scholarly journals Implications of the GC-HARMS Fishermen’s Citizen Science Network: Issues Raised, Lessons Learned, and Next Steps for the Network and Citizen Science

2018 ◽  
Vol 28 (4) ◽  
pp. 570-598 ◽  
Author(s):  
John Sullivan ◽  
Sharon Croisant ◽  
Marilyn Howarth ◽  
Wilma Subra ◽  
Marylee Orr ◽  
...  
Keyword(s):  
Citizen Science ◽  
Social Dynamics ◽  
Gulf Coast ◽  
Community Based Participatory Research ◽  
Community Outreach ◽  
Lessons Learned ◽  
Project Outcomes ◽  
Participatory Science ◽  
Cultural Fluency ◽  
Political Economic

This paper is intended to complement our extended documentation and analysis of the activities of the Gulf Coast Health Alliance: Health Risks related to the Macondo Spill project Community Outreach and Dissemination Core entitled, “Building and maintaining a citizen science network with fishermen and fishing communities after the Deepwater Horizon oil disaster using a Community-Based Participatory Research (CBPR) approach.” We discuss nuances of CBPR practice, including trust-building, clarification of stakeholder expectations, balancing timelines and agendas, cultural fluency, and the importance of regional history—political-economic context, regulatory practices, and cultural life-ways—in creating social dynamics that overarch and underpin the entire process. We examine the unique role of knowledge-making hybrid structures like the project’s Fishermen’s citizen science network and compare/contrast this structure with other models of participatory science or deliberation. Finally, we reiterate the importance of environmental health literacy efforts, summarize project outcomes, and offer thoughts on the future roles of collaborative efforts among communities and institutional science in environmental public health.

scholarly journals Building and Maintaining a Citizen Science Network With Fishermen and Fishing Communities Post Deepwater Horizon Oil Disaster Using a CBPR Approach

2018 ◽  
Vol 28 (3) ◽  
pp. 416-447 ◽  
Author(s):  
John Sullivan ◽  
Sharon Croisant ◽  
Marilyn Howarth ◽  
Gilbert T. Rowe ◽  
Harshica Fernando ◽  
...  
Keyword(s):  
Citizen Science ◽  
Gulf Coast ◽  
Community Based Participatory Research ◽  
Deepwater Horizon ◽  
Research Approach ◽  
Regional Food ◽  
Polycyclic Aromatic ◽  
Potential Damage ◽  
Oil Rig ◽  
Coastal Louisiana

When the Deepwater Horizon oil rig blew out in 2010, the immediate threats to productive deep water and estuarial fisheries and the region’s fishing and energy economies were obvious. Less immediately obvious, but equally unsettling, were risks to human health posed by potential damage to the regional food web. This paper describes grassroots and regional efforts by the Gulf Coast Health Alliance: health risks related to the Macondo Spill Fishermen’s Citizen Science Network project. Using a community-based participatory research approach and a citizen science structure, the multiyear project measured exposure to petrogenic polycyclic aromatic hydrocarbons, researched the toxicity of these polycyclic aromatic hydrocarbon compounds, and communicated project findings and seafood consumption guidelines throughout the region (coastal Louisiana, Mississippi, and Alabama). Description/analysis focuses primarily on the process of building a network of working fishermen and developing group environmental health literacy competencies.

Incorporating citizen science in open science: a case study of participatory rainfall measurements in the context of a Technical University

2021 ◽  
Author(s):  
Sandra de Vries ◽  
Marit Bogert ◽  
Sabine Kunst ◽  
Nicoleta Nastase
Keyword(s):  
Citizen Science ◽  
Science Communication ◽  
Open Science ◽  
Lessons Learned ◽  
Civil Society Organizations ◽  
Science Program ◽  
Participatory Science ◽  
The University ◽  
The City

