Reproductive decision-making in women with multiple sclerosis in the New York State Multiple Sclerosis Consortium

2018 ◽  
Author(s):  
Caila B. Vaughn
Keyword(s):  
Multiple Sclerosis ◽  
Decision Making ◽  
New York ◽  
New York State ◽  
York State ◽  
Reproductive Decision ◽  
Reproductive Decision Making

Service decision-making processes at three New York state cooperative public library systems

2014 ◽  
Vol 35 (6/7) ◽  
pp. 418-432
Author(s):  
Xiaoai Ren
Keyword(s):  
Decision Making ◽  
New York ◽  
New York State ◽  
Public Library ◽  
Organizational Structures ◽  
Annual Reports ◽  
Content Type ◽  
York State ◽  
Decision Making Processes ◽  
And Cluster Analysis

Purpose – The purpose of this paper is to look at the organizational structure and service provisions of cooperative public library systems in New York State. The study also seeks to ask questions of how cooperative public library systems decide what services to provide. Design/methodology/approach – Descriptive statistics, factor analysis and cluster analysis were applied on New York State public library systems’ 2008 annual reports to generate quantitative profiles of public library systems and their service transactions. Three cooperative public library systems displaying different service features were purposefully selected for further study of their service decision-making processes. The face-to-face and phone interviews were adopted in the study. Findings – Research findings from this study provide information on specific service variations across cooperative public library systems. The findings also provide differences of service decision-making processes in addition to the factors that might cause these differences. Originality/value – This study adds knowledge of public library systems’ management and organizational structures, therefore fills a knowledge gap on public library systems. It can also serve as the baseline for future studies using newer annual report data and therefore to study the changing roles and services of cooperative public library systems in New York State.

scholarly journals Fatigue at enrollment predicts EDSS worsening in the New York State Multiple Sclerosis Consortium

2018 ◽  
Vol 26 (1) ◽  
pp. 99-108 ◽  
Author(s):  
Caila B Vaughn ◽  
Katelyn S Kavak ◽  
Michael G Dwyer ◽  
Aisha Bushra ◽  
Muhammad Nadeem ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
New York ◽  
Proportional Hazards ◽  
New York State ◽  
Cox Proportional Hazards ◽  
Common Symptom ◽  
York State ◽  
Study Enrollment ◽  
Severe Fatigue ◽  
Patient Reported

Background: Fatigue is one of the most common and distressing symptoms among persons with multiple sclerosis (pwMS). Objective: The aim of this study is to evaluate fatigue as a predictor for disease worsening among pwMS. Methods: In this retrospective cohort study of New York State MS Consortium (NYSMSC) registry, MS patients reporting moderate-to-severe fatigue at study enrollment ( n = 2714) were frequency matched to less-fatigued subjects ( n = 2714) on age, baseline Kurtzke Expanded Disability Status Scale (EDSS), disease duration, and MS phenotype. Change from baseline patient-reported outcomes (PROs), as measured by LIFEware™, categorized participants into two groups: those with stable/improved outcomes and those who worsened. In a subgroup of patients with longitudinal data ( n = 1951), sustained EDSS worsening was analyzed using Cox proportional hazards modeling to explore the effect of fatigue. Results: The median survival time from study enrollment to sustained EDSS worsening was 8.7 years (CI: 7.2–10.1). Participants who reported fatigue at baseline were more likely to experience sustained EDSS worsening during follow-up (HR: 1.4, 95% CI: 1.2–1.7). Patients who were fatigued at baseline were also more likely to report worsening psychosocial limitations (all ps ⩽ 0.01). Conclusion: In addition to being a common symptom of MS, severe fatigue was a significant predictor for EDSS worsening in the NYSMSC.

A profile of multiple sclerosis: The New York State Multiple Sclerosis Consortium

1999 ◽  
Vol 5 (5) ◽  
pp. 369-376 ◽  
Author(s):  
L.D. Jacobs ◽  
K.E. Wende ◽  
C.M. Brownscheidle ◽  
B. Apatoff ◽  
P.K. Coyle ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
New York ◽  
New York State ◽  
York State

Femoral Neck Fractures in New York State. Is the Rate of THA Increasing, and Do Race or Payer Influence Decision Making?

