS) is a population-based program with a goal of reducing the burden of disease for conditions with significant clinical impact on neonates. Screening tests were originally developed and implemented one at a time, but newer methods have allowed the use of multiplex technologies to expand additions more rapidly to standard panels. Recent improvements in next-generation sequencing are also evolving rapidly from first focusing on individual genes, then panels, and finally all genes as encompassed by whole exome and genome sequencing. The intersection of these two technologies brings the revolutionary possibility of identifying all genetic disorders in newborns, allowing implementation of therapies at the optimum time regardless of symptoms. This article reviews the history of newborn screening and early studies examining the use of whole genome and exome sequencing as a screening tool. Lessons learned from these studies are discussed, along with technical, ethical, and societal challenges to broad implementation.

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