<p>Citizen science has globally been recognized as a vital part of open science and as a way of doing research that enables new levels of science education and science communication. Due to its high levels of public participation, citizen science can be of great value in bringing society and science closer together. Universities across the world have acknowledged this value and aim to incorporate citizen science in their policies and daily practices as part of their open science practices.</p><p>The Delft University of Technology has set the goal to develop an open science program that includes citizen science. However, implementing and incorporating citizen science in an open science program is not a straightforward task and demands knowledge, understanding, and experience of the field as well as the practical implications. What should a university do to support the goals of various citizen science initiatives, within an open science context, and to assist and facilitate researchers to perform effective participatory science? To gain a deeper understanding of what a citizen science project entails within the context of a university, we performed a case-study implementing citizen science methods for hydrological research. The project, called Delft Measures Rain, was developed in collaboration with external partners and several internal departments and their staff, some already having experience with developing and coordinating citizen science projects. Citizens of Delft were encouraged to participate and work together with scientists from the Water Management department to investigate rainfall patterns within the city. In total, 95 citizens collaborated for two months to collect over 1900 individual rainfall measurements spread over the city and taken with home-made rain gauges.  We developed tailored recruitment strategies, data collection and validation tools, data visuals, and communication strategies. Overall, the project has delivered valuable results, including reliable rainfall data, involvement and enthusiasm of citizens, and valuable feedback from participants. Additionally, this project has led to more cooperation of relevant institutions and civil society organizations (CSO) across the city and between different departments within the university itself.</p><p>This case-study has showcased how various stakeholders (researchers, citizens, civil servants, CSO’s, etc.) can benefit from co-developed participatory research implementing citizen science and open science principles. With this case study, we were able to identify the benefits, drawbacks, and opportunities for all stakeholders involved. Furthermore, we identified key tools and facilitation needs to assist researchers within the university to perform effective participatory science. During the session, we would like to share our methods, successes, challenges, and lessons learned. This project shows that, with the right knowledge and tools, citizen science can deliver what it promises and be of great value to universities and open science in general. </p>

Characteristics of Physician Relocation Following Hurricane Katrina

2009 ◽  
Vol 95 (1) ◽  
pp. 6-12
Author(s):  
Kusuma Madamala ◽  
Claudia R. Campbell ◽  
Edbert B. Hsu ◽  
Yu-Hsiang Hsieh ◽  
James James
Keyword(s):  
Hurricane Katrina ◽  
Gulf Coast ◽  
General Medicine ◽  
The United States ◽  
Lessons Learned ◽  
Bivariate Analysis ◽  
Fisher Exact Test ◽  
Exact Test ◽  
Factors Associated ◽  
The Impact

ABSTRACT Introduction: On Aug. 29, 2005, Hurricane Katrina made landfall along the Gulf Coast of the United States, resulting in the evacuation of more than 1.5 million people, including nearly 6000 physicians. This article examines the relocation patterns of physicians following the storm, determines the impact that the disaster had on their lives and practices, and identifies lessons learned. Methods: An Internet-based survey was conducted among licensed physicians reporting addresses within Federal Emergency Management Agency-designated disaster zones in Louisiana and Mississippi. Descriptive data analysis was used to describe respondent characteristics. Multivariate logistic regression was performed to identify the factors associated with physician nonreturn to original practice. For those remaining relocated out of state, bivariate analysis with x2 or Fisher exact test was used to determine factors associated with plans to return to original practice. Results: A total of 312 eligible responses were collected. Among disaster zone respondents, 85.6 percent lived in Louisiana and 14.4 percent resided in Mississippi before the hurricane struck. By spring 2006, 75.6 percent (n = 236) of the respondents had returned to their original homes, whereas 24.4 percent (n = 76) remained displaced. Factors associated with nonreturn to original employment included family or general medicine practice (OR 0.42, 95 percent CI 0.17–1.04; P = .059) and severe or complete damage to the workplace (OR 0.24, 95 percent CI 0.13–0.42; P < .001). Conclusions: A sizeable proportion of physicians remain displaced after Hurricane Katrina, along with a lasting decrease in the number of physicians serving in the areas affected by the disaster. Programs designed to address identified physician needs in the aftermath of the storm may give confidence to displaced physicians to return.