2014 ◽  
Vol 28 (7) ◽  
pp. 422-426 ◽  
Author(s):  
Jason P. Hochfelder ◽  
Omar N. Khatib ◽  
Sergio A. Glait ◽  
James D. Slover
Keyword(s):  
Decision Making ◽  
New York ◽  
Femoral Neck ◽  
New York State ◽  
Femoral Neck Fractures ◽  
York State

scholarly journals The Effect of Subjective and Objective Tasting Sheet Descriptors on Tasting Room Sales in New York State

2019 ◽  
Vol 61 (2) ◽  
pp. 223-229
Author(s):  
Jie Li ◽  
Marina Predic ◽  
Miguel I. Gómez
Keyword(s):  
Decision Making ◽  
New York ◽  
New York State ◽  
Sales Performance ◽  
Decision Making Process ◽  
Consumer Decision Making ◽  
York State ◽  
Direct To Consumer ◽  
Different Types ◽  
Product Appeal

A larger share of U.S. wineries is increasingly relying on direct-to-consumer sales mediated by tasting room experiences to make wine a more accessible and less intimidating product for consumers. Previous literature has shown that more favorably descriptive and evocative notes on menus and labels are associated with higher sales and product appeal in restaurant or retail settings. This study estimates the impacts of different types of tasting sheet descriptors on wine sales in winery tasting rooms, where the consumer decision-making process differs from the restaurant and retail settings. We find that using tasting sheets with only objective descriptors is associated with higher wine sales, in comparison with sheets that (a) use subjective descriptors only or (b) combine subjective and objective descriptors. This study supplements the current literature on the effects of product descriptions on sales performance. The findings suggest that wine tasting rooms should employ only objective tasting descriptors in their tasting sheets.

Multiple sclerosis characteristics in A frican A merican patients in the New York State Multiple Sclerosis C onsortium

2003 ◽  
Vol 9 (3) ◽  
pp. 293-298 ◽  
Author(s):  
B Weinstock-Guttman ◽  
L D Jacobs ◽  
C M Brownscheidle ◽  
M Baier ◽  
D F Rea ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
New York ◽  
Clinical Characteristics ◽  
Disease Duration ◽  
New York State ◽  
Genetic Studies ◽  
York State ◽  
Disease Modifying Therapies ◽  
Younger Age ◽  
Group A

The objective of this study was to determine the clinical characteristics of multiple sclerosis (MS) in A frican A merican (A A) patients in the New York State Multiple Sclerosis C onsortium (NYSMSC) patient registry. The NYSMSC is a group of 18 MS centers throughout New York State organized to prospectively assess clinical characteristics of MS patients. AA s comprise 6% (329) of the total NYSMSC registrants (5602). Demographics, disease course, therapy, and socioeconomic status were compared in A A registrants versus nonA frican A mericans (NA A). There was an increased female preponderance and a significantly younger age at diagnosis in the AA group. A A patients were more likely to have greater disability with increased disease duration. No differences were seen in types of MS and use of disease modifying therapies. O ur findings suggest a racial influence in MS. Further genetic studies that consider race differences are warranted to elucidate mechanisms of disease susceptibility.

A profile of multiple sclerosis: The New York State Multiple Sclerosis Consortium

1999 ◽  
Vol 5 (5) ◽  
pp. 369-376 ◽  
Author(s):  
L D Jacobs ◽  
K E Wende ◽  
C M Brownscheidle ◽  
B Apatoff ◽  
P K Coyle ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
New York ◽  
Physical Disability ◽  
Progressive Disease ◽  
New York State ◽  
Full Time ◽  
Current Profile ◽  
York State ◽  
Data Collection Instrument ◽  
Full Time Employment

We have obtained a current profile of multiple sclerosis (MS) in New York State through a centralized patient registry and standardized data collection instrument associated with the New York State Multiple Sclerosis Consortium of 12 MS centers located throughout the state. Data from the first 3019 patients with clinically definite MS revealed a clear relationship between MS disease type, duration of disease, and severity of physical disability. Patients with relapsing disease had disease durations approximately half as long as those with progressive forms of the disease (means approximately 6 years versus 11 years). The majority of patients with relapsing disease had Expanded Disability Status Scale (EDSS) scores of 4.0 or less (self-sustained, fully ambulatory), whereas the majority of patients with progressive disease types had EDSS scores of 6.0 or greater (at least unilateral assist for walking). These findings emphasize the importance of early intervention in patients with relapsing disease to slow or prevent the accumulation of physical disability associated with progressive types of disease. Progressive disease was associated with lack of full-time employment and being disabled before the age of 60 years. Patients with relapsing disease were more likely to be employed and have private forms of insurance, whereas patients with progressive types of disease were more likely to have government-supported insurance to cover medical expenses.

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