scholarly journals Surviving Hillsborough

2021 ◽  
Author(s):  
◽  
Sally Day

<p>This thesis explores trajectories of survival in the long-term aftermath of the 1989 Hillsborough disaster. Despite the vast amount of literature on Hillsborough, there is little knowledge regarding the subjective experiences of survival in the political climate of denial, collusion and cover-up. Therefore, this thesis identifies how ‘survivors’ have understood and experienced their ‘survival’ from a major disaster and the subsequent injustices, and in this context considers what is required to ‘survive’. Together with informal conversations with key informants, the researcher conducted nine qualitative semi-structured interviews with individuals who experienced the disaster in various capacities, in order to critically examine the factors that have assisted or inhibited individual attempts at survival. The findings determined that there are various pathways to survival however all are impacted by the wider official and collective response to ‘survivors’. The findings demonstrate that the official expectation is that ‘survivors’ can and will navigate their own personal survival but the lived experience of survival determines that, in reality, ‘survivors’ need a continuous multi-faceted institutional and social response. Contextual factors unique to continuing a life after ‘Hillsborough’ are discussed. The concluding argument interprets that ‘survival’ is a continual process, and responses towards ‘survivors’ can either support quality of life or cause re-victimisation.</p>

2021 ◽  
Author(s):  
◽  
Sally Day

<p>This thesis explores trajectories of survival in the long-term aftermath of the 1989 Hillsborough disaster. Despite the vast amount of literature on Hillsborough, there is little knowledge regarding the subjective experiences of survival in the political climate of denial, collusion and cover-up. Therefore, this thesis identifies how ‘survivors’ have understood and experienced their ‘survival’ from a major disaster and the subsequent injustices, and in this context considers what is required to ‘survive’. Together with informal conversations with key informants, the researcher conducted nine qualitative semi-structured interviews with individuals who experienced the disaster in various capacities, in order to critically examine the factors that have assisted or inhibited individual attempts at survival. The findings determined that there are various pathways to survival however all are impacted by the wider official and collective response to ‘survivors’. The findings demonstrate that the official expectation is that ‘survivors’ can and will navigate their own personal survival but the lived experience of survival determines that, in reality, ‘survivors’ need a continuous multi-faceted institutional and social response. Contextual factors unique to continuing a life after ‘Hillsborough’ are discussed. The concluding argument interprets that ‘survival’ is a continual process, and responses towards ‘survivors’ can either support quality of life or cause re-victimisation.</p>


2021 ◽  
Vol 28 (4) ◽  
pp. 3003-3014
Author(s):  
Rhys Weaver ◽  
Moira O’Connor ◽  
Richard Carey Smith ◽  
Dianne Sheppard ◽  
Georgia K. B. Halkett

Sarcoma is a rare cancer that has a significant impact on patients’ and carers’ quality of life. Despite this, there has been a paucity of research exploring the diverse experiences of patients and carers following sarcoma treatment. The aim of this study was to explore patients’ and carers’ reflections on life after treatment for sarcoma. A qualitative research design with a social constructionist epistemology was used. Participants included patients previously treated for sarcoma (n = 21) and family carers of patients treated for sarcoma (n = 16). Participants completed semi-structured interviews which were analysed using thematic analysis. Three primary themes were identified: “This journey is never going to be over”, “But what happens when I am better?”, and finding a silver lining. Participants represented sarcoma as having a long-term, and sometimes indefinite, threat on their life that they had limited control over. Conclusions: This study highlight the heterogeneous and ongoing needs of sarcoma survivors and their families. Patients and carers strove to translate their experiences in a meaningful way, such as by improving outcomes for other people affected by sarcoma. Parental carers in particular attempted to protect the patient from the ongoing stress of managing the disease.


2017 ◽  
Vol 54 (4) ◽  
pp. 540-561 ◽  
Author(s):  
Robert Lemelson ◽  
Annie Tucker

In the past two decades, ethnographic, epidemiological and interdisciplinary research has robustly established that culture is significant in determining the long-term outcomes of people with neurodevelopmental, neuropsychiatric and mood disorders. Yet these cultural factors are certainly not uniform across discrete individual experiences. Thus, in addition to illustrating meaningful differences for people with neuropsychiatric disorder between different cultures, ethnography should also help detail the variations within a culture. Different subjective experiences or outcomes are not solely due to biographical idiosyncrasies—rather, influential factors arising from the same culture can have different impacts on different people. When taking a holistic and intersectional perspective on lived experience, it is crucial to understand the interaction of these factors for people with neuropsychiatric disorders. This paper teases apart such interactions, utilizing comparative case studies of the disparate subjective experiences and illness trajectories of two Balinese people with Tourette syndrome who exhibit similar symptoms. Based on longitudinal person-centered ethnography integrating clinical, psychological, and visual anthropology, this intersectional approach goes beyond symptom interpretation and treatment modalities to identify gendered embodiment and marital practices as influenced by caste to be significant determinants in subjective experience and long-term outcome.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S554-S554
Author(s):  
Candace C Harrington ◽  
Candace C Harrington