ECLIPSEMOB: LESSONS LEARNED FROM A NATIONAL SCALE CITIZEN SCIENCE EXPERIMENT DURING THE 2017 SOLAR ECLIPSE

2017 ◽  
Author(s):  
Laura A. Lukes ◽  
◽  
J. Nelson ◽  
K.C. Kerby-Patel ◽  
W.C. Liles ◽  
...  
Keyword(s):  
Citizen Science ◽  
Solar Eclipse ◽  
Lessons Learned ◽  
National Scale

Enhancing racial equity in LIS research by increasing representation of BIPOC

2021 ◽  
Vol 37 (2) ◽  
pp. 247-256
Author(s):  
Charles R. Senteio ◽  
Kaitlin E. Montague ◽  
Bettina Campbell ◽  
Terrance R. Campbell ◽  
Samantha Seigerman
Keyword(s):  
Social Justice ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Health Inequity ◽  
Lessons Learned ◽  
Social Injustice ◽  
Racial Equity ◽  
Community Based ◽  
Community Partners ◽  
Racial Injustice

The escalation of discourse on racial injustice prompts novel ideas to address the persistent lack of racial equity in LIS research. The underrepresentation of BIPOC perspectives contributes to the inequity. Applying the Community Based Participatory Research (CBPR) approach meaningfully engages BIPOC to help guide LIS investigations that identify evolving needs and concerns, such as how systematic racism may contribute to social justice issues like environmental and health inequity. Engaging with BIPOC, using the CBPR approach, can help address racial equity in LIS because it will result in increased racial representation which enables incorporation of the perspectives and priorities of BIPOC. This shift to greater engagement is imperative to respond to escalating attention to social injustice and ensure that these central issues are adequately reflected in LIS research. The discipline is positioned to help detail the drivers and implications of inequity and develop ways to address them. We underscore the importance of working across research disciplines by describing our CBPR experience engaging with BIPOC in LIS research. We highlight the perspectives of community partners who have over two decades of experience with community-based LIS research. We offer lessons learned to LIS researchers by describing the factors that make these initiatives successful and those which contribute to setbacks.

The Patient in Patient Safety: Contemporary Issues, From COVID-19 to Citizen Science

2021 ◽  
Vol 10 (1) ◽  
pp. 301-303
Author(s):  
Elizabeth Lerner Papautsky ◽  
Richard J. Holden ◽  
Rupa S. Valdez ◽  
Jordan Hill ◽  
Janetta Brown
Keyword(s):  
Social Media ◽  
Patient Safety ◽  
Citizen Science ◽  
Human Subjects ◽  
Lessons Learned ◽  
Human Subjects Research ◽  
Research Strategies ◽  
Face To Face

In the 4th panel on the topic of The Patient in Patient Safety, we highlighted topics of current relevance and facilitated a reflection session. The objective was to highlight the ways in which the COVID-19 pandemic has impacted patient ergonomics research and work, with particular focus on safety. After a topic overview, panelists presented their work on overcoming challenges to human subjects research created by the suspension of face-to-face activities during the COVID-19 pandemic. A facilitated reflection and brainstorming session using Miro followed. We used questions to elicit examples of patient and caregiver roles in safety during the pandemic and research strategies and challenges. These questions were also distributed on social media prior to the event. The panel served as an opportunity to share lessons learned.

scholarly journals Methodological and Measurement Advances in Social Determinants of HIV: View from NIH

2021 ◽  
Author(s):  
Gregory Greenwood ◽  
Paul Gaist ◽  
Ann Namkung ◽  
Dianne Rausch
Keyword(s):  
Social Determinants ◽  
Social Dynamics ◽  
The United States ◽  
Lessons Learned ◽  
Structural Determinants ◽  
Effective Interventions ◽  
Suboptimal Care ◽  
The Social ◽  
Hiv Acquisition ◽  
Ecological Momentary

AbstractSocial determinants are increasingly understood as key contributors to patterns of heightened risk for HIV acquisition and suboptimal care and treatment outcomes. Yet, the ability to rigorously model, map and measure these nuanced social dynamics has been a challenge, resulting in limited examples of effective interventions and resource allocation. In 2016, the United States National Institute of Mental Health (NIMH) and the National Institute of Allergy and Infectious Diseases (NIAID) issued a Request for Applications calling for methodological innovations around the social determinants of HIV. In May of 2019, NIMH, in collaboration with American University’s Center on Health, Risk and Society and the DC Center for AIDS Research, sponsored a symposium to bring together the funded teams to share accomplishments, distill lessons learned and reflect on the state of the science with other key stakeholders. Presentations focused on causal inference, multi-level analysis and mathematical modeling (Models); geospatial analytics and ecological momentary assessments (Maps); and measurement of social and structural determinants including inequalities and stigmas (Measures). Cross-cutting and higher-level themes were discussed and largely focused on the importance of critical and careful integration of social theory, community engagement and mixed methodologies into research on the social determinants of HIV.

scholarly journals Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Kufre Joseph Okop ◽  
Kathy Murphy ◽  
Estelle Victoria Lambert ◽  
Kiya Kedir ◽  
Hailemichael Getachew ◽  
...  
Keyword(s):  
Cardiovascular Disease ◽  
Citizen Science ◽  
Risk Perceptions ◽  
Disease Risk ◽  
Cardiovascular Disease Risk ◽  
Data Gathering ◽  
Lessons Learned ◽  
Sub Saharan Africa ◽  
Rural And Urban ◽  
Sub Saharan

Abstract Background In sub-Saharan Africa (SSA), which experiences a disproportionately high cardiovascular disease (CVD) burden, population-based screening and prevention measures are hampered by low levels of knowledge about CVD and associated risk factors, and inaccurate perceptions of severity of risk. Methods This protocol describes the planned processes for implementing community-driven participatory research, using a citizen science method to explore CVD risk perceptions and to develop community-specific advocacy and prevention strategies in the rural and urban SSA settings. Multi-disciplinary research teams in four selected African countries will engage with and train community members living in rural and urban communities as citizen scientists to facilitate conceptualization, co-designing of research, data gathering, and co-creation of knowledge that can lead to a shared agenda to support collaborative participation in community-engaged science. The emphasis is on robust community engagement, using mobile technology to support data gathering, participatory learning, and co-creation of knowledge and disease prevention advocacy. Discussion Contextual processes applied and lessons learned in specific settings will support redefining or disassembling boundaries in participatory science to foster effective implementation of sustainable prevention intervention programmes in Low- and Middle-income countries.

Growing controversy over “wise international water governance”

2004 ◽  
Vol 49 (7) ◽  
pp. 61-66
Author(s):  
J.M. Trondalen
Keyword(s):  
Policy Development ◽  
Water Governance ◽  
Lessons Learned ◽  
Political Climate ◽  
Trade Offs ◽  
Political Relationships ◽  
External Power ◽  
International Water ◽  
Principles And Standards ◽  
Political Economic

This article takes the perspective that when political relationships are strained, there seem to be few examples of wise international water resources governance. The Middle East is a striking example. Much effort has been put into policy development and the design of international principles, but very little into the translation of those into concrete and lasting governance. One of the theses of the article is that politics - whether domestic or international- in most cases overrides these principles and standards. Moreover ready-made regional co-operation models of water managements are not directly applicable to every geographical, political, economic and social setting. Certain factors are often under-estimated in international water negotiations, such as:• the complexity of any hydro-political negotiations, and need to develop commonly accepted standards;• the difficulty of translating policy - either politically or legally - into an operational and realistic negotiations strategy;• the format of the procedures and meetings;• recognition that third parties should have a long-term perspective on any conflict they get involved in.With reservations, the lessons learned indicate that the following factors have an impact on grid locked situations, such as: new substantive information; new trade-offs between the parties; and changed political climate or relationship with external power-brokers.

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