Abstract Previous interventional studies have failed to show long-term improvements in caregiver stress, health indices, burden, or delay in long-term care placement. The Virtual Dementia Tour® (VDT) provides a vicarious first-person perspective of symptoms related to dementia. This interpretative phenomenological study revealed family dementia caregivers’ perceptions of the VDT® and its impact on their perception of a person living with dementia. In-depth open semi-structured interviews were conducted with ten VDT® participants following a community event. Participants’ statements described a life-changing process with eye-opening epiphanies about the lived experience of dementia and served as a “call to action” to change their approach to caring. Innovative advances in family caregiving research are critical to support this valuable geriatric workforce. This original study provided new knowledge about the value of the VDT® to inform interventions that harness the unrecognized power of vicarious experiences like the VDT® for family dementia caregivers to improve long-term outcomes.


2015 ◽  
Vol 8 (7) ◽  
pp. 251 ◽  
Author(s):  
Zohreh Sohrabi ◽  
Masoomeh Kheirkhah ◽  
Zohreh Vanaki ◽  
Kamran Soltani Arabshahi ◽  
Mohammad Mahdi Farshad ◽  
...  

<p><strong>INTRODUCTION: </strong>High quality educational systems are necessary for sustainable development and responding to the needs of society. In the recent decades, concerns have increased on the quality of education and competency of graduates. Since graduates of medical education are directly involved with the health of society, the quality of this system is of high importance. Investigation in the lived experience of educational leaders in the medical education systems can help to promote its quality. The present research examines this issue in Iran.</p><p><strong>METHODOLOGY:</strong> The study was done using content-analysis qualitative approach and semi-structured interviews. The participants included 26 authorities including university chancellors and vice-chancellors, ministry heads and deputies, deans of medical and basic sciences departments, education expert, graduates, and students of medical fields. Sampling was done using purposive snowball method. Data were analyzed using conventional content analysis.</p><p><strong>FINDINGS:</strong> Five main categories and 14 sub-categories were extracted from data analysis including: quantity-orientation, ambiguity in the trainings, unsuitable educational environment, personalization of the educational management, and ineffective interpersonal relationship. The final theme was identified as “Education in shadow”.</p><p><strong>CONCLUSION:</strong> Personalization and inclusion of personal preferences in management styles, lack of suitable grounds, ambiguity in the structure and process of education has pushed medical education toward shadows and it is not the first priority; this can lead to incompetency of medical science graduates.</p>


2017 ◽  
Vol 8 (2) ◽  
pp. 295
Author(s):  
Deden Makbuloh ◽  
Sucipto Sucipto ◽  
Ruswanto Ruswanto

Raden Intan Lampung State Islamic University (UIN RIL) as a State Islamic Religious College in Indonesia needs to gradually carry out various efforts to improve the quality of continuing education. The long-term quality of UIN RIL does not only cover national level competition, but also internationally. This study aims to examine the quality improvement process that has had a development and readiness plan for AUN-QA for the Academic Community of UIN RIL. Data collected is qualitative data. In accordance with the research design in order to find an overview of the planned development of UIN RIL and its readiness towards AUN-QA. The data sources in this study were taken from strategic planning documents and the opinions of the academics. Techniques for collecting data through documentation studies, deep interview, and participant observation. Non-structured interviews, so that data sources actively construct the cognitive world, and researchers try to capture the realm of that meaning. Analysis of data is collected simultaneously while collecting data with the principle of verstehen. The results of the study concluded that since the form changed from IAIN to UIN RIL development plans were discussed which were discussed in several stages and involved various stakeholders directed to the campus as an international reference. This can be seen in the vision, mission and objectives of UIN RIL. Likewise in priority programs and target targets there are points towards international scale achievements. The academics have welcomed with joy the change in form of IAIN to UIN RIL. All have stated that this is an opportunity to further develop the campus to reach international competition. Thoughts and energy were mobilized to develop UIN RIL towards becoming superior and competitive.


2021 ◽  
Vol 1 (3) ◽  
pp. 216-222
Author(s):  
Abigail Reay ◽  
Avinash Aujayeb ◽  
Catherine Dotchin ◽  
Ellen Tullo ◽  
John Steer ◽  
...  

Introduction: Research into the long-term effects of coronavirus disease 2019 (COVID-19) continues at an unprecedented pace. Many physical long-term symptoms of COVID-19 have been reported and include headache, fatigue, muscle pain and breathlessness, etc. Psychological effects are not dissimilar to survivors of SARS. There is limited qualitative research exploring the mental health impacts and experiences of hospitalized COVID-19 inpatients. Methods: A prospective qualitative study is planned to explore patient experiences post hospital discharge following a diagnosis of COVID-19. The research aims to gain an understanding of how COVID-19 affects quality of life (QoL) and functional abilities. Patients discharged from the hospital will be invited to take part in semi-structured interviews discussing their experiences of hospitalization and the impact of COVID-19 on their QoL. Interviews will be conducted at three and six months following discharge from hospital. This study will provide important qualitative insight and may inform clinical interventions and commissioning decisions. Trial registration: The study has Research Ethics Committee (REC) and Health Research Authority (HRA) approvals obtained from Health and Care Research Wales (HCRW) [IRAS project ID 293196].


2019 ◽  
pp. 174239531986943 ◽  
Author(s):  
Stephen Hughes ◽  
Sophie Lewis ◽  
Karen Willis ◽  
Anne Rogers ◽  
Sally Wyke ◽  
...  

Objectives Health professional-led group programmes are a common form of long-term condition self-management support. Much research has focused on clinical outcomes of group participation, yet there is limited research on how group participants perceive and experience the support they receive. We aim to identify the different types of support that participants receive from both facilitators and other participants, and how they value this support. Methods Semi-structured interviews were conducted with 20 participants taking part in a self-management group programme for a long-term condition (obesity, type 2 diabetes or chronic obstructive pulmonary disease). Data pertaining to support types were deductively identified through a social support framework prior to interpretive thematic analysis. Results Participants identified information and emotional support from both facilitators and other participants as complementary yet distinct. Facilitators’ support came from professional training and other participants’ support reflected the contextual, lived experience. Professional interactions were prioritised, constraining opportunities for participant–participant support to be received and exchanged. Discussion We identified a key gap in how self-management support is enacted in groups. Engaging participants to share experiential knowledge will make group support more relevant and mutually beneficial to participants living with a long-term condition.


2019 ◽  
Vol 42 (9) ◽  
pp. 728-735 ◽  
Author(s):  
Paula McNiel ◽  
Judith Westphal

Long-term care facilities seek ways to enhance the quality of life for residents. Cycling Without Age (CWA), a new international cycling program, is gaining momentum for older adults. This study explored resident riders’ and trishaw pilots’ lived experience of their participation in the CWA program using a qualitative approach at a long-term care facility in the United States. Researchers conducted 27 face-to-face, semi-structured interviews with riders and pilots. For resident riders, the three themes identified included (a) breath of fresh air; (b) wave, chat, and remember; and (c) sit back and relax. Two themes were identified for the pilots: (a) change in frame of mind, and (b) mental and physical rewards. CWA can be as a new strategy for person-centered care. The CWA program provides nursing an opportunity to advocate, recommend, and obtain an order for residents to participate in the program.


2016 ◽  
Vol 34 (4) ◽  
pp. 848-872 ◽  
Author(s):  
Haneen Elias ◽  
Muhammad M. Haj-Yahia

In the last two decades, there has been a growing understanding that the therapeutic encounter with sex offenders takes a cost and has consequences on therapists. Despite the increasing research on the consequences of treating sex offenders, these studies in fact, have merely described the consequences, without providing an outlook for how therapists cope with them. The study presented in this article was part of a larger qualitative research project conducted among social workers, using in-depth semi-structured interviews. Emphasis is placed on therapists’ perceptions of the intrapersonal and interpersonal consequences they experience from treating sex offenders, as well as the strategies they use to cope with these consequences. The study’s central findings concern the therapists’ perception of the intrapersonal consequences, which included two levels: primary responses and cumulative responses, and their perception of the interpersonal consequences that included their parenting relationships, intimate relationships, their attitude toward others (strangers and acquaintances), loss of their quality of life, and further positive consequences. The findings indicated a sequence and integrated use of the strategies to cope with the consequences. The results are discussed in light of the theoretical framework of Lazarus and Folkman’s stress and coping theory. The limitations of the study as well as its implications for future research are discussed.